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lupus and shingles
Hey guys, I hope you’re all keeping safe and well. Just wondering if anyone has any tips or advice on how to manage having lupus and shingles! I got diagnosed on Wednesday and it’s safe to say I’m suffering a bit. Is there anything I should be looking out for? Avoiding? Thanks in advance!
Hey guys, I hope you’re all keeping safe and well. Just wondering if anyone has any tips or advice on how to manage having lupus and shingles! I got diagnosed on Wednesday and it’s safe to say I’m suffering a bit. Is there anything I should be looking out for? Avoiding? Thanks in advance!
Krishny18
in
LUPUS UK
1 year ago
dbs and massage chairs
THis might sound trival but I cannot find a good full massage chair which is pacemaker /DBS friendly. They all exclude people with these devices. Same goes for vibration plates. I get it, they both emit electromagnetic fields. So does my microwave and phone. Any suggestions for Massage chairs (Europe
THis might sound trival but I cannot find a good full massage chair which is pacemaker /DBS friendly. They all exclude people with these devices. Same goes for vibration plates. I get it, they both emit electromagnetic fields. So does my microwave and phone. Any suggestions for Massage chairs (Europe
Curious_Fred
in
Cure Parkinson's
1 year ago
15-Year Subthalamic Deep Brain Stimulation outcome in a Parkinson's disease patient with Parkin gene mutation: a case report
https://pubmed.ncbi.nlm.nih.gov/37032388 Case report: In 1993, a 39-year-old male was diagnosed with PD after the onset of resting tremor. Levodopa was started, and during the following 10 years, he reported good motor symptoms control, with only mild modification of levodopa intake and pramipexole
https://pubmed.ncbi.nlm.nih.gov/37032388 Case report: In 1993, a 39-year-old male was diagnosed with PD after the onset of resting tremor. Levodopa was started, and during the following 10 years, he reported good motor symptoms control, with only mild modification of levodopa intake and pramipexole
Hidden
in
Cure Parkinson's
1 year ago
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pred and tetanus shot??
I will be speaking to a doctor at an emergency clinic but never confident they are well enough informed about the way PMR patients are dosed on pred. I would so appreciate the wisdom of this community. I got a cat scratch today...my fragile skin readily disintegrate...small amount of bleeding. Is
I will be speaking to a doctor at an emergency clinic but never confident they are well enough informed about the way PMR patients are dosed on pred. I would so appreciate the wisdom of this community. I got a cat scratch today...my fragile skin readily disintegrate...small amount of bleeding. Is
agingfeminist
in
PMRGCAuk
1 year ago
Shingles vaccine
My husband has been called in for a shingles vaccination. Am i correct that he should ask for a non live vaccine as the love vaccine poses a risk to me as I am immune suppressed? I seem to remember hearing this somewhere. Still struggling to get answer fro my nurse advice line. Thanks
My husband has been called in for a shingles vaccination. Am i correct that he should ask for a non live vaccine as the love vaccine poses a risk to me as I am immune suppressed? I seem to remember hearing this somewhere. Still struggling to get answer fro my nurse advice line. Thanks
Gilliancheche
in
NRAS
1 year ago
Deep Brain Stimulation
Does anyone have recent personal experience of DBS for tremors? How successful was it as a treatment? Anecdotal information I can probably research for myself. Thank you. I have Cerabellar Ataxia.
Does anyone have recent personal experience of DBS for tremors? How successful was it as a treatment? Anecdotal information I can probably research for myself. Thank you. I have Cerabellar Ataxia.
Ostap
in
Ataxia UK
1 year ago
Video- a personal story
A moving video diary of one young man’s Parkinson’s journey to DBS. Take a look, it is well worth the time. https://m.youtube.com/watch?v=ZGcSGWenvA8
A moving video diary of one young man’s Parkinson’s journey to DBS. Take a look, it is well worth the time. https://m.youtube.com/watch?v=ZGcSGWenvA8
Buckholt
in
Cure Parkinson's
1 year ago
long-term effects of deepbrainstimulation on brain activity
Researchers led by KBI_UHN Drs. Robert Chen and Ghazaleh Darmani shed light on the long-term effects of #deepbrainstimulation on brain activity in people with #parkinsondisease, laying the groundwork for improved therapies The team discovered that deep brain stimulation increased aperiodic beta activity
Researchers led by KBI_UHN Drs. Robert Chen and Ghazaleh Darmani shed light on the long-term effects of #deepbrainstimulation on brain activity in people with #parkinsondisease, laying the groundwork for improved therapies The team discovered that deep brain stimulation increased aperiodic beta activity
Hidden
in
Cure Parkinson's
1 year ago
DBS and cognition
Does having a diagnosis of "major neurocognitive disorder"-- a DSM diagnosis, usually disqualify someone for DBS? Is it dependent on other factors?
Does having a diagnosis of "major neurocognitive disorder"-- a DSM diagnosis, usually disqualify someone for DBS? Is it dependent on other factors?
Agnes1234
in
Cure Parkinson's
1 year ago
CAPSULOTOMY + OTHER OPTIONS
Hi there! I'm quite new here, but I'm CONVINCED of how important this chat is for all of us as OCD sufferers. There are many of us here who are struggling with OCD symptoms every day. I've been following various comments in this chat. And now, I'm encouraged to write this short contribution. As many
Hi there! I'm quite new here, but I'm CONVINCED of how important this chat is for all of us as OCD sufferers. There are many of us here who are struggling with OCD symptoms every day. I've been following various comments in this chat. And now, I'm encouraged to write this short contribution. As many
languageteacher
in
My OCD Community
1 year ago
shingles
been to Aand E I’ve now got shingles in my hair and face 😱think someone dosent like me🥲
been to Aand E I’ve now got shingles in my hair and face 😱think someone dosent like me🥲
Shaza123
in
PMRGCAuk
1 year ago
DBS and Sinemet
I had the DBS surgery last October. After DBS, Sinemet made my PD symptoms worse...especially balance (It's like I am constantly falling forward and my legs are trying to keep up). I told my neurologist about it and she thought is odd that Sinemet would do that. I feel better without the Sinemet.
I had the DBS surgery last October. After DBS, Sinemet made my PD symptoms worse...especially balance (It's like I am constantly falling forward and my legs are trying to keep up). I told my neurologist about it and she thought is odd that Sinemet would do that. I feel better without the Sinemet.
DeanGreen
in
Cure Parkinson's
1 year ago
DBS surgery to help with “ frozen feet “
I was first diagnosed with PD in 2005, over the years my symptoms were for the most part mild and controlled with meds. However several months ago I developed “ frozen feet “ it has altered my quality of life substantially. I have switched exercise workouts to a stationary bicycle, PT therapy 3 times
I was first diagnosed with PD in 2005, over the years my symptoms were for the most part mild and controlled with meds. However several months ago I developed “ frozen feet “ it has altered my quality of life substantially. I have switched exercise workouts to a stationary bicycle, PT therapy 3 times
NewHope1961
in
Cure Parkinson's
1 year ago
Can Adaptive Deep Brain Stimulation Cure Parkinson’s Disease?
Good essay from Benjamin Stecher: https://tmrwedition.com/2022/10/20/can-adaptive-deep-brain-stimulation-cure-parkinsons-disease/ Benjamin has PD. This is his blog: https://tmrwedition.com/my-pd-journey/
Good essay from Benjamin Stecher: https://tmrwedition.com/2022/10/20/can-adaptive-deep-brain-stimulation-cure-parkinsons-disease/ Benjamin has PD. This is his blog: https://tmrwedition.com/my-pd-journey/
Bolt_Upright
in
Cure Parkinson's
1 year ago
non live shingles vaccine
I will be having my shingles vaccine soon (70 in May) - should I ask for non live vaccine - Shingrax? I take 6 mg of prednisolone a day - GP says live vaccine ok if on less than 7.5 mg but check with nurse - should I go private if GP won’t let offer non live vaccine?
I will be having my shingles vaccine soon (70 in May) - should I ask for non live vaccine - Shingrax? I take 6 mg of prednisolone a day - GP says live vaccine ok if on less than 7.5 mg but check with nurse - should I go private if GP won’t let offer non live vaccine?
Daffodilia
in
PMRGCAuk
1 year ago
OCD and Deep Brain stimulation in New York
Hello! I am new here. Could anyone help me please? I need to find out how much is the approximate cost of the surgery called deep brain stimulation in the state of New York. I would like to opt for that surgery if I qualify as suitable. I hope it's not too expensive. Thank you very much in advance. I
Hello! I am new here. Could anyone help me please? I need to find out how much is the approximate cost of the surgery called deep brain stimulation in the state of New York. I would like to opt for that surgery if I qualify as suitable. I hope it's not too expensive. Thank you very much in advance. I
KurtNash
in
My OCD Community
1 year ago
Making plans to go forward?
Hi folks, this is my first post. I'm a year into my brain injury caused by encephalitis. This is the second injury, the first was 5 years ago and I recovered fairly quickly and fully. This second was a surprise to everyone, but apparently I probably have a rare disease that makes recurrent encephalitis
Hi folks, this is my first post. I'm a year into my brain injury caused by encephalitis. This is the second injury, the first was 5 years ago and I recovered fairly quickly and fully. This second was a surprise to everyone, but apparently I probably have a rare disease that makes recurrent encephalitis
PurpleOverlord
in
Headway
1 year ago
A New Parkinson's Treatment - DBS Plus
A New Parkinson's Treatment - DBS Plus - Feb 11, 2020 Learn about a new treatment for Parkinson's being studied at the University of Kentucky HealthCare Brain Restoration Center. https://youtu.be/mdpCPXGtxug
A New Parkinson's Treatment - DBS Plus - Feb 11, 2020 Learn about a new treatment for Parkinson's being studied at the University of Kentucky HealthCare Brain Restoration Center. https://youtu.be/mdpCPXGtxug
Bolt_Upright
in
Cure Parkinson's
1 year ago
Vagal Nerve Stimulation (tVNS) Research Summary
Some definitions for clarity. Neuromodulation, stimulating nerves (usually with electricity) to change (hopefully improve) or control their function. Deep Brain Stimulation (DBS) is a form of neuromodulation. Neuromodulation can be invasive, requiring surgery (like DBS) or noninvasive which provides
Some definitions for clarity. Neuromodulation, stimulating nerves (usually with electricity) to change (hopefully improve) or control their function. Deep Brain Stimulation (DBS) is a form of neuromodulation. Neuromodulation can be invasive, requiring surgery (like DBS) or noninvasive which provides
House2
in
Cure Parkinson's
1 year ago
A LOW BUDGET DIY VIBROTACTILE STIMULATOR FOR EXPERIMENTAL CRS
Modern techniques of Coordinated Reset Stimulation (CRS), which is usually administered with invasive deep brain stimulation, can have a miraculous effect on those suffering from Parkinson’s disease. However, the CRS technique can also apparently be administered via so-called vibrotactile CRS (vCRS)
Modern techniques of Coordinated Reset Stimulation (CRS), which is usually administered with invasive deep brain stimulation, can have a miraculous effect on those suffering from Parkinson’s disease. However, the CRS technique can also apparently be administered via so-called vibrotactile CRS (vCRS)
Farooqji
in
Cure Parkinson's
1 year ago
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