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Besremi
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COVID and Besremi
I am scheduled for my next
Besremi
dose this Friday. Does anyone has experience on how far apart should be
Besremi
administered from the moment of infection with COVID? Also, anyone has experience if one of the
Besremi
dose is skipped?
I am scheduled for my next
Besremi
dose this Friday. Does anyone has experience on how far apart should be
Besremi
administered from the moment of infection with COVID? Also, anyone has experience if one of the
Besremi
dose is skipped?
Dane12
in
MPN Voice
26 days ago
Does Besremi cause high blood sugar?
Also, my Triglycerides, which have always been high, have gone up from 264 (before
Besremi
) to 322. I'm less concerened about this, but my gut feeling tells me something's going on and I'm worried about my blood sugar levels. Anyone here on
Besremi
expreienced the same?
Also, my Triglycerides, which have always been high, have gone up from 264 (before
Besremi
) to 322. I'm less concerened about this, but my gut feeling tells me something's going on and I'm worried about my blood sugar levels. Anyone here on
Besremi
expreienced the same?
Panda2014
in
MPN Voice
2 months ago
How long for Besremi to work?
I've recently started
Besremi
for treatment for PV. I will be transitioning from hydroxyurea, and wonder if others have experience with this. How long did it take after beginning
Besremi
for your blood counts to reach desired levels? How were the side-effects?
I've recently started
Besremi
for treatment for PV. I will be transitioning from hydroxyurea, and wonder if others have experience with this. How long did it take after beginning
Besremi
for your blood counts to reach desired levels? How were the side-effects?
SouthSideA
in
MPN Voice
25 days ago
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Besremi
I have Polycythamy vera.Now I have high hemoglobin.7,28.Hematocrit is slightly increased-50.8PLT 420.But Leukozyten are increasing all the time.WBC was 16.46.Now-18.2 The doctor prescribed me
Besremi
50 mg one week,second week-100mg Is this a high dose?
I have Polycythamy vera.Now I have high hemoglobin.7,28.Hematocrit is slightly increased-50.8PLT 420.But Leukozyten are increasing all the time.WBC was 16.46.Now-18.2 The doctor prescribed me
Besremi
50 mg one week,second week-100mg Is this a high dose?
bolonka
in
MPN Voice
14 days ago
jak2 Exon 12 and besremi?
Anyone have data or first hand exp with this mutation and
besremi
?
Anyone have data or first hand exp with this mutation and
besremi
?
gdpone
in
MPN Voice
2 months ago
Besremi Update
I have been on
Besremi
since May 2023, now consistently at 500 mcg. So far it has brought my platelets under control where they have remained 200-300 consistently.
I have been on
Besremi
since May 2023, now consistently at 500 mcg. So far it has brought my platelets under control where they have remained 200-300 consistently.
Luthorville
in
MPN Voice
7 days ago
Switch from Besremi to Jakafi
First five years after diagnosis I was treated with monthly phlebotomy and baby aspirin only. 5 yrs of monthly phlebotomy took its toll and iron deficiency and high platelets led me to
besremi
which had just been approved. Started
besremi
about 2 1/2 years ago.
First five years after diagnosis I was treated with monthly phlebotomy and baby aspirin only. 5 yrs of monthly phlebotomy took its toll and iron deficiency and high platelets led me to
besremi
which had just been approved. Started
besremi
about 2 1/2 years ago.
mfh7
in
MPN Voice
3 months ago
Updated numbers on Besremi...interesting
I also have now had 3 tests with allele burden as follows: March 2023 (BMB): 14.1 May 2023 started
Besremi
- very slow titration Sept 2023 reached 350 mcg
Besremi
Oct 2023 14.9 allele burden Apr 2024 14.5 allele burden So I haven't had much of an impact for allele burden.
I also have now had 3 tests with allele burden as follows: March 2023 (BMB): 14.1 May 2023 started
Besremi
- very slow titration Sept 2023 reached 350 mcg
Besremi
Oct 2023 14.9 allele burden Apr 2024 14.5 allele burden So I haven't had much of an impact for allele burden.
Luthorville
in
MPN Voice
3 months ago
traveling with Besremi
hello community Instructions for
besremi
are to keep it refrigerated has anyone travelled for a month at a time or longer? Wondering how this would be handled for my husbands medication I can’t find anything in prescribing information other than to keep refrigerated
hello community Instructions for
besremi
are to keep it refrigerated has anyone travelled for a month at a time or longer? Wondering how this would be handled for my husbands medication I can’t find anything in prescribing information other than to keep refrigerated
Laluna5683
in
MPN Voice
1 month ago
Besremi
There had been discussion of me going on
besremi
when I was thought to be PV. I am now wondering if I have ET if
besremi
is still an option for treatment or does it only treat PV?
There had been discussion of me going on
besremi
when I was thought to be PV. I am now wondering if I have ET if
besremi
is still an option for treatment or does it only treat PV?
ERei
in
MPN Voice
5 months ago
Updated Numbers Based on Recent Appointment
Hi, I'm about 10 months in to starting
Besremi
and just had a phlebotomy. RBC had gotten to 47 after only 2 months from my prior phlebotomy, which I wasn't happy about. I keep hoping that will stabilize soon, although it took me a while to ramp up to my current
Besremi
dose.
Hi, I'm about 10 months in to starting
Besremi
and just had a phlebotomy. RBC had gotten to 47 after only 2 months from my prior phlebotomy, which I wasn't happy about. I keep hoping that will stabilize soon, although it took me a while to ramp up to my current
Besremi
dose.
Luthorville
in
MPN Voice
4 months ago
New to MPN Voice
Since being on
Besremi
my platelets are now stable in the 250k range (also normal). I am still getting phlebotomies every 2.5 months, but I'm only 9 or so months into
Besremi
and the ramp up was very gradual. I'm shocked how few are on
Besremi
.
Since being on
Besremi
my platelets are now stable in the 250k range (also normal). I am still getting phlebotomies every 2.5 months, but I'm only 9 or so months into
Besremi
and the ramp up was very gradual. I'm shocked how few are on
Besremi
.
Luthorville
in
MPN Voice
5 months ago
The ECLIPSE PV trial- Besremi
Is there anyone on here that is in the The ECLIPSE PV trial with
Besremi
? I am thinking about trying to join the trial at MD Anderson In Houston. The ECLIPSE PV trial will evaluate an accelerated dosing schedule for
Besremi
and compare it with the dose that is currently approved.
Is there anyone on here that is in the The ECLIPSE PV trial with
Besremi
? I am thinking about trying to join the trial at MD Anderson In Houston. The ECLIPSE PV trial will evaluate an accelerated dosing schedule for
Besremi
and compare it with the dose that is currently approved.
Ccsintx
in
MPN Voice
5 months ago
Advice on blood counts, switch to Besremi
Moreover, I am beginning the process of switching from hydroxyurea to
Besremi
, because I'm hopeful this switch will potentially allow me to benefit from the disease-modifying impacts of the interferon. Should I expect these counts to change on
Besremi
?
Moreover, I am beginning the process of switching from hydroxyurea to
Besremi
, because I'm hopeful this switch will potentially allow me to benefit from the disease-modifying impacts of the interferon. Should I expect these counts to change on
Besremi
?
SouthSideA
in
MPN Voice
19 days ago
itching
Hi community, I have terrible itching and now being on
Besremi
I feel it has gotten a little worse. I plan to stay on
Besremi
unless it makes sense to switch to Jakafi, which I hear is excellent at controlling itch.
Hi community, I have terrible itching and now being on
Besremi
I feel it has gotten a little worse. I plan to stay on
Besremi
unless it makes sense to switch to Jakafi, which I hear is excellent at controlling itch.
Pogm
in
MPN Voice
4 months ago
Peg Shortage?
Locally he has started the process of asking to switch
Besremi
(which has been approved for PV but not for ET) for local Peg users.
Locally he has started the process of asking to switch
Besremi
(which has been approved for PV but not for ET) for local Peg users.
Solyesh
in
MPN Voice
4 days ago
Renal stenosis
I am thinking of changing to
Besremi
as I have enlarged spleen and liver and I also have saturation. I need to see the haematologist.
I am thinking of changing to
Besremi
as I have enlarged spleen and liver and I also have saturation. I need to see the haematologist.
Kelly2
in
MPN Voice
1 month ago
Besremi - After Two Years
I've been on
Besremi
for two years now and wanted to share an update and my experience. It's been a very good experience, so far; and I'm optimistic that
Besremi
is both controlling my blood counts and modifying disease progression. I'm 62 now.
I've been on
Besremi
for two years now and wanted to share an update and my experience. It's been a very good experience, so far; and I'm optimistic that
Besremi
is both controlling my blood counts and modifying disease progression. I'm 62 now.
GardNerd
in
MPN Voice
21 days ago
Good results, hoping continues
Praying
Besremi
is working for both. Thank ya’ll for all your continued support! Will keep everyone posted after the MRI. 🙂
Praying
Besremi
is working for both. Thank ya’ll for all your continued support! Will keep everyone posted after the MRI. 🙂
KLCTJC
in
MPN Voice
3 months ago
Body Acne
In 2020, I was put on
Besremi
and the acne completely cleared up! Unfortunately, my blood counts dropped too much and once I was off the
Besremi
, the acne came back with a vengeance. Anyone else experience something like this?
In 2020, I was put on
Besremi
and the acne completely cleared up! Unfortunately, my blood counts dropped too much and once I was off the
Besremi
, the acne came back with a vengeance. Anyone else experience something like this?
marlenablue
in
MPN Voice
5 months ago
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