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It wont be long
Hi All I have seen my Consultant today and she said it is time to start thinking about treatment. Not what I wanted to hear but after 14 years W&W I guessed it would come one day. She will arrange a CT Scan to check on Tumour burden (I think thats right) then just waiting on this. TP53 - deletion
Hi All I have seen my Consultant today and she said it is time to start thinking about treatment. Not what I wanted to hear but after 14 years W&W I guessed it would come one day. She will arrange a CT Scan to check on Tumour burden (I think thats right) then just waiting on this. TP53 - deletion
TheFlyer
in
CLL Support
4 months ago
salvage radiation after surgery?
Hi - Shouldn’t I be doing salvage radiation or chemotherapy now? I had my surgery February 25 and Doctor wants to wait for first PSA iat end of May. However surgical pathology showed negative margins but showed intraductal, cribriform, loss of PTEN. and PNI. Even though there was no EPE, no SVI, No LVI
Hi - Shouldn’t I be doing salvage radiation or chemotherapy now? I had my surgery February 25 and Doctor wants to wait for first PSA iat end of May. However surgical pathology showed negative margins but showed intraductal, cribriform, loss of PTEN. and PNI. Even though there was no EPE, no SVI, No LVI
Granolaberry
in
Prostate Cancer Network
4 months ago
Why don’t doctors read notes properly before calling patients?
I have been on immunotherapy for 15 mths to treat 4 HCC tumours . In December 2023 my scan showed some ‘pseudo growth’ and I was given a further 3 mths treatment. Last Monday I was anxiously awaiting my results for the latest scan. The oncologist phoned and reported “no spread but some shadows a little
I have been on immunotherapy for 15 mths to treat 4 HCC tumours . In December 2023 my scan showed some ‘pseudo growth’ and I was given a further 3 mths treatment. Last Monday I was anxiously awaiting my results for the latest scan. The oncologist phoned and reported “no spread but some shadows a little
AthenaJason
in
British Liver Trust
4 months ago
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My dad has CLL with TP53 mutation
As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions of chemotherapy and went back to remission Lately in January he noticed some lymph nodes in his neck as well as in his face After examination
As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions of chemotherapy and went back to remission Lately in January he noticed some lymph nodes in his neck as well as in his face After examination
Ornate2001
in
CLL Support
4 months ago
how to reduce testosterone after orchiectomy
NOTE : An orchiectomy is a surgical procedure to remove one or both testicles. Posting here to learn from others. Questions is How to reduce testosterone after Orchiectomy ?
NOTE : An orchiectomy is a surgical procedure to remove one or both testicles. Posting here to learn from others. Questions is How to reduce testosterone after Orchiectomy ?
God_Loves_Me
in
Advanced Prostate Cancer
4 months ago
Support in your local community.
The day all treatment ended and I was released to begin life without the benefit of seeing my radiation oncologist or the infusion nurse on a weekly basis was a scary day. The idea that it would be three months before I saw anyone again left me overwhelmed. Finding web boards like these and in person
The day all treatment ended and I was released to begin life without the benefit of seeing my radiation oncologist or the infusion nurse on a weekly basis was a scary day. The idea that it would be three months before I saw anyone again left me overwhelmed. Finding web boards like these and in person
Denzie
Volunteer
in
Lung Cancer Support
4 months ago
Bladder Cancer Update and More. UPDATE.
Back in January I was diagnosed with problems with my spine as below. "x rays shows OA throughout loss lumbar lordosis" I posted at the time being my spine is affected, would that affect me being able to have a spinal (Epidural) when I have a Cystoscopy? I said at the time I would consult my GP and
Back in January I was diagnosed with problems with my spine as below. "x rays shows OA throughout loss lumbar lordosis" I posted at the time being my spine is affected, would that affect me being able to have a spinal (Epidural) when I have a Cystoscopy? I said at the time I would consult my GP and
Ern007
in
Lung Conditions Community Forum
5 months ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
5 months ago
Eligard and loss of taste
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
7OaksTom
in
Advanced Prostate Cancer
5 months ago
Anyone have side effects from omenectomy?
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hailun
in
My Ovacome
5 months ago
Ascites coming back,primary peritoneal
Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago after ascites discovered and drain needed. Initially thought was stage 3c and as it had affected a lymph node it was then
Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago after ascites discovered and drain needed. Initially thought was stage 3c and as it had affected a lymph node it was then
SupportingmyMum
in
My Ovacome
5 months ago
Blood Test
I had a blood test done 2/3 weeks ago it was supposed to be about the Anastrazole tablets 1mg levels that I take one a day following B/Cancer 2018 that following that I had to shield 4 the year of 2020 as I was at high risk E.T.C of getting the stuff with me having to watch what I was eating with that
I had a blood test done 2/3 weeks ago it was supposed to be about the Anastrazole tablets 1mg levels that I take one a day following B/Cancer 2018 that following that I had to shield 4 the year of 2020 as I was at high risk E.T.C of getting the stuff with me having to watch what I was eating with that
bungi1961
in
IBS Network
5 months ago
Just been told…I have a Brain Tumour
So Im 56 and last week I was told by my Oncologist that after an 8mth horrific battle with T4 tonsil cancer ( which had spread into 7 lymph nodes base of tongue and activity in left tonsil )6that I had a clear MRI …..( PET scan in 2 weeks). Had a few tears of relief thinking about losing 8 teeth /
So Im 56 and last week I was told by my Oncologist that after an 8mth horrific battle with T4 tonsil cancer ( which had spread into 7 lymph nodes base of tongue and activity in left tonsil )6that I had a clear MRI …..( PET scan in 2 weeks). Had a few tears of relief thinking about losing 8 teeth /
EllieMay7
in
Acoustic Neuroma Support
5 months ago
Is anyone familiar with the GUN trial?
Hello, sorry for all the questions. My 59 year old husband was recently diagnosed and we have so much information coming at us, fast and furious. Yesterday he was offered an opportunity to participate in the GUN trial. So far the information we have about his cancer: CT scan inadvertently found the
Hello, sorry for all the questions. My 59 year old husband was recently diagnosed and we have so much information coming at us, fast and furious. Yesterday he was offered an opportunity to participate in the GUN trial. So far the information we have about his cancer: CT scan inadvertently found the
EvFC
in
Advanced Prostate Cancer
5 months ago
Advice
Good afternoon. Yesterday I visited my ancologist after a city scan, who showed a slight increase in metastases in the liver after 3 months of treatment with Ibrance and Fulvestran. The doctor referred me for a consultation with a radiologist-ancologist. Does anyone have experience with radiation to
Good afternoon. Yesterday I visited my ancologist after a city scan, who showed a slight increase in metastases in the liver after 3 months of treatment with Ibrance and Fulvestran. The doctor referred me for a consultation with a radiologist-ancologist. Does anyone have experience with radiation to
yevgeniakoretskaya
in
SHARE Metastatic Breast Cancer
5 months ago
Not PCa but related. Imuno therapies keeps getting better.
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
Scout4answers
in
Advanced Prostate Cancer
5 months ago
Rise in WBC
Hello to all, My husband has CLL, he has also been treated for metastatic melanoma which from his latest CT scan is NED. He will receive his last immunotherapy infusion next week. We are beyond grateful. However his blood work taken yesterday showed and increase in his WBC from 14.5 last month to the
Hello to all, My husband has CLL, he has also been treated for metastatic melanoma which from his latest CT scan is NED. He will receive his last immunotherapy infusion next week. We are beyond grateful. However his blood work taken yesterday showed and increase in his WBC from 14.5 last month to the
313313
in
CLL Support
5 months ago
Lynparza - warning!
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
MyDad76
in
Advanced Prostate Cancer
5 months ago
here we are again
my husbands blood work did not come back good after being great for over 5 years on Imbruvica. Oncologist ordered a Pet Scan since he has never had one. Just CT scans. And more comprehensive blood work. To say I’m a mess is an understatement. We thought imbruvica was the answer to our prayers for it
my husbands blood work did not come back good after being great for over 5 years on Imbruvica. Oncologist ordered a Pet Scan since he has never had one. Just CT scans. And more comprehensive blood work. To say I’m a mess is an understatement. We thought imbruvica was the answer to our prayers for it
CLLWife
in
CLL Support
5 months ago
New delivery system (works well in vivo): from Spain with love, new nanoparticles
there's a lot being studied for drugs delivery... "The research team analyzed the molecular structure of these materials and the dynamics behind the secretion process, both in vitro and in vivo. In an animal model of CXCR4+ colorectal cancer, the system showed high performance upon subcutaneous administration
there's a lot being studied for drugs delivery... "The research team analyzed the molecular structure of these materials and the dynamics behind the secretion process, both in vitro and in vivo. In an animal model of CXCR4+ colorectal cancer, the system showed high performance upon subcutaneous administration
Maxone73
in
Advanced Prostate Cancer
5 months ago
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