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Suvmax
Hi everyone, Was diagnosed de novo metastatic last may. Still can't come to terms with the news. Breast tumor 23mm, er 80%, pr 30%, ki67 10% Suvmax 11 9 bone mets with suvmax from 10 to 27! I read high suvmax had really bad prognosis. After 6 months of palbociclib ibrance and anastrozole, breast tumor
Hi everyone, Was diagnosed de novo metastatic last may. Still can't come to terms with the news. Breast tumor 23mm, er 80%, pr 30%, ki67 10% Suvmax 11 9 bone mets with suvmax from 10 to 27! I read high suvmax had really bad prognosis. After 6 months of palbociclib ibrance and anastrozole, breast tumor
Lulu4545
in
SHARE Metastatic Breast Cancer
4 years ago
Oncologist Issue
Hi All, Hope everyone is having a happy holiday season - whatever it is you celebrate! Mom and I had an appointment with her oncologist yesterday and we are both still reeling and a bit shell shocked. I wanted to run the whole story by you just to get your take. We have decided to stick it out for a
Hi All, Hope everyone is having a happy holiday season - whatever it is you celebrate! Mom and I had an appointment with her oncologist yesterday and we are both still reeling and a bit shell shocked. I wanted to run the whole story by you just to get your take. We have decided to stick it out for a
George5545
in
SHARE Metastatic Breast Cancer
4 years ago
Month nine reports
Well improvement continues. CA15.3 is now 112, having started at 436, so still going in the right direction. No other problems with the 125mg Ibrance and Letrozole, so my oncologist is very happy especially as the scans showed improvements too. She's getting my gp to prescribe a calcium/vitamin
Well improvement continues. CA15.3 is now 112, having started at 436, so still going in the right direction. No other problems with the 125mg Ibrance and Letrozole, so my oncologist is very happy especially as the scans showed improvements too. She's getting my gp to prescribe a calcium/vitamin
Beryl71
in
SHARE Metastatic Breast Cancer
4 years ago
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Mammogram?
Hello ladies - I have a question about mammograms once you’ve been diagnosed with MBC. I was diagnosed in July and had radiation then started Ibrance and Letrozole. My most recent ct scan showed no progression so far. My radiation oncologist has ordered a mammogram which I am scheduled to have tomorrow
Hello ladies - I have a question about mammograms once you’ve been diagnosed with MBC. I was diagnosed in July and had radiation then started Ibrance and Letrozole. My most recent ct scan showed no progression so far. My radiation oncologist has ordered a mammogram which I am scheduled to have tomorrow
JustmeMary
in
SHARE Metastatic Breast Cancer
4 years ago
Kaleidoscope Vision/migraines Ibrance
Hi, I was wondering if anyone else gets migraines and the crazy vision issues on Ibrance. I had them when I first started. But they went away. I’m a year in and they’re back. It’s not debilitating but they’re annoying. Happy Holidays Everybody!!!
Hi, I was wondering if anyone else gets migraines and the crazy vision issues on Ibrance. I had them when I first started. But they went away. I’m a year in and they’re back. It’s not debilitating but they’re annoying. Happy Holidays Everybody!!!
Phillipians4and6
in
SHARE Metastatic Breast Cancer
4 years ago
Ibrance pills
Hi ladies. Does anyone feel crappy taking the new ibrance pills. I miss the caplets
Hi ladies. Does anyone feel crappy taking the new ibrance pills. I miss the caplets
marianne88
in
SHARE Metastatic Breast Cancer
4 years ago
Ibrance changed to Faslodex
Ibrance has failed so I'm being switched to Faslodex. What is your experience with the side effects of Faslodex? More physical pain? Fatigue? I'm not sure what to expect after reading all the "possible" side effects. Anja
Ibrance has failed so I'm being switched to Faslodex. What is your experience with the side effects of Faslodex? More physical pain? Fatigue? I'm not sure what to expect after reading all the "possible" side effects. Anja
Hidden
in
SHARE Metastatic Breast Cancer
4 years ago
After an ablation
I have read the article on Recovering from an ablation’. had my ablation 3 weeks ago and it seems to go ok. I have been breathless at times but then went into AF for 3 days last week. Now back in sinus rhythm and seeing my EP tomorrow. I’m not on any medication at the moment to stop AF. I do get very
I have read the article on Recovering from an ablation’. had my ablation 3 weeks ago and it seems to go ok. I have been breathless at times but then went into AF for 3 days last week. Now back in sinus rhythm and seeing my EP tomorrow. I’m not on any medication at the moment to stop AF. I do get very
maria68
in
AF Association
4 years ago
Allergies with Ibrance and Letrezol
has anyone who is on Ibrance and letrezol experienced a permanent runny nose and watery itchy eyes? I have tried Claritin, zyrtec, and allegra with no improvement with any of them. Doctor even gave me a steroidal nasal spray, no help either. I am at my wits end. Help!!!
has anyone who is on Ibrance and letrezol experienced a permanent runny nose and watery itchy eyes? I have tried Claritin, zyrtec, and allegra with no improvement with any of them. Doctor even gave me a steroidal nasal spray, no help either. I am at my wits end. Help!!!
Alnmouth
in
SHARE Metastatic Breast Cancer
4 years ago
Lymph node radiation
Hello ladies Mum has an intensive week of radiation on lymph node pressing on her oesophagus. Does anyone have any experience of this and any advice you an share? Mum has one small tumor in her lung and this one lymph node involvement. Shes on ibrance and letrozole. Appreciate any insight at all. Thankyou
Hello ladies Mum has an intensive week of radiation on lymph node pressing on her oesophagus. Does anyone have any experience of this and any advice you an share? Mum has one small tumor in her lung and this one lymph node involvement. Shes on ibrance and letrozole. Appreciate any insight at all. Thankyou
Millie666
in
SHARE Metastatic Breast Cancer
4 years ago
Ibrance
Good morning ladies, Just an idea.... why don’t our doctors prescribe Ibrance to us women that have problems keeping our Neutrophils up in more of a mg way. First week on 125mg, second week on 100mg and third week on .75 mg? Or visa versa? It makes sense to me. What do you think? Christina
Good morning ladies, Just an idea.... why don’t our doctors prescribe Ibrance to us women that have problems keeping our Neutrophils up in more of a mg way. First week on 125mg, second week on 100mg and third week on .75 mg? Or visa versa? It makes sense to me. What do you think? Christina
Canchondo
in
SHARE Metastatic Breast Cancer
4 years ago
O
I have had many occipital nerve blocks. I will randomly get migraines that last for about 6 weeks about twice a year. I go in to my neurologists office daily and get the occipital nerve blocks. He even meets me there on weekends. If I didn't get the nerve blocks I don't honestly know how I would survive
I have had many occipital nerve blocks. I will randomly get migraines that last for about 6 weeks about twice a year. I go in to my neurologists office daily and get the occipital nerve blocks. He even meets me there on weekends. If I didn't get the nerve blocks I don't honestly know how I would survive
Lacycat1234
in
National Migraine Centre
4 years ago
Ablation No 4
I had my 4th ablation on Friday at the Royal Brompton and have ended up with a pacemaker due to Sick Sinus Syndrome. Apart from the usual tiredness and bruising I feel fine. Have noticed a few ectopic beats but after being in AF since mid July it's nice to see NORMAL on my Kardia. All the best Tim
I had my 4th ablation on Friday at the Royal Brompton and have ended up with a pacemaker due to Sick Sinus Syndrome. Apart from the usual tiredness and bruising I feel fine. Have noticed a few ectopic beats but after being in AF since mid July it's nice to see NORMAL on my Kardia. All the best Tim
Stinky1953
in
AF Association
4 years ago
Memory loss side effect?
Hi all, I have found that over the last 3/4 months I have experienced very unpleasant memory side effects and slight dizzy and sick feelings during the week off palbo/ ibrance. Has any body else had this? It lasts about 3 days then goes. I can only put it down to neutrophils struggling to recover. I
Hi all, I have found that over the last 3/4 months I have experienced very unpleasant memory side effects and slight dizzy and sick feelings during the week off palbo/ ibrance. Has any body else had this? It lasts about 3 days then goes. I can only put it down to neutrophils struggling to recover. I
Rotagirl
in
SHARE Metastatic Breast Cancer
4 years ago
CRPS • NEED MORE OPTIONS!
Hello - I have CRPS in my left foot since the first of October 2020. I have had two Sensitivity nerve blocks and neither one made the slightest amount of difference. Not I have been out on Morphine with hydrocodone. The last thing I want to do is continue taking these pills. Anyone one else have CRPS
Hello - I have CRPS in my left foot since the first of October 2020. I have had two Sensitivity nerve blocks and neither one made the slightest amount of difference. Not I have been out on Morphine with hydrocodone. The last thing I want to do is continue taking these pills. Anyone one else have CRPS
CRPS-WylieTX
in
Pain Concern
4 years ago
New Ibrance Tablets
Have you experienced new side effects with the Ibrance tablets verses the capsules? I don't know if my "night sweats" are worse ? And I have gained an extra 3-4 pounds and am bloated.
Have you experienced new side effects with the Ibrance tablets verses the capsules? I don't know if my "night sweats" are worse ? And I have gained an extra 3-4 pounds and am bloated.
theresac1
in
SHARE Metastatic Breast Cancer
4 years ago
Has anyone on Ibrance had covid?
I am sure all of us here on Ibrance are extra cautious with covid raging the world. I am wondering if anyone on Ibrance or other chemo drugs has had covid and if they did how they came through. My husband and I are not participating in any holiday family gathering or attending church until things
I am sure all of us here on Ibrance are extra cautious with covid raging the world. I am wondering if anyone on Ibrance or other chemo drugs has had covid and if they did how they came through. My husband and I are not participating in any holiday family gathering or attending church until things
Lilykristymichael
in
SHARE Metastatic Breast Cancer
4 years ago
Ibrance
What time of day do you take Ibrance?
What time of day do you take Ibrance?
blms
in
SHARE Metastatic Breast Cancer
4 years ago
Ibrance Storage
Hi Ladies, a quick question. My Cancer Nurse told me today that my Ibrance must be stored in original packaging and I must wash my hands after taking it. In the 19 months I’ve been taking it I have never done this. I have always put it in my pill boxes with other meds to be taken daily. Does anyone else
Hi Ladies, a quick question. My Cancer Nurse told me today that my Ibrance must be stored in original packaging and I must wash my hands after taking it. In the 19 months I’ve been taking it I have never done this. I have always put it in my pill boxes with other meds to be taken daily. Does anyone else
Hidden
in
SHARE Metastatic Breast Cancer
4 years ago
Breathlessness while on Ibrance Letrozole combination
I was diagnosed Stage 1V Metastatic Breast cancer nets to the lungs , lymph nodes in base of neck and spot on spine in July 2019 after 7 years cancer free from original Mastectomy . I have been on Ribociclib /Letrozole combo for 11 months but developed fluid in my lungs and a really bad rash on my
I was diagnosed Stage 1V Metastatic Breast cancer nets to the lungs , lymph nodes in base of neck and spot on spine in July 2019 after 7 years cancer free from original Mastectomy . I have been on Ribociclib /Letrozole combo for 11 months but developed fluid in my lungs and a really bad rash on my
7982
in
My Ovacome
4 years ago
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