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Besremi
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Besremi side-effects, reverting to Peg
I've been on
Besremi
for over 6 months and have been on 400mcg for 10+ weeks. I can see now that I'd need the full 500mcg to control my counts, but have been struggling with side-effects throughout the range of doses, even at my starting point of 150.
I've been on
Besremi
for over 6 months and have been on 400mcg for 10+ weeks. I can see now that I'd need the full 500mcg to control my counts, but have been struggling with side-effects throughout the range of doses, even at my starting point of 150.
jon1972
in
MPN Voice
2 years ago
What is your Besremi Dose?
For those members currently on
Besremi
: -What is the dose you are taking now? -Are you in CHR (blood numbers in range) They used HCT<45, (w/o phleb male or female ) PLT <400, WBC< 10 to be in CHR. -Is your dose still changing?
For those members currently on
Besremi
: -What is the dose you are taking now? -Are you in CHR (blood numbers in range) They used HCT<45, (w/o phleb male or female ) PLT <400, WBC< 10 to be in CHR. -Is your dose still changing?
EPguy
in
MPN Voice
2 years ago
Besremi for Covid and a different type of IFN-α 2b in Covid treatment trial
IFN-α 2b is the type that is in
Besremi
(PEG uses 2a, if it makes any difference) https://clinicaltrials.gov/ct2/show/NCT04988217 -- It brings the question whether INF patients here who get Covid are getting any "treatment for infection" on INF.
IFN-α 2b is the type that is in
Besremi
(PEG uses 2a, if it makes any difference) https://clinicaltrials.gov/ct2/show/NCT04988217 -- It brings the question whether INF patients here who get Covid are getting any "treatment for infection" on INF.
EPguy
in
MPN Voice
2 years ago
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Traveling with Besremi
Long trips with
Besremi
. What do you use to have in temperatura this medication? Thanks
Long trips with
Besremi
. What do you use to have in temperatura this medication? Thanks
SoledadBarcelona
in
MPN Voice
2 years ago
Summer cold?
.🤷♀️ I have my 2nd
Besremi
shot tomorrow. Hate to add nausea and diarrhea to my list! On a good note- my HCT is down to 45.6. It was 51.3 before the phlebotomy and
Besremi
. 45.6 is the lowest it’s been in a LONG time so I am happy about that!
.🤷♀️ I have my 2nd
Besremi
shot tomorrow. Hate to add nausea and diarrhea to my list! On a good note- my HCT is down to 45.6. It was 51.3 before the phlebotomy and
Besremi
. 45.6 is the lowest it’s been in a LONG time so I am happy about that!
Barbiebreath
in
MPN Voice
2 years ago
Besremi - Sore throat, swollen/bleeding gums
These are some of the more serious side effects I'm having from
Besremi
. Symptoms follow injection by roughly 5-7 days. Please post if you have these issues as I'd like to confirm this as a side effect. I've been having this issue since shortly after my first injection on 1/29 of this year.
These are some of the more serious side effects I'm having from
Besremi
. Symptoms follow injection by roughly 5-7 days. Please post if you have these issues as I'd like to confirm this as a side effect. I've been having this issue since shortly after my first injection on 1/29 of this year.
jon1972
in
MPN Voice
2 years ago
Update 6.9 Good News - New Old News
It seems that 150mcg
Besremi
is the right dose for me. No issues with the itching/rash lately so the Claritin seems to be working (or I am just adapting to the
Besremi
). Most importantly I am feeling great these days. My quality of life is certainly better since starting on the Interferons.
It seems that 150mcg
Besremi
is the right dose for me. No issues with the itching/rash lately so the Claritin seems to be working (or I am just adapting to the
Besremi
). Most importantly I am feeling great these days. My quality of life is certainly better since starting on the Interferons.
hunter5582
in
MPN Voice
2 years ago
newly diagnosed MS with history of PV
Devastated find out I can not take
Besremi
as it can make MS worse. I have wondered why my wbcs out of nowhere started to rise. I suspect I have had asymptomatic MS for a while. So I maybe going back to just watching and daily ASA because I am young.
Devastated find out I can not take
Besremi
as it can make MS worse. I have wondered why my wbcs out of nowhere started to rise. I suspect I have had asymptomatic MS for a while. So I maybe going back to just watching and daily ASA because I am young.
KLCTJC
in
MPN Voice
2 years ago
Apologies to EPGuy
I just wrote asking for those on the forum who take
Besremi
, for their reactions/side effects to it.
I just wrote asking for those on the forum who take
Besremi
, for their reactions/side effects to it.
TheaterCrazy
in
MPN Voice
2 years ago
My HCT is coming down!
My RBC and Platelets were high but down from the blood draw before that. 3rd
Besremi
shot on 7/18. I went for a phlebotomy today and they did a CBC before the blood letting. My HCT was 44.5! That is the lowest it’s been in 3 years!
My RBC and Platelets were high but down from the blood draw before that. 3rd
Besremi
shot on 7/18. I went for a phlebotomy today and they did a CBC before the blood letting. My HCT was 44.5! That is the lowest it’s been in 3 years!
Barbiebreath
in
MPN Voice
2 years ago
Besremi and Zyrtec
Hi.........I'm going through the process of getting approved for
Besremi
. My not specialist hem is worried about me taking Zyrtec, She told me that I need to stop taking once I start
Besremi
. I take it for bad allergies and my PV JAk2+. Anyone been told this or are there folks still taking Zyrtec?
Hi.........I'm going through the process of getting approved for
Besremi
. My not specialist hem is worried about me taking Zyrtec, She told me that I need to stop taking once I start
Besremi
. I take it for bad allergies and my PV JAk2+. Anyone been told this or are there folks still taking Zyrtec?
nyelynndesigns
in
MPN Voice
2 years ago
Besremi and Hematocrit Control
Closing in on five months on
Besremi
and my WBC and PLT's are now in the "normal" range, but HCT control continues to be elusive. I did get a 250ml PB on May 21, hoping that along with higher dose of
Besremi
(145) would knock the HCT down. The result?
Closing in on five months on
Besremi
and my WBC and PLT's are now in the "normal" range, but HCT control continues to be elusive. I did get a 250ml PB on May 21, hoping that along with higher dose of
Besremi
(145) would knock the HCT down. The result?
Elizka
in
MPN Voice
2 years ago
Besremi - CBC and CMP after the 7th dose kept at 200mcg
HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy and aspirin for 4 years until
Besremi
in Feb 2022. Most concerning before
Besremi
was platelets of 1100. Allele Burden was 70% before
Besremi
.
HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy and aspirin for 4 years until
Besremi
in Feb 2022. Most concerning before
Besremi
was platelets of 1100. Allele Burden was 70% before
Besremi
.
Pat032018
in
MPN Voice
2 years ago
Interferons as the First Choice of Cytoreduction in ET and PV
There has been a recent resurgence of interest in interferons for MPNs given the development of pegylated formulations, including pegylated interferon alfa-2a (Pegasys), pegylated interferon alfa-2b (PegIntron), and ropeginterferon alfa-2b (
Besremi
).
There has been a recent resurgence of interest in interferons for MPNs given the development of pegylated formulations, including pegylated interferon alfa-2a (Pegasys), pegylated interferon alfa-2b (PegIntron), and ropeginterferon alfa-2b (
Besremi
).
Manouche
in
MPN Voice
2 years ago
Besremi Adverse Effect??
I have experienced what may be arthralgia as a
Besremi
adverse effect. here is the exchange with the MPN Specialist on this topic.
ME
Just a head up. I increased the dose of
Besremi
to 150mcg on 05/25.
I have experienced what may be arthralgia as a
Besremi
adverse effect. here is the exchange with the MPN Specialist on this topic.
ME
Just a head up. I increased the dose of
Besremi
to 150mcg on 05/25.
hunter5582
in
MPN Voice
2 years ago
I heard from my insurance company today.
I was approved for
Besremi
. ❤️🙏❤️
I was approved for
Besremi
. ❤️🙏❤️
Barbiebreath
in
MPN Voice
2 years ago
Besremi side effects.
I’d like to go on
Besremi
but I worry that I’d be swapping side effects I know for those I don’t. I realize everyone has different reactions, but it would help so much, now that so many of you are on
Besremi
, to know your experiences on it. From some of you I read there are flu like symptoms.
I’d like to go on
Besremi
but I worry that I’d be swapping side effects I know for those I don’t. I realize everyone has different reactions, but it would help so much, now that so many of you are on
Besremi
, to know your experiences on it. From some of you I read there are flu like symptoms.
TheaterCrazy
in
MPN Voice
2 years ago
Besremi first dosage and abdominal cramping.
Hi Everyone, I took my first dose of
Besremi
last evening and the only side effect I am experiencing is pretty bad abdominal cramping. Has anyone had a similar reaction and if so how long did it last? Thanks!
Hi Everyone, I took my first dose of
Besremi
last evening and the only side effect I am experiencing is pretty bad abdominal cramping. Has anyone had a similar reaction and if so how long did it last? Thanks!
JeanieRN
in
MPN Voice
2 years ago
Besremi 1 yr update
Hi, Time for a update as it has been 1 year since I fully transitioned of Hydroxy onto
Besremi
.
Hi, Time for a update as it has been 1 year since I fully transitioned of Hydroxy onto
Besremi
.
JohnSC
in
MPN Voice
2 years ago
Update 6.8
Seems like 150mcg
Besremi
is the right dose for now. NEUT back up a bit to 1.83 - WNL. LYMPH still low at 0.57. The only issue is that a couple of the liver enzymes are not slightly high. ALT=60.0 AST=53.0. Planning to just carry on and be kind to my liver.
Seems like 150mcg
Besremi
is the right dose for now. NEUT back up a bit to 1.83 - WNL. LYMPH still low at 0.57. The only issue is that a couple of the liver enzymes are not slightly high. ALT=60.0 AST=53.0. Planning to just carry on and be kind to my liver.
hunter5582
in
MPN Voice
2 years ago
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