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musician - hearing loss after surgery
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
domforr
in
Acoustic Neuroma Support
7 months ago
2ND Opinion by Radiologist
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
Jimbo47
in
Advanced Prostate Cancer
7 months ago
bleeding 3 years after total hysterectomy
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Fela1113
in
Endometriosis UK
7 months ago
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Saxon clinical trial
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
58Willys
in
Advanced Prostate Cancer
7 months ago
Does having CLL really make you 3 times more likely to get (another) cancer, and does CLL treatment add to the risk? - Part 1
1. The risk of developing a Secondary Primary Malignancy
"[i]The higher risk of SPM associated with CLL has been recognized for many years, well prior to the modern therapy era. Manosow and Weinerman in 1975 demonstrated a three-fold increase of SPM and an eight-fold increase of SC in CLL[/i]
1. The risk of developing a Secondary Primary Malignancy
"[i]The higher risk of SPM associated with CLL has been recognized for many years, well prior to the modern therapy era. Manosow and Weinerman in 1975 demonstrated a three-fold increase of SPM and an eight-fold increase of SC in CLL[/i]
bennevisplace
in
CLL Support
7 months ago
Upcoming TTALC Workshop 3/23/24
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
7 months ago
Need Help Interpreting My PSMA/PET SCAN
About a month ago I posted the results of my Prostate MRI and got some very good advice through this forum. The Prostate MRI report recommended that I get a PSMA PET/CT. I had the Pet Scan done at City of Hope and received the results today. The ONCOLOGIC AND POTENTIALLY ONCOLOGIC FINDINGS are as follows
About a month ago I posted the results of my Prostate MRI and got some very good advice through this forum. The Prostate MRI report recommended that I get a PSMA PET/CT. I had the Pet Scan done at City of Hope and received the results today. The ONCOLOGIC AND POTENTIALLY ONCOLOGIC FINDINGS are as follows
Jimbo47
in
Advanced Prostate Cancer
7 months ago
Docs who prescribe mebendazole and metformin
HI! I am currently taking letrozole for metastatic breast cancer. I am also doing the COC protocol, but only with mebendazole and metformin. Just curious, are any of you getting mebendazole or metformin from any other docs than COC? Thanks! Sue
HI! I am currently taking letrozole for metastatic breast cancer. I am also doing the COC protocol, but only with mebendazole and metformin. Just curious, are any of you getting mebendazole or metformin from any other docs than COC? Thanks! Sue
Sueforshare
in
SHARE Metastatic Breast Cancer
7 months ago
It's all about delivery (not PC related but worth reading): Car T cell therapy used for brain tumors
“This suggests to us that there is important interaction between CAR-T cell therapy and the host immune system,” Brown said. Future changes to CAR-T cell therapies could be designed to further optimize the treatment, Badie added. “We could deliver agents into the tumor microenvironment to engage the
“This suggests to us that there is important interaction between CAR-T cell therapy and the host immune system,” Brown said. Future changes to CAR-T cell therapies could be designed to further optimize the treatment, Badie added. “We could deliver agents into the tumor microenvironment to engage the
Maxone73
in
Advanced Prostate Cancer
7 months ago
my prostate cancer
Diagnosed in November 2022. Favorable intermediate with Gleason 6 & Gleason 7 (3+4), with 4 less than 5%, and low Decipher score. On AS. 13 months later, one year MRI showed “concerning” images, with irregular capsule (visible), and extra capsular extension probable (interpretation from radiologist).
Diagnosed in November 2022. Favorable intermediate with Gleason 6 & Gleason 7 (3+4), with 4 less than 5%, and low Decipher score. On AS. 13 months later, one year MRI showed “concerning” images, with irregular capsule (visible), and extra capsular extension probable (interpretation from radiologist).
woolcotton
in
Prostate Cancer Network
7 months ago
Surgery was hugely succesful, thank the Lord! 😇🙏
Going into surgery with stage 4 clear cell cancer a week ago, I was advised they will take out all cancer they can see & will have a better understanding of spreading & the way forward.Woke up to better than that! They got it all out, easily & cleanly, full radical hysterectomy and appendix. Signs they
Going into surgery with stage 4 clear cell cancer a week ago, I was advised they will take out all cancer they can see & will have a better understanding of spreading & the way forward.Woke up to better than that! They got it all out, easily & cleanly, full radical hysterectomy and appendix. Signs they
Kazzh
in
My Ovacome
7 months ago
Dad diagnosed with prostate cancer. what do I do? hindsight is 20/20 and it wasn’t my battle to fight.
For those of you who are newly diagnosed or have been diagnosed for a while or caregivers of those who are newly diagnosed or been diagnosed for a while and overwhelmed and confused and you need a care team but maybe lack the resources or support . go to your nearest hospital that also has a radiology
For those of you who are newly diagnosed or have been diagnosed for a while or caregivers of those who are newly diagnosed or been diagnosed for a while and overwhelmed and confused and you need a care team but maybe lack the resources or support . go to your nearest hospital that also has a radiology
Hereformydad2022
in
Advanced Prostate Cancer
7 months ago
One week from launch of Adrienne's story
One week from today, [i]I'd Rather Be Dead Than Deaf: A Young Woman's Journey With Liver Cancer [/i]will be launched into the world! A compilation of journals, poetry, and artwork, this is Adrienne's story from her point of view. While I used snippets of her journals throughout my book Better Off Bald
One week from today, [i]I'd Rather Be Dead Than Deaf: A Young Woman's Journey With Liver Cancer [/i]will be launched into the world! A compilation of journals, poetry, and artwork, this is Adrienne's story from her point of view. While I used snippets of her journals throughout my book Better Off Bald
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
7 months ago
Ablation
Hi All, I am wondering if anyone has gone the ablation route with non small cell lung cancer? I had cyberknife in my lower right lung back in 2011. It was effective with minimal side effects. In 2020, the cancer came back in my upper left lung. Now in 2024, it is back in my upper right lung. Apparently
Hi All, I am wondering if anyone has gone the ablation route with non small cell lung cancer? I had cyberknife in my lower right lung back in 2011. It was effective with minimal side effects. In 2020, the cancer came back in my upper left lung. Now in 2024, it is back in my upper right lung. Apparently
Karuna2
in
Lung Cancer Support
7 months ago
not so great Petscan
Friday I had my first Petscan after two cycles of Ibrance and one on Kisqali. I was really hoping for all good results. Unfortunately, it was a mixed bag. My metastasis is my my lungs and there were three spots, two were biopsies and one too small was just assumed to be my breast cancer cells. Well
Friday I had my first Petscan after two cycles of Ibrance and one on Kisqali. I was really hoping for all good results. Unfortunately, it was a mixed bag. My metastasis is my my lungs and there were three spots, two were biopsies and one too small was just assumed to be my breast cancer cells. Well
jltorcz
in
SHARE Metastatic Breast Cancer
7 months ago
Pleur x catheter
Update:- good news: l don't need pericardial effusion window surgery. - l did get a pleur x catheter placed last Friday. The procedure went well. I've had 2 drainage at home so far. - l would appreciate showering advice. I wrapped the dressing in place and seal plastic wrap but water still seeped into
Update:- good news: l don't need pericardial effusion window surgery. - l did get a pleur x catheter placed last Friday. The procedure went well. I've had 2 drainage at home so far. - l would appreciate showering advice. I wrapped the dressing in place and seal plastic wrap but water still seeped into
NPmary
in
SHARE Metastatic Breast Cancer
7 months ago
lymphedema from prostate cancer, any advice on how to manage?
One of my dad’s biggest issues with prostate cancer is severe lymphedema from the waist down. He used to just have it in his right leg from lymph node removal during RP. Since being on the lynparza in January both sides have swelled up as well as scrotum and everything else below the waist. He was told
One of my dad’s biggest issues with prostate cancer is severe lymphedema from the waist down. He used to just have it in his right leg from lymph node removal during RP. Since being on the lynparza in January both sides have swelled up as well as scrotum and everything else below the waist. He was told
LJGD
in
Advanced Prostate Cancer
7 months ago
Advancements on drugs delivery: interesting review (and with drugs I meant medicine!)
A review on advancements in the application of starch-based nanomaterials in biomedicine: Precision drug delivery and cancer therapy, just one of the many delivery strategies that are being developed sometimes I forget that we have plenty of chemotherapeutics, also new ones that can diversify our strategy
A review on advancements in the application of starch-based nanomaterials in biomedicine: Precision drug delivery and cancer therapy, just one of the many delivery strategies that are being developed sometimes I forget that we have plenty of chemotherapeutics, also new ones that can diversify our strategy
Maxone73
in
Advanced Prostate Cancer
7 months ago
Pluvicto and low Hemoglobin
Hi all, My dad received his second infusion of pluvicto on February 14. About a week ago his hemoglobin dropped to 65. After a unit of blood it went up to around 85 and then every 3 days or so it drops back down the high 60’s. My dad does have prostrate cancer in his bones and lymph nodes. My question
Hi all, My dad received his second infusion of pluvicto on February 14. About a week ago his hemoglobin dropped to 65. After a unit of blood it went up to around 85 and then every 3 days or so it drops back down the high 60’s. My dad does have prostrate cancer in his bones and lymph nodes. My question
Uman101
in
Advanced Prostate Cancer
7 months ago
Heading down hospice road too…
I’m so sorry to hear about your dad 😢 I’m in a very similar situation with my dad, age 71, Gleason 9 with Mets to bone, lungs, lymph nodes and now a tumor in his bladder. Zytiga worked for him for years, but last January started with more bone Mets and lymph nodes, zytiga restarted and failed. Tried
I’m so sorry to hear about your dad 😢 I’m in a very similar situation with my dad, age 71, Gleason 9 with Mets to bone, lungs, lymph nodes and now a tumor in his bladder. Zytiga worked for him for years, but last January started with more bone Mets and lymph nodes, zytiga restarted and failed. Tried
LJGD
in
Advanced Prostate Cancer
7 months ago
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