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Beckwith-Wiedemann Syndrome
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Go programme
Several people have mentioned the programme which touched on RLS. I Have just watched on catch up Ms was quite shocked. The gp had to look up RLS then immediately put the patient on Gapapentin but the poor patient had just been taken off dihydrocodeine and another heavy painkiller. I don't think she
Several people have mentioned the programme which touched on RLS. I Have just watched on catch up Ms was quite shocked. The gp had to look up RLS then immediately put the patient on Gapapentin but the poor patient had just been taken off dihydrocodeine and another heavy painkiller. I don't think she
Daisy2408
in
Restless Legs Syndrome
6 years ago
Can dry mouth /Sjogrens increase digestive problems?
I had one of those dreams when you’re about to take an exam and realise you haven’t studied. Last night it was Biology ‘O’ Level ( yes that dates me). I woke up actually remembering bits of what I studied, but one thing in particular struck me: how the digestive system works, starting off with amylase
I had one of those dreams when you’re about to take an exam and realise you haven’t studied. Last night it was Biology ‘O’ Level ( yes that dates me). I woke up actually remembering bits of what I studied, but one thing in particular struck me: how the digestive system works, starting off with amylase
Lupiknits
in
LUPUS UK
6 years ago
Lactulose
Anyone taking Lactulose for constipation? I was prescribed it after not having a bowel movement for 10 days and no relief. Now today I called my dr. and they doubled the dose for me to take. If I don't go by tommorow I have to go in and have them take exrays. This is so embarresing especially if they
Anyone taking Lactulose for constipation? I was prescribed it after not having a bowel movement for 10 days and no relief. Now today I called my dr. and they doubled the dose for me to take. If I don't go by tommorow I have to go in and have them take exrays. This is so embarresing especially if they
lauriefontaine67
in
British Liver Trust
6 years ago
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Living Hell and Hopeless
My husband now 79 is a the edge of not wanting to live anymore. His RLS is 30 years plus old, for years just after falling asleep for about 30 minutes and a slight twinge every minute that did not wake him. I use to count between the twitches which always found my leg like it was seeking something
My husband now 79 is a the edge of not wanting to live anymore. His RLS is 30 years plus old, for years just after falling asleep for about 30 minutes and a slight twinge every minute that did not wake him. I use to count between the twitches which always found my leg like it was seeking something
TinkandBobby
in
Restless Legs Syndrome
6 years ago
PMR/GCA 'STRESSES' AND THE COMPLEX 'REALITIES' OF OUR OWN WORLDS
There has been plenty of discussion on HU lately about what is or is not 'appropriate' in terms of what we might post here. I have always been described as 'opinionated' and have never had a problem with that as I think it is fine to express a point of view - but generally I have most respect for those
There has been plenty of discussion on HU lately about what is or is not 'appropriate' in terms of what we might post here. I have always been described as 'opinionated' and have never had a problem with that as I think it is fine to express a point of view - but generally I have most respect for those
Rimmy
in
PMRGCAuk
6 years ago
How I cope now with RLS
Hi I have suffered with RLS since I was 11 years old I have it in my legs arms and back! Only my feet and hands are free from the suffering, as a child I was often told by the doctor it was growing pains eventually 30 the doctor diagnosed RLS! There is no one in my family past or present who suffer
Hi I have suffered with RLS since I was 11 years old I have it in my legs arms and back! Only my feet and hands are free from the suffering, as a child I was often told by the doctor it was growing pains eventually 30 the doctor diagnosed RLS! There is no one in my family past or present who suffer
Silax20110
in
Restless Legs Syndrome
6 years ago
Methadone treatment?
Have any one of you folks been able to try Methadone as a treatment for your RLS? I am currently on morphine and requip with limited success. I see it is successful for some but my doctors won't prescribe it unless they decide I am a full blown addict which I am not. Sure would like to get a break
Have any one of you folks been able to try Methadone as a treatment for your RLS? I am currently on morphine and requip with limited success. I see it is successful for some but my doctors won't prescribe it unless they decide I am a full blown addict which I am not. Sure would like to get a break
Merster
in
Restless Legs Syndrome
6 years ago
Early treatment
Hi there, I haven't yet been diagnosed with scleroderma, but at this point with the symptoms I'm fairly confident that it's going to be. My first rheumatologist appointment is in a few weeks. I'm 29 and male and here's a quick summary of the symptoms which these began 7 months ago: - Close family history
Hi there, I haven't yet been diagnosed with scleroderma, but at this point with the symptoms I'm fairly confident that it's going to be. My first rheumatologist appointment is in a few weeks. I'm 29 and male and here's a quick summary of the symptoms which these began 7 months ago: - Close family history
Cullimorer
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
End of ropinerole
Just thought I would mention this see a copy of the article below On Dec. 19 the U.S. Food and Drug Administration announced the forthcoming discontinuation of all dosage strengths of ropinirole hydrochloride (Requip) tablets as well as the 2-mg extended release (Requip XL) tablets. The anticipated final
Just thought I would mention this see a copy of the article below On Dec. 19 the U.S. Food and Drug Administration announced the forthcoming discontinuation of all dosage strengths of ropinirole hydrochloride (Requip) tablets as well as the 2-mg extended release (Requip XL) tablets. The anticipated final
Tscrutton
in
Restless Legs Syndrome
6 years ago
Cannabis research.
This is the main conclusion from a recent meta study on medicinal cannabis. This has been a recurring question on this forum. "Despite the conventional wisdom, both in the popular press and much of the scientific community that only CBD has medical benefits while THC merely makes one high, our results
This is the main conclusion from a recent meta study on medicinal cannabis. This has been a recurring question on this forum. "Despite the conventional wisdom, both in the popular press and much of the scientific community that only CBD has medical benefits while THC merely makes one high, our results
Madlegs1
in
Restless Legs Syndrome
6 years ago
Where to get help on diagnosing EDs.
Hi, Where can I go to get genetic testing done for Ehlers Danlos. I live in East Sussex in the UK. I am in my 50s but my 2 adult daughters have so many symptoms of EDs and one in particular is suffering severely with pain. Her g.p. has no interest and just tells her its in her head. She did see a Dr
Hi, Where can I go to get genetic testing done for Ehlers Danlos. I live in East Sussex in the UK. I am in my 50s but my 2 adult daughters have so many symptoms of EDs and one in particular is suffering severely with pain. Her g.p. has no interest and just tells her its in her head. She did see a Dr
honeybea22
in
Ehlers-Danlos Support UK
6 years ago
Toothache
Hi I’m currently on 3 mg prednisolone for Gca and have got toothache. Can’t get appt for a few days. Tried paracetamol but need something stronger. Can I take nurofen express? Also on Accrete D3 and Omprazole. Advice would be appreciated.
Hi I’m currently on 3 mg prednisolone for Gca and have got toothache. Can’t get appt for a few days. Tried paracetamol but need something stronger. Can I take nurofen express? Also on Accrete D3 and Omprazole. Advice would be appreciated.
Susanmod
in
PMRGCAuk
6 years ago
I am 28 Year old male and I have EDS (Ehlers-Danlos syndrome) Everyone tells me that I have a soft body like a female. Is it related to EDS?
Hi Everyone. Last year I found out that I have EDS. I had hypermobility since I was a kid but from Last 3-4 years I started noticing that my body especially my upper arms, chest and belly started getting softer by day. I know that soft, doughy, smooth and velvety skin is a symptom of EDS but my body
Hi Everyone. Last year I found out that I have EDS. I had hypermobility since I was a kid but from Last 3-4 years I started noticing that my body especially my upper arms, chest and belly started getting softer by day. I know that soft, doughy, smooth and velvety skin is a symptom of EDS but my body
Alcatraz
in
Ehlers-Danlos Support UK
6 years ago
Found My Cure for RLS and Severe Night Cramps
Had a pre-op blood panel taken before having my pacemaker replaced. It showed potassium and magnesium deficiencies. Changed my diuretic to a potassium preserving type, increased my intake of potassium and magnesium rich foods, started taking magnesium glycinate supplements (not the kind that act as
Had a pre-op blood panel taken before having my pacemaker replaced. It showed potassium and magnesium deficiencies. Changed my diuretic to a potassium preserving type, increased my intake of potassium and magnesium rich foods, started taking magnesium glycinate supplements (not the kind that act as
mam6818
in
Restless Legs Syndrome
6 years ago
What is it with inflammatory arthritis or grumble, grumble.
Went to catch a train to town this afternoon. No hurrying or anything. As I walked round to the station I noticed that my lower legs were starting to hurt. Not on my shins but to the sides of them a crampy kind of feeling - both legs, definitely didn’t feel good. By the time I got to where I was going
Went to catch a train to town this afternoon. No hurrying or anything. As I walked round to the station I noticed that my lower legs were starting to hurt. Not on my shins but to the sides of them a crampy kind of feeling - both legs, definitely didn’t feel good. By the time I got to where I was going
Fruitandnutcase
in
NRAS
6 years ago
GingeMan
I started with PMR seven months ago just before I was due to have a knee replacement. I was on 15mg pred and my consultant refused to operate due to an increased risk of infection until my pred intake was 5mg or less. I am now on 5mg and doing OK and I have arranged an appointment with the consultant
I started with PMR seven months ago just before I was due to have a knee replacement. I was on 15mg pred and my consultant refused to operate due to an increased risk of infection until my pred intake was 5mg or less. I am now on 5mg and doing OK and I have arranged an appointment with the consultant
parsifalwiz
in
PMRGCAuk
6 years ago
EDS Patient Involvement Opportunity
***HeadsUp EDS Patients #InvolvementOpportunity*** ***Have your say in designing future research on childbearing with hypermobile Ehlers-Danlos syndrome*** Some researchers, including Dr Sally Pezaro, have recently been granted funding to do some research and professional & public engagement on the
***HeadsUp EDS Patients #InvolvementOpportunity*** ***Have your say in designing future research on childbearing with hypermobile Ehlers-Danlos syndrome*** Some researchers, including Dr Sally Pezaro, have recently been granted funding to do some research and professional & public engagement on the
Wendy39
in
LUPUS UK
6 years ago
Ginkgo Biloba for RLS
I took 60 mg of Ginkgo Biloba in the middle of awful sleepless night and slept like a baby till morning. Manufacturer: Jarrow Formulas from iherb.com. It was the very first time when I took Ginkgo in the middle of the night. Before I only used it during daytime and the same 60 mg gave me a headache.
I took 60 mg of Ginkgo Biloba in the middle of awful sleepless night and slept like a baby till morning. Manufacturer: Jarrow Formulas from iherb.com. It was the very first time when I took Ginkgo in the middle of the night. Before I only used it during daytime and the same 60 mg gave me a headache.
Alex2308
in
Restless Legs Syndrome
6 years ago
And another one to add to the mixture!
My rheumy research team sent me off to get a scan of my glands last November after I explained to them how very dry my mouth gets. This has been followed up my an appt at the Dental Hospital this morning. The ultrasound showed early Sjogrens. My greatest sympathy to all who have galloping Sjogrens.
My rheumy research team sent me off to get a scan of my glands last November after I explained to them how very dry my mouth gets. This has been followed up my an appt at the Dental Hospital this morning. The ultrasound showed early Sjogrens. My greatest sympathy to all who have galloping Sjogrens.
Lupiknits
in
LUPUS UK
6 years ago
What vitamins should you take?
What vitamins good for PMR? I am taking Multi vitamin Fish oils Calcium Magnesium Zinc B12 Collagen Glucosamine
What vitamins good for PMR? I am taking Multi vitamin Fish oils Calcium Magnesium Zinc B12 Collagen Glucosamine
jensen0518
in
PMRGCAuk
6 years ago
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