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A diagnosis! Yipee! Kawasaki Disease, look for calcified aneurysms! (also a question about warfarin)
Hey you lovely lot! So, some of you know that I needed a 2x CABG Jan 2022 aged 34 (very nearly my newly plumbed heart's birthday!) and every Dr/Cardiologiost that looked at my notes/history/angiograms came away scratching their heads and not understanding what had happened or why my vessels were so
Hey you lovely lot! So, some of you know that I needed a 2x CABG Jan 2022 aged 34 (very nearly my newly plumbed heart's birthday!) and every Dr/Cardiologiost that looked at my notes/history/angiograms came away scratching their heads and not understanding what had happened or why my vessels were so
MarmiteB
in
British Heart Foundation
1 year ago
Who else has Myelodysplastic Syndromes (MDS) in addition to their PCa?
Dx a month ago as having trilineage MDS with Ring Sideroblasts(MDS-RS), somewhere between low and intermediate. Described as bone marrow cancers and a bone marrow biopsy is required for dx. It morphs into Acute Myloid Leukemia in 30-40% of the cases. Know that my shit is weak and am searching for
Dx a month ago as having trilineage MDS with Ring Sideroblasts(MDS-RS), somewhere between low and intermediate. Described as bone marrow cancers and a bone marrow biopsy is required for dx. It morphs into Acute Myloid Leukemia in 30-40% of the cases. Know that my shit is weak and am searching for
SpencerBoy11
in
Advanced Prostate Cancer
1 year ago
Anyone had EMDR
Hi all like so many on here we all know how our mental health suffers following the sort of cardiac problems we all have. I’ve been told a few times due to My 2 x HT and quadruple CABG all within a month and what I’ve seen at work I probably have PTSD well that’s now been confirmed and I have to say
Hi all like so many on here we all know how our mental health suffers following the sort of cardiac problems we all have. I’ve been told a few times due to My 2 x HT and quadruple CABG all within a month and what I’ve seen at work I probably have PTSD well that’s now been confirmed and I have to say
Jako999
in
British Heart Foundation
2 years ago
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2023 started on a downer again.
We’ll I thought after my 2 x MI and my quadruple CABG in 2022 I was hoping 2023 would be better and I’m sure it will but yesterday on the first of a new year I ended up at A and E. At least it’s not my heart at least I don’t think so, pain swelling and a lump in my groin, I think it’s an infected lymph
We’ll I thought after my 2 x MI and my quadruple CABG in 2022 I was hoping 2023 would be better and I’m sure it will but yesterday on the first of a new year I ended up at A and E. At least it’s not my heart at least I don’t think so, pain swelling and a lump in my groin, I think it’s an infected lymph
Jako999
in
British Heart Foundation
2 years ago
Bone Marrow Transplant
A wonderful uplifting post to read first thing in the morning. You've made my day!
A wonderful uplifting post to read first thing in the morning. You've made my day!
Sivasi
in
MPN Voice
1 year ago
BONE MARROW TRANSPLANT
Good evening to you , I hope you are all well. I would like to share my special news with you all , today I completed day 2 of my conditioning ahead of my BMT on Thursday 2nd February 2023. I am both privileged and excited about my journey and have no fear or doubts. Special thanks to all of you,
Good evening to you , I hope you are all well. I would like to share my special news with you all , today I completed day 2 of my conditioning ahead of my BMT on Thursday 2nd February 2023. I am both privileged and excited about my journey and have no fear or doubts. Special thanks to all of you,
kevinbros
in
MPN Voice
1 year ago
Reason to be cheerful
Obvs a lot of people are really worried about heart diseases in this forum. TBH I sometimes share those concerns ... but in general I try to post positive reassuring posts about CHD and CAD. I'm 63 (64 in a few days) and have been really busy with a nerdy consultancy project. Quite by chance the project
Obvs a lot of people are really worried about heart diseases in this forum. TBH I sometimes share those concerns ... but in general I try to post positive reassuring posts about CHD and CAD. I'm 63 (64 in a few days) and have been really busy with a nerdy consultancy project. Quite by chance the project
Fish4Info
in
British Heart Foundation
2 years ago
So fed up, after CABG worse off.
I don't know if anyone remembers me. I had a triple bypass on 16th September followed by internal bleeding, severe AF, a collapsed lung and fluid on the lung. Two days after discharge I was rushed back in to my local hospital with a saddle PE, PEs in both lungs and a clot in my heart. These had clearly
I don't know if anyone remembers me. I had a triple bypass on 16th September followed by internal bleeding, severe AF, a collapsed lung and fluid on the lung. Two days after discharge I was rushed back in to my local hospital with a saddle PE, PEs in both lungs and a clot in my heart. These had clearly
Sljp0000
in
British Heart Foundation
2 years ago
CLL Society interview - Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
lankisterguy
Volunteer
in
CLL Support
1 year ago
Preparations afoot for my stem cell transplant
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
Scaredy_cat
in
MPN Voice
1 year ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
1 year ago
isosobardene and sharp burning pain in centre of chest and also in abdomen. Allergic reaction?
Since starting isosobardene for angina, I am experiencing what I think is panic attacks, but my cardiac doc says it can also be unstable angina.I think it may be an extreme version of 'flushing' or some form of reaction. I never had this until after an angiogram and being put on this medication. I write
Since starting isosobardene for angina, I am experiencing what I think is panic attacks, but my cardiac doc says it can also be unstable angina.I think it may be an extreme version of 'flushing' or some form of reaction. I never had this until after an angiogram and being put on this medication. I write
Kris5219
in
British Heart Foundation
2 years ago
Teeth
graft
and 3 implants and im going back in September for new crowns on all my teeth I can’t wait I just hope I’ve made the right decision I can’t stop worrying has anyone else had this done ?
graft
and 3 implants and im going back in September for new crowns on all my teeth I can’t wait I just hope I’ve made the right decision I can’t stop worrying has anyone else had this done ?
Krystalkeira
in
My MSAA Community
2 years ago
Stem Cell Transplant (stc) after care
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Scaredy_cat
in
MPN Voice
2 years ago
On a downer
As most of you know my history is HT then 4x CABG then another HT all in the month of June and all out of the blue, I went through a big downer at the start now 5 months on I’m going through it again. I’m not feeling the anxiety a lot anymore but the reason is before this all happened I felt fine and
As most of you know my history is HT then 4x CABG then another HT all in the month of June and all out of the blue, I went through a big downer at the start now 5 months on I’m going through it again. I’m not feeling the anxiety a lot anymore but the reason is before this all happened I felt fine and
Jako999
in
British Heart Foundation
2 years ago
supra-arterial myotomy
hello has anyone had this heart surgery? It seems to be more available in US but not so in UK. Technically it’s cutting the heart muscle open to release the (most common) LAD which grew inside the heart muscle instead of on the surface of the heart during pregnancy so is a congenital heart defect (myocardial
hello has anyone had this heart surgery? It seems to be more available in US but not so in UK. Technically it’s cutting the heart muscle open to release the (most common) LAD which grew inside the heart muscle instead of on the surface of the heart during pregnancy so is a congenital heart defect (myocardial
Hidden
in
British Heart Foundation
2 years ago
COVID: Staying Safe As The Virus Evolves - LLS Podcast / CLL Society’s COVID-19 Update December 5th, 2022 / Dec 15 2022 end Antibody Study
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
lankisterguy
Volunteer
in
CLL Support
2 years ago
COVID update: Who remains at higher risk? by LLS.org
COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resources Almost exactly three years ago on December 12, 2019, we received the first reports of a cluster of patients in China with symptoms of what turned out to be COVID-19. Vaccines and COVID-19 treatments have dramatically
COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resources Almost exactly three years ago on December 12, 2019, we received the first reports of a cluster of patients in China with symptoms of what turned out to be COVID-19. Vaccines and COVID-19 treatments have dramatically
lankisterguy
Volunteer
in
CLL Support
2 years ago
rhubidium scan result and angiogram/stents next week
I have more than 10% ischaemia in the lateral wall (circumflex territory) and epicardial calcification on CT for cancer surveillance. How mild or serious is this? I am having an angiogram next week with stent if possible but there is a chance I will need a CABG instead. Any similar experiences?
I have more than 10% ischaemia in the lateral wall (circumflex territory) and epicardial calcification on CT for cancer surveillance. How mild or serious is this? I am having an angiogram next week with stent if possible but there is a chance I will need a CABG instead. Any similar experiences?
Nurse66
in
British Heart Foundation
2 years ago
ahoy me hearties, just a quick question. Is a daily dose of extra virgin olive oil beneficial 3.5 yrs after cabg x3
ahoy me hearties, is a daily dose of extra virgin olive oil beneficial 3.5 yrs after x2 cabg , Thanks
ahoy me hearties, is a daily dose of extra virgin olive oil beneficial 3.5 yrs after x2 cabg , Thanks
George249
in
British Heart Foundation
2 years ago
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