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And so it goes.
I didn't want to write this maybe because I won't have to admit it until I wrote it down - but I owe it to you guys. So after radiation and 2 yrs of ADT/Zytiga where my PSA was undetectable - i went on a vacation. Then my PSA started to come back - I had an initial PETscan in October 2022 which showed
I didn't want to write this maybe because I won't have to admit it until I wrote it down - but I owe it to you guys. So after radiation and 2 yrs of ADT/Zytiga where my PSA was undetectable - i went on a vacation. Then my PSA started to come back - I had an initial PETscan in October 2022 which showed
PabloK
in
Advanced Prostate Cancer
10 months ago
Embracing Wellness: Exploring Lifestyle and Wellness Innovations
People are increasingly seeking innovative ways to enhance their overall well-being and prioritize their health. Lifestyle and wellness innovations have emerged as transformative solutions, empowering individuals to take charge of their physical, mental, and emotional health. Today, we delve into the
People are increasingly seeking innovative ways to enhance their overall well-being and prioritize their health. Lifestyle and wellness innovations have emerged as transformative solutions, empowering individuals to take charge of their physical, mental, and emotional health. Today, we delve into the
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
10 months ago
menopause and Anxiety
Hi, I have severe anxiety and am in a perimenapaussl state. As of yesterday my head became so hot I thought it was going to explode. I also have diabetes and high blood pressure. I’m on mirtazipine 15mg but it doesn’t seem to be working as I find it so hard to get through my day. Maybe I need to start
Hi, I have severe anxiety and am in a perimenapaussl state. As of yesterday my head became so hot I thought it was going to explode. I also have diabetes and high blood pressure. I’m on mirtazipine 15mg but it doesn’t seem to be working as I find it so hard to get through my day. Maybe I need to start
BjAli
in
Menopause and Perimenopause Support
10 months ago
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HELP! Firmagon reaction?
Hi - yesterday I had my 3rd monthly (80mg) injection of Firmagon. For all my previous injections, including the 2 initial loading doses, I did not have any major side effects, just some minimal soreness at the injection site which resolved in less than 2 days. Yesterday's injection was a little bit
Hi - yesterday I had my 3rd monthly (80mg) injection of Firmagon. For all my previous injections, including the 2 initial loading doses, I did not have any major side effects, just some minimal soreness at the injection site which resolved in less than 2 days. Yesterday's injection was a little bit
LongevityAT
in
Advanced Prostate Cancer
10 months ago
Bloodwork after 4 weeks of SRT and 6 weeks of ADT
I started ADT 6 weeks ago and SRT 4 weeks ago. I just got my bloodwork back. My PSA went from .373 prior to treatment to .148. Is this where I should be at after these many weeks of treatment. Thank you for your answer in advance
I started ADT 6 weeks ago and SRT 4 weeks ago. I just got my bloodwork back. My PSA went from .373 prior to treatment to .148. Is this where I should be at after these many weeks of treatment. Thank you for your answer in advance
toyman79912
in
Advanced Prostate Cancer
11 months ago
PSA down but mets increasing?
I've been on ADT + Xtandi for about a year (see my Bio for details) and my PSA has been slowly and steadily reducing over that time - now down to 0.05. However, my 3 CT scans (last August, December and last month) are showing a slight increase each time in the size of my lymph node mets and the bone
I've been on ADT + Xtandi for about a year (see my Bio for details) and my PSA has been slowly and steadily reducing over that time - now down to 0.05. However, my 3 CT scans (last August, December and last month) are showing a slight increase each time in the size of my lymph node mets and the bone
Benkaymel
in
Advanced Prostate Cancer
11 months ago
Gp ringing me in the next 2 hours, assistance please!
Hello, Because I've gone downhill in the last few days I called again to speak to someone, this is after my sending in a letter last week with bloods and being ignored (fobbed off, dismissed). Now I'm hot and cold sweats, low level tingling, dry tongue (electrolyte ususally help but not now) unsteady
Hello, Because I've gone downhill in the last few days I called again to speak to someone, this is after my sending in a letter last week with bloods and being ignored (fobbed off, dismissed). Now I'm hot and cold sweats, low level tingling, dry tongue (electrolyte ususally help but not now) unsteady
Sneedle
in
Thyroid UK
11 months ago
How long does this process take?
My 2nd post and still full of questions, would like to hear from everyone. Regarding my specific case: I was told I have to do 6 months of ADT and appx 28-30 rounds of EBRT. Of course, I still don't have my PSMA/PET scan results back yet, but I'm assuming the best case scenario. Still trying to make
My 2nd post and still full of questions, would like to hear from everyone. Regarding my specific case: I was told I have to do 6 months of ADT and appx 28-30 rounds of EBRT. Of course, I still don't have my PSMA/PET scan results back yet, but I'm assuming the best case scenario. Still trying to make
conchjoe
in
Advanced Prostate Cancer
11 months ago
therapist in NJ or social worker and a psych who works with oncology .he is beyond clinically depressed ? Meds ?
New Jersey virtual therapists for bedridden who works with end of life but not in hospice so please done advise me to ask hospice . Does anyone have names or organizations specific links . My tremor is getting much worse under stress and I'm personally under dx four neuromuscular autoimnine multi system
New Jersey virtual therapists for bedridden who works with end of life but not in hospice so please done advise me to ask hospice . Does anyone have names or organizations specific links . My tremor is getting much worse under stress and I'm personally under dx four neuromuscular autoimnine multi system
Daddyishealing
in
Advanced Prostate Cancer
1 year ago
TSH how long for suppressed TSH to return to normal after stopping T3?
I saw a ‘hormone specialist’ GP today. Again she tried to tell me I need to reduce my levothyroxine because of my suppressed TSH. Only saw her because she’s meant to be good with HRT, but she’s gone mad about my TSH. My FT4 is only 48-% through range, so if anything, I’d like to increase my levo!
I saw a ‘hormone specialist’ GP today. Again she tried to tell me I need to reduce my levothyroxine because of my suppressed TSH. Only saw her because she’s meant to be good with HRT, but she’s gone mad about my TSH. My FT4 is only 48-% through range, so if anything, I’d like to increase my levo!
CornishChick
in
Thyroid UK
11 months ago
Dipping my toe into the possibility of thyroid issues
I'm 55 and have been officially 'ill' since 1996 - I have an alphabet soup of acronymsCFS/ME, IBS, FM, hypermobility, absorption issues, vitamin deficiencies ( I supplement aggressively with B12 and D & I take methyl folate -I take magnesium, zinc, k2, potassium, rosehip, ubiquinol, floradix and a probiotic
I'm 55 and have been officially 'ill' since 1996 - I have an alphabet soup of acronymsCFS/ME, IBS, FM, hypermobility, absorption issues, vitamin deficiencies ( I supplement aggressively with B12 and D & I take methyl folate -I take magnesium, zinc, k2, potassium, rosehip, ubiquinol, floradix and a probiotic
KatyMac68
in
Thyroid UK
11 months ago
Anyone have a dramatic drop in WBC bordering on neutropenia from pelvic radiation (not chemo)?
Husband is 3/4 of the way through an escalated course of IMRT Prostate bed only radiation (plan was for 33 days but they gave larger doses per day and are trying to do it in 20 days). Today (Saturday) we ended up going to the ER because he was having some strange symptoms. Labs showed his WBC counts
Husband is 3/4 of the way through an escalated course of IMRT Prostate bed only radiation (plan was for 33 days but they gave larger doses per day and are trying to do it in 20 days). Today (Saturday) we ended up going to the ER because he was having some strange symptoms. Labs showed his WBC counts
StephH72
in
Advanced Prostate Cancer
9 months ago
Should I fight for Darolutamide ?
Thank you all so far for your advice, I am here again for some more. After RT in a metastastic LN last year, I am again with a PSA 2.0, with a bunch of small LNs showing in the PET. RO gave up. I will start ADT again, this time with a 2nd generation added. I will restart Zoladex, and MO is adding Enzalutamide
Thank you all so far for your advice, I am here again for some more. After RT in a metastastic LN last year, I am again with a PSA 2.0, with a bunch of small LNs showing in the PET. RO gave up. I will start ADT again, this time with a 2nd generation added. I will restart Zoladex, and MO is adding Enzalutamide
CarlosBrasil
in
Advanced Prostate Cancer
11 months ago
Taurine and ADT weight gain
One thing that many PCa endurers see occurring despite their best efforts is weight gain while on ADT. Does the community have any info on whether taurine can help, in conjunction with lots of exercise? I found a couple articles that it might.
One thing that many PCa endurers see occurring despite their best efforts is weight gain while on ADT. Does the community have any info on whether taurine can help, in conjunction with lots of exercise? I found a couple articles that it might.
Derf4223
in
Advanced Prostate Cancer
11 months ago
Some hopeful test news:🙏🏻
My son had a PSA of 20 just 3 mo after RRP last October 24th. Prior to that we had no idea from his test results that the PC was outside of the prostate. It had gone to his pelvic lymph nodes plus he’s tertiary five. He’s been on generic Zytiga and prednisone and Lupron and finished six weeks of IMRT
My son had a PSA of 20 just 3 mo after RRP last October 24th. Prior to that we had no idea from his test results that the PC was outside of the prostate. It had gone to his pelvic lymph nodes plus he’s tertiary five. He’s been on generic Zytiga and prednisone and Lupron and finished six weeks of IMRT
Cactus297
in
Advanced Prostate Cancer
10 months ago
How much exercise needed?
I know everybody’s body differs but … still I’d like some guidelines. Until a couple years ago I was pretty fit, running most days, going to gym 2x per week but then started having hip pain. I would’ve replaced hip but got Dx with PCa 6 months ago and so have postponed that. I’ve had HDR Brachy and
I know everybody’s body differs but … still I’d like some guidelines. Until a couple years ago I was pretty fit, running most days, going to gym 2x per week but then started having hip pain. I would’ve replaced hip but got Dx with PCa 6 months ago and so have postponed that. I’ve had HDR Brachy and
BobC1234
in
Advanced Prostate Cancer
11 months ago
New to this: travel during ADT & post EBRT?
New to this group and the Dx took me by complete surprise. I'm 76 and in excellent health - or so I thought! - and now [i]this[/i] happens. PSA between 7 and 8 over the past year, wait and see. April PSA was 7.4 and DRE indicated a mass. MRI, biopsy followed, showing Gleason 4=3=7, Stage IIC. Did another
New to this group and the Dx took me by complete surprise. I'm 76 and in excellent health - or so I thought! - and now [i]this[/i] happens. PSA between 7 and 8 over the past year, wait and see. April PSA was 7.4 and DRE indicated a mass. MRI, biopsy followed, showing Gleason 4=3=7, Stage IIC. Did another
conchjoe
in
Advanced Prostate Cancer
11 months ago
Results advice pls....
Hi, I've just had results from medichecks and would like some advice pls on my levels, if any are sub-optimal and what they should be. Quick recap: I have Hashimoto’s (Dx 13yrs ago), am hypothyroid (Dx 2yrs ago, been on levothyroxine since), now take 100mcg levothyroxine 6 x/week and 75mcg 1x/week
Hi, I've just had results from medichecks and would like some advice pls on my levels, if any are sub-optimal and what they should be. Quick recap: I have Hashimoto’s (Dx 13yrs ago), am hypothyroid (Dx 2yrs ago, been on levothyroxine since), now take 100mcg levothyroxine 6 x/week and 75mcg 1x/week
bollin
in
Thyroid UK
11 months ago
metallic taste in mouth during pelvic radiation
Has anyone dealt with a metallic taste in mouth during radiation to prostate bed? Husband is 3/4 of the way through his IMRT pelvic radiation and the last few days the sour metallic taste is ever present plus he’s been nauseous with vomiting occasionally and more fatigue. Anyone experienced this during
Has anyone dealt with a metallic taste in mouth during radiation to prostate bed? Husband is 3/4 of the way through his IMRT pelvic radiation and the last few days the sour metallic taste is ever present plus he’s been nauseous with vomiting occasionally and more fatigue. Anyone experienced this during
StephH72
in
Advanced Prostate Cancer
9 months ago
Are You F...n' kidding me!
I just got turned down for the second time for disability. "though you may be sad and forgetful"... SAD ?, SAD! REALLY- THE HOSPITALIZATIONS AND MAXIMUM DOSES OF MULTIPLE ANTIDEPRESSANTS, 21 ROUNDS OF OLD SCHOOL ELECTRO SHOCK THERAPY AND SUICIDE ATTEMPTS = SAD! REALLY! I can't remember large parts of
I just got turned down for the second time for disability. "though you may be sad and forgetful"... SAD ?, SAD! REALLY- THE HOSPITALIZATIONS AND MAXIMUM DOSES OF MULTIPLE ANTIDEPRESSANTS, 21 ROUNDS OF OLD SCHOOL ELECTRO SHOCK THERAPY AND SUICIDE ATTEMPTS = SAD! REALLY! I can't remember large parts of
Raggedy-Ann
in
Major Depressive Disorder (MDD) Support
1 year ago
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