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Queries made with NHS
Q1: Why do my records say 'possible' squamous cell, when I had a biopsy. A: we were told that it had been confirmed to us at a meeting on 11/11/21. but the resulting report still says 'possible' and neither me or my husband recall being told a confirmed diagnosis. Reason given: we were too upset to
Q1: Why do my records say 'possible' squamous cell, when I had a biopsy. A: we were told that it had been confirmed to us at a meeting on 11/11/21. but the resulting report still says 'possible' and neither me or my husband recall being told a confirmed diagnosis. Reason given: we were too upset to
ginkgo
in
The Roy Castle Lung Cancer Foundation
1 year ago
Lump on back after chest drain
When i developed a pleural effusion last June the hospital did a couple of drains before fitting me with a semi-permanent drain. A few weeks ago I developed a lump under the skin, exactly where the hospital drains were done. This lump is growing quite quickly and is now very painful. I had an ultrasound
When i developed a pleural effusion last June the hospital did a couple of drains before fitting me with a semi-permanent drain. A few weeks ago I developed a lump under the skin, exactly where the hospital drains were done. This lump is growing quite quickly and is now very painful. I had an ultrasound
doodoolatrice
in
My Ovacome
1 year ago
Clear cell ovarian cancer
Hi, I was discharged from my oncologist in February and told I was to have gyny/onc appointments every three months for the first year at my own hospital. My referral seems to have been lost but I have managed to get an appointment in mid July. As my cancer was clear cell ovarian cancer I am worried
Hi, I was discharged from my oncologist in February and told I was to have gyny/onc appointments every three months for the first year at my own hospital. My referral seems to have been lost but I have managed to get an appointment in mid July. As my cancer was clear cell ovarian cancer I am worried
Rexrescue
in
My Ovacome
1 year ago
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Talzenna approved by FDA
FDA Approves Talzenna for Metastatic, Castration-Resistant Prostate Cancer Significant radiographic progression-free survival seen for homologous recombination repair gene mutation, including with BRCA mutation HealthDay MONDAY, June 26, 2023 (HealthDay News) -- The U.S. Food and Drug Administration
FDA Approves Talzenna for Metastatic, Castration-Resistant Prostate Cancer Significant radiographic progression-free survival seen for homologous recombination repair gene mutation, including with BRCA mutation HealthDay MONDAY, June 26, 2023 (HealthDay News) -- The U.S. Food and Drug Administration
Magnus1964
in
Prostate Cancer Network
1 year ago
Liquid biopsy
Hello, my dear dad had CT scan in May, took 4 weeks for the results! T4 N3 M0. We ( dad, me and brother) left a little numb after first appt with respiratory consultant, our ‘ lay person’ research meant we thought it was stage3b with regional spread but uncertain about treatment options. The consultant
Hello, my dear dad had CT scan in May, took 4 weeks for the results! T4 N3 M0. We ( dad, me and brother) left a little numb after first appt with respiratory consultant, our ‘ lay person’ research meant we thought it was stage3b with regional spread but uncertain about treatment options. The consultant
Adaughter
in
The Roy Castle Lung Cancer Foundation
1 year ago
Sadly, I've joined the PCa club ...
46 years old, married, no kids. Saw my urologist last week. I have a Gleason score of 6 (3+3) (Grade Group 1) with the cancer in one core (out of 12) and 21% of the core. What are my next steps? My instinct is to get surgery immediately but I really want kids but do not have any kids yet. My urologist
46 years old, married, no kids. Saw my urologist last week. I have a Gleason score of 6 (3+3) (Grade Group 1) with the cancer in one core (out of 12) and 21% of the core. What are my next steps? My instinct is to get surgery immediately but I really want kids but do not have any kids yet. My urologist
nvidia-ati
in
Prostate Cancer Network
1 year ago
atrophied left lobe
hi I’m 53 had ongoing high LFTs , had an mri back I. Jan that’s sated my left liver lobe had trophied waited until last week for another biopsy which got cancelled whilst on the bed as they dated it was to dangerously close to my heart, never heard of that as my liver has some how moved high. First
hi I’m 53 had ongoing high LFTs , had an mri back I. Jan that’s sated my left liver lobe had trophied waited until last week for another biopsy which got cancelled whilst on the bed as they dated it was to dangerously close to my heart, never heard of that as my liver has some how moved high. First
Goneinsixtyseconds
in
British Liver Trust
1 year ago
I need help with my attitude
So I haven’t written in a bit because I have been waiting to find out what my next line of treatment is. ( Thank you to everyone who responded to my last post about med change). Ibrance stopped working after a year and a half and Everolimus didn’t work at all. I am waiting to find out if I qualify
So I haven’t written in a bit because I have been waiting to find out what my next line of treatment is. ( Thank you to everyone who responded to my last post about med change). Ibrance stopped working after a year and a half and Everolimus didn’t work at all. I am waiting to find out if I qualify
Ticket123
in
SHARE Metastatic Breast Cancer
1 year ago
radiation proctitis
I am almost 3 years out from radiation therapy and I’m still suffering from symptoms of radiation proctitis. I did have it confirmed by colonoscopy about a year and a half ago, at that time the gastroenterologist told me he thought it would resolve eventually but it persists. Have any of you had G.I
I am almost 3 years out from radiation therapy and I’m still suffering from symptoms of radiation proctitis. I did have it confirmed by colonoscopy about a year and a half ago, at that time the gastroenterologist told me he thought it would resolve eventually but it persists. Have any of you had G.I
Jmr11820
in
Advanced Prostate Cancer
1 year ago
First recurrance, advice needed
Good evening lovely ladies I was diagnosed with Ovarian cancer stage 4a in August 2021. Also am BRIP1. I Have had debulking surgery and 8 rounds of chemotherapy and in July 2022 until today was on Niraparib. Today I was told my CT scan in early June 2023 shows a dark spot on my liver and a smaller
Good evening lovely ladies I was diagnosed with Ovarian cancer stage 4a in August 2021. Also am BRIP1. I Have had debulking surgery and 8 rounds of chemotherapy and in July 2022 until today was on Niraparib. Today I was told my CT scan in early June 2023 shows a dark spot on my liver and a smaller
Skyeplus
in
My Ovacome
1 year ago
Letrozole
I have been dealing with Endo since the age of 11, lm now 42. I am still struggling with uncontrolled pain. I am currently waiting for excision surgery & meanwhile l have been offered Letrozole. Has anyone got any experience with this treatment for endometriosis? What can l expect? I have to admit l
I have been dealing with Endo since the age of 11, lm now 42. I am still struggling with uncontrolled pain. I am currently waiting for excision surgery & meanwhile l have been offered Letrozole. Has anyone got any experience with this treatment for endometriosis? What can l expect? I have to admit l
SarahAnne81
in
Endometriosis UK
1 year ago
Where to go after Lutetium 177?
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Biobro
in
Advanced Prostate Cancer
1 year ago
next treatment Doxil
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
Lna21
in
SHARE Metastatic Breast Cancer
1 year ago
Salvage radiation fears
Right before he got wheeled back for surgery, my husband’s dr came in. I assume it was for a pep talk, but it did the opposite. He essentially said “this is a good first step - let’s get this out and then prepare for radiation”. Surgery went fine and physically he’s recovering well (although only 4
Right before he got wheeled back for surgery, my husband’s dr came in. I assume it was for a pep talk, but it did the opposite. He essentially said “this is a good first step - let’s get this out and then prepare for radiation”. Surgery went fine and physically he’s recovering well (although only 4
Sleepymonkey
in
Advanced Prostate Cancer
1 year ago
Hurdle
Finished 6 pluvicto in May. PSA started at 15 ended at 35. Bone scans at end say many Mets to bone. I particularly felt very winded towards end of pluvicto treatments. I was walking 3-5 miles until April then achiness in femur, and loss off breath. MO had me scheduled to start xofigo 3 weeks ago but
Finished 6 pluvicto in May. PSA started at 15 ended at 35. Bone scans at end say many Mets to bone. I particularly felt very winded towards end of pluvicto treatments. I was walking 3-5 miles until April then achiness in femur, and loss off breath. MO had me scheduled to start xofigo 3 weeks ago but
RunThru
in
Advanced Prostate Cancer
1 year ago
Broken shattered femur
My husband's femur broke and shattered on Friday afternoon. Rushed to hospital only to be told no surgeon available. They called 5 other hospitals and all declined his admittance due to lack of rooms or no surgeon available. Finally last evening he was transferred to Markham Stouffville Hospital at
My husband's femur broke and shattered on Friday afternoon. Rushed to hospital only to be told no surgeon available. They called 5 other hospitals and all declined his admittance due to lack of rooms or no surgeon available. Finally last evening he was transferred to Markham Stouffville Hospital at
Docker53
in
Advanced Prostate Cancer
1 year ago
SPC with POP
At 79 years of age I began experiencing acute urinary retention which required three trips to hospital emergency room. During that year a Foley catheter was inserted at three times during the year. It was determined by my doctor that the best option for me (now being 80 years old and diabetic) wast
At 79 years of age I began experiencing acute urinary retention which required three trips to hospital emergency room. During that year a Foley catheter was inserted at three times during the year. It was determined by my doctor that the best option for me (now being 80 years old and diabetic) wast
potsymolly
in
Pelvic Pain Support Network
1 year ago
Invasive micropapillary carcinoma
I recently was looking at the lab report about my breast cancer tumor and somehow had not noticed that my tumor was not invasive ductile carcinoma, but invasive micropapillary carcinoma. It apparently is rare. Has anyone here had this diagnosis ? This is a recurrence for me. My first cancer was invasive
I recently was looking at the lab report about my breast cancer tumor and somehow had not noticed that my tumor was not invasive ductile carcinoma, but invasive micropapillary carcinoma. It apparently is rare. Has anyone here had this diagnosis ? This is a recurrence for me. My first cancer was invasive
Gablue
in
My Breast Cancer Community
1 year ago
anal leakage and constipation
my husband has aggressive metastatic prostate cancer Gleason 8 with mets to lymph nodes, bladder, and pelvic bones and hips. He is scheduled to start triplet therapy in the next 2 weeks. Last week he underwent a TURP procedure in hopes to get rid of the catheter which he had for over 2 months. Unfortunately
my husband has aggressive metastatic prostate cancer Gleason 8 with mets to lymph nodes, bladder, and pelvic bones and hips. He is scheduled to start triplet therapy in the next 2 weeks. Last week he underwent a TURP procedure in hopes to get rid of the catheter which he had for over 2 months. Unfortunately
Jojoteacher
in
Advanced Prostate Cancer
1 year ago
No scan offered!
I have a recurring ovarian cancer. I'm treatable but not curable.I had radiotherapy in January to reduce a recurrence and my Ca125 went down to 21. It's now 48 ash's I'm told I can't have a scan until I have symptoms which strikes me as odd. I was having 3 monthly scans and was expecting one next month
I have a recurring ovarian cancer. I'm treatable but not curable.I had radiotherapy in January to reduce a recurrence and my Ca125 went down to 21. It's now 48 ash's I'm told I can't have a scan until I have symptoms which strikes me as odd. I was having 3 monthly scans and was expecting one next month
loobilou
in
My Ovacome
1 year ago
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