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Immunocompromised people aged 50+ are now eligible for the shingles vaccine
Immunocompromised people aged 50 and over are now eligible for the shingles vaccine. The vaccine reduces your chances of getting shingles and reduces the risk of complications if you still develop it. Read more on our website, including answers to some commonly asked questions, here: https://www.lupusuk.org.uk
Immunocompromised people aged 50 and over are now eligible for the shingles vaccine. The vaccine reduces your chances of getting shingles and reduces the risk of complications if you still develop it. Read more on our website, including answers to some commonly asked questions, here: https://www.lupusuk.org.uk
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
When will we reconcile with the fact that there is no cure now? Possibly never?
This is a vent. Sorry for this, but I am frustrated with the disease and the daily stress of living with it. People don't understand what we're going through and have limited patience with our strange condition. Family and friends who observe us at close quarters start to form their own opinions about
This is a vent. Sorry for this, but I am frustrated with the disease and the daily stress of living with it. People don't understand what we're going through and have limited patience with our strange condition. Family and friends who observe us at close quarters start to form their own opinions about
pdpatient
in
Cure Parkinson's
1 year ago
DBS and balance
My left side is amore severe than right hence the voltage is higher and more contact points . My body tends to tilt to the right’ and I tend to fall backward on the right, My neurologist tried to reduce the frequency, it helps with the balance but not so good at reducing stiffness. Any insight?
My left side is amore severe than right hence the voltage is higher and more contact points . My body tends to tilt to the right’ and I tend to fall backward on the right, My neurologist tried to reduce the frequency, it helps with the balance but not so good at reducing stiffness. Any insight?
limcheeese22
in
Cure Parkinson's
1 year ago
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Too much C\L worsens symptoms?
Dx 6 years ago DBS 3 years ago . lately take extra dose for some occasions, my body becomes more tense, stiffer and slower no dskynesia though then I take another dose to address it ,sometimes work sometimes don’t, it confuses me, Does anyone have experience to share?
Dx 6 years ago DBS 3 years ago . lately take extra dose for some occasions, my body becomes more tense, stiffer and slower no dskynesia though then I take another dose to address it ,sometimes work sometimes don’t, it confuses me, Does anyone have experience to share?
limcheeese22
in
Cure Parkinson's
1 year ago
Heart pacemaker and DBS
Are there individuals or patients who have had heart pacemakers and DBS? Any thoughts, suggestions or comments. and are making use of them?
Are there individuals or patients who have had heart pacemakers and DBS? Any thoughts, suggestions or comments. and are making use of them?
surdug1
in
British Heart Foundation
1 year ago
DBS scars after one week
Hi everyone. Here’s how it looks after a week. I look a bit startled in this don’t I ? Probably astonished that the sun is shining in the U.K.
Hi everyone. Here’s how it looks after a week. I look a bit startled in this don’t I ? Probably astonished that the sun is shining in the U.K.
jeeves19
in
Cure Parkinson's
1 year ago
Heart pacemaker and DBS
Are there individuals or patients who have had heart pacemakers and DBS? Any thoughts, suggestions or comments.
Are there individuals or patients who have had heart pacemakers and DBS? Any thoughts, suggestions or comments.
surdug1
in
Cure Parkinson's
1 year ago
About me
In the late spring of 2015, I found myself depressed. I sought out a psychologist. I quite liked him, but treatment had no positive effects. I was experiencing strange physical effects at the same time… Things like walking became difficult, my body was stiff, and my sense of smell and taste had diminished
In the late spring of 2015, I found myself depressed. I sought out a psychologist. I quite liked him, but treatment had no positive effects. I was experiencing strange physical effects at the same time… Things like walking became difficult, my body was stiff, and my sense of smell and taste had diminished
Megafone
in
Cure Parkinson's
1 year ago
Out of Remission
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
MyCLLJourney
in
CLL Support
1 year ago
DBS in restless legs syndrome: a new therapeutic approach
has anyone any information on Deep Brain Stimulation (DBS) and RLS? This is the title of a short case study in Sleep Medicine 2020 by Casoni et al Might it help some of us ?
has anyone any information on Deep Brain Stimulation (DBS) and RLS? This is the title of a short case study in Sleep Medicine 2020 by Casoni et al Might it help some of us ?
thorp
in
Restless Legs Syndrome
1 year ago
I vont to be alone…………
8 years in, DBS on Wednesday. You know you’re sick when you’re actually looking forward to brain 🧠 surgery eh? 😂. I was thinking last night how much I rely on my wife these days. Such a fine woman 👩: cooks food, washes the clothes, takes our pooch for a walk, hold down a teaching job, taxis me about
8 years in, DBS on Wednesday. You know you’re sick when you’re actually looking forward to brain 🧠 surgery eh? 😂. I was thinking last night how much I rely on my wife these days. Such a fine woman 👩: cooks food, washes the clothes, takes our pooch for a walk, hold down a teaching job, taxis me about
jeeves19
in
Cure Parkinson's
1 year ago
Could Psychedelics help in Parkinsons Disease treatment?
Long read. Promises hope for stroke victims. https://www.wired.com/story/the-psychedelic-scientist-who-sends-brains-back-to-childhood/ ----------------- Here is the responses from AI when fed this article. I asked Claude to summarize the article and hypothetically project possible treatment options
Long read. Promises hope for stroke victims. https://www.wired.com/story/the-psychedelic-scientist-who-sends-brains-back-to-childhood/ ----------------- Here is the responses from AI when fed this article. I asked Claude to summarize the article and hypothetically project possible treatment options
pdpatient
in
Cure Parkinson's
1 year ago
DBS effectiveness.
Was DBS effective in treating your pain, stiffness, dyskinesias? Did it have any affect with freezing? I find myself taking more and more meds, and new treatments are taking to long to get here.
Was DBS effective in treating your pain, stiffness, dyskinesias? Did it have any affect with freezing? I find myself taking more and more meds, and new treatments are taking to long to get here.
cjCardio53
in
Cure Parkinson's
1 year ago
Tinnitus
Hi everyone. I’ve had tinnitus for about…..I’d say 25 years.? Started in the left (high pitched but ignorable for the most part) but about 4 months ago went over to the right. This one is much more obtrusive and sounds like someone’s hosing down a yard. A real pain in the ass and intuitively I feel that
Hi everyone. I’ve had tinnitus for about…..I’d say 25 years.? Started in the left (high pitched but ignorable for the most part) but about 4 months ago went over to the right. This one is much more obtrusive and sounds like someone’s hosing down a yard. A real pain in the ass and intuitively I feel that
jeeves19
in
Cure Parkinson's
1 year ago
Lyme Disease
Hello, I hope everyone is feeling as well as possible. Can I ask about links between Lyme Disease and RA? What is actually known? My daughter was talking about ticks the other day (we are both walkers) when I said I had had (in my late teens) a bullseye mark from a tick on my leg, she said ‘well that
Hello, I hope everyone is feeling as well as possible. Can I ask about links between Lyme Disease and RA? What is actually known? My daughter was talking about ticks the other day (we are both walkers) when I said I had had (in my late teens) a bullseye mark from a tick on my leg, she said ‘well that
Lyndy
in
NRAS
1 year ago
shingles vaccine
no you can't have the shingles as it is a live vaccine. You don't get offered the shingles vaccine until you are 70
no you can't have the shingles as it is a live vaccine. You don't get offered the shingles vaccine until you are 70
bunnycaramel
in
NRAS
1 year ago
Shingles
I had shingles 7 years agoi am 69 and left me with the most terrible pain neurphatic pain is the worst i think no meds have helped me.i have RA lung fibrosis had cancer sjorgrens i think i canr expect more patologies.i recomend people to have the shingix vaccine because this pain is Agony!!
I had shingles 7 years agoi am 69 and left me with the most terrible pain neurphatic pain is the worst i think no meds have helped me.i have RA lung fibrosis had cancer sjorgrens i think i canr expect more patologies.i recomend people to have the shingix vaccine because this pain is Agony!!
Al1954
in
NRAS
1 year ago
Shingles Vaccine
I have RA and am currently taking hydroxychloroquin, methotrexate and amgevita. I’m trying to work out whether at age 61 with a compromised immune system, I will qualify for the new shingrix (shingles non-live) vaccine on the NHS? Does anyone know?
I have RA and am currently taking hydroxychloroquin, methotrexate and amgevita. I’m trying to work out whether at age 61 with a compromised immune system, I will qualify for the new shingrix (shingles non-live) vaccine on the NHS? Does anyone know?
CagneysMum
in
NRAS
1 year ago
Shingles Vaccine
Shingles Vaccine From September 2023 you will be eligible for vaccine from age 65. Advertised on TV yesterday Rose
Shingles Vaccine From September 2023 you will be eligible for vaccine from age 65. Advertised on TV yesterday Rose
Rose54
in
PMRGCAuk
1 year ago
DBS lead placement options.
Morning all. I had a zoom meeting with my neurosurgeon the other day. I’m pretty sure that she stated she was going for the STN as the site for leads. In my typical blokey way I just nodded along accepted whatever she said. But reading up on lead placing, I’m getting the distinct impression that for
Morning all. I had a zoom meeting with my neurosurgeon the other day. I’m pretty sure that she stated she was going for the STN as the site for leads. In my typical blokey way I just nodded along accepted whatever she said. But reading up on lead placing, I’m getting the distinct impression that for
jeeves19
in
Cure Parkinson's
1 year ago
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