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2 Lung Diseases and falling apart
Hello my name is Annie. I joined yesterday but gave up as when writing about my condition it allowed me to put Pulmonary Fibrosis, not my main lung disease hypersensitivity pneumonitis why is this? Also not sure which help site I belong to as a result of my lungs I have had Chronic Heart Failure 2
Hello my name is Annie. I joined yesterday but gave up as when writing about my condition it allowed me to put Pulmonary Fibrosis, not my main lung disease hypersensitivity pneumonitis why is this? Also not sure which help site I belong to as a result of my lungs I have had Chronic Heart Failure 2
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in
Lung Conditions Community Forum
4 years ago
CLL Society Dr. Koffman's ASCO 2020 "Top 12" Picks #s 12, 11, 10
Dr. Koffman’s ASCO 2020 “Top 12” Picks The 2020 Annual Meeting of the American Society of Clinical Oncology (ASCO) was held virtually in May. While ASCO remains more focused on the latest research in solid tumors, there were several worthwhile abstracts related to CLL. Dr. Koffman takes us through his
Dr. Koffman’s ASCO 2020 “Top 12” Picks The 2020 Annual Meeting of the American Society of Clinical Oncology (ASCO) was held virtually in May. While ASCO remains more focused on the latest research in solid tumors, there were several worthwhile abstracts related to CLL. Dr. Koffman takes us through his
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
I should have asked questions
Hi everyone, Only me 2nd day on here so please bare with me as I get used to all the abbreviations. I’m on my 1st icsi cycle - transferred on day 5 and started spotting on Saturday on and off but very light - however I feel like today AF has arrived... still not heavy but bright red and all normal
Hi everyone, Only me 2nd day on here so please bare with me as I get used to all the abbreviations. I’m on my 1st icsi cycle - transferred on day 5 and started spotting on Saturday on and off but very light - however I feel like today AF has arrived... still not heavy but bright red and all normal
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Fertility Network UK
4 years ago
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CLL/SLL Roundtable: Updates on Patient Management (including low dose radiation treatment for early stage SLL)
Joshua Brody, MD, Richard Bakst, MD, and Amir Steinberg, MD, of the Icahn School of Medicine at Mount Sinai, New York City, discuss updates on the management of patients with small lymphocytic lymphoma (SLL) and chronic lymphocytic leukemia (CLL). The conversation includes discussion on radiation therapy
Joshua Brody, MD, Richard Bakst, MD, and Amir Steinberg, MD, of the Icahn School of Medicine at Mount Sinai, New York City, discuss updates on the management of patients with small lymphocytic lymphoma (SLL) and chronic lymphocytic leukemia (CLL). The conversation includes discussion on radiation therapy
AussieNeil
Partner
in
CLL Support
4 years ago
Still bleeding 😢
After my positive test last week I have continued to spot (And worry/panic) since then. Over the weekend it turned heavier just like with my last chemical/miscarriage in Feb. I phoned the clinic This morning and had a blood test where HCG is over 19k so they want to repeat on Wednesday and do a scan
After my positive test last week I have continued to spot (And worry/panic) since then. Over the weekend it turned heavier just like with my last chemical/miscarriage in Feb. I phoned the clinic This morning and had a blood test where HCG is over 19k so they want to repeat on Wednesday and do a scan
Twiglet2
in
Fertility Network UK
4 years ago
Hcg trigger before transfer
Hi guys...am out for my transfer on 27th..ya only 2 dats left!!.. doctor hav suggested a hcg trigger before transfer..for more successful implantation...has anyone on dis platform took dis injection before transfer?? ...please share ur experience
Hi guys...am out for my transfer on 27th..ya only 2 dats left!!.. doctor hav suggested a hcg trigger before transfer..for more successful implantation...has anyone on dis platform took dis injection before transfer?? ...please share ur experience
Twobaby
in
Fertility Network UK
4 years ago
lady gaga has fibro
I see that lady gaga has fibro. I wonder if she has checked all her thyroid panel properly. I suppose with her money that she can afford to do that. My cousin had fibro and died of diabetes and heart failure. I always wonder if the fibro was the cause of it. https://www.medpagetoday.com/blogs/celebritydiagnosis
I see that lady gaga has fibro. I wonder if she has checked all her thyroid panel properly. I suppose with her money that she can afford to do that. My cousin had fibro and died of diabetes and heart failure. I always wonder if the fibro was the cause of it. https://www.medpagetoday.com/blogs/celebritydiagnosis
selftreatendo
in
Thyroid UK
4 years ago
W&W CLL Patient in Need of Advice
CLL patient for 4 years with 22 wbc and on w&w I visited my Oncologist last Tuesday and explained that I am experiencing a continuous high level of body pain hoping that I would receive something other than take some Advil. Not sure if they understand that this is a daily pain and I cannot be expected
CLL patient for 4 years with 22 wbc and on w&w I visited my Oncologist last Tuesday and explained that I am experiencing a continuous high level of body pain hoping that I would receive something other than take some Advil. Not sure if they understand that this is a daily pain and I cannot be expected
Hidden
in
CLL Support
4 years ago
Bendamustine with rituximab
my husband was diagnosed with CLL and will be starting on the above agents over the next 6 months. Anyone has experienced the same treatment before?
my husband was diagnosed with CLL and will be starting on the above agents over the next 6 months. Anyone has experienced the same treatment before?
gohmei
in
CLL Support
4 years ago
Triplet Regimen Shows Promise in CLL -Zanubrutinib, obinutuzumab, & venetoclax combo achieves rapid undetectable MRD -MedPageToday -07/07/20
Treatment triple-header news from the MedPage Today. From the article: [i]At the American Society of Clinical Oncology virtual meeting, initial findings from a phase II study were reported on minimum residual disease (MRD)-driven, time-limited therapy with a regimen known as BOVen (zanubrutinib, obinutuzumab
Treatment triple-header news from the MedPage Today. From the article: [i]At the American Society of Clinical Oncology virtual meeting, initial findings from a phase II study were reported on minimum residual disease (MRD)-driven, time-limited therapy with a regimen known as BOVen (zanubrutinib, obinutuzumab
cujoe
in
CLL Support
4 years ago
5 weeks pregnant and dark brown/black spotting
5 weeks pregnant with good hcg number but I am having very dark brown spotting for 4 days now on an off. No pink, red, or rust just black/brown with coffee ground consistency. Starting to worry as it has been multiple days but no pain or cramping. Has anyone else experienced this? What was the outcome
5 weeks pregnant with good hcg number but I am having very dark brown spotting for 4 days now on an off. No pink, red, or rust just black/brown with coffee ground consistency. Starting to worry as it has been multiple days but no pain or cramping. Has anyone else experienced this? What was the outcome
jasminelmm
in
Pregnancy and Parenting Support
4 years ago
Pitting Edema from heart failure?
I saw the infectious disease specialist today for my cellulitis. He said that the pitting edema on both my legs is not from the cellulitis. He said it's either from liver, kidney or heart. Last week my cardiologist changed my heart med from cardizem to verapamil because he thought the edema might be
I saw the infectious disease specialist today for my cellulitis. He said that the pitting edema on both my legs is not from the cellulitis. He said it's either from liver, kidney or heart. Last week my cardiologist changed my heart med from cardizem to verapamil because he thought the edema might be
DesertDeuces
in
AF Association
4 years ago
Starting T3 meds for high rT3 soon, help?
I haven't been on the forum long, but have gained so much knowledge in the last few weeks leading up to my physical with my primary and a phone consultation with my TRT doctor. In order to keep this post brief (long story short), I drew routine labs for my physical along with a full thyroid and hormone
I haven't been on the forum long, but have gained so much knowledge in the last few weeks leading up to my physical with my primary and a phone consultation with my TRT doctor. In order to keep this post brief (long story short), I drew routine labs for my physical along with a full thyroid and hormone
dell500
in
Thyroid UK
4 years ago
Stepped up again
I saw the asthma nurse at my surgery today...apparently I wasn’t supposed to have been seen in person but they’d confused the process and booked me in. Anyhow, I saw her cos my asthma isn’t great at the moment and I’m already on highest doses of my meds& tablets to go with. What was helpful was that
I saw the asthma nurse at my surgery today...apparently I wasn’t supposed to have been seen in person but they’d confused the process and booked me in. Anyhow, I saw her cos my asthma isn’t great at the moment and I’m already on highest doses of my meds& tablets to go with. What was helpful was that
madonbrew
in
Lung Conditions Community Forum
4 years ago
Normal CBC abnormal flow test
I had two months of abnormal CB results, and the flow study also abnormal. I was diagnosed with possible CLL. I then had a CBC done yesterday after three months and everything in the CBC is normal. Do I now not have a Blood cancer? Is it a miracle or does this happen sometimes? I have had no treatment
I had two months of abnormal CB results, and the flow study also abnormal. I was diagnosed with possible CLL. I then had a CBC done yesterday after three months and everything in the CBC is normal. Do I now not have a Blood cancer? Is it a miracle or does this happen sometimes? I have had no treatment
gustave
in
CLL Support
4 years ago
Beta HCG of 75 at 10dp5dt FET
Hi ladies, so I got my BFP from this round (FET) but my HCG levels are really low at 75 😔. Clinic seem pleased with them as above 25, I’m retesting on Monday to check for doubling 🤞🏻But I’m just so disappointed with the number. I’ve also been experiencing a lot of cramping since about 5dp5dt which
Hi ladies, so I got my BFP from this round (FET) but my HCG levels are really low at 75 😔. Clinic seem pleased with them as above 25, I’m retesting on Monday to check for doubling 🤞🏻But I’m just so disappointed with the number. I’ve also been experiencing a lot of cramping since about 5dp5dt which
Chloettc2020
in
Fertility Network UK
4 years ago
5w1d loss of symptoms
Through some miracle of science we got pregnant this round (4th IVF) I attribute it to no PGS. My HCG levels doubled every 48 hours (last level yesterday) and starting last night I lost all my symptoms. No nausea, no twinging, breasts feel less full and tender. AM I GOING CRAZY? Has this happened to
Through some miracle of science we got pregnant this round (4th IVF) I attribute it to no PGS. My HCG levels doubled every 48 hours (last level yesterday) and starting last night I lost all my symptoms. No nausea, no twinging, breasts feel less full and tender. AM I GOING CRAZY? Has this happened to
Abcdefghijklmnopqq
in
Fertility Network UK
4 years ago
Fatigue with CLL
Hello I was diagnosed cll on January 2019 cll stage 0, my wbc was 30, on June 2020 is 49 no symptoms except my gamma globulin is slightly lower than normal. I am still on w/w, but i feel all time tired and I cannot work on morning, I start only at 14h. Also I am anxious, I think all time about my cll
Hello I was diagnosed cll on January 2019 cll stage 0, my wbc was 30, on June 2020 is 49 no symptoms except my gamma globulin is slightly lower than normal. I am still on w/w, but i feel all time tired and I cannot work on morning, I start only at 14h. Also I am anxious, I think all time about my cll
Hicham
in
CLL Support
4 years ago
Intralipid infusion twice before FET
Hi ladies. I am back again aiming for my 4th FET... My 3rd FET turned from BFP to BFN due to low HCG. For my 3rd FET we got intralipid infusion done and used Embryo glue which we dint try for the first 2 FETs. Now my doctor believes intralipid did have a big influence on BFP so he is suggesting 2 times
Hi ladies. I am back again aiming for my 4th FET... My 3rd FET turned from BFP to BFN due to low HCG. For my 3rd FET we got intralipid infusion done and used Embryo glue which we dint try for the first 2 FETs. Now my doctor believes intralipid did have a big influence on BFP so he is suggesting 2 times
Frida06
in
Fertility Network UK
4 years ago
Report from CLL Webinar: Prof Hillmen, 10th June 2020
I attended a webinar hosted by the CLL Support Association and Leukaemia Care. Thanks to everyone responsible for organising the event, I found it most informative. The guest keynote speaker was Prof. Peter Hillmen, Consultant in Clinical Haematology at Leeds Teaching Hospitals NHS Trust and Honorary
I attended a webinar hosted by the CLL Support Association and Leukaemia Care. Thanks to everyone responsible for organising the event, I found it most informative. The guest keynote speaker was Prof. Peter Hillmen, Consultant in Clinical Haematology at Leeds Teaching Hospitals NHS Trust and Honorary
Davdow
in
CLL Support
4 years ago
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