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I’d like to trBAT a but Dr. Danmeade requires a visit to Maryland. I live in SoCal and this does not work for me at this point
Currently stage four metastatic castrate resistant with multiple failures from robotic surgery to proton, SBRT, eclipse trial, Orgovyx, Provenge, and finally one recent SBRT to hit five spots from my upper spine, ribs and hip. My PSA is still low. but starting to go up from 1.2 to currently 2.5. Dr
Currently stage four metastatic castrate resistant with multiple failures from robotic surgery to proton, SBRT, eclipse trial, Orgovyx, Provenge, and finally one recent SBRT to hit five spots from my upper spine, ribs and hip. My PSA is still low. but starting to go up from 1.2 to currently 2.5. Dr
SViking
in
Advanced Prostate Cancer
29 days ago
Looking for support in supporting my husband
This community has been so informative and I truly appreciate the information I have received from so many incredible people. Thank you! This is the first time I am posting to this group. In October 2023 my husband noticed more frequent use of the bathroom. He had his PSA tested in January which was
This community has been so informative and I truly appreciate the information I have received from so many incredible people. Thank you! This is the first time I am posting to this group. In October 2023 my husband noticed more frequent use of the bathroom. He had his PSA tested in January which was
Smmac15
in
Advanced Prostate Cancer
29 days ago
CRISPR Identifies New Genes as Drivers of Prostate Cancer Metastasis
Three research groups recently independently elucidated the genetic and epigenetic mechanisms driving prostate cancer metastasis. The innovative use of CRISPR technology not only facilitated the discovery of the genes but also opened potential new avenues for targeted cancer therapies to prevent metastasis
Three research groups recently independently elucidated the genetic and epigenetic mechanisms driving prostate cancer metastasis. The innovative use of CRISPR technology not only facilitated the discovery of the genes but also opened potential new avenues for targeted cancer therapies to prevent metastasis
No_stone_unturned
in
Advanced Prostate Cancer
30 days ago
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Chemotherapy- to do or not at 82 years ?
( I made this post earlier but am doing it again in the hope that more men in their 80’s could share their experiences if they took chemotherapy. ) I am 82 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and been told soon
( I made this post earlier but am doing it again in the hope that more men in their 80’s could share their experiences if they took chemotherapy. ) I am 82 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and been told soon
Simpson80
in
Advanced Prostate Cancer
30 days ago
PSMA PET 7/17/2024 vs. Axumin PET 1/3/2024
I had my first ever PSMA PET run this morning, 7/17/2024. Here is the report, followed immediately by the report from my most recent Axumin PET run 1/3/2024. Please give me your valuable feedback. Thank you! Report from PSMA PET run 7/17/2024: PROCEDURE(S): PET/CT TUMOR (PSMA) INDICATIONS: Malignant
I had my first ever PSMA PET run this morning, 7/17/2024. Here is the report, followed immediately by the report from my most recent Axumin PET run 1/3/2024. Please give me your valuable feedback. Thank you! Report from PSMA PET run 7/17/2024: PROCEDURE(S): PET/CT TUMOR (PSMA) INDICATIONS: Malignant
dhccpa
in
Advanced Prostate Cancer
1 month ago
Just and update
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Hawk56
in
Advanced Prostate Cancer
1 month ago
Phase I/II Trial Evaluation of Radioligand Treatment in Patients with Metastatic Castration-Resistant PCa with [161Tb]Tb-PSMA-I&T
and it's supposed to do a better job than Lutetium (Pluvicto) But keep an eye also on 64 Cu SAR Bispsma, which had some incredible results, and of course Actinium....honestly on paper they all seem to be better than Lutetium, well, after all we are evolving... https://www.urotoday.com/recent-abstracts
and it's supposed to do a better job than Lutetium (Pluvicto) But keep an eye also on 64 Cu SAR Bispsma, which had some incredible results, and of course Actinium....honestly on paper they all seem to be better than Lutetium, well, after all we are evolving... https://www.urotoday.com/recent-abstracts
Maxone73
in
Advanced Prostate Cancer
1 month ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
1 month ago
Is there concerning interactions with cytomel/T3?
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Mobilepirate
in
Thyroid UK
1 month ago
My MSK Precise / SBRT Journey -- 2.5 Years Post-Treatment
I completed SBRT treatment for Gleason 7 (3+4) PCa at MSKCC in NYC in November 2021. My PSA was 8.7 right before the treatment. My doctor: Dr. Michael Zelefsky. Since that time: -- My PSA as of May 2024 is 1.32. -- I've had no real urinary issues since treatment except for some bouts of urgency especially
I completed SBRT treatment for Gleason 7 (3+4) PCa at MSKCC in NYC in November 2021. My PSA was 8.7 right before the treatment. My doctor: Dr. Michael Zelefsky. Since that time: -- My PSA as of May 2024 is 1.32. -- I've had no real urinary issues since treatment except for some bouts of urgency especially
Hope4Happiness
in
Prostate Cancer Network
1 month ago
Hormone therapy for the older generation
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
tunybgur
in
Advanced Prostate Cancer
1 month ago
Zometa and Dexa scan
Onco has suggested Zometa as husband has been on ADT for several years. I am reluctant to throw another med at him if it's not definitely necessary. So would you recommend Dexa scan to check for problems before simply accepting Zometa? [Further info: He has never had bone mets show on regular nuclear
Onco has suggested Zometa as husband has been on ADT for several years. I am reluctant to throw another med at him if it's not definitely necessary. So would you recommend Dexa scan to check for problems before simply accepting Zometa? [Further info: He has never had bone mets show on regular nuclear
Proflac
in
Advanced Prostate Cancer
1 month ago
update after 2 yrs on Lynparza and looking for suggestions...
Hello, just wanted to provide an update after meeting my care team today after completing 2 years on Lynparza (after chemo and debulking surgery for hgs stg3b OC) 1. Ca125 very low, that's good. Rest blood parameters are as usual just below normal reference ranges (Rbc, wbc etc; platelets are good though
Hello, just wanted to provide an update after meeting my care team today after completing 2 years on Lynparza (after chemo and debulking surgery for hgs stg3b OC) 1. Ca125 very low, that's good. Rest blood parameters are as usual just below normal reference ranges (Rbc, wbc etc; platelets are good though
Goodgirl98
in
My Ovacome
1 month ago
Question
Was diagnosed with stage 4 metastatic prostate cancer with several mets to the bones and a Gleason score of 10. This was in January 2023. I have been on darolutamide and relugolix since then and also 6 rounds of docetaxol. Everything was good until recently with an increase in PSA from non detectable
Was diagnosed with stage 4 metastatic prostate cancer with several mets to the bones and a Gleason score of 10. This was in January 2023. I have been on darolutamide and relugolix since then and also 6 rounds of docetaxol. Everything was good until recently with an increase in PSA from non detectable
lovepockets
in
Advanced Prostate Cancer
1 month ago
CA125 rising steadily
Hello everyone, I’m looking for people’s thoughts please . I was diagnosed with HGSOC in July 2022. Had 5 cycles of chemo ( 1 of carboplatin and taxol - allergic response to taxol , 4 of carbo) debulking operation in Jan 2023 , followed by 2 further rounds of carboplatin. I have been receiving Avastin
Hello everyone, I’m looking for people’s thoughts please . I was diagnosed with HGSOC in July 2022. Had 5 cycles of chemo ( 1 of carboplatin and taxol - allergic response to taxol , 4 of carbo) debulking operation in Jan 2023 , followed by 2 further rounds of carboplatin. I have been receiving Avastin
Norelo8
in
My Ovacome
1 month ago
One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
kikinini
in
Advanced Prostate Cancer
1 month ago
Blood test
for she said
cancer
I have suffered from ibs but not for few years although a man my anxiety is very bad tonight but trying not show it just had to tell someone thank you
for she said
cancer
I have suffered from ibs but not for few years although a man my anxiety is very bad tonight but trying not show it just had to tell someone thank you
brad
in
IBS Network
7 months ago
Metastatic Prostate Cancer
Just started Zytiga, prednisone and hormone shots for recurrent prostate cancer that has returned and spread to lungs. Just wondering if anyone else is taking these drugs and what their experience has been with side effects the first month or so. Thanks.
Just started Zytiga, prednisone and hormone shots for recurrent prostate cancer that has returned and spread to lungs. Just wondering if anyone else is taking these drugs and what their experience has been with side effects the first month or so. Thanks.
wpeebles
in
Advanced Prostate Cancer
1 month ago
Prostate Cancer PSA is detectible again
I am a 57-year-old male. My prostate cancer was diagnosed in 2019, and I had a radical prostatectomy at Vanderbilt. In early 2023, my PSA went up to 0.12. I underwent a PET scan, which returned negative. However, an MRI revealed a small area at the prostatectomy suture site. On October 27, 2023, I completed
I am a 57-year-old male. My prostate cancer was diagnosed in 2019, and I had a radical prostatectomy at Vanderbilt. In early 2023, my PSA went up to 0.12. I underwent a PET scan, which returned negative. However, an MRI revealed a small area at the prostatectomy suture site. On October 27, 2023, I completed
DLetterman
in
Prostate Cancer Network
1 month ago
change of therapy
Rarely post, but try to read as often as I can. Hope to get the advice based on your experience. Based on my scans it looks that I have progression. New bone mets. TM are trending higher, but not significant. No mutations. I’m in US. I’m on palbo+letrozole for almost 4 years, but of course not
Rarely post, but try to read as often as I can. Hope to get the advice based on your experience. Based on my scans it looks that I have progression. New bone mets. TM are trending higher, but not significant. No mutations. I’m in US. I’m on palbo+letrozole for almost 4 years, but of course not
Tolife_18
in
SHARE Metastatic Breast Cancer
1 month ago
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