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Besremi
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Iron and PCV
My last HCT is 43.9 on 100 mcgs of
Besremi
every 2 weeks. Should I avoid foods containing iron? Thank you! Jeanie
My last HCT is 43.9 on 100 mcgs of
Besremi
every 2 weeks. Should I avoid foods containing iron? Thank you! Jeanie
JeanieRN
in
MPN Voice
2 years ago
Besremi
Hello all I have started
Besremi
and as of today no major side affects. Just a question I don't see this as a problem but wondering in anyone else experiencing a red rash at the injection site? This rash is not itchy or painful. Thank you all so much.
Hello all I have started
Besremi
and as of today no major side affects. Just a question I don't see this as a problem but wondering in anyone else experiencing a red rash at the injection site? This rash is not itchy or painful. Thank you all so much.
josup26
in
MPN Voice
2 years ago
Just saw MPN Specialist | ET+CALR
I asked him about
Besremi
and he said that only people with PV have this option (from insurance companies) but he doesn't prefer one over the other. So Pegasys is fine.
I asked him about
Besremi
and he said that only people with PV have this option (from insurance companies) but he doesn't prefer one over the other. So Pegasys is fine.
Zeppelin11
in
MPN Voice
1 year ago
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Has anyone [else] on Besremi had issues with elevated serum potassium?
130 Creatinine 0.67 - 1.17 mg/dL 1.14 1.29 H 1.22 H 1.10 Potassium 3.3 - 5.1 mmol/L 4.4 5.2 H 5.2 H 5.5 H The last 2 measurements were on 150 mcg of
Besremi
130 Creatinine 0.67 - 1.17 mg/dL 1.14 1.29 H 1.22 H 1.10 Potassium 3.3 - 5.1 mmol/L 4.4 5.2 H 5.2 H 5.5 H The last 2 measurements were on 150 mcg of
Besremi
PhysAssist
in
MPN Voice
2 years ago
Long Term Hydrea patients?
I'm considering switching to
besremi
with the promise of disease remission. However I worry about possible side effects. Also my Dr. says because of my age not clear I would benfit from it. I would like to hear from people who have been on Hydrea long term > 5 years.
I'm considering switching to
besremi
with the promise of disease remission. However I worry about possible side effects. Also my Dr. says because of my age not clear I would benfit from it. I would like to hear from people who have been on Hydrea long term > 5 years.
Jamesxyz
in
MPN Voice
2 years ago
Post Besremi test
WHEN do you hematologist recommended test your genes after taking
Besremi
? hat kind of test a NGS or whole test also called mieloide panel or only we must test the JAK2V617F and its allelo burden? I dont find any article or paper or something where it is said to patients.
WHEN do you hematologist recommended test your genes after taking
Besremi
? hat kind of test a NGS or whole test also called mieloide panel or only we must test the JAK2V617F and its allelo burden? I dont find any article or paper or something where it is said to patients.
SoledadBarcelona
in
MPN Voice
2 years ago
Besremi on an outpatient basis
Hi, Just curious, has anyone in the USA on medicare been able to get
besremi
injections as an outpatient? This could dramatically reduce the cost dependinfg on coverage.
Hi, Just curious, has anyone in the USA on medicare been able to get
besremi
injections as an outpatient? This could dramatically reduce the cost dependinfg on coverage.
Jamesxyz
in
MPN Voice
2 years ago
Update 7.1 - Very Good News
VAF history 03/20/19 = 25% 09/28/20 = 26% 10/23/20 = 29% 05/19/21 = 38% - Start Pegasys – switch to
Besremi
02/02/22 12/02/22 = 09% This represents a reduction of 29% in just 18.5 months on low doses of interferons.
VAF history 03/20/19 = 25% 09/28/20 = 26% 10/23/20 = 29% 05/19/21 = 38% - Start Pegasys – switch to
Besremi
02/02/22 12/02/22 = 09% This represents a reduction of 29% in just 18.5 months on low doses of interferons.
hunter5582
in
MPN Voice
2 years ago
I'm new here
I haven't have any drugs yet, but I could recive now
Besremi
. A have PB every two months. What are your opinons? (I'm not english)
I haven't have any drugs yet, but I could recive now
Besremi
. A have PB every two months. What are your opinons? (I'm not english)
mojpes
in
MPN Voice
2 years ago
Mayo Clinic Received a totally different approach to managing my MPN
He suggested that I switch to Eliquis and a baby Aspirin and stop the
Besremi
100 mcg every 2 weeks and start getting phlebotomy to keep Hct less than 45. I do have autoimmune issues so he feels stopping the
Besremi
would help my alopecia and vitiligo.
He suggested that I switch to Eliquis and a baby Aspirin and stop the
Besremi
100 mcg every 2 weeks and start getting phlebotomy to keep Hct less than 45. I do have autoimmune issues so he feels stopping the
Besremi
would help my alopecia and vitiligo.
JeanieRN
in
MPN Voice
2 years ago
How to store Besremi syringe for reuse?
I live in the U.S. and use the 500mcg prefilled syringes of
Besremi
. I know the instructions say to never reuse a syringe, but I'm unsure if I will continue to receive more after the first four.
I live in the U.S. and use the 500mcg prefilled syringes of
Besremi
. I know the instructions say to never reuse a syringe, but I'm unsure if I will continue to receive more after the first four.
PupsBestFriends
in
MPN Voice
2 years ago
How quickly to increase Besremi dose?
I've taken my first 100mcg dose of
Besremi
and would like to hear from others how much they increased their dose, and in what time frame. I was prescribed
Besremi
by my MPN specialist, and will of course consult with him regarding dosage increases.
I've taken my first 100mcg dose of
Besremi
and would like to hear from others how much they increased their dose, and in what time frame. I was prescribed
Besremi
by my MPN specialist, and will of course consult with him regarding dosage increases.
PupsBestFriends
in
MPN Voice
2 years ago
A New Feature in the Health Unlocked format? Paste Images?
Just for an example here is the familiar Conti PV plot from
Besremi
trial, I just copied and pasted. I don't think this used to work, before I needed to save as a jpg etc. Is this actually a new feature?
Just for an example here is the familiar Conti PV plot from
Besremi
trial, I just copied and pasted. I don't think this used to work, before I needed to save as a jpg etc. Is this actually a new feature?
EPguy
in
MPN Voice
2 years ago
Besremi Cost and Medicare Donut Hole for Prescription Drugs
Also, please do not politicize this topic as it only intended for someone who wants to save on the cost of
Besremi
. Thank you.
Also, please do not politicize this topic as it only intended for someone who wants to save on the cost of
Besremi
. Thank you.
Pat032018
in
MPN Voice
2 years ago
bad mouth sore
Anyone on
Besremi
experience this?? I’m taking 450 mcg.
Anyone on
Besremi
experience this?? I’m taking 450 mcg.
Ggrana3192
in
MPN Voice
2 years ago
Besremi side effect?
. 😷 I belong to a
Besremi
support group and a few people are correlating a link between the shot and developing a breakout. I know it could just be a coincidence but I’d be interested to know if any on
Besremi
here have had this problem.
. 😷 I belong to a
Besremi
support group and a few people are correlating a link between the shot and developing a breakout. I know it could just be a coincidence but I’d be interested to know if any on
Besremi
here have had this problem.
Barbiebreath
in
MPN Voice
2 years ago
Eight months: Besremi Update
For me, it looks like my liver can deal with
Besremi
but not alcohol and
Besremi
. My hematocrit also dropped a bit to 40.9. No "baby" phlebotomy since June.
For me, it looks like my liver can deal with
Besremi
but not alcohol and
Besremi
. My hematocrit also dropped a bit to 40.9. No "baby" phlebotomy since June.
Elizka
in
MPN Voice
2 years ago
Besremi Allele Result
My Dr recently ordered a Jak2 allele test. This is 6 months after starting Bes. I think there are few Bes patients outside trials with allele data result so it's interesting. Current dose is 140, allele results are from less than 140. Result is reduction from 14% to 10%. This is of course very nice
My Dr recently ordered a Jak2 allele test. This is 6 months after starting Bes. I think there are few Bes patients outside trials with allele data result so it's interesting. Current dose is 140, allele results are from less than 140. Result is reduction from 14% to 10%. This is of course very nice
EPguy
in
MPN Voice
2 years ago
Notes on Updates and latest research from the ASH annual meeting.
[/i] --
Besremi
+ Rux for MF: Very good spleen and allele reductions. But added mutations reduced allele response. Better tolerance of IFN high doses -- Pelabresib + Rux Good allele reductions. Megakaryocytes were normalized. -- Navoticlax + Rux had good allele and spleen.
[/i] --
Besremi
+ Rux for MF: Very good spleen and allele reductions. But added mutations reduced allele response. Better tolerance of IFN high doses -- Pelabresib + Rux Good allele reductions. Megakaryocytes were normalized. -- Navoticlax + Rux had good allele and spleen.
EPguy
in
MPN Voice
1 year ago
Anyone with ET use Besremi?
Could
Besremi
be an option if Pegasys is causing problems?
Could
Besremi
be an option if Pegasys is causing problems?
Mountainbiker12
in
MPN Voice
2 years ago
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