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Deleted post with link to AF outcomes
I just wrote a reply to a now deleted post that linked to an external site giving a review of AF and its long-term outcomes. It was from a company called "Medtronic", a maker of medical equipment and other materials. The web page it linked looked like it was a PowerPoint presentation aimed at health
I just wrote a reply to a now deleted post that linked to an external site giving a review of AF and its long-term outcomes. It was from a company called "Medtronic", a maker of medical equipment and other materials. The web page it linked looked like it was a PowerPoint presentation aimed at health
Ppiman
in
Atrial Fibrillation Support
6 months ago
The use of thyroid hormone liothyronine in patients with heart failure - Another Pearce-linked Trial
Fascinating seeing these words in the context of a medical trial: [i]
The use of thyroid hormone liothyronine in patients with heart failure
[/i] [i]Liothyronine (T3) is a safe tablet and has few side effects because it is a synthetic version of triiodothyronine, a naturally occurring hormone
Fascinating seeing these words in the context of a medical trial: [i]
The use of thyroid hormone liothyronine in patients with heart failure
[/i] [i]Liothyronine (T3) is a safe tablet and has few side effects because it is a synthetic version of triiodothyronine, a naturally occurring hormone
helvella
Thyroid UK
in
Thyroid UK
6 months ago
Severe Dilated Cardiomyopathy with heart failure - and now AF - anyone else out there like me?
I have severe dilated cardiomyopathy and heart failure but had been doing well despite the inner chaos. I played tennis 5 times a week, kicked a football with my children, took long walks, and was able to run up the stairs to my flat. After the metapneumovirus triggered AF 6 weeks ago I stopped being
I have severe dilated cardiomyopathy and heart failure but had been doing well despite the inner chaos. I played tennis 5 times a week, kicked a football with my children, took long walks, and was able to run up the stairs to my flat. After the metapneumovirus triggered AF 6 weeks ago I stopped being
Jishuang44
in
AF Association
6 months ago
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Palpatations
I attended emergency dept on sunday with palpitations i had all night . But while i was there they stopped . Lots of blood tests but 1 raised a bit ? Heart failure . Ecg showed ectopic beats. Doctor reassured me x said wouldnt change medication bisoprolol 5 mgms twice aday x edoxaban once aday .
I attended emergency dept on sunday with palpitations i had all night . But while i was there they stopped . Lots of blood tests but 1 raised a bit ? Heart failure . Ecg showed ectopic beats. Doctor reassured me x said wouldnt change medication bisoprolol 5 mgms twice aday x edoxaban once aday .
Sawny15
in
AF Association
6 months ago
Why I stopped metoprolol
Quick summary: I’ve had one ablation, for A-fib, August 2022. All was well A-flutter began in August 2023. I’ve had five cardioversions since then, lasting from three weeks to three days. I am now in A-flutter awaiting an ablation on February 6. Success rate statistically is around 95%. Fingers crossed
Quick summary: I’ve had one ablation, for A-fib, August 2022. All was well A-flutter began in August 2023. I’ve had five cardioversions since then, lasting from three weeks to three days. I am now in A-flutter awaiting an ablation on February 6. Success rate statistically is around 95%. Fingers crossed
Sweetmelody
in
Atrial Fibrillation Support
7 months ago
I don't know what to do!!
Here is my situation. I have Atrial Tachycardia/SVT. I had a 14 day Holter that showed a 20% average burden of Supra ventricular Ectopy. I had an 11% burden of SVT. I had, on average, 20-30,000 ectopic beats every day, and 6-700 runs of SVT per day. Most of my episodes occur at night. From 10pm
Here is my situation. I have Atrial Tachycardia/SVT. I had a 14 day Holter that showed a 20% average burden of Supra ventricular Ectopy. I had an 11% burden of SVT. I had, on average, 20-30,000 ectopic beats every day, and 6-700 runs of SVT per day. Most of my episodes occur at night. From 10pm
MeganMN
in
AF Association
7 months ago
Interesting article about Heart Failure and Thyroid Replacement…
Thyroid Replacement Therapy and Heart Failure Anthony Martin Gerdes and Giorgio Iervasi Originally published27 Jul 2010https://doi.org/10.1161/CIRCULATIONAHA.109.917922Circulation. 2010;122:385–393 Heart failure (HF) is a major public health and economic problem in Western countries and is one of
Thyroid Replacement Therapy and Heart Failure Anthony Martin Gerdes and Giorgio Iervasi Originally published27 Jul 2010https://doi.org/10.1161/CIRCULATIONAHA.109.917922Circulation. 2010;122:385–393 Heart failure (HF) is a major public health and economic problem in Western countries and is one of
Batty1
in
Thyroid UK
7 months ago
Heart Failure
Hi 👋 everyoneHappy New Year 🥂 I had a blood test after having chest infection repeatedly. The nurse called me , she said you have heart failure. Surprised they knew through blood. I'm on 3 heart tabs, fluid I'm my lungs is better. I'm not as breathless. Only took them 4 years to realise what is
Hi 👋 everyoneHappy New Year 🥂 I had a blood test after having chest infection repeatedly. The nurse called me , she said you have heart failure. Surprised they knew through blood. I'm on 3 heart tabs, fluid I'm my lungs is better. I'm not as breathless. Only took them 4 years to realise what is
Kristi74
in
Anxiety Support
7 months ago
Allograft
Just wanted to know if anyone knew anything about Allograft. My husband has just finished 2 yrs on ventaclax, all blood's good, and we expected to just go away and go back for blood's until maybe time for a different treatment, but was told they would like us to have a chat to a specialist about allograft
Just wanted to know if anyone knew anything about Allograft. My husband has just finished 2 yrs on ventaclax, all blood's good, and we expected to just go away and go back for blood's until maybe time for a different treatment, but was told they would like us to have a chat to a specialist about allograft
sue6741
in
CLL Support
3 days ago
Median PFS for FCR treated CLL patients with IGHV-M was 14.6 years vs 4.2 years for patients with IGHV-UM. V+O and I+R look to be superior
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
AussieNeil
Partner
in
CLL Support
11 days ago
Not officially diagnosed...in watch and wait
As the title says, I'm in the WW stage. I saw a hematologist 5 years ago about my lymphocytosis and he felt he could not give a definitive diagnosis. In March this year, I had some stomach issues and bloodwork (above). A peripheral blood smear was done. Below are the notes: There is mild leukocytosis
As the title says, I'm in the WW stage. I saw a hematologist 5 years ago about my lymphocytosis and he felt he could not give a definitive diagnosis. In March this year, I had some stomach issues and bloodwork (above). A peripheral blood smear was done. Below are the notes: There is mild leukocytosis
Purplecat1919
in
CLL Support
20 days ago
root canals
hi all , I have been on the W and W program. My blood dis-order was discovered in 2019. I referred to it as a blood disorder as they still haven’t taken a bone marrow sample to confirm that it’s truly CLL. I am curious if anyone in the group has tried removing any old root canals to see if it
hi all , I have been on the W and W program. My blood dis-order was discovered in 2019. I referred to it as a blood disorder as they still haven’t taken a bone marrow sample to confirm that it’s truly CLL. I am curious if anyone in the group has tried removing any old root canals to see if it
Jrugg
in
CLL Support
24 days ago
Puzzled
Hi folks! Hope we're all travelling well. Can I tap into your collective wisdom and experience? I've just come back from my regular check up with the CLL specialist. My ALC has gone from 29 to 53 in 6 months, or 91% of the blood count. Before then, it was steadily rising, but dropping at intervals. The
Hi folks! Hope we're all travelling well. Can I tap into your collective wisdom and experience? I've just come back from my regular check up with the CLL specialist. My ALC has gone from 29 to 53 in 6 months, or 91% of the blood count. Before then, it was steadily rising, but dropping at intervals. The
Guffy
in
CLL Support
27 days ago
Re-inoculate?
Hello you wonderful and oh-so-knowledgeable folks! This is a good-news story. After 11 months on a zanu-obin-venetoclax trial I've been in remission for 3 years. AND a lymphocyte subset test suggests that my B cells are coming back! Now here's my question: while I was on treatment and in the past
Hello you wonderful and oh-so-knowledgeable folks! This is a good-news story. After 11 months on a zanu-obin-venetoclax trial I've been in remission for 3 years. AND a lymphocyte subset test suggests that my B cells are coming back! Now here's my question: while I was on treatment and in the past
mouseandchair
in
CLL Support
1 month ago
CLL/CML treatment update
Hi All, Thank you for your passed and continuing help and support. Been taking dasatsnib since 2018 or 2019; with 1 incidence of Pleural effusion/thoracenticis, etc., in 2021. —that’s when I switched to Dr Cortes. zwent from 100mg to 20. For last 2-3 years. Dx’d in 2014. I have CLL and CML simultaneously
Hi All, Thank you for your passed and continuing help and support. Been taking dasatsnib since 2018 or 2019; with 1 incidence of Pleural effusion/thoracenticis, etc., in 2021. —that’s when I switched to Dr Cortes. zwent from 100mg to 20. For last 2-3 years. Dx’d in 2014. I have CLL and CML simultaneously
tedrog
in
CLL Support
1 month ago
Importance of CLL Specialist
This excellent study was just published. Why should you get a CLL specialist? My community oncologist gave me a fish and a flow test and told me that I wouldn’t need treatment for 3-5 years. He didn’t test for IGVH and didn’t know that there is a specific TP53 test. My CLL specialist tested for 500 mutations
This excellent study was just published. Why should you get a CLL specialist? My community oncologist gave me a fish and a flow test and told me that I wouldn’t need treatment for 3-5 years. He didn’t test for IGVH and didn’t know that there is a specific TP53 test. My CLL specialist tested for 500 mutations
PennyLane2024
in
CLL Support
1 month ago
Complete Remission
My Complete Blood Count (CBC) results state the normal range for Lymphocytes is 850-3900 cells/uL. The NCCN CLL guidelines for Complete Remission (CR) states Lymphocytes must be less than 5000 cells/uL. Why is 5000 cells/uL an acceptable NCCN CLL CR level for Lymphocytes when the maximum for the Complete
My Complete Blood Count (CBC) results state the normal range for Lymphocytes is 850-3900 cells/uL. The NCCN CLL guidelines for Complete Remission (CR) states Lymphocytes must be less than 5000 cells/uL. Why is 5000 cells/uL an acceptable NCCN CLL CR level for Lymphocytes when the maximum for the Complete
leftysfsl1945
in
CLL Support
1 month ago
Just 5% of therapies tested in animals end up as as human drugs, new study shows. CLL research has particular challenges due to the TME
There's a long and challenging journey from microscope observations of cancer cells hopefully dying while exposed to candidate therapies, that is, 'in vitro' testing, to successful in vivo human studies, clinical trials and eventual approval. Not only does the therapy need to kill the cancer cells with
There's a long and challenging journey from microscope observations of cancer cells hopefully dying while exposed to candidate therapies, that is, 'in vitro' testing, to successful in vivo human studies, clinical trials and eventual approval. Not only does the therapy need to kill the cancer cells with
AussieNeil
Partner
in
CLL Support
1 month ago
Leukemia-associated macrophages, their role in the CLL Tumor Micro-environment and how they affect progression and therapy response
Understanding how the CLL Tumor Micro-environment (TME) functions is crucial to improving CLL therapy. CLL cells are not as robust as healthy B cells and they rely on their created TME in the nodes and bone marrow for their survival. That's why it's so easy to kill CLL cells with in vitro testing - checking
Understanding how the CLL Tumor Micro-environment (TME) functions is crucial to improving CLL therapy. CLL cells are not as robust as healthy B cells and they rely on their created TME in the nodes and bone marrow for their survival. That's why it's so easy to kill CLL cells with in vitro testing - checking
AussieNeil
Partner
in
CLL Support
1 month ago
lymphocytic leucocytosis
I have CLL diagnosed a year ago, just had my bloods done last week, the results have come back with lymphocytic leucocytosis does anyone know if this is a bad thing not heard if this before. Donnax
I have CLL diagnosed a year ago, just had my bloods done last week, the results have come back with lymphocytic leucocytosis does anyone know if this is a bad thing not heard if this before. Donnax
PusscatsGoodies
in
CLL Support
2 months ago
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