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Experiences with
Cinchocaine / Prednisolone hexanoate
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The correct way to ween down on hydrocortisone? Advice please.
My last post was when I was just starting on 20mg of hydrocortisone changing from prednisolone and needed advice. Further down the line more advice needed please. On Monday I tested Covid ‘Positive’ I had avoided it since the first day that dreaded name was on everyone’s lips so it was a shock to find
My last post was when I was just starting on 20mg of hydrocortisone changing from prednisolone and needed advice. Further down the line more advice needed please. On Monday I tested Covid ‘Positive’ I had avoided it since the first day that dreaded name was on everyone’s lips so it was a shock to find
Suffolklady
in
PMRGCAuk
7 months ago
Low cortisol
rheumatologist referred me to endocrinologist as Cortisol levels low He booked me in for a synacthen test. Which I had 3 weeks ago. I havnt got an appointment with him till end of August. I contacted his secretary who spoke to him and he said that level was inadequate and to continue with 5 mg of
rheumatologist referred me to endocrinologist as Cortisol levels low He booked me in for a synacthen test. Which I had 3 weeks ago. I havnt got an appointment with him till end of August. I contacted his secretary who spoke to him and he said that level was inadequate and to continue with 5 mg of
Creamtea
in
PMRGCAuk
1 month ago
Not a UTI
Thinking I had picked up a UTI (strange feeling in bladder area and frequent feeling of needing to urinate) I requested a urine test, which was done. The triage nurse at my surgery informed me that although it showed no infection there were in fact microscopic traces of blood in there, (which would be
Thinking I had picked up a UTI (strange feeling in bladder area and frequent feeling of needing to urinate) I requested a urine test, which was done. The triage nurse at my surgery informed me that although it showed no infection there were in fact microscopic traces of blood in there, (which would be
Pusph
in
PMRGCAuk
7 months ago
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On hydrocortisone after being on prednisone for close to 5 years
Anyone else had experience with going on hydrocortisone from prednisone after symptoms of adrenal insufficiency? Endocrinologist saying maybe she can get me off medication when I reach 10 mg.
Anyone else had experience with going on hydrocortisone from prednisone after symptoms of adrenal insufficiency? Endocrinologist saying maybe she can get me off medication when I reach 10 mg.
Dancer98
in
PMRGCAuk
1 month ago
Prednisone and heart disease
A post made by another patient prompted me to do a bit of reading and almost immediately I stumbled upon this: https://evidence.nihr.ac.uk/alert/low-doses-steroids-increase-cardiovascular-risks-in-inflammatory-diseases/ They do state that to lower the risks one should do all the usual (don't smoke,
A post made by another patient prompted me to do a bit of reading and almost immediately I stumbled upon this: https://evidence.nihr.ac.uk/alert/low-doses-steroids-increase-cardiovascular-risks-in-inflammatory-diseases/ They do state that to lower the risks one should do all the usual (don't smoke,
HeronNS
in
PMRGCAuk
1 month ago
scared and ready to give up
I have medicine anxiety, and I’m afraid I’m developing GCA! I can’t take it anymore, after 2 years…I’ve only taken ibuprofen from time to time, I have a high pain threshold, but it’s the severe possibilities I can’t handle! I’m an artist and fear blindness, but my anxiety about meds is freaking me out
I have medicine anxiety, and I’m afraid I’m developing GCA! I can’t take it anymore, after 2 years…I’ve only taken ibuprofen from time to time, I have a high pain threshold, but it’s the severe possibilities I can’t handle! I’m an artist and fear blindness, but my anxiety about meds is freaking me out
GivenUp24
in
PMRGCAuk
1 month ago
Travel and timezones - timing of Prednisone
Hello I checked FAQs. not sure if this topic has been discussed. what is the recommendation for the timing of taking Prednisone when traveling from the US to Europe (7 hour time difference). so for example, if I take Prednisone at 12pm daily in the US., how do I adjust to taking the Prednisone
Hello I checked FAQs. not sure if this topic has been discussed. what is the recommendation for the timing of taking Prednisone when traveling from the US to Europe (7 hour time difference). so for example, if I take Prednisone at 12pm daily in the US., how do I adjust to taking the Prednisone
Italybound62
in
PMRGCAuk
1 month ago
Sweating on Abi, Prednisone and Lupron
Perhaps it is related to the night sweats and my body's inability to control it's temperature while I am on these drugs. Between working out more and these hot summer days I find that I sweat FAR more than I used to. I figure it's another drug side effect but wanted to ask if anyone has the same experience
Perhaps it is related to the night sweats and my body's inability to control it's temperature while I am on these drugs. Between working out more and these hot summer days I find that I sweat FAR more than I used to. I figure it's another drug side effect but wanted to ask if anyone has the same experience
4tunate1
in
Advanced Prostate Cancer
1 month ago
Update on Treatment
In June 2023, a routine PSA test value turned out to be 4.6, did an MRI; Diagnosed with Prostate Cancer, Gleason Score 7 (3+4), biopsy said one core. (Details in my profile). Opted for Active Surveillance. But in Oct 2023, PSA level went to 6.1 and in Jan 2024 PSA went to 9.2 In March 2024, did another
In June 2023, a routine PSA test value turned out to be 4.6, did an MRI; Diagnosed with Prostate Cancer, Gleason Score 7 (3+4), biopsy said one core. (Details in my profile). Opted for Active Surveillance. But in Oct 2023, PSA level went to 6.1 and in Jan 2024 PSA went to 9.2 In March 2024, did another
Sushupthi
in
Advanced Prostate Cancer
1 month ago
First Rheumatology Appointment
I had my first rheumatology appointment today and I think it well unless any of you think otherwise as I wasn’t sure what to expect. I was diagnosed with PMR by GP at the end of June 2023 and successfully tapered from 15mg of Prednisolone to 10mg by the end of August however after three failed attempts
I had my first rheumatology appointment today and I think it well unless any of you think otherwise as I wasn’t sure what to expect. I was diagnosed with PMR by GP at the end of June 2023 and successfully tapered from 15mg of Prednisolone to 10mg by the end of August however after three failed attempts
GreatGranny4
in
PMRGCAuk
7 months ago
Help for PMR relapse?
The new england journal of medicinen engl j med 389;14 nejm.org October 5, 2023 1263 established in 1812 October 5, 2023 vol. 389 no. 14 From the Hospital for Special Surgery, Weill Cornell Medical College, New York (R.F.S.), and Regeneron Pharmaceuti cals, Tarrytown (A.G., M.C.N., B.A., R.B.,
The new england journal of medicinen engl j med 389;14 nejm.org October 5, 2023 1263 established in 1812 October 5, 2023 vol. 389 no. 14 From the Hospital for Special Surgery, Weill Cornell Medical College, New York (R.F.S.), and Regeneron Pharmaceuti cals, Tarrytown (A.G., M.C.N., B.A., R.B.,
Karenjaninaz
in
PMRGCAuk
1 month ago
Cautious Optimism
Update: using very slow reductions of ¼ mg per week while taking 100mg of hydroxychloroquine I was able to stop prednisone on June 15, 2024 after 2 years and 3 months with PMR. I continue to take this low dose of hydroxy intermittently several days a week. So far all is well. It’s a far cry from starting
Update: using very slow reductions of ¼ mg per week while taking 100mg of hydroxychloroquine I was able to stop prednisone on June 15, 2024 after 2 years and 3 months with PMR. I continue to take this low dose of hydroxy intermittently several days a week. So far all is well. It’s a far cry from starting
MikeVanBC
in
PMRGCAuk
1 month ago
GCA flair?
Hello, I have been dealing with GCA for over a year. For the last few months things have been great and I was able to reduce my prednisone, very slowly to 4 1/2 mg a day. I am also on Actemra infusions once a month. This past week, on two occasions I was eating and my jaw made hard cracking sound. I
Hello, I have been dealing with GCA for over a year. For the last few months things have been great and I was able to reduce my prednisone, very slowly to 4 1/2 mg a day. I am also on Actemra infusions once a month. This past week, on two occasions I was eating and my jaw made hard cracking sound. I
Plains
in
PMRGCAuk
1 month ago
Chest infection still! What next?
Hi, just wondering if anyone had any suggestions- I had flu I think, then bacterial chest infection, 1 week amoxicillin and 1 week clarithromycin and prednisolone (asthma had flared up - I’m on fostair and montelukast and had been well managed for 2 years) . Just as I’ve finished the last tablets of
Hi, just wondering if anyone had any suggestions- I had flu I think, then bacterial chest infection, 1 week amoxicillin and 1 week clarithromycin and prednisolone (asthma had flared up - I’m on fostair and montelukast and had been well managed for 2 years) . Just as I’ve finished the last tablets of
Ladypig8
in
Asthma Community Forum
7 months ago
Treatment update-is SBRT missing the lesions ?
PET scan 8/21 following PSA 54.5 showed numerous bone lesions. Zytiga, prednisone, Eligard knocked PSA to <.064 until 1/23 PET showed new small lesion in left hip. Radiation 35 Gray 5/5 completed 3/15/23 with PSA drop then bounce from 0.24 to 5.9 triggered another PET on 9/6/23 which showed a new metastasis
PET scan 8/21 following PSA 54.5 showed numerous bone lesions. Zytiga, prednisone, Eligard knocked PSA to <.064 until 1/23 PET showed new small lesion in left hip. Radiation 35 Gray 5/5 completed 3/15/23 with PSA drop then bounce from 0.24 to 5.9 triggered another PET on 9/6/23 which showed a new metastasis
alperk
in
Advanced Prostate Cancer
1 month ago
PREDNISOLONE and Methotrexate
hi, I’ve been on Pred for 15 months, gradually withdrawing. I got down to 3 mg and no further - a huge flair up. My rheumatologist has now suggested I take Methotrexate 20mg once a week, as well as increase Prednisolone to 10mg. Is anyone else on both these meds at the same time ? Has the Methotrexate
hi, I’ve been on Pred for 15 months, gradually withdrawing. I got down to 3 mg and no further - a huge flair up. My rheumatologist has now suggested I take Methotrexate 20mg once a week, as well as increase Prednisolone to 10mg. Is anyone else on both these meds at the same time ? Has the Methotrexate
JojoBorder
in
PMRGCAuk
7 months ago
prednisone reduction advice.
DL. Could you send me a link to the reduction guide. I have managed to reduce gradually from 15mg to 10mg with no ill effects. I’m a little unsure how long I should stay with this level.
DL. Could you send me a link to the reduction guide. I have managed to reduce gradually from 15mg to 10mg with no ill effects. I’m a little unsure how long I should stay with this level.
Tamla1964
in
PMRGCAuk
1 month ago
prednisone reduction advice.
DL. Could you send me a link to the reduction guide. I have managed to reduce gradually from 15mg to 10mg with no ill effects. I’m a little unsure how long I should stay with this level.
DL. Could you send me a link to the reduction guide. I have managed to reduce gradually from 15mg to 10mg with no ill effects. I’m a little unsure how long I should stay with this level.
Tamla1964
in
PMRGCAuk
1 month ago
MTX addition. Too early?
New to group. Thanks in advance to all trying to educate. Diagnosed withPMR with GCA components. 18 weeks on Prednisone. Starting at 15mg weaned to 10 mg within 9 weeks. Tried to go to 7.5 but Headache symptoms returned . Resolved going back to 10 mg. After another 3 weeks attempted to alternate 10
New to group. Thanks in advance to all trying to educate. Diagnosed withPMR with GCA components. 18 weeks on Prednisone. Starting at 15mg weaned to 10 mg within 9 weeks. Tried to go to 7.5 but Headache symptoms returned . Resolved going back to 10 mg. After another 3 weeks attempted to alternate 10
THClover
in
PMRGCAuk
1 month ago
GCA Neck pain
I was diagnosed with GCA in October 2022. Started on 60mg of Prednisolone & titrated down now 3mg. Have a great GP with whom I have a telephone appointment every 2weeks. Many, many side effects from the steroids, too many to list but now my main ones are severe pain in neck & exhaustion. I feel quite
I was diagnosed with GCA in October 2022. Started on 60mg of Prednisolone & titrated down now 3mg. Have a great GP with whom I have a telephone appointment every 2weeks. Many, many side effects from the steroids, too many to list but now my main ones are severe pain in neck & exhaustion. I feel quite
DHEH
in
PMRGCAuk
7 months ago
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