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Mycophenolate and migraine/headaches?
Since I've upped my mycophenolate (
CellCept
) to 1.5g per day few weeks back, I've been having constant headaches and for the past few days those headaches have upgraded to migraines, those being so painful that I was actually considering going to A&E!
Since I've upped my mycophenolate (
CellCept
) to 1.5g per day few weeks back, I've been having constant headaches and for the past few days those headaches have upgraded to migraines, those being so painful that I was actually considering going to A&E!
Purpletop
in
LUPUS UK
11 years ago
When NOT in a flare, do you still have residual symptoms?
I've been on mycophenolate (
CellCept
) since June and although symptoms have improved a lot in the main, I still have daily tiredness of various degrees (ranging from slightly sleepy to exhausted), muscle and joint pain here and there (although not consistently), hair loss of various degrees (from handfuls
I've been on mycophenolate (
CellCept
) since June and although symptoms have improved a lot in the main, I still have daily tiredness of various degrees (ranging from slightly sleepy to exhausted), muscle and joint pain here and there (although not consistently), hair loss of various degrees (from handfuls
Purpletop
in
LUPUS UK
11 years ago
I would like to ask any who has had a liver Transplant and then gone on to go on holiday to a tropical climate where Malaria is a risk.
So if some has been to a place like this while taking Ciclosporin and
CellCept
I would love to hear from them.
So if some has been to a place like this while taking Ciclosporin and
CellCept
I would love to hear from them.
papataal
in
British Liver Trust
11 years ago
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Has anybody else taking MMF been switched from CellCept or Myfenax to Accord MMF recently?
kered
in
ITP Support Association
11 years ago
Prednisolone.How long are on it and which is lower dose
My daughter is 18 months on pred.last 6 months she is taking 20mg second day.She is in remission.Also taking
cellcept
1000mg.Any opinion about pred.Is rose low,high.Yours opinion.She has pulmo renal syndrome panca positive and gbm.
My daughter is 18 months on pred.last 6 months she is taking 20mg second day.She is in remission.Also taking
cellcept
1000mg.Any opinion about pred.Is rose low,high.Yours opinion.She has pulmo renal syndrome panca positive and gbm.
tamidi
in
Vasculitis UK
11 years ago
immunosupressed lupus sufferers
is it okay for dwp to put lupus patiemts back to work when on immunosuppresent is there a site which tells you all the diseases that are really dangerous to come in contact with while on
cellcept
2g daily
is it okay for dwp to put lupus patiemts back to work when on immunosuppresent is there a site which tells you all the diseases that are really dangerous to come in contact with while on
cellcept
2g daily
corrie4
in
LUPUS UK
11 years ago
Is anyone else taking myfortic or cellcept . I have a very bad case of sle, many organs involved
Lizlauren
in
LUPUS UK
11 years ago
HUVS
If you have Hypocomplementemic Urticarial Vasculitis Syndrome and you have tried many medications Methatrexate IM and/or PO, immurane, cytoxin,
cellcept
, Plaquinel, Dapsone without favorable results. Ask your doctor to try Rituxan.
If you have Hypocomplementemic Urticarial Vasculitis Syndrome and you have tried many medications Methatrexate IM and/or PO, immurane, cytoxin,
cellcept
, Plaquinel, Dapsone without favorable results. Ask your doctor to try Rituxan.
Texas195260
in
Vasculitis UK
11 years ago
maintenance drugs /azathioprine/cellcept /
what is generally the rule for how long you stay on these drugs ,once in remission,i know we all vary,but would like to hear other peoples views also if you get regular rituximab every 6 months,do you still have to take one of these drugs alongside it ? thanks
what is generally the rule for how long you stay on these drugs ,once in remission,i know we all vary,but would like to hear other peoples views also if you get regular rituximab every 6 months,do you still have to take one of these drugs alongside it ? thanks
quinnster
in
Vasculitis UK
11 years ago
Antibiotics and Cellcept
Hi all, my daughter has yet again had a very bad dose of tonsillitis, we took her to the out of hours doc at 6am this morning, and she was given antibiotics, while there the doc asked her if she knew that she had to stop her
cellcept
while on antibiotics or it could kill her, anyone else been told the
Hi all, my daughter has yet again had a very bad dose of tonsillitis, we took her to the out of hours doc at 6am this morning, and she was given antibiotics, while there the doc asked her if she knew that she had to stop her
cellcept
while on antibiotics or it could kill her, anyone else been told the
tamirra
in
Behçet's UK
11 years ago
AZATHIOPRINE AND SPIROLACTONE
I was put on them approx. 6 weeks ago and my tummy right under the diaphragm feels so bloated since then, I had a problem with
Cellcept
and had to stop them, but now I have this problem.
I was put on them approx. 6 weeks ago and my tummy right under the diaphragm feels so bloated since then, I had a problem with
Cellcept
and had to stop them, but now I have this problem.
daisy11
in
British Liver Trust
11 years ago
Recommendation and your views please ..........................................................
Have looked at other med's
Cellcept
, Cytoxan, Imuran, lefunomide etc but would really appreciate your views and opinions. I really do not want to have another course of steroids they make me feel poorly, so want to go to my Rheumy with something else in mind. Thank you for your advice xx
Have looked at other med's
Cellcept
, Cytoxan, Imuran, lefunomide etc but would really appreciate your views and opinions. I really do not want to have another course of steroids they make me feel poorly, so want to go to my Rheumy with something else in mind. Thank you for your advice xx
beckybooboo
in
LUPUS UK
11 years ago
..on a Happier Note...
He wants to keep my going with the Remicade every 6 weeks, but has now increased it up to 900mcg, to see if the extra dose helps at all (he said it can only be increased one more time because 1000 is the top maximum safe dose), and he wants to start me on a new immunosuppressant drug called "
Cellcept
He wants to keep my going with the Remicade every 6 weeks, but has now increased it up to 900mcg, to see if the extra dose helps at all (he said it can only be increased one more time because 1000 is the top maximum safe dose), and he wants to start me on a new immunosuppressant drug called "
Cellcept
behcetshurtsbeyondwords
in
Behçet's UK
11 years ago
Painfull knees and ankes, can hardly walk, can you take painkillers?
Hi Guys, My mum who has WG has just been prescibed
Cellcept
as the Aza didnt agree with her, the last week she has been in agony with her knee and ankle joints and can hardly walk (does anyone else suffer with this?) Are you able to take painkillers or can her GP prescribe stronger ones to help?
Hi Guys, My mum who has WG has just been prescibed
Cellcept
as the Aza didnt agree with her, the last week she has been in agony with her knee and ankle joints and can hardly walk (does anyone else suffer with this?) Are you able to take painkillers or can her GP prescribe stronger ones to help?
lilyloo
in
Vasculitis UK
11 years ago
Vasculitis (Churg-Strauss Syndrome) - my story so far .. 11 weeks on
He also got me an appointment 4 days later to see the Rheumatology consultant, who then prescribed Mycophenolate (
CellCept
) and strongly suggested it was Churg-Strauss Syndrome.
He also got me an appointment 4 days later to see the Rheumatology consultant, who then prescribed Mycophenolate (
CellCept
) and strongly suggested it was Churg-Strauss Syndrome.
JontyW
in
Vasculitis UK
11 years ago
I have 3 different diagnoses: Sweet's Syndrome (rare urticarial variant), Urticarial Vasculitis, and Chronic Urticaria
CellCept
isn't working. I think Anakinra injections helped, but I had such bad injection site reactions. Does anyone identify with my story here on my blog? http://notsosweets.blogspot.com/2013/01/reliving-nightmare.html
CellCept
isn't working. I think Anakinra injections helped, but I had such bad injection site reactions. Does anyone identify with my story here on my blog? http://notsosweets.blogspot.com/2013/01/reliving-nightmare.html
notsossweets
in
MY SKIN
11 years ago
Anyone with vascilitis ,on steroids, and with elevated hemoglobine.
My daughter have MPA.She had low hemoglobine but now she has high.She is on calcort and
cellcept
.
My daughter have MPA.She had low hemoglobine but now she has high.She is on calcort and
cellcept
.
tamidi
in
Vasculitis UK
11 years ago
My Behcet's headaches - "Atypical migraines"
I suffered from these for years and was treated with migraine medicines, high dose prednisone, Enbrel, Remicade, methotrexate,
Cellcept
, Imuran, you name it. Caffeine, either via coffee or caffeine pills, are also helpful to shrink swollen brain blood vessels.
I suffered from these for years and was treated with migraine medicines, high dose prednisone, Enbrel, Remicade, methotrexate,
Cellcept
, Imuran, you name it. Caffeine, either via coffee or caffeine pills, are also helpful to shrink swollen brain blood vessels.
amietamant
in
Behçet's UK
11 years ago
anyone have trouble with mental health on rejection drugs?prograf,cellcept?
laotzu
in
Kidney Transplant Patient Support
12 years ago
Mycophenolate
I was put on Mycophenolate (
Cellcept
) 2 weeks ago How long did it take for anyone else to start to see real improvement in their conditions when they went on to this medication?
I was put on Mycophenolate (
Cellcept
) 2 weeks ago How long did it take for anyone else to start to see real improvement in their conditions when they went on to this medication?
Hidden
in
LUPUS UK
12 years ago
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