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Continued Journey
I will be starting the prep for my Bone Marrow Transplant (June 27) Friday. I have 5 days of chemo starting Friday this week, with a rest day before the BMT. Apprehension has been growing in me but it is balanced by others that have successfully made this journey. Also, my Drs. And team give an
I will be starting the prep for my Bone Marrow Transplant (June 27) Friday. I have 5 days of chemo starting Friday this week, with a rest day before the BMT. Apprehension has been growing in me but it is balanced by others that have successfully made this journey. Also, my Drs. And team give an
FiArt12X
in
CLL Support
29 days ago
SCT journey update No.3
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell transplant, my transplant team @ Addenbrookes Hospital are working towards me starting chemotherapy at the end of July with the transplant taking place approx one week later at start of August. I have one more appointment
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell transplant, my transplant team @ Addenbrookes Hospital are working towards me starting chemotherapy at the end of July with the transplant taking place approx one week later at start of August. I have one more appointment
LFCLove
in
MPN Voice
1 month ago
Borderline TSH during cancer treatment
Hi folks! Haven't been on here for some time but in the interim I have been treated for Chronic Myeloid Leukaemia. Had chemo in September last year which was successful (minus a few hiccups like fungal pneumonia that put me in ICU!) and currently on home oral chemo, antifungals and antibiotics daily
Hi folks! Haven't been on here for some time but in the interim I have been treated for Chronic Myeloid Leukaemia. Had chemo in September last year which was successful (minus a few hiccups like fungal pneumonia that put me in ICU!) and currently on home oral chemo, antifungals and antibiotics daily
spongecat
in
Thyroid UK
1 month ago
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Circumcision
Hi. I'm considering circumcision.Ive always found the phimotic ring annoying.Fine when flaccid.When erect its like a constriction.Feel like it just gets in the road.And it is on the tight side moving over the erect glans.
Hi. I'm considering circumcision.Ive always found the phimotic ring annoying.Fine when flaccid.When erect its like a constriction.Feel like it just gets in the road.And it is on the tight side moving over the erect glans.
Ttbone69
in
Men's Health Forum
8 months ago
Starting trial of levothyroxine
I have had further tests with some showing in range tsh and over range tsh, my last set of blood tests were done on 4th December 8.30am no food/fluid before hand, my results were: Vitamin D 60nmol/L (no range) >75 optimal for
bone
health
Serum vitamin B12 298ng/l range 190 - 883 Serum ferritin 24ug
I have had further tests with some showing in range tsh and over range tsh, my last set of blood tests were done on 4th December 8.30am no food/fluid before hand, my results were: Vitamin D 60nmol/L (no range) >75 optimal for
bone
health
Serum vitamin B12 298ng/l range 190 - 883 Serum ferritin 24ug
Cabbages123
in
Thyroid UK
7 months ago
continuing the journey
I just had my 3rd round of Chemotherapy ( O CHOP). Doing pretty well, will see 2nd week is usually the hardest. My oncologist was very pleased with how I have responded (ei. Platelets 357 from 1st chemo 10).I also had a port put in my chest last week for easier access for infusion iOS and blood work.
I just had my 3rd round of Chemotherapy ( O CHOP). Doing pretty well, will see 2nd week is usually the hardest. My oncologist was very pleased with how I have responded (ei. Platelets 357 from 1st chemo 10).I also had a port put in my chest last week for easier access for infusion iOS and blood work.
FiArt12X
in
CLL Support
2 months ago
Tight Foreskin
So I'm 25 and got a tight foreskin. But when I'm flaccid I can pull the foreskin back the issue is when I'm erect it doesn't pull all the way back and I can't touch the head as its a bit sensitive. I was looking at creams and streching rings but not sure what I'm looking at. Just wondering what any
So I'm 25 and got a tight foreskin. But when I'm flaccid I can pull the foreskin back the issue is when I'm erect it doesn't pull all the way back and I can't touch the head as its a bit sensitive. I was looking at creams and streching rings but not sure what I'm looking at. Just wondering what any
Deep279
in
Men's Health Forum
8 months ago
Sorry it has been a while with an update on Ruxolitinib
The last time I wrote to you all was about 2/3 years ago when I started Ruxolitinib. The first 6 to 8 months I was a different person, I felt great. I started to swim, (200 lengths in 1.5 hours) then I started to get water infections, one after the other, chest infections, ear infections and shingles
The last time I wrote to you all was about 2/3 years ago when I started Ruxolitinib. The first 6 to 8 months I was a different person, I felt great. I started to swim, (200 lengths in 1.5 hours) then I started to get water infections, one after the other, chest infections, ear infections and shingles
wendycu
in
MPN Voice
2 months ago
Quite the CLL journey
2012-2013 suspicion of CLL, enlarged lymph nodes in abdomen. Meet with oncologist, blood work does not reveal definitive diagnosis. Yearly appointments with blood work recommended 2016 enlarged lymph node removed from neck, biopsy confirmed CLL, watch and wait. 2018 escalating white blood count and
2012-2013 suspicion of CLL, enlarged lymph nodes in abdomen. Meet with oncologist, blood work does not reveal definitive diagnosis. Yearly appointments with blood work recommended 2016 enlarged lymph node removed from neck, biopsy confirmed CLL, watch and wait. 2018 escalating white blood count and
FiArt12X
in
CLL Support
2 months ago
Japan and stem cells treatment
Hi there was a post last week about stem cell transplant in Japan. I thought I had saved it but obviously not! Does anyone have a link for it please?
Hi there was a post last week about stem cell transplant in Japan. I thought I had saved it but obviously not! Does anyone have a link for it please?
Bluebell2022
in
Cure Parkinson's
2 months ago
New member - Post ET MF (Australia)
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
Hatchie
in
MPN Voice
2 months ago
Stem cell transplant (SCT) 15 months on
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
Scaredy_cat
in
MPN Voice
2 months ago
stem cell transplant survival with MF
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
Scaredy_cat
in
MPN Voice
2 months ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
3 months ago
dilemma ADT duration
There is the fear that the potential damage from the longer ADT might be detrimental to my QoL and physical
health
such as
bone
health
, muscle mass etc outweighing the advantage.
There is the fear that the potential damage from the longer ADT might be detrimental to my QoL and physical
health
such as
bone
health
, muscle mass etc outweighing the advantage.
SimMartin
in
Advanced Prostate Cancer
11 months ago
Understanding family history, osteoporosis and bone health #BoneMatters
campaign=77a866ee-c708-ed11-82e5-0022481b5a28
Bone
health
for all - https://theros.org.uk/information-and-support/
bone
-
health
/ Getting your bones checked booklets - https://strwebprdmedia.blob.core.windows.net/media/n2bl45ro/getting-your-bones-checked-to-keep-them-healthy-easy-print-version.pdf
campaign=77a866ee-c708-ed11-82e5-0022481b5a28
Bone
health
for all - https://theros.org.uk/information-and-support/
bone
-
health
/ Getting your bones checked booklets - https://strwebprdmedia.blob.core.windows.net/media/n2bl45ro/getting-your-bones-checked-to-keep-them-healthy-easy-print-version.pdf
ROSModerator
Partner
in
Bone Health and Osteoporosis UK
1 year ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
lizzziep
in
MPN Voice
3 months ago
Avoiding falls and breaking bones #Bonematters
In this session, we’ll look at ways of reducing the risk of falls to maintaining
bone
health
, independence, and quality of life.
In this session, we’ll look at ways of reducing the risk of falls to maintaining
bone
health
, independence, and quality of life.
ROSModerator
Partner
in
Bone Health and Osteoporosis UK
10 months ago
Fracture Risk
Asthma and
bone
health
there is a proven risk and connection. I think it ought to be in annual asthma reviews.
Asthma and
bone
health
there is a proven risk and connection. I think it ought to be in annual asthma reviews.
Rosesgrower
in
Asthma Community Forum
10 months ago
Stem cell transplant
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
Leighcox85
in
MPN Voice
3 months ago
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