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DBS
Hello PWP! I thought I’d let you know and share my journey with my husband who had the DBS surgery 6 weeks ago. 2 days ago the battery was turned on and will be adjusted weekly in the next 3 weeks until the right intensity is reached. I was personally hesitant for him to do this surgery as it sounded
Hello PWP! I thought I’d let you know and share my journey with my husband who had the DBS surgery 6 weeks ago. 2 days ago the battery was turned on and will be adjusted weekly in the next 3 weeks until the right intensity is reached. I was personally hesitant for him to do this surgery as it sounded
pdwife41yrs
in
Cure Parkinson's
3 years ago
It’s Monthly Mira Monday 🐶
Hi Folks, hope everyone is enjoying the Bank Holiday. This pic of Mira shows just how much she likes a cuddle and has so aided my recovery along with her mum Bea. I’m doing really well, getting stronger everyday - I had some good news in I don’t need the bowel aneurysm operated on yet - I was told it
Hi Folks, hope everyone is enjoying the Bank Holiday. This pic of Mira shows just how much she likes a cuddle and has so aided my recovery along with her mum Bea. I’m doing really well, getting stronger everyday - I had some good news in I don’t need the bowel aneurysm operated on yet - I was told it
svfarmer
in
LUPUS UK
3 years ago
The Unreasonable Effectiveness of Deep Brain Stimulation Therapy and the Future of Neuromodulation
A good article by Benjamin stretcher https://tmrwedition.com/2021/09/25/the-unreasonable-effectiveness-of-deep-brain-stimulation-therapy-and-the-future-of-neuromodulation/amp/?__twitter_impression=true
A good article by Benjamin stretcher https://tmrwedition.com/2021/09/25/the-unreasonable-effectiveness-of-deep-brain-stimulation-therapy-and-the-future-of-neuromodulation/amp/?__twitter_impression=true
Farooqji
in
Cure Parkinson's
3 years ago
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Non-live shingles vaccine.
I am about to have it, 2 doses at least 8 weeks apart. Has anyone had it and what sort of side effects did you experience please?
I am about to have it, 2 doses at least 8 weeks apart. Has anyone had it and what sort of side effects did you experience please?
Ozziepig
in
MPN Voice
3 years ago
SIDE AFFECTS OF HASHIMOTO'S
GOOD DAY. IS THERE ANYONE ELSE THAT GET SKIN RUSH...LIKE SHINGLES? MOSTLY ON MY NECK AND FACE...WHAT DID YOU USE, PLEASE?
GOOD DAY. IS THERE ANYONE ELSE THAT GET SKIN RUSH...LIKE SHINGLES? MOSTLY ON MY NECK AND FACE...WHAT DID YOU USE, PLEASE?
MiniC
in
Thyroid UK
3 years ago
Typical med progression?
My friend started taking l-dopa within the past year. She works fulltime and her workplace isn't aware of her diagnosis. Currently she's taking 8 Sinemet 100mg daily, plus 3 or 4 Rytary 145mg. She also takes sleeping medication, and botox for curled toes. She's reading articles on DBS. Any advice
My friend started taking l-dopa within the past year. She works fulltime and her workplace isn't aware of her diagnosis. Currently she's taking 8 Sinemet 100mg daily, plus 3 or 4 Rytary 145mg. She also takes sleeping medication, and botox for curled toes. She's reading articles on DBS. Any advice
genesurf
in
Cure Parkinson's
3 years ago
Agomelatine
Anyone has any experience of this helping with extreme anxiety and panic but not causing sleep problems? I’m desperate for information x
Anyone has any experience of this helping with extreme anxiety and panic but not causing sleep problems? I’m desperate for information x
Vicss
in
Anxiety Support
3 years ago
Headaches
Hope everyone is doing well, Iv had a headache for nearly a week now it’s behind my eyes and forehead and top of my head just basically all over also my neck and it’s not going I’m so scared it’s a bleed to the brain or brain tumour. Why isn’t it going!! It’s so bad 😢. Does anyone get this??
Hope everyone is doing well, Iv had a headache for nearly a week now it’s behind my eyes and forehead and top of my head just basically all over also my neck and it’s not going I’m so scared it’s a bleed to the brain or brain tumour. Why isn’t it going!! It’s so bad 😢. Does anyone get this??
Kaaayla
in
Anxiety Support
3 years ago
Advice on recovery after cranioplasty
Hello everyone, I hope everyone is keeping as well as possible. I haven’t posted for a little while, it’s been a period of readjustment for us as we get used to my husband being home and all the changes. He is going into hospital today for his cranioplasty tomorrow, we are all extremely anxious about
Hello everyone, I hope everyone is keeping as well as possible. I haven’t posted for a little while, it’s been a period of readjustment for us as we get used to my husband being home and all the changes. He is going into hospital today for his cranioplasty tomorrow, we are all extremely anxious about
pozza40
in
Headway
3 years ago
Shingles jab
I have had text from doctors saying for me to go and have shingles jab as 70 now has anyone else had this and is it ok to have thanks
I have had text from doctors saying for me to go and have shingles jab as 70 now has anyone else had this and is it ok to have thanks
Chel1
in
MPN Voice
3 years ago
Post DBS experience by Benjamin stretcher
https://tmrwedition.com/2021/08/28/gratitude/amp/
https://tmrwedition.com/2021/08/28/gratitude/amp/
Farooqji
in
Cure Parkinson's
3 years ago
Hypothyroidism-Lyme disease connection?
Has anyone here with Hashimoto's/hypothyroidism discovered they also have Lyme disease? Or that they've had it for years? A couple of knowledgeable friends have insisted I get checked for it, but the last time I knowingly got a few ticks was back in 1995! And, yes, some of my problems might have started
Has anyone here with Hashimoto's/hypothyroidism discovered they also have Lyme disease? Or that they've had it for years? A couple of knowledgeable friends have insisted I get checked for it, but the last time I knowingly got a few ticks was back in 1995! And, yes, some of my problems might have started
DandyThyro
in
Thyroid UK
3 years ago
Lucy Dawson: the model who got a mystery headache, a misdiagnosis – and a new mission in life
We see repeated failure to take seriously, failure to diagnose properly and long term consequences. Although not thyroid, this is an interesting article which raises the profile of autoimmune encephalitis. [i]
Lucy Dawson: the model who got a mystery headache, a misdiagnosis – and a new mission in
We see repeated failure to take seriously, failure to diagnose properly and long term consequences. Although not thyroid, this is an interesting article which raises the profile of autoimmune encephalitis. [i]
Lucy Dawson: the model who got a mystery headache, a misdiagnosis – and a new mission in
helvella
Thyroid UK
in
Thyroid UK
3 years ago
AMANTADINE FOR DYSKINESIA. HAVE YOU AN EXPERIENCE WITH THIS DRUG? PLEASE HELP.
Hi, I might consider this drug for Dyskinesia, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your dyskinesia? How long before it started working for you? My doctor said it could take 4 to 8 weeks.
Hi, I might consider this drug for Dyskinesia, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your dyskinesia? How long before it started working for you? My doctor said it could take 4 to 8 weeks.
OREOLU
in
Cure Parkinson's
3 years ago
What I have learned from 1 year with Early Onset PD - "Glass Half Full"
I decided to keep a journal of my journey - it has been quite a year but I have learned a lot. some of which maybe relevant for new and older PD people. I am not a doctor and this is not a medical opinion but there is lots available to make a stand against PD https://fightparkinsonsdisease.files.wordpress.com
I decided to keep a journal of my journey - it has been quite a year but I have learned a lot. some of which maybe relevant for new and older PD people. I am not a doctor and this is not a medical opinion but there is lots available to make a stand against PD https://fightparkinsonsdisease.files.wordpress.com
blazyb
in
Cure Parkinson's
3 years ago
Titanium mesh so weak
I had got a titanium mesh for a cranioplasty screwed on me and it doesn’t make sense as to why is it so thin and it bends so easy as to I accidentally slept on side if it and now theres been a big dent on it are these things even long lasting will they break easy for a slightly bump on it.If you can
I had got a titanium mesh for a cranioplasty screwed on me and it doesn’t make sense as to why is it so thin and it bends so easy as to I accidentally slept on side if it and now theres been a big dent on it are these things even long lasting will they break easy for a slightly bump on it.If you can
Itsliifee
in
Headway
3 years ago
Past VM and the COVID Vaccine
Has anyone with a past history of VM taken the COVID-19 Vaccine? And If so how did you feel afterwards? And what brand did you take? My son had viral meningitis four years ago and is concerned that the vaccine will trigger a a viral meningitis attack. With this new Delta variant I am much more concerned
Has anyone with a past history of VM taken the COVID-19 Vaccine? And If so how did you feel afterwards? And what brand did you take? My son had viral meningitis four years ago and is concerned that the vaccine will trigger a a viral meningitis attack. With this new Delta variant I am much more concerned
Dutch22
in
Meningitis Now
3 years ago
Is Carbidopa/Levodopa 8x’s a day to much when you have the DBS?
My setting is on 3.30 left side, 1.00 right side. My doctor seems to give me more medicine instead of turning it up and I feel like it is causing a lot more symptoms.
My setting is on 3.30 left side, 1.00 right side. My doctor seems to give me more medicine instead of turning it up and I feel like it is causing a lot more symptoms.
Squarles2
in
Cure Parkinson's
3 years ago
Sharing DBS Journey
Hi, Just wanted to share my dad's process in case it will help anyone... He was diagnosed at 54 years old and will be 70 next month. He is rigidity dominant, experiences freezing of gait (mainly in initiating) and has dyskinesias from his meds (among many other PD symptoms!). Up until almost two years
Hi, Just wanted to share my dad's process in case it will help anyone... He was diagnosed at 54 years old and will be 70 next month. He is rigidity dominant, experiences freezing of gait (mainly in initiating) and has dyskinesias from his meds (among many other PD symptoms!). Up until almost two years
pdkid
in
Cure Parkinson's
3 years ago
Cranioplasty
Hi all. in September 2019 I suffered a catastrophic ABI during surgery to coil an anuerysm resulting in craniotomy I have been waiting since then for my cranioplasty I have now got a proposed date for my cranioplasty Obviously petrified of having further surgery due to my last one not going to plan.
Hi all. in September 2019 I suffered a catastrophic ABI during surgery to coil an anuerysm resulting in craniotomy I have been waiting since then for my cranioplasty I have now got a proposed date for my cranioplasty Obviously petrified of having further surgery due to my last one not going to plan.
Charlie90
in
Headway
3 years ago
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