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A brief introduction
Hi All I am fairly new to this forum but I find it extremely useful and the participants very knowledgeable. I am a 62 year-old Caucasian woman. I live in Harrow, UK. I have long-standing persistent AFIB and congestive heart failure. I take a lot of medications for both my conditions . I have already
Hi All I am fairly new to this forum but I find it extremely useful and the participants very knowledgeable. I am a 62 year-old Caucasian woman. I live in Harrow, UK. I have long-standing persistent AFIB and congestive heart failure. I take a lot of medications for both my conditions . I have already
Csingicsong
in
Atrial Fibrillation Support
2 years ago
bit lost
Hi folks, This is all a bit alien to me. My wife and I have been on the ivf journey since 2019. It looks like we’ve reached an unhappy ending and I’m rubbish at actually talking to people so I thought writing something on here might help (fully aware this will seem self-centred and attention seeking
Hi folks, This is all a bit alien to me. My wife and I have been on the ivf journey since 2019. It looks like we’ve reached an unhappy ending and I’m rubbish at actually talking to people so I thought writing something on here might help (fully aware this will seem self-centred and attention seeking
pdm21
in
Fertility Network UK
2 years ago
HCG 94 at 14dp5dt -low rising
Hi Looking for some advice … I finally got a BFP 9dp5dt after 3 yrs (3AB embryo)!! However the excitement was short lived when my HCG came back 35 at 10dp5dt, having done repeat bloods, it’s increasing but slowly: 53 at 12dp5dt, 94 at 14dp5dt. My doc wants me to continue testing for the foreseeable
Hi Looking for some advice … I finally got a BFP 9dp5dt after 3 yrs (3AB embryo)!! However the excitement was short lived when my HCG came back 35 at 10dp5dt, having done repeat bloods, it’s increasing but slowly: 53 at 12dp5dt, 94 at 14dp5dt. My doc wants me to continue testing for the foreseeable
Kit12345
in
Fertility Network UK
2 years ago
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UK Patients: Can you help with your opinion about treatment options. Have you received Ibrutinib + Venetoclax as your first treatment?
Can you help us to provide evidence of the patient experience of treatments in CLL and specifically, of this treatment for a UK NICE technology appraisal in the near future. CLL Support and working with Leukaemia Care and Lymphoma Action to support this treatment as an option for CLL patients. The first
Can you help us to provide evidence of the patient experience of treatments in CLL and specifically, of this treatment for a UK NICE technology appraisal in the near future. CLL Support and working with Leukaemia Care and Lymphoma Action to support this treatment as an option for CLL patients. The first
Jm954
Administrator
in
CLL Support
2 years ago
Canadian Access to COVID-19 Treatments for Persons Living with CLL
Each province and territory in Canada has its own set of rules and procedures to access treatments for COVID 19, both preventative treatments (Evusheld) and post exposure treatments (Paxlovid, Remdisivir, etc.) . CLL Canada has prepared a document which describes the treatments available and how to
Each province and territory in Canada has its own set of rules and procedures to access treatments for COVID 19, both preventative treatments (Evusheld) and post exposure treatments (Paxlovid, Remdisivir, etc.) . CLL Canada has prepared a document which describes the treatments available and how to
CLL_Canada_Group
in
CLL Support
2 years ago
Possible causes that could have triggered my CLL
I'm trying to figure out what was the cause for my CLL.
It's not a sort of
[i]why me? [/i]
Or
[i]what I did wrong?[/i]
It's just a kind of scientific exploration around the possible causes of this mysterious disease, a research of confirmation from you guys, who
I'm trying to figure out what was the cause for my CLL.
It's not a sort of
[i]why me? [/i]
Or
[i]what I did wrong?[/i]
It's just a kind of scientific exploration around the possible causes of this mysterious disease, a research of confirmation from you guys, who
Nikotati
in
CLL Support
2 years ago
Scared to test
Hi all I am in my two week wait and have a beta HCG blood test booked for Wednesday,so we should get the results Thursday. When I read posts on here most people are struggling to not test early,but I am just so scared of testing to get that negative news again, or worse get my hopes up, to find
Hi all I am in my two week wait and have a beta HCG blood test booked for Wednesday,so we should get the results Thursday. When I read posts on here most people are struggling to not test early,but I am just so scared of testing to get that negative news again, or worse get my hopes up, to find
Yellow611
in
Fertility Network UK
2 years ago
High HCG at 4 weeks (11dp5dt)... cause for concern?
Hey I wish I could just enjoy this moment but Doctor Google has terrified me again! Had my first HCG test at 9dp5dt and was delighted with 301 (especially after our chemical earlier this year ). Today's has come back as 816 so has more than doubled in 48 hours and seems very high for 4 weeks when
Hey I wish I could just enjoy this moment but Doctor Google has terrified me again! Had my first HCG test at 9dp5dt and was delighted with 301 (especially after our chemical earlier this year ). Today's has come back as 816 so has more than doubled in 48 hours and seems very high for 4 weeks when
Sarascottxox
in
Fertility Network UK
2 years ago
Looking for realistic opinions. Another miscarriage? High HCG, No Embryo or yolk sac
Hi all, I hope any of you smart people may be able to give me an opinion on my current situation. After a FET (7th of july) with a 3BB embryo i got a positive with a high beta of 679 mui / l on 11 DPT. 1777 13 DPT, 14.497 18 DPT, and today being 5 weeks and 6 days i went for my first ultrasound before
Hi all, I hope any of you smart people may be able to give me an opinion on my current situation. After a FET (7th of july) with a 3BB embryo i got a positive with a high beta of 679 mui / l on 11 DPT. 1777 13 DPT, 14.497 18 DPT, and today being 5 weeks and 6 days i went for my first ultrasound before
Sancor
in
Fertility Network UK
2 years ago
5 + 5 with high hcg - no fetal pole
just an update as I know I’ve been posting quite a bit so a few people are following for the outcome. I just had a scan at the EPU & they seen a sac & yolk but no fetal pole. I know this can be normal but I thought with a hcg level at 18dp5dt was 9083 & I thought the baby would have been visable. I have
just an update as I know I’ve been posting quite a bit so a few people are following for the outcome. I just had a scan at the EPU & they seen a sac & yolk but no fetal pole. I know this can be normal but I thought with a hcg level at 18dp5dt was 9083 & I thought the baby would have been visable. I have
Greencook
in
Fertility Network UK
2 years ago
Natural FET today - anxiety after losses
Hey everyone, Just need to get my anxiety out, I think. I’m going for a FET today at 2:30pm (natural cycle - no meds) and I’m so nervous. We lost our daughter to premature labour in September 2020. She was naturally conceived and was our 3rd natural pregnancy (one living child). After losing her we
Hey everyone, Just need to get my anxiety out, I think. I’m going for a FET today at 2:30pm (natural cycle - no meds) and I’m so nervous. We lost our daughter to premature labour in September 2020. She was naturally conceived and was our 3rd natural pregnancy (one living child). After losing her we
Nightingale92
in
Fertility Network UK
2 years ago
The battles we fight
The incurable disease CLL, silently creeps into our bodies, and gently starts launching an attack on the bone marrow. Wait and watch says the doctor, we can challenge it, with medications we can treat it. We wait until CLL has full control of the bone marrow and started presenting what the doctors call
The incurable disease CLL, silently creeps into our bodies, and gently starts launching an attack on the bone marrow. Wait and watch says the doctor, we can challenge it, with medications we can treat it. We wait until CLL has full control of the bone marrow and started presenting what the doctors call
AmCLL
in
CLL Support
2 years ago
Heart Failure Question
Hello I am looking for some perspective I think. My husband was not treated for his AF and high heart rate for four weeks until I managed to get him to ignore the GP and go to A& E, He was diagnosed with heart failure (35%) and is now on 8 different drugs. He had a follow up procedure booked (cardioversion
Hello I am looking for some perspective I think. My husband was not treated for his AF and high heart rate for four weeks until I managed to get him to ignore the GP and go to A& E, He was diagnosed with heart failure (35%) and is now on 8 different drugs. He had a follow up procedure booked (cardioversion
Debfro34
in
AF Association
2 years ago
Heavy Gush of blood 5 weeks 3 days pregnant - TMI PICTURE
feel like I haven’t even had chance to get excited yet. Had spotting for 3 days brown blood then this afternoon felt a gush of blood. My hcg levels yesterday was 9058 so I really don’t understand 😖 clinic referred me to a&e because of my history. Anyone bleed heavily & ended up being ok ?
feel like I haven’t even had chance to get excited yet. Had spotting for 3 days brown blood then this afternoon felt a gush of blood. My hcg levels yesterday was 9058 so I really don’t understand 😖 clinic referred me to a&e because of my history. Anyone bleed heavily & ended up being ok ?
Greencook
in
Fertility Network UK - Pregnancy Support
2 years ago
Your thoughts pls!
Hi lovelies, We have been on this IVF journey for some time now and this year I am 42 and diagnosed with low quality eggs. After a year of egg batching and embryo freezing, few months ago we had our first FET with a 5 day embryo PGS tested which resulted with BFN. Out of those cycles we still have one
Hi lovelies, We have been on this IVF journey for some time now and this year I am 42 and diagnosed with low quality eggs. After a year of egg batching and embryo freezing, few months ago we had our first FET with a 5 day embryo PGS tested which resulted with BFN. Out of those cycles we still have one
ValaI
in
Fertility Network UK
2 years ago
Help - Any similar stories and outcomes? 💔 Possible FAILING /NON VIABLE pregnancy!
I’m really reaching out to anyone whom may have experienced something similar. I had a FET on the 14th of June found out we were pregnant on the 22nd and lines continued to get stronger and stronger. I started having strong cramps and back pain around 4weeks 3 days this carried on for around 3 days so
I’m really reaching out to anyone whom may have experienced something similar. I had a FET on the 14th of June found out we were pregnant on the 22nd and lines continued to get stronger and stronger. I started having strong cramps and back pain around 4weeks 3 days this carried on for around 3 days so
Hidden
in
Fertility Network UK
2 years ago
Richter's Transformation - Update 11-05-2022
Richter's Transformation Hello partners. I want to update the status of the Richter transform group. Three weeks ago my hematologist told me that after insisting so much that all Richter's cases be shared between doctors, it has finally been achieved. He told me that they had managed to collect 52 cases
Richter's Transformation Hello partners. I want to update the status of the Richter transform group. Three weeks ago my hematologist told me that after insisting so much that all Richter's cases be shared between doctors, it has finally been achieved. He told me that they had managed to collect 52 cases
Priss69
in
CLL Support
2 years ago
OTD today and so confused
I stupidly tested early on 8dp5db and again on day 9 and 10. All 3 tests showed faint positive lines using the cheap strip tests. This morning for OTD I used a fresh new clear blue test and it showed negative but with no control line, so I'm assuming it was a dud test. Since then I've done 2 of the
I stupidly tested early on 8dp5db and again on day 9 and 10. All 3 tests showed faint positive lines using the cheap strip tests. This morning for OTD I used a fresh new clear blue test and it showed negative but with no control line, so I'm assuming it was a dud test. Since then I've done 2 of the
ButtercupGarden
in
Fertility Network UK
2 years ago
Ain’t that a kick in the teeth
Well, fellow travellers. I haven’t posted for a long while , but I have been lurking. Like many others, I tend to “forget” about the forum while I am too busy enjoying life and return when things are not so rosy. I am at loss to explain the purpose of this missive as it’s not particular uplifting nor
Well, fellow travellers. I haven’t posted for a long while , but I have been lurking. Like many others, I tend to “forget” about the forum while I am too busy enjoying life and return when things are not so rosy. I am at loss to explain the purpose of this missive as it’s not particular uplifting nor
aFibber55
in
Atrial Fibrillation Support
2 years ago
Trying for a second pregnancy and symptoms (no live birth yet)
Hi ladies! I’m hoping some of you might be able share your experiences with me please? My second FET led to a viable pregnancy (but he passed away late on in pregnancy) and I’m wondering if I should experience the same symptoms during the two week wait when trying again? Around a week after my
Hi ladies! I’m hoping some of you might be able share your experiences with me please? My second FET led to a viable pregnancy (but he passed away late on in pregnancy) and I’m wondering if I should experience the same symptoms during the two week wait when trying again? Around a week after my
LadyM2019
in
Fertility Network UK
2 years ago
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