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Help Needed! Have I got Pernicious Anaemia?
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
Grannypants
in
Pernicious Anaemia Society
4 months ago
Pip claim
Hi can you get pip for anxiety as well as fibromyalgia and angina.Thanjs
Hi can you get pip for anxiety as well as fibromyalgia and angina.Thanjs
Tazandoldie
in
Fibromyalgia Action UK
3 months ago
Australian research - possible cure?
I don’t like raising false hope among our community about ‘cures’ toted in the media, but I found this article interesting. It’s about the T-cells, which many of us already know is involved in autoimmune activity: https://www.sbs.com.au/news/podcast-episode/australian-researchers-develop-world-first-method-of-treating-lupus
I don’t like raising false hope among our community about ‘cures’ toted in the media, but I found this article interesting. It’s about the T-cells, which many of us already know is involved in autoimmune activity: https://www.sbs.com.au/news/podcast-episode/australian-researchers-develop-world-first-method-of-treating-lupus
MusicalFurbaby
in
LUPUS UK
4 months ago
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I am waiting to find out if I have Lupus but I haven’t got my ANA result back yet and I want to know if people think this could be lupus
Hi, I have been having concerns for over a year about me having Lupus. I had a blood test last year which everything came back normal and the ANA was negative however I am experiencing more symptoms this year and I have taken another blood test and so far the bloods again are normal but I have currently
Hi, I have been having concerns for over a year about me having Lupus. I had a blood test last year which everything came back normal and the ANA was negative however I am experiencing more symptoms this year and I have taken another blood test and so far the bloods again are normal but I have currently
katiepops2004
in
LUPUS UK
4 months ago
Morningside liothyronine 5mcg supply issues
I'm having problems to get Morningside liothyronine 5mcg. I have a regular script specifying Morningside Liothyronine 5mg which I take twice daily. Boots has been unable to get hold of it this month and their supplier is sending Viatris brand instead, which has mannitol that caused me serious problems
I'm having problems to get Morningside liothyronine 5mcg. I have a regular script specifying Morningside Liothyronine 5mg which I take twice daily. Boots has been unable to get hold of it this month and their supplier is sending Viatris brand instead, which has mannitol that caused me serious problems
KCFryer
in
Thyroid UK
3 months ago
Stopping Bisoprolol & ramipril
Long story short! I’ve been on 2.5 of each now for over two years & im over 18months clear in sinus rhythm after a successful ablation in feb 22 I’ve recently had an eco which shows heart in full health, I’ve been through the genetics route which concluded no heart disease or family history to worry
Long story short! I’ve been on 2.5 of each now for over two years & im over 18months clear in sinus rhythm after a successful ablation in feb 22 I’ve recently had an eco which shows heart in full health, I’ve been through the genetics route which concluded no heart disease or family history to worry
GM1987
in
Atrial Fibrillation Support
3 months ago
Boston Scientific I/v cardioverter) defibrillator question
Hi looking for first experiences of having the above device fitted. I'm one week on from the implant and the soreness from the operation is settling down. I am still sleeping on my right side which is fine. But when I am lying flat the box starts firing off, I guess in cardioverter mode. It's set
Hi looking for first experiences of having the above device fitted. I'm one week on from the implant and the soreness from the operation is settling down. I am still sleeping on my right side which is fine. But when I am lying flat the box starts firing off, I guess in cardioverter mode. It's set
Chinkoflight
in
Atrial Fibrillation Support
3 months ago
holter monitor
hi has anyone any experience of waiting times for holter monitor results I had a 48hr holter monitor and echocardiogram 5 weeks ago this was recommended by the arrythmia clinic at my local hospital I have not seen anyone from the clinic before or after these tests and no results given yet was just wondering
hi has anyone any experience of waiting times for holter monitor results I had a 48hr holter monitor and echocardiogram 5 weeks ago this was recommended by the arrythmia clinic at my local hospital I have not seen anyone from the clinic before or after these tests and no results given yet was just wondering
Deltrot53
in
Atrial Fibrillation Support
3 months ago
FREE Arthritis Self-Management Event
I thought some of you may be interested in this event on Wed 6th March, 6.00pm (GMT); its aimed at young people or anyone supporting a young person with arthritis. Tickets can be booked here: https://www.eventbrite.co.uk/e/arthritis-me-tickets-811392285167 Ann Arthritis Action Comms Team,
I thought some of you may be interested in this event on Wed 6th March, 6.00pm (GMT); its aimed at young people or anyone supporting a young person with arthritis. Tickets can be booked here: https://www.eventbrite.co.uk/e/arthritis-me-tickets-811392285167 Ann Arthritis Action Comms Team,
arthritis_action
Partner
in
Arthritis Action
5 months ago
NZ made nutrient rescue.
Facebook keeps recommending this product to me. It’s made in NZ so might give it a shot as todays story was about a guy from NZ who has Parkinson’s and lives here in Christchurch! https://nutrientrescue.nz/ingredients “ When I was diagnosed 10 years ago, I was referred to a specialist in Oregon. Dr
Facebook keeps recommending this product to me. It’s made in NZ so might give it a shot as todays story was about a guy from NZ who has Parkinson’s and lives here in Christchurch! https://nutrientrescue.nz/ingredients “ When I was diagnosed 10 years ago, I was referred to a specialist in Oregon. Dr
LAJ12345
in
Cure Parkinson's
7 months ago
Good news
Evening ..some if you may know I've been on this site for a couple of years..I was on and off a drinker wine etc ..normal for spain.Anyway 2.5 years ago during the pandemic I knew that I wasn't right had a blood test ..not good . Fast tracked specialist apt . Different tests set up ..fatty liver diagnosed
Evening ..some if you may know I've been on this site for a couple of years..I was on and off a drinker wine etc ..normal for spain.Anyway 2.5 years ago during the pandemic I knew that I wasn't right had a blood test ..not good . Fast tracked specialist apt . Different tests set up ..fatty liver diagnosed
Spiff
in
British Liver Trust
7 months ago
AF & Bradycardia
Hi everyone, I am wondering if you can help me, I have AF which I am in permanent and have and 31% ventricular fraction, I am waiting for a date for a cardio version with Barts, I brought a Kardia mobile, and I have been monitoring my heart rate as bpm since February, The bpms have been fluctuating
Hi everyone, I am wondering if you can help me, I have AF which I am in permanent and have and 31% ventricular fraction, I am waiting for a date for a cardio version with Barts, I brought a Kardia mobile, and I have been monitoring my heart rate as bpm since February, The bpms have been fluctuating
Flippy1
in
Atrial Fibrillation Support
3 months ago
CABG update
Thanks for all the messages of support and the like. I’m really not a social media type person as I grew up in an age with humans interacting face to face and I’m hardwired for such communication but this sight is incredibly inspiring and the posts are very supportive - there’s nothing like interacting
Thanks for all the messages of support and the like. I’m really not a social media type person as I grew up in an age with humans interacting face to face and I’m hardwired for such communication but this sight is incredibly inspiring and the posts are very supportive - there’s nothing like interacting
KaduFlyer
in
British Heart Foundation
10 months ago
Low saturation with PV and Jakavi 20
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
Quitojohn
in
MPN Voice
3 months ago
What to do.
Have been in persistant afib after unsuccessful cardioversion 6 mths ago. On Loperessor 100/50 and eliquis. Doing only ok but almost past out after walking up two flights of stairs over weekend. Short of breath and nausea. Have been told not a good canidate for ablation.
Have been in persistant afib after unsuccessful cardioversion 6 mths ago. On Loperessor 100/50 and eliquis. Doing only ok but almost past out after walking up two flights of stairs over weekend. Short of breath and nausea. Have been told not a good canidate for ablation.
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
Webinar:Do magnifying intraocular lenses work for people with macular disease?
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Carol_MacularSociety
Partner
in
Macular Society
3 months ago
Study Offers New Clues to Why Most People with Autoimmune Diseases Are Women
[i]Caption:[/i] [i]Purple chromosomes fill the scene but a greyed-out chromosome locked up with chains labeled "Xist" is in the foreground. One of the Xist chains is covered with sharp thorns.[/i] [i]Xist molecules shut down one of two female X chromosomes to avoid toxic protein levels, but they
[i]Caption:[/i] [i]Purple chromosomes fill the scene but a greyed-out chromosome locked up with chains labeled "Xist" is in the foreground. One of the Xist chains is covered with sharp thorns.[/i] [i]Xist molecules shut down one of two female X chromosomes to avoid toxic protein levels, but they
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Becoming a grumpy old git !
Hi all, Just an enquiry .... one of my rare ones. It concerns a possible side effect of medication. In the last 6 months or so I have changed three precribed medication. I list these as below ....
Simvastatin
was started in mid 2007 and taken continuously until, my Surgery Pharmacist asked
Hi all, Just an enquiry .... one of my rare ones. It concerns a possible side effect of medication. In the last 6 months or so I have changed three precribed medication. I list these as below ....
Simvastatin
was started in mid 2007 and taken continuously until, my Surgery Pharmacist asked
BenHall1
in
Atrial Fibrillation Support
3 months ago
Low Volume Low PSA Metastatic PC.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
NDJIM
in
Advanced Prostate Cancer
7 months ago
1st patient doesd in Phase 2 trial testing vaccine for Parkinson's
------------ The first patient has been dosed in a Phase 2 clinical trial testing AC Immune’s ACI-7104.056, an investigational vaccine targeting toxic alpha-synuclein forms to [u][i]
prevent nerve cell degeneration in Parkinson’s disease.
[/i][/u] AC Immune expects to complete the enrollment
------------ The first patient has been dosed in a Phase 2 clinical trial testing AC Immune’s ACI-7104.056, an investigational vaccine targeting toxic alpha-synuclein forms to [u][i]
prevent nerve cell degeneration in Parkinson’s disease.
[/i][/u] AC Immune expects to complete the enrollment
PDWarrior1900
in
Cure Parkinson's
7 months ago
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