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Good news
I said recently in my post that I'm pleased not to dwell on the numbers and keep everything in perspective. But I still appreciate good news when it comes. This week I had a call from oncologist largely because she's liaising with my dentist about dental work. Basically she was telling me it was worth
I said recently in my post that I'm pleased not to dwell on the numbers and keep everything in perspective. But I still appreciate good news when it comes. This week I had a call from oncologist largely because she's liaising with my dentist about dental work. Basically she was telling me it was worth
Beryl71
in
SHARE Metastatic Breast Cancer
9 months ago
Synthetic Hormones, Chemo & Radiotherapy
Hello, I am 60 years old, female,in the U.K., have had Primary Myelofibrosis for 20 years, treated with Aspirin & HU until recently, now switched to Anagrelide. I have recently been diagnosed with breast cancer, due to have lumpectomy next month, then there will be decisions to make about further treatments
Hello, I am 60 years old, female,in the U.K., have had Primary Myelofibrosis for 20 years, treated with Aspirin & HU until recently, now switched to Anagrelide. I have recently been diagnosed with breast cancer, due to have lumpectomy next month, then there will be decisions to make about further treatments
CraftySpider
in
MPN Voice
11 months ago
one more tumor marker question?
As some of you read my moms 15-3 marker went up from 163 to 332. She’s been on her new combo for 7 weeks. Everolimus and Faslodex . She finished a five day radiation treatment to the leg in her bone on Sept. 29th and then they did a tumor marker 20 days later and it had almost doubled . This is
As some of you read my moms 15-3 marker went up from 163 to 332. She’s been on her new combo for 7 weeks. Everolimus and Faslodex . She finished a five day radiation treatment to the leg in her bone on Sept. 29th and then they did a tumor marker 20 days later and it had almost doubled . This is
Flower1513
in
SHARE Metastatic Breast Cancer
9 months ago
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cancer marker 15-3
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
Flower1513
in
SHARE Metastatic Breast Cancer
9 months ago
Not where I expected to be
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hoehn
in
SHARE Metastatic Breast Cancer
9 months ago
interesting Xeloda trial
Hi friends, I listened to a presentation summarizing reports from ASCO 2023 related to MBC, and what really interested me was that for Xeloda, a fixed dose taken one week on/one week off, produced as good results as current standard of care with fewer side effects. Also: cream form of Voltaren/diclofenac
Hi friends, I listened to a presentation summarizing reports from ASCO 2023 related to MBC, and what really interested me was that for Xeloda, a fixed dose taken one week on/one week off, produced as good results as current standard of care with fewer side effects. Also: cream form of Voltaren/diclofenac
HelenWi
in
SHARE Metastatic Breast Cancer
9 months ago
May be doing IV chemo for the first time. Need tips - really freaked out!
Hi, so I’ve successfully avoided doing IV chemo since 2019. But due to bone mets I just had hip surgery and the pills I’ve been on are not working. I was told by the surgeon 2 days ago that I need systemic treatment asap or I’ll die. I’m having a petscan tomorrow and depending on how it looks, I’ll
Hi, so I’ve successfully avoided doing IV chemo since 2019. But due to bone mets I just had hip surgery and the pills I’ve been on are not working. I was told by the surgeon 2 days ago that I need systemic treatment asap or I’ll die. I’m having a petscan tomorrow and depending on how it looks, I’ll
Verbena1
in
SHARE Metastatic Breast Cancer
9 months ago
Residual pain post lumpectomy and radiation
Hello, I had a lumpectomy in April and a course of radiation in June. It is now mid August and I still get shooting pains and occasional soreness in the affected breast. It's not terrible, but worrisome. I am wondering if this is normal.
Hello, I had a lumpectomy in April and a course of radiation in June. It is now mid August and I still get shooting pains and occasional soreness in the affected breast. It's not terrible, but worrisome. I am wondering if this is normal.
Sagebud
in
SHARE Breast Cancer Support
11 months ago
Newly diagnosed MBC
I am a cancer survivor of 25 years but a recent ER trip, (I was sent there by my PCP because my blood pressure was really high). Five hours later, a CT scan among other scans and blood work, I was diagnosed with metastatic breast cancer. Left breast same side as previous breast cancer. This time it was
I am a cancer survivor of 25 years but a recent ER trip, (I was sent there by my PCP because my blood pressure was really high). Five hours later, a CT scan among other scans and blood work, I was diagnosed with metastatic breast cancer. Left breast same side as previous breast cancer. This time it was
monkeygirl62
in
SHARE Metastatic Breast Cancer
9 months ago
Medication Clomipramine
Hello all. I went to see a psychiatrist today who suggested I take Clomipramine antidepressant as I am very depressed and sometimes suicidal. Has anybody else taken this. It says it interferes with levothyroxine. Thank you.
Hello all. I went to see a psychiatrist today who suggested I take Clomipramine antidepressant as I am very depressed and sometimes suicidal. Has anybody else taken this. It says it interferes with levothyroxine. Thank you.
Meerkat1234
in
Thyroid UK
11 months ago
everolimus and Exemestane.
after taking letroazole and ibrance for 17 months , I had to stop because I had progression in my liver mets and sternum I have started taking everolimus and Exemestane. and i am almost 2 weeks into taking them . 10 days in and I started with mouth ulcers and a very painful tongue . Can anyone recommend
after taking letroazole and ibrance for 17 months , I had to stop because I had progression in my liver mets and sternum I have started taking everolimus and Exemestane. and i am almost 2 weeks into taking them . 10 days in and I started with mouth ulcers and a very painful tongue . Can anyone recommend
Jenhood
in
SHARE Metastatic Breast Cancer
11 months ago
CT scan
I started on Ibrance and Anastrozole roughly in June 2023. Took it for 2 months and had to go off Ibrance for 5 weeks for surgery. Back on it for a month. Has a CT scan which showed more bone Mets and increased size. A node in lungs which was not seen on previous scan 6 months ago. Discouraged to think
I started on Ibrance and Anastrozole roughly in June 2023. Took it for 2 months and had to go off Ibrance for 5 weeks for surgery. Back on it for a month. Has a CT scan which showed more bone Mets and increased size. A node in lungs which was not seen on previous scan 6 months ago. Discouraged to think
mkrienke55
in
SHARE Metastatic Breast Cancer
9 months ago
Feeling low. Wind out of my sails
Update - Saw doc this morning and I was hoping that the Enhertu would be working after the 4th cycle, but markers went up +289. Now I am at 2130 (15.3) and the general tumor markers are up almost 4 pts to 56. He said I could do another round of Enhertu and I just said, look, just over a year now and
Update - Saw doc this morning and I was hoping that the Enhertu would be working after the 4th cycle, but markers went up +289. Now I am at 2130 (15.3) and the general tumor markers are up almost 4 pts to 56. He said I could do another round of Enhertu and I just said, look, just over a year now and
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
10 months ago
best treatment after Xeloda?
I was diagnosed with MBC in Feb 2022 with bone mets. I am HER2 low ER positive. I have been on kisquali, Ibrance, Faslodex, and lastly 4 rounds of Xeloda. Nothing seems to stop my progression, Kisquali sent my liver enzymes sky high. Ibrance/Faslodex progression was slow and markers rose. Xeloda
I was diagnosed with MBC in Feb 2022 with bone mets. I am HER2 low ER positive. I have been on kisquali, Ibrance, Faslodex, and lastly 4 rounds of Xeloda. Nothing seems to stop my progression, Kisquali sent my liver enzymes sky high. Ibrance/Faslodex progression was slow and markers rose. Xeloda
Breege_M
in
SHARE Metastatic Breast Cancer
10 months ago
Indapamide with levothyroxine?
I have been prescribed Indapamide for high blood pressure. I also have Ramipril which I take in the evening. The Indapamide pack says to take in the morning. Can I take it with my thyroxine? I couldn’t see any contraindications for it but is it going to impede the thyroxine? ShouldI take it at night
I have been prescribed Indapamide for high blood pressure. I also have Ramipril which I take in the evening. The Indapamide pack says to take in the morning. Can I take it with my thyroxine? I couldn’t see any contraindications for it but is it going to impede the thyroxine? ShouldI take it at night
AnotherEmma
in
Thyroid UK
1 year ago
Breast Cancer
Hi everyone I have been told I have invasive lobular carcinoma. I am a 56-year-old woman. I will be having a lumpectomy on August 28, 2023. followed by radiation and then hormone blockers. providing it's not in my lymph nodes. I was shocked to get this diagnosis after a call back from my routine mammogram
Hi everyone I have been told I have invasive lobular carcinoma. I am a 56-year-old woman. I will be having a lumpectomy on August 28, 2023. followed by radiation and then hormone blockers. providing it's not in my lymph nodes. I was shocked to get this diagnosis after a call back from my routine mammogram
Granica4818
in
SHARE Breast Cancer Support
1 year ago
What is role of hormonal therapy drug when taken with targeted therapy, eg Piqray or Ibrance?
I’ve been curious about this and wondering if anyone can explain. I want to better understand the role of the hormone therapy eg Faslodex when taken with targeted therapy such as Ibrance. Does it just reduce the amount of estrogen available to the cell and “lightens the load” on the targeted therapy?
I’ve been curious about this and wondering if anyone can explain. I want to better understand the role of the hormone therapy eg Faslodex when taken with targeted therapy such as Ibrance. Does it just reduce the amount of estrogen available to the cell and “lightens the load” on the targeted therapy?
HelenWi
in
SHARE Metastatic Breast Cancer
10 months ago
thoughts 🙏
hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, letrozole, lupron, and xjeva. His Mets were to bone and then he was NED for a year from June 2022 to June 2023. In July he took a PET scan and it showed a slight uptake of activity to his chest wall. Plan was to keep him on
hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, letrozole, lupron, and xjeva. His Mets were to bone and then he was NED for a year from June 2022 to June 2023. In July he took a PET scan and it showed a slight uptake of activity to his chest wall. Plan was to keep him on
Jenniferp2122
in
SHARE Metastatic Breast Cancer
10 months ago
Why do I feel so rundown on ibrance?
Hello, I am a breast cancer survivor, stage 4, her2- , estrogen and progesterone positive.I was on Ibrance and letrozole for around 2 yrs. I was told the pills usually only last 9 months. Almost Depends on the person. Every time I have my labs done my white count and neutrophils were too low.
Hello, I am a breast cancer survivor, stage 4, her2- , estrogen and progesterone positive.I was on Ibrance and letrozole for around 2 yrs. I was told the pills usually only last 9 months. Almost Depends on the person. Every time I have my labs done my white count and neutrophils were too low.
Burtie1
in
SHARE Metastatic Breast Cancer
10 months ago
Newby
Hi all I hope someone can maybe enlighten me, as I feel left all by myself. I had a heart Attack 25th June this year. I had to have a long stent inserted and I feel fine now. The whole thing was a blur, chest pains, hospital, procedure, bed rest for 2 days then home. So HA Tuesday home Thursday. I
Hi all I hope someone can maybe enlighten me, as I feel left all by myself. I had a heart Attack 25th June this year. I had to have a long stent inserted and I feel fine now. The whole thing was a blur, chest pains, hospital, procedure, bed rest for 2 days then home. So HA Tuesday home Thursday. I
ADH756L
in
British Heart Foundation
12 days ago
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