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Besremi
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I'm new here
I haven't have any drugs yet, but I could recive now
Besremi
. A have PB every two months. What are your opinons? (I'm not english)
I haven't have any drugs yet, but I could recive now
Besremi
. A have PB every two months. What are your opinons? (I'm not english)
mojpes
in
MPN Voice
2 years ago
Mayo Clinic Received a totally different approach to managing my MPN
He suggested that I switch to Eliquis and a baby Aspirin and stop the
Besremi
100 mcg every 2 weeks and start getting phlebotomy to keep Hct less than 45. I do have autoimmune issues so he feels stopping the
Besremi
would help my alopecia and vitiligo.
He suggested that I switch to Eliquis and a baby Aspirin and stop the
Besremi
100 mcg every 2 weeks and start getting phlebotomy to keep Hct less than 45. I do have autoimmune issues so he feels stopping the
Besremi
would help my alopecia and vitiligo.
JeanieRN
in
MPN Voice
2 years ago
Notes on Updates and latest research from the ASH annual meeting.
[/i] --
Besremi
+ Rux for MF: Very good spleen and allele reductions. But added mutations reduced allele response. Better tolerance of IFN high doses -- Pelabresib + Rux Good allele reductions. Megakaryocytes were normalized. -- Navoticlax + Rux had good allele and spleen.
[/i] --
Besremi
+ Rux for MF: Very good spleen and allele reductions. But added mutations reduced allele response. Better tolerance of IFN high doses -- Pelabresib + Rux Good allele reductions. Megakaryocytes were normalized. -- Navoticlax + Rux had good allele and spleen.
EPguy
in
MPN Voice
1 year ago
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How to store Besremi syringe for reuse?
I live in the U.S. and use the 500mcg prefilled syringes of
Besremi
. I know the instructions say to never reuse a syringe, but I'm unsure if I will continue to receive more after the first four.
I live in the U.S. and use the 500mcg prefilled syringes of
Besremi
. I know the instructions say to never reuse a syringe, but I'm unsure if I will continue to receive more after the first four.
PupsBestFriends
in
MPN Voice
2 years ago
How quickly to increase Besremi dose?
I've taken my first 100mcg dose of
Besremi
and would like to hear from others how much they increased their dose, and in what time frame. I was prescribed
Besremi
by my MPN specialist, and will of course consult with him regarding dosage increases.
I've taken my first 100mcg dose of
Besremi
and would like to hear from others how much they increased their dose, and in what time frame. I was prescribed
Besremi
by my MPN specialist, and will of course consult with him regarding dosage increases.
PupsBestFriends
in
MPN Voice
2 years ago
A New Feature in the Health Unlocked format? Paste Images?
Just for an example here is the familiar Conti PV plot from
Besremi
trial, I just copied and pasted. I don't think this used to work, before I needed to save as a jpg etc. Is this actually a new feature?
Just for an example here is the familiar Conti PV plot from
Besremi
trial, I just copied and pasted. I don't think this used to work, before I needed to save as a jpg etc. Is this actually a new feature?
EPguy
in
MPN Voice
2 years ago
Besremi Cost and Medicare Donut Hole for Prescription Drugs
Also, please do not politicize this topic as it only intended for someone who wants to save on the cost of
Besremi
. Thank you.
Also, please do not politicize this topic as it only intended for someone who wants to save on the cost of
Besremi
. Thank you.
Pat032018
in
MPN Voice
2 years ago
bad mouth sore
Anyone on
Besremi
experience this?? I’m taking 450 mcg.
Anyone on
Besremi
experience this?? I’m taking 450 mcg.
Ggrana3192
in
MPN Voice
2 years ago
Besremi Allele Result
My Dr recently ordered a Jak2 allele test. This is 6 months after starting Bes. I think there are few Bes patients outside trials with allele data result so it's interesting. Current dose is 140, allele results are from less than 140. Result is reduction from 14% to 10%. This is of course very nice
My Dr recently ordered a Jak2 allele test. This is 6 months after starting Bes. I think there are few Bes patients outside trials with allele data result so it's interesting. Current dose is 140, allele results are from less than 140. Result is reduction from 14% to 10%. This is of course very nice
EPguy
in
MPN Voice
2 years ago
Besremi side effect?
. 😷 I belong to a
Besremi
support group and a few people are correlating a link between the shot and developing a breakout. I know it could just be a coincidence but I’d be interested to know if any on
Besremi
here have had this problem.
. 😷 I belong to a
Besremi
support group and a few people are correlating a link between the shot and developing a breakout. I know it could just be a coincidence but I’d be interested to know if any on
Besremi
here have had this problem.
Barbiebreath
in
MPN Voice
2 years ago
Eight months: Besremi Update
For me, it looks like my liver can deal with
Besremi
but not alcohol and
Besremi
. My hematocrit also dropped a bit to 40.9. No "baby" phlebotomy since June.
For me, it looks like my liver can deal with
Besremi
but not alcohol and
Besremi
. My hematocrit also dropped a bit to 40.9. No "baby" phlebotomy since June.
Elizka
in
MPN Voice
2 years ago
Anyone with ET use Besremi?
Could
Besremi
be an option if Pegasys is causing problems?
Could
Besremi
be an option if Pegasys is causing problems?
Mountainbiker12
in
MPN Voice
2 years ago
Interferon Alpha 2-a (PEG) vs 2-b,(Bes) exactly what's the diff?
In the
Besremi
image here, the green part is the IFN, and this could be either 2a or 2b.
Besremi
chose 2b (with Arginine) , Pegasys chose 2a (with Lysine). Does this matter, who knows. It sure does in Jak2 where switching V and F at 617 (Jak2-v617f) makes a life changing diff for us.
In the
Besremi
image here, the green part is the IFN, and this could be either 2a or 2b.
Besremi
chose 2b (with Arginine) , Pegasys chose 2a (with Lysine). Does this matter, who knows. It sure does in Jak2 where switching V and F at 617 (Jak2-v617f) makes a life changing diff for us.
EPguy
in
MPN Voice
2 years ago
Why do we use IFN-α vs IFN-β? Might IFN-β be preferred?
IFN-α is PEG or
Besremi
. IFN-β is sold for MS as “Plegridy”.
IFN-α is PEG or
Besremi
. IFN-β is sold for MS as “Plegridy”.
EPguy
in
MPN Voice
2 years ago
ET Jak2 Tet2
Hello, Recently diagnosed and Specialist wants to follow for a few years till I hit 60 and then begin
Besremi
or Interferon (Ropeg). Hunter5582 please weigh in. Last time my platelets WNL was 2012. Slow climb to above 800. Does anyone have specifically ET with Jak2 and Tet2.
Hello, Recently diagnosed and Specialist wants to follow for a few years till I hit 60 and then begin
Besremi
or Interferon (Ropeg). Hunter5582 please weigh in. Last time my platelets WNL was 2012. Slow climb to above 800. Does anyone have specifically ET with Jak2 and Tet2.
DiveGoddess
in
MPN Voice
2 years ago
interferon resistant
I was on pegasys(max dose) for 3 years with hydrea and now on
besremi
since April with titration of hydrea. Since off hydrea my numbers have been creeping up. I think I'm one of those that are semi-resistant to interferons. Can you continue to use hydrea with
besremi
?
I was on pegasys(max dose) for 3 years with hydrea and now on
besremi
since April with titration of hydrea. Since off hydrea my numbers have been creeping up. I think I'm one of those that are semi-resistant to interferons. Can you continue to use hydrea with
besremi
?
yippinurse
in
MPN Voice
2 years ago
What and Why is IFN Pegylation?
Besremi
is different from Pegasys at this circled area. Bes has this single attachment point, PEG has several and they vary. This difference is what
Besremi
claims as their improvement, the attachment is always the same and gives more consistent effects.
Besremi
is different from Pegasys at this circled area. Bes has this single attachment point, PEG has several and they vary. This difference is what
Besremi
claims as their improvement, the attachment is always the same and gives more consistent effects.
EPguy
in
MPN Voice
2 years ago
Conversion chart from Peg to Besremi?
So, my option now is
Besremi
. I had significant GI upset on Peg as well so I am nervous, but it is my only option at the moment. All of your tales of doing well on
Besremi
have me hopeful. I remember that someone had posted a conversion chart on this site. Perhaps from Mesa?
So, my option now is
Besremi
. I had significant GI upset on Peg as well so I am nervous, but it is my only option at the moment. All of your tales of doing well on
Besremi
have me hopeful. I remember that someone had posted a conversion chart on this site. Perhaps from Mesa?
Miriammusic
in
MPN Voice
2 years ago
Allele Burden Question
I went back and reviewed my bone marrow biopsy results taken to establish as a baseline prior to
Besremi
for reference regarding allele burden. There were two mutations present. JAK I already knew about. The other listed is ASCL1. Two questions.
I went back and reviewed my bone marrow biopsy results taken to establish as a baseline prior to
Besremi
for reference regarding allele burden. There were two mutations present. JAK I already knew about. The other listed is ASCL1. Two questions.
mfh7
in
MPN Voice
2 years ago
increasing HCT despite Besremi
For those of you on
Besremi
, how long did it take to lower your Hct? I have been on it for 2.5 months and my Hct has gone from 41 to 45. I clotted off my liver last summer (Budd-Chairi Syndrome) so my rising Hct is concerning. I am also on Coumadin.
For those of you on
Besremi
, how long did it take to lower your Hct? I have been on it for 2.5 months and my Hct has gone from 41 to 45. I clotted off my liver last summer (Budd-Chairi Syndrome) so my rising Hct is concerning. I am also on Coumadin.
JeanieRN
in
MPN Voice
2 years ago
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