Search
Search
About
Log in
Join
Experiences with
Blood cancer
Posts
Communities
86,476 public posts
Filter results
Update on my CLL diagnosis
There is this comprehensive
blood
test called Galleri and it checks for any
cancer
markers in the body. This is not covered by insurance but is well recieved and sanctioned by the Mayo Clinic. It costs around $900 but I think its money well spent.
There is this comprehensive
blood
test called Galleri and it checks for any
cancer
markers in the body. This is not covered by insurance but is well recieved and sanctioned by the Mayo Clinic. It costs around $900 but I think its money well spent.
tenniselbowz
in
CLL Support
2 months ago
Need advice on clinical trial RO7656594
I have updated our profile, but in a nutshell we've gone through abiraterone, Xtandi, docetaxel, Pluvicto , cabazitaxel and carboplatin. My husband's most recent PSA on 4/12 was 79.52. His MO has put a hold on chemo our last 3 appointments due to pancytopenia. He's received 2 blood transfusions on his
I have updated our profile, but in a nutshell we've gone through abiraterone, Xtandi, docetaxel, Pluvicto , cabazitaxel and carboplatin. My husband's most recent PSA on 4/12 was 79.52. His MO has put a hold on chemo our last 3 appointments due to pancytopenia. He's received 2 blood transfusions on his
Yadifan
in
Advanced Prostate Cancer
2 months ago
Pulmonary Node revealed with PET scan not growing
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
Eadgbe
in
Advanced Prostate Cancer
1 month ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Macrogol (Dulcoease)
Hi, has anyone else found that laxative treatments containing Macrogol increases their pain and bloating considerably? I have just been put on this and Mebeverine, but am still in a lot of pain, which seems worse when I take Macrogol. Thanks
Hi, has anyone else found that laxative treatments containing Macrogol increases their pain and bloating considerably? I have just been put on this and Mebeverine, but am still in a lot of pain, which seems worse when I take Macrogol. Thanks
Gardener
in
IBS Network
4 months ago
Successful Pluvicto Treatment
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
Skifanatic
in
Advanced Prostate Cancer
4 months ago
PSMA-Addition Trial can give access to Pluvicto for DeNovo or mHSPC
The range of access to Pluvicto (Lu177-PSMA-617) radionuclide treatment is expanding. Great news. The PSMA-Fore trial recently showed that it iis very beneficial before docetaxel chemotherapy in mCRPC. Now a worldwide trial is exploring it in metastatic hormone sensitive PC, including de novo metastatic
The range of access to Pluvicto (Lu177-PSMA-617) radionuclide treatment is expanding. Great news. The PSMA-Fore trial recently showed that it iis very beneficial before docetaxel chemotherapy in mCRPC. Now a worldwide trial is exploring it in metastatic hormone sensitive PC, including de novo metastatic
MateoBeach
in
Advanced Prostate Cancer
4 months ago
Possible NHS misdiagnosis saying clear for HPV when private home test says positive with variant 16 (the test and smear were 14 days apart)
I have tested HPV positive for 2 smears a year apart, the last one was Oct 2023. So I went for my third on 18 Jan this year and have just been given the all clear and told it will repeated in 5 years (which I doubt as I will be 71 then). HOWEVER, I had already done a home test with Medicines Online
I have tested HPV positive for 2 smears a year apart, the last one was Oct 2023. So I went for my third on 18 Jan this year and have just been given the all clear and told it will repeated in 5 years (which I doubt as I will be 71 then). HOWEVER, I had already done a home test with Medicines Online
destiny234
in
Gynae Cancer Support
4 months ago
Case of stage 3 PCa patient that chose plant based diet
Stewart D Rose & Amanda J Strombom, 2020. "Stage 3 Prostate Cancer Treated with a Plant-Based Diet A Case Report," Cancer Therapy & Oncology International Journal, Juniper Publishers Inc., vol. 15(5), pages 142-143, February. Volume 15 Issue 5 - February 2020 DOI: 10.19080/CTOIJ.2020.15.555922 Abstract
Stewart D Rose & Amanda J Strombom, 2020. "Stage 3 Prostate Cancer Treated with a Plant-Based Diet A Case Report," Cancer Therapy & Oncology International Journal, Juniper Publishers Inc., vol. 15(5), pages 142-143, February. Volume 15 Issue 5 - February 2020 DOI: 10.19080/CTOIJ.2020.15.555922 Abstract
Graham49
in
Advanced Prostate Cancer
1 month ago
TRAP trial: radiotherapy combined with hormone therapy can help some advanced prostate cancer patients avoid chemotherapy
TRAP is maybe not the best name for a clinical trial, but hey… https://www.icr.ac.uk/news-archive/new-trial-finds-radiotherapy-combined-with-hormone-therapy-can-help-some-advanced-prostate-cancer-patients-avoid-chemotherapy
TRAP is maybe not the best name for a clinical trial, but hey… https://www.icr.ac.uk/news-archive/new-trial-finds-radiotherapy-combined-with-hormone-therapy-can-help-some-advanced-prostate-cancer-patients-avoid-chemotherapy
Maxone73
in
Advanced Prostate Cancer
1 month ago
new trial uses water vapor to treat prostate cancer
”This treatment does not require chemotherapy, radiation, or surgery; and as such, patients are not subjected to the harsh side effects that can come from traditional cancer treatments.” https://www.prnewswire.com/news-releases/memorialcare-cancer-institute-revolutionizes-prostate-cancer-treatment-hot-water-potential-solution-to-prostate-cancer
”This treatment does not require chemotherapy, radiation, or surgery; and as such, patients are not subjected to the harsh side effects that can come from traditional cancer treatments.” https://www.prnewswire.com/news-releases/memorialcare-cancer-institute-revolutionizes-prostate-cancer-treatment-hot-water-potential-solution-to-prostate-cancer
Maxone73
in
Advanced Prostate Cancer
1 month ago
Treatment for low-PSA mHSPCa
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Purple-Bike
in
Advanced Prostate Cancer
4 months ago
Mets to lungs and lymph nodes need some advice
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Niso
in
Advanced Prostate Cancer
4 months ago
Walsh's Folly?
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
VoxHope
in
Advanced Prostate Cancer
1 month ago
Uncertainty is the worst
Hello!To cut a long story short, I had Hodgkins lymphoma in 2005 and therefore am at higher risk of breast cancer. A CT scan showed that something in my right breast took the dye. The follow mammogram is not showing anything but I have very dense breast tissue. The right breast is now a whole cup size
Hello!To cut a long story short, I had Hodgkins lymphoma in 2005 and therefore am at higher risk of breast cancer. A CT scan showed that something in my right breast took the dye. The follow mammogram is not showing anything but I have very dense breast tissue. The right breast is now a whole cup size
Nightkittens
in
SHARE Breast Cancer Support
4 months ago
sct update so far
I just wanted let you all know how iam getting on I have been in since the 29 and have been having chemo daily I have had no side effects so far my doctor said I can take chemotherapy like water but don’t get to ahead of myself as this is the easy bit which I knew from countless hours of research but
I just wanted let you all know how iam getting on I have been in since the 29 and have been having chemo daily I have had no side effects so far my doctor said I can take chemotherapy like water but don’t get to ahead of myself as this is the easy bit which I knew from countless hours of research but
Leighcox85
in
MPN Voice
1 month ago
Recurrence :(
Hi ladies,I haven't posted on here for a while, but I've just found out that my cancer has come back. I was initially diagnosed in October 2021 with stage 4 HGSOC and had 6 rounds of carbotaxol with a total abdominal hysterectomy and omentectomy after the 3rd cycle. I then went on to Olaparib, initially
Hi ladies,I haven't posted on here for a while, but I've just found out that my cancer has come back. I was initially diagnosed in October 2021 with stage 4 HGSOC and had 6 rounds of carbotaxol with a total abdominal hysterectomy and omentectomy after the 3rd cycle. I then went on to Olaparib, initially
Kjpip
in
My Ovacome
2 months ago
Triplet Therapy for HSPC
This article came over on the Prostate Cancer Newletter. https://www.onclive.com/view/dr-sharma-on-questions-regarding-the-optimal-use-of-triplet-therapies-in-hspc?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter I am unsure based on lack of detail and to a smaller extent a comment by
This article came over on the Prostate Cancer Newletter. https://www.onclive.com/view/dr-sharma-on-questions-regarding-the-optimal-use-of-triplet-therapies-in-hspc?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter I am unsure based on lack of detail and to a smaller extent a comment by
treedown
in
Advanced Prostate Cancer
4 months ago
Scared and Feeling Helpless
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Cafu6
in
Advanced Prostate Cancer
4 months ago
Testosterone too high?
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
JPnSD
in
Advanced Prostate Cancer
4 months ago
"Gasoline" Source
I have been trying to find the source for the observation? that "Testosterone to prostate cancer is like gasoline on a fire". I finally asked Bing Copilot and ChatGPT-- who came up with the answer. Me: What is the source of the "gasoline on a fire" theory in prostate cancer? ChatGPT: Dr. Patrick
I have been trying to find the source for the observation? that "Testosterone to prostate cancer is like gasoline on a fire". I finally asked Bing Copilot and ChatGPT-- who came up with the answer. Me: What is the source of the "gasoline on a fire" theory in prostate cancer? ChatGPT: Dr. Patrick
VoxHope
in
Advanced Prostate Cancer
1 month ago
1
...
38
39
40
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
24399 results
Advanced Prostate Cancer
12413 results
My Ovacome
4042 results
View top 10 communities
Sort by
Most Relevant
Newest