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Beckwith-Wiedemann Syndrome
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Severely dry eyes and awful light sensitivity
Hi All, am new here, having just been diagnosed with SS. Just wondered if there's anyone here with dry/light sensitive eyes as their worst symptom. Mine is so bad I can no longer work outside my home. Even posting this message is a nightmare as my eyes are screaming at me to stop 😖....just wondered
Hi All, am new here, having just been diagnosed with SS. Just wondered if there's anyone here with dry/light sensitive eyes as their worst symptom. Mine is so bad I can no longer work outside my home. Even posting this message is a nightmare as my eyes are screaming at me to stop 😖....just wondered
NikkyO
in
The Australian Sjögren's Syndrome Association
5 years ago
Full ovaries? Aching, bloating and niggles throughout Meriofert and Cetrotide. 2nd ivf cycle. Any similar experience??
Hey everyone. Brief synopsis - 2nd ivf cycle. First was not successful in that I only had 10 eggs retrieved, only of 3 which were able to go through and not even one successfully made it to blastocyst. Only 1 was transferred with a less than 5% chance of success as it was being attacked by outside cells
Hey everyone. Brief synopsis - 2nd ivf cycle. First was not successful in that I only had 10 eggs retrieved, only of 3 which were able to go through and not even one successfully made it to blastocyst. Only 1 was transferred with a less than 5% chance of success as it was being attacked by outside cells
crisps88
in
Fertility Network UK
5 years ago
Progynova- am I taking the right thing?
Hello, looking for some advice if possible. I know no one should compare IVF cycles but I seem to be on a bit of a weird cycle from what I can tell. I'm doing IVF on the NHS and am on my first cycle. They told me to wait 21 days, then take progynova for ten days and then go for a scan. They haven't told
Hello, looking for some advice if possible. I know no one should compare IVF cycles but I seem to be on a bit of a weird cycle from what I can tell. I'm doing IVF on the NHS and am on my first cycle. They told me to wait 21 days, then take progynova for ten days and then go for a scan. They haven't told
Infertilemyrtle
in
Fertility Network UK
5 years ago
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PTSD
Hi Everyone. I have been reading another book called Complex PTSD, From Surviving to Thriving.In it, there are comments that there is a high incidence of Complex PTSD being misdiagnosed as being Borderline Personality Disorder, Bipolar and Narcissistic Personality Disorder. I have been misdiagnosed as
Hi Everyone. I have been reading another book called Complex PTSD, From Surviving to Thriving.In it, there are comments that there is a high incidence of Complex PTSD being misdiagnosed as being Borderline Personality Disorder, Bipolar and Narcissistic Personality Disorder. I have been misdiagnosed as
Poulson
in
Action on Postpartum Psychosis
5 years ago
QUALITY OF LIFESTATEMENT
Many times on this site I have mentioned the fact that I've completed what is known as 'A Quality of Life Statement'. I have been asked on several occasions to explain. Unfortunately I have misplaced the original document. And as it was 5 foolscap typed pages long, I was somewhat hesitant to replicate
Many times on this site I have mentioned the fact that I've completed what is known as 'A Quality of Life Statement'. I have been asked on several occasions to explain. Unfortunately I have misplaced the original document. And as it was 5 foolscap typed pages long, I was somewhat hesitant to replicate
TEAH35
in
Restless Legs Syndrome
5 years ago
Private Referral
Hi guys, So about a month ago my GP agreed with me that I needed to see a rheumatologist about the benign joint hypermobility syndrome diagnosis, to confirm whether or not for my own sanity if it was hypermobile EDS or hypermobility spectrum disorder. I don't know which resources I can send to my employer
Hi guys, So about a month ago my GP agreed with me that I needed to see a rheumatologist about the benign joint hypermobility syndrome diagnosis, to confirm whether or not for my own sanity if it was hypermobile EDS or hypermobility spectrum disorder. I don't know which resources I can send to my employer
emilyhedgehog
in
Ehlers-Danlos Support UK
5 years ago
Clonazepam
Been to see a neurologist after trying pregablin and gabapentin with no success..in fact both exaggerated the symptoms. He has prescribed clonazepam.. After a week there is still no change or sleep.. Any suggestions welcome
Been to see a neurologist after trying pregablin and gabapentin with no success..in fact both exaggerated the symptoms. He has prescribed clonazepam.. After a week there is still no change or sleep.. Any suggestions welcome
shebobs
in
Restless Legs Syndrome
5 years ago
Joint Hypermobility Confusion
Hello! So I'll start off saying that I don't have EDS (at least not that I know of), so my apologies if this seems completely irrelevant. However, I have joint hypermobility, and with that comes pain in specific joints, muscle pain/tightness, and parts of my body frequently being "out of place" (i.e
Hello! So I'll start off saying that I don't have EDS (at least not that I know of), so my apologies if this seems completely irrelevant. However, I have joint hypermobility, and with that comes pain in specific joints, muscle pain/tightness, and parts of my body frequently being "out of place" (i.e
natsylvie
in
Ehlers-Danlos Support UK
5 years ago
Dr Buchfuhrer is Awesome!
After suffering for years with RLS that went into augmentation I found out about Dr Buchfuhrer and set up a visit. I’ve seen multiple neurologists, and GPS who did their best to help me. No one could help. In fact it only got worse because they increased requip and then The Neupro patch to levels that
After suffering for years with RLS that went into augmentation I found out about Dr Buchfuhrer and set up a visit. I’ve seen multiple neurologists, and GPS who did their best to help me. No one could help. In fact it only got worse because they increased requip and then The Neupro patch to levels that
Jrskyhook32
in
Restless Legs Syndrome
5 years ago
Controlling Lesion Pain
Regarding oral & genital lesions what have you found to be effective in minimizing lesions and controlling pain. I use steroids, Percocet, 2% viscous Lidocaine on the genital lesions and magic mouthwash orally. That’s 100 ml of the Lidocaine & 60-80 ml of antacid (maalox) and Diphenhydramine HCI (Benadryl
Regarding oral & genital lesions what have you found to be effective in minimizing lesions and controlling pain. I use steroids, Percocet, 2% viscous Lidocaine on the genital lesions and magic mouthwash orally. That’s 100 ml of the Lidocaine & 60-80 ml of antacid (maalox) and Diphenhydramine HCI (Benadryl
Number4
in
Behçet's UK
5 years ago
Very curious....
So, after 10 months on pred for PMR I have reduced from 24 to 12 mg. From the beginning, although greatly improved, I was never pain free, with some shoulder, hip, neck and thigh pain almost every day. Now, however, at 12mg, I feel much better, and am able to exercise at the gym and have very little
So, after 10 months on pred for PMR I have reduced from 24 to 12 mg. From the beginning, although greatly improved, I was never pain free, with some shoulder, hip, neck and thigh pain almost every day. Now, however, at 12mg, I feel much better, and am able to exercise at the gym and have very little
Manchild
in
PMRGCAuk
5 years ago
Update
Thought I'd update you all I had my baby boy on the 8th June at 12.11am he weighed 5lb14oz I was induced due to him measuring small it was a very traumatic experience something I'd never want to go through again made worse that baby had a poo so I was kept in longer after his birth now at 30 days old
Thought I'd update you all I had my baby boy on the 8th June at 12.11am he weighed 5lb14oz I was induced due to him measuring small it was a very traumatic experience something I'd never want to go through again made worse that baby had a poo so I was kept in longer after his birth now at 30 days old
Emilylouise-
in
Pregnancy and Parenting Support
5 years ago
Colofac versus Buscopan
I found Buscopan really helped my IBS (wind on left hand side and pain plus general feeling ill) but the GP said it had been associated with dementia so I stopped. I’m thinking of trying Colofac as peppermint capsules don’t seem to help. Anyone found Colofac helpful?
I found Buscopan really helped my IBS (wind on left hand side and pain plus general feeling ill) but the GP said it had been associated with dementia so I stopped. I’m thinking of trying Colofac as peppermint capsules don’t seem to help. Anyone found Colofac helpful?
Wifflesnook
in
IBS Network
5 years ago
Black tongue
Hi I have just been diagnose with pmr I am still not sure what it is and is it serious one thing I forgot to tell the doctor my dentist said I have a black tongue and I have a metal taste in my mouth is this normal with this condition
Hi I have just been diagnose with pmr I am still not sure what it is and is it serious one thing I forgot to tell the doctor my dentist said I have a black tongue and I have a metal taste in my mouth is this normal with this condition
Doubter
in
PMRGCAuk
5 years ago
Desperate for sleep. Cannabis?
Ropinerole and Gabapentin haven't worked for me. My body has become tolerant of Codeine and Tramadol for the time being so I need to have a long holiday from them to reset my receptors. The torture of extreme sleep deprivation is driving me to consider illegal cannabis as an edible. If anyone on here
Ropinerole and Gabapentin haven't worked for me. My body has become tolerant of Codeine and Tramadol for the time being so I need to have a long holiday from them to reset my receptors. The torture of extreme sleep deprivation is driving me to consider illegal cannabis as an edible. If anyone on here
Jumpey
in
Restless Legs Syndrome
5 years ago
Struggling and has anyone had a scratch before treatment?
Really struggling today. Tuesdays are always awful as it’s the day I lost my little girl. I’ve had the go ahead that my hyperplasia is not an issue so I can start IVF again. This time the consultant has suggest the short protocol (reckons I will get more good quality embryos) as the long only produced
Really struggling today. Tuesdays are always awful as it’s the day I lost my little girl. I’ve had the go ahead that my hyperplasia is not an issue so I can start IVF again. This time the consultant has suggest the short protocol (reckons I will get more good quality embryos) as the long only produced
Hopeandhell
in
Fertility Network UK
5 years ago
Help me plz linzess and Amitiza
Hello everyone I been having this problem all my life encoperisis and enuresis now I know its more ibs-c i just turn 28 I been trying to get this better but nothing is helping. My gi doctor gave me Linzess 290mg 1 a day but when I go to CvS to pick it up they want 1k for 90 pills yeah no sorry cant pay
Hello everyone I been having this problem all my life encoperisis and enuresis now I know its more ibs-c i just turn 28 I been trying to get this better but nothing is helping. My gi doctor gave me Linzess 290mg 1 a day but when I go to CvS to pick it up they want 1k for 90 pills yeah no sorry cant pay
craigers618
in
IBS Network
5 years ago
CatoG
Hello everyone, I am to this post. I have suffered with RLS for over 40 years. I have tried all the usual methods of dealing with it and am presently on ropinole. I take 6 mg a night (not knowing until recently what s high dose that is). I am experiencing abreaction and need to get off it. I have
Hello everyone, I am to this post. I have suffered with RLS for over 40 years. I have tried all the usual methods of dealing with it and am presently on ropinole. I take 6 mg a night (not knowing until recently what s high dose that is). I am experiencing abreaction and need to get off it. I have
CatoG
in
Restless Legs Syndrome
5 years ago
Progress but not supported enough at work
Hi, my first post after reading loads. I fractured my skull in 2014 and caused damage to my frontal lobe and have suffered ups and downs since but I have made a great recovery. I’m a curriculum leader in an fe college and from the point where I didn’t feel comfortable teaching children due to feeling
Hi, my first post after reading loads. I fractured my skull in 2014 and caused damage to my frontal lobe and have suffered ups and downs since but I have made a great recovery. I’m a curriculum leader in an fe college and from the point where I didn’t feel comfortable teaching children due to feeling
Davidwoods78
in
Headway
5 years ago
Additional IVF Techniques - HELP!
I had no idea there are so many optional add-ons for IVF! We are doing our second load of consent forms and they are asking us if we want: -Embryo Glue -Assisted Hatching -Endometrial Scratch -Embryoscope -PICSI Other than the scratch, this is the first I am hearing of any of these and it's really stressing
I had no idea there are so many optional add-ons for IVF! We are doing our second load of consent forms and they are asking us if we want: -Embryo Glue -Assisted Hatching -Endometrial Scratch -Embryoscope -PICSI Other than the scratch, this is the first I am hearing of any of these and it's really stressing
thepregnantpause
in
Fertility Network UK
5 years ago
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