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Brain tumours (low-grade/mixed)
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Results for fatty kidney
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Pekingese
in
CLL Support
7 months ago
Hi there.
Still awaiting cancer checks. Still scared about that and the finger deformations since everything I have read seems to indicate that the vast majority of the time clubbing seems to be a harbinger of death. Does anyone know where I can access emotional support relatively quickly? GP said waiting times
Still awaiting cancer checks. Still scared about that and the finger deformations since everything I have read seems to indicate that the vast majority of the time clubbing seems to be a harbinger of death. Does anyone know where I can access emotional support relatively quickly? GP said waiting times
JHutton1994
in
Lung Conditions Community Forum
7 months ago
Genetic therapy: for solid malignancy hopefully soon
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
Maxone73
in
Advanced Prostate Cancer
7 months ago
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Mastectomy after 7 years of MBC
I have had MBC for 7 years still on my first line of treatment (Ibrance/Letrozole) my PET scan in September showed the tumor in my breast has increased in size and the cancer has gone into a lymph node under my armpit. Today I met with a surgeon and will have a double mastectomy in early January. My
I have had MBC for 7 years still on my first line of treatment (Ibrance/Letrozole) my PET scan in September showed the tumor in my breast has increased in size and the cancer has gone into a lymph node under my armpit. Today I met with a surgeon and will have a double mastectomy in early January. My
Gmaoftriplets
in
SHARE Metastatic Breast Cancer
7 months ago
facial pain after suro
hi all I had surgery 15th June 2022 to remove a large tumour. I have had a few problems after including facial paralysis on my right side after but it literally normal now. I had a lot of injections. My right eye is completely dry and they did a nerve transplant to try and correct this. So have been
hi all I had surgery 15th June 2022 to remove a large tumour. I have had a few problems after including facial paralysis on my right side after but it literally normal now. I had a lot of injections. My right eye is completely dry and they did a nerve transplant to try and correct this. So have been
Elephant0
in
Acoustic Neuroma Support
7 months ago
Lynparza for bone/liver mets - success?
Hello! Unfortunately, my PET scan revealed bone progression and 4 new liver lesions. I will be switching from Enhertu (was on Enhertu for a year) to lynparza/ olaparib. Has anyone had success with a parp helping get rid of bone/ liver metastasis for stage 4 breast cancer? Or keeping things stable?
Hello! Unfortunately, my PET scan revealed bone progression and 4 new liver lesions. I will be switching from Enhertu (was on Enhertu for a year) to lynparza/ olaparib. Has anyone had success with a parp helping get rid of bone/ liver metastasis for stage 4 breast cancer? Or keeping things stable?
miconrad
in
SHARE Metastatic Breast Cancer
7 months ago
Immunocompromised people aged 50+ are now eligible for the shingles vaccine
Immunocompromised people aged 50 and over are now eligible for the shingles vaccine. The vaccine reduces your chances of getting shingles and reduces the risk of complications if you still develop it. Read more on our website, including answers to some commonly asked questions, here: https://www.lupusuk.org.uk
Immunocompromised people aged 50 and over are now eligible for the shingles vaccine. The vaccine reduces your chances of getting shingles and reduces the risk of complications if you still develop it. Read more on our website, including answers to some commonly asked questions, here: https://www.lupusuk.org.uk
Debbie_kinsey
Administrator
in
LUPUS UK
10 months ago
Zencor & XmAb
My MO discussed a clinical trial for me today if I qualify with the required genetic markers. My most recent PSMA scan showed further progression of metastasis in bone and lymph nodes and my PSA has increased fairly rapidly. Currently taking both Orgovyx & Nubeqa. I'm hoping some of the smart and
My MO discussed a clinical trial for me today if I qualify with the required genetic markers. My most recent PSMA scan showed further progression of metastasis in bone and lymph nodes and my PSA has increased fairly rapidly. Currently taking both Orgovyx & Nubeqa. I'm hoping some of the smart and
AllenMarco
in
Advanced Prostate Cancer
7 months ago
is there any hope for me
I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I am braca neg, her2 negative, folate on at 60 % HGS. No mutations in cancer tumor or me. Diagnosed Dec 2019 stage 3c now stage 4 metastasis Here is how much I have fought: Dec2019 full debunking surgery
I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I am braca neg, her2 negative, folate on at 60 % HGS. No mutations in cancer tumor or me. Diagnosed Dec 2019 stage 3c now stage 4 metastasis Here is how much I have fought: Dec2019 full debunking surgery
Summergold2
in
My Ovacome
7 months ago
Alicia Morgans, MD, on PCa in Older Men – Determining frailty or fitness will help guide treatment decisions, MedPageToday, 11/27/2023
Those who dig deep into research methodologies know well the inherent biases that riddle much scientific and medical research. [i](See my postscript reference below) [/i]Clinical trials are not exceptions to these biases and, as drug companies look to produce the best outcomes for their clinical trials
Those who dig deep into research methodologies know well the inherent biases that riddle much scientific and medical research. [i](See my postscript reference below) [/i]Clinical trials are not exceptions to these biases and, as drug companies look to produce the best outcomes for their clinical trials
cujoe
in
Fight Prostate Cancer
7 months ago
Stay positive
Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All good until November 2022 more chemo for recurrence then Avastin . My Ca125 stable but just crept up to 36 so need scan and if any signs perhaps more chemo.I have coped really well no real side effects just inally lost
Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All good until November 2022 more chemo for recurrence then Avastin . My Ca125 stable but just crept up to 36 so need scan and if any signs perhaps more chemo.I have coped really well no real side effects just inally lost
Guenivere
in
My Ovacome
7 months ago
BCG - intravesical immunotherapy - Update.
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Ern007
in
Lung Conditions Community Forum
7 months ago
worried and anxious
My lung cancer growth is small and operable. I just feel so worried and anxious it’s spread. As well as the operation to remove the growth with lower lung they are going to take lymph node sampling. I wondered if this is usual and would love to hear from anyone who has had this done. I’m planning to
My lung cancer growth is small and operable. I just feel so worried and anxious it’s spread. As well as the operation to remove the growth with lower lung they are going to take lymph node sampling. I wondered if this is usual and would love to hear from anyone who has had this done. I’m planning to
Sally789
in
The Roy Castle Lung Cancer Foundation
7 months ago
The rehab continues!
My rehab sessions at the local gym continue 2x a week where I have been doing a mixture of strength training and cardio work .This has been very successful in toning up areas that had needed it , especially with the recent weight loss of 14.5kg (2.5 stone) The plantar Fasciitis is certainly less but
My rehab sessions at the local gym continue 2x a week where I have been doing a mixture of strength training and cardio work .This has been very successful in toning up areas that had needed it , especially with the recent weight loss of 14.5kg (2.5 stone) The plantar Fasciitis is certainly less but
Instructor57
in
Strength & Flex
10 months ago
🤖 ChatGPT on Cancer-Fighting Exercise💪 vs PCa
ChatGPT, the free AI research tool provided by OpenAI, is surprisingly good at summarizing some topic of interest that one might be interested in. I submitted a long question this evening on "
exercise against metastatic prostate cancer progression
". My goal is understanding exercise in an environment
ChatGPT, the free AI research tool provided by OpenAI, is surprisingly good at summarizing some topic of interest that one might be interested in. I submitted a long question this evening on "
exercise against metastatic prostate cancer progression
". My goal is understanding exercise in an environment
JohnInTheMiddle
in
Advanced Prostate Cancer
7 months ago
fed up 😢
hi everyone I’ve been on pred 60mg for a month with a few hospital stays. caught Covid for the first time on the ward the day before I came home and was blue lighted back to hospital 3 days later . 2 nights in and I had a stroke ( through Covid). I was very lucky I had the clot buster within the
hi everyone I’ve been on pred 60mg for a month with a few hospital stays. caught Covid for the first time on the ward the day before I came home and was blue lighted back to hospital 3 days later . 2 nights in and I had a stroke ( through Covid). I was very lucky I had the clot buster within the
Brittleasthma47
in
Asthma Community Forum
5 months ago
Afinitor +ESR1 mutation for the hive mind.
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Pbsoup
in
SHARE Metastatic Breast Cancer
7 months ago
Post Rheumatology Appointment
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Paulx222
in
PMRGCAuk
7 months ago
When will we reconcile with the fact that there is no cure now? Possibly never?
This is a vent. Sorry for this, but I am frustrated with the disease and the daily stress of living with it. People don't understand what we're going through and have limited patience with our strange condition. Family and friends who observe us at close quarters start to form their own opinions about
This is a vent. Sorry for this, but I am frustrated with the disease and the daily stress of living with it. People don't understand what we're going through and have limited patience with our strange condition. Family and friends who observe us at close quarters start to form their own opinions about
pdpatient
in
Cure Parkinson's
10 months ago
secondary cancers
Hello I recently read an abstract on 6 year follow up of Ven + Obin. About 20% developed secondary cancers, half of these succumbed to these. The abstract did not address what types of cancers nor recommend specific screening. Does anyone have any DATA on 1. How this 20% compares to CLL patients
Hello I recently read an abstract on 6 year follow up of Ven + Obin. About 20% developed secondary cancers, half of these succumbed to these. The abstract did not address what types of cancers nor recommend specific screening. Does anyone have any DATA on 1. How this 20% compares to CLL patients
skipro
in
CLL Support
7 months ago
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