Search
Search
About
Log in
Join
Experiences with
Carer support
Posts
Communities
782 public posts
Filter results
Looking for community support
Hi everyone hope you’re all well As can be .I’m new to this group ,Don’t know where to start but I’m looking for some support in London and East London fibromyalgia groups and meet other people and socialise, are use a wheelchair and I have a
carer
but I don’t have any more
support
of meeting other
Hi everyone hope you’re all well As can be .I’m new to this group ,Don’t know where to start but I’m looking for some support in London and East London fibromyalgia groups and meet other people and socialise, are use a wheelchair and I have a
carer
but I don’t have any more
support
of meeting other
Mystik
in
Fibromyalgia Action UK
6 years ago
What is "palliative care"?
Hi all, Charlotte from Leukaemia Care here. I'm doing a bit of research on palliative care and I was surprised at what I found (I won't explain why as it may spoil the point of this question!) So I'm curious. Without googling or looking it up in any other way, would you all mind telling me what do
Hi all, Charlotte from Leukaemia Care here. I'm doing a bit of research on palliative care and I was surprised at what I found (I won't explain why as it may spoil the point of this question!) So I'm curious. Without googling or looking it up in any other way, would you all mind telling me what do
KnitEatCrochetRepeat
in
Leukaemia Support
6 years ago
UP DATE ON SECOND OPINION
Hi my lovely friends, well I had my second opinion with the prof , as he said it was hard for him to advice as he did not have all my medical history, but going on what he knows and I'm also feeling a lot better then when I last saw my oncologist , becourse I've been off all treatment and in palliative
Hi my lovely friends, well I had my second opinion with the prof , as he said it was hard for him to advice as he did not have all my medical history, but going on what he knows and I'm also feeling a lot better then when I last saw my oncologist , becourse I've been off all treatment and in palliative
lorraine71-Australia
in
My Ovacome
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Final days......heartbreaking 💔
My mum was given 8 weeks to live 4 months ago, and she has fought to stay strong to be with us!! She has small cell lung cancer that has spreads to her brain, liver and bones!! She has deteriorated massively over the last 10 days....gone is my loving caring sweet generous amazing beautiful Mum.....
My mum was given 8 weeks to live 4 months ago, and she has fought to stay strong to be with us!! She has small cell lung cancer that has spreads to her brain, liver and bones!! She has deteriorated massively over the last 10 days....gone is my loving caring sweet generous amazing beautiful Mum.....
Saddolly
in
The Roy Castle Lung Cancer Foundation
6 years ago
Caregiver checkup
I ran across this Caregiver checkup on a Palliative Care site and thought I'd share it with the group. Sometimes I use tools like this as a scheduled self check up once a month as a way of checking in on how I'm doing, and if I'm coping worse, I take steps. See what you think about this tool and if
I ran across this Caregiver checkup on a Palliative Care site and thought I'd share it with the group. Sometimes I use tools like this as a scheduled self check up once a month as a way of checking in on how I'm doing, and if I'm coping worse, I take steps. See what you think about this tool and if
missyrand
Ambassador
in
Melanoma Caregivers
6 years ago
LU177
Hi We have just returned home from a most disappointing appointment with the oncologist. A quick reminder my husband was diagnosed in 2009 with locally advanced prostate cancer. Surgery to remove prostate was aborted due to lymph node involvement, started zoladex injections and had 39 fractions of radiotherapy
Hi We have just returned home from a most disappointing appointment with the oncologist. A quick reminder my husband was diagnosed in 2009 with locally advanced prostate cancer. Surgery to remove prostate was aborted due to lymph node involvement, started zoladex injections and had 39 fractions of radiotherapy
JanJames
in
Advanced Prostate Cancer
6 years ago
Really useful info from endo specialist *worth reading *
Hi ladies I have been doing lots of research recently and found this post by Dr Jeff Arrington, an endo specialist in America. I found it really helpful, so I thought I would share as I'm sure like me, there are many women here trying to figure out what to do... THE STANDARD OF CARE IS NOT SUFFICIENT
Hi ladies I have been doing lots of research recently and found this post by Dr Jeff Arrington, an endo specialist in America. I found it really helpful, so I thought I would share as I'm sure like me, there are many women here trying to figure out what to do... THE STANDARD OF CARE IS NOT SUFFICIENT
weekari
in
Endometriosis UK
6 years ago
Heart Failure and Progression
Hello I have posted on this before but couldn't find the right thread !! Had a good conversation with the HF Nurse about progression of Heart Failure this week. Background Male aged 71 ( But Mentally around 40 ish ) Heart Attack 1982, No Medication ( nothing ) until 2015. After experiencing Angina
Hello I have posted on this before but couldn't find the right thread !! Had a good conversation with the HF Nurse about progression of Heart Failure this week. Background Male aged 71 ( But Mentally around 40 ish ) Heart Attack 1982, No Medication ( nothing ) until 2015. After experiencing Angina
Prada47
in
British Heart Foundation
6 years ago
Major issues on GemCarbo and losing weight
Hi Ladies, I was diagnosed in November 2015. I have done great until now. Eribulin was a cake walk, Ibrance and Faslodex I felt like i didn’t even have cancer. Even Taxol for 9 months was easy for me. Now I’ve had three cycles of Gemcarbo and I feel like I’m back when I was diagnosed. I vomit
Hi Ladies, I was diagnosed in November 2015. I have done great until now. Eribulin was a cake walk, Ibrance and Faslodex I felt like i didn’t even have cancer. Even Taxol for 9 months was easy for me. Now I’ve had three cycles of Gemcarbo and I feel like I’m back when I was diagnosed. I vomit
Debdavenpo
in
SHARE Metastatic Breast Cancer
6 years ago
update no More chemo now palliative care ☹
Hello my friends, Well my oncologist has told me she has no more options and as I'm feeling to weak to go on a trial she has booked me in for palliative care, I do feel down becourse while I was on treatment I felt like I was doing some thing now I'm not on any treatment and my 125 has gone up to 1500
Hello my friends, Well my oncologist has told me she has no more options and as I'm feeling to weak to go on a trial she has booked me in for palliative care, I do feel down becourse while I was on treatment I felt like I was doing some thing now I'm not on any treatment and my 125 has gone up to 1500
lorraine71-Australia
in
My Ovacome
6 years ago
When is enough enough?
I'm facing a difficult decision. My PSA (620+) continues to rise and bone scans continue to show growth on my spine and ribs despite efforts with all mainstream treatments. It's been suggested by my MO that "we need to get you into a clinical trial while you still look good" meaning while I'm relatively
I'm facing a difficult decision. My PSA (620+) continues to rise and bone scans continue to show growth on my spine and ribs despite efforts with all mainstream treatments. It's been suggested by my MO that "we need to get you into a clinical trial while you still look good" meaning while I'm relatively
Rmanns
in
Advanced Prostate Cancer
6 years ago
Three And A Half Months Since I Lost My Beautiful Husband
Hi everyone. I just wanted to say hello and write to you all about how I have been these past three and a half months. Before I tell you how I have been, though, I would like to say that I feel very priviliged to be still part of this community of brave men fighting this disease and their devoted
Hi everyone. I just wanted to say hello and write to you all about how I have been these past three and a half months. Before I tell you how I have been, though, I would like to say that I feel very priviliged to be still part of this community of brave men fighting this disease and their devoted
MelaniePaul
in
Advanced Prostate Cancer
6 years ago
One year in.
Hi. I started my adventure a year ago today, 8/31/2017. I guess it's time to say hello. I'll throw down my numbers. Maybe it will make some of you feel better about your numbers. Last summer I started to have some old-man urinary symptoms. I was 51, so they seemed par for the course. I was feeling a
Hi. I started my adventure a year ago today, 8/31/2017. I guess it's time to say hello. I'll throw down my numbers. Maybe it will make some of you feel better about your numbers. Last summer I started to have some old-man urinary symptoms. I was 51, so they seemed par for the course. I was feeling a
RustyDakota
in
Advanced Prostate Cancer
6 years ago
Professor Christina
Hello lovely ladies and men. I’ve read all your wonderful messages. Your support and love is overwhelming. I’m sorry I e not replied to the messages but I’m so tired. Update. Thanks to your recommendations about professor Christina at the Hammersmith, we got an appointment with her yesterday morning
Hello lovely ladies and men. I’ve read all your wonderful messages. Your support and love is overwhelming. I’m sorry I e not replied to the messages but I’m so tired. Update. Thanks to your recommendations about professor Christina at the Hammersmith, we got an appointment with her yesterday morning
Suzanne333
in
My Ovacome
6 years ago
We as caregivers are at increased risk for mental health and physical health problems
Today I read about this study in the UK: https://www.medpagetoday.com/psychiatry/anxietystress/74764 Unsurprisingly to me as a caregiver for someone living with melanoma, the results indicated that when caring for someone who is terminally ill with cancer, they were surprised at the sheer scale of the
Today I read about this study in the UK: https://www.medpagetoday.com/psychiatry/anxietystress/74764 Unsurprisingly to me as a caregiver for someone living with melanoma, the results indicated that when caring for someone who is terminally ill with cancer, they were surprised at the sheer scale of the
missyrand
Ambassador
in
Melanoma Caregivers
6 years ago
To give those “resistant” ladies a bit of my good news..
Hello I don’t post much but read all with interest and try to share a little when a post crops up that I believe may help a little..! Well yesterday I finally - after a year or so - had some good news!! I went through a grueling 6 months on Caylex / Carbo ( didn’t work for me at all and more tumours
Hello I don’t post much but read all with interest and try to share a little when a post crops up that I believe may help a little..! Well yesterday I finally - after a year or so - had some good news!! I went through a grueling 6 months on Caylex / Carbo ( didn’t work for me at all and more tumours
Hopefulgal1
in
My Ovacome
6 years ago
Trouble adjusting.
After having a renal transplant 23 years ago my precious kidney has stopped working. I now find my self back on dialysis. I thought medical science would have made progress in 23 years. It still breaks down to you and that ungodly machine. Don't get me wrong I am happy to have this lifesaving option
After having a renal transplant 23 years ago my precious kidney has stopped working. I now find my self back on dialysis. I thought medical science would have made progress in 23 years. It still breaks down to you and that ungodly machine. Don't get me wrong I am happy to have this lifesaving option
Pinktulips24
in
Kidney Disease
6 years ago
A day I was so happy to see
Dear Friends I hope you don’t mind me posting a happy picture of my twins. On Friday all the family, and Godparents went to watch William on his Passing Out Parade at Sandhurst having completed an intensive year of physical and mental training. He joins his regiment next week and will be going to
Dear Friends I hope you don’t mind me posting a happy picture of my twins. On Friday all the family, and Godparents went to watch William on his Passing Out Parade at Sandhurst having completed an intensive year of physical and mental training. He joins his regiment next week and will be going to
SCWI
in
My Ovacome
6 years ago
No response to first line chemo
Hi My heart is really heavy as i write this post with several doors shut chemo has not worked at all surgeons are refusing to operate second line chemo is an option but its response is less and side effects very high avastin may make her wound non healable and make her severly neutropenic has anyone
Hi My heart is really heavy as i write this post with several doors shut chemo has not worked at all surgeons are refusing to operate second line chemo is an option but its response is less and side effects very high avastin may make her wound non healable and make her severly neutropenic has anyone
Indujoshi
in
My Ovacome
6 years ago
Advice on medical care
My wife qualified for CHC last December. Just recently there has been a shake up with the district nurses, different teams, new team leaders etc. For the first four months she was visited by the district nurses on a weekly basis, they then reduced the visits to once every two weeks although it was agreed
My wife qualified for CHC last December. Just recently there has been a shake up with the district nurses, different teams, new team leaders etc. For the first four months she was visited by the district nurses on a weekly basis, they then reduced the visits to once every two weeks although it was agreed
edgie
in
PSP Association
6 years ago
1
...
22
23
24
...
40
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
100 results
PSP Association
95 results
Lung Conditions Community Forum
77 results
View top 10 communities
Sort by
Most Relevant
Newest