Search
Search
About
Log in
Join
Experiences with
Beckwith-Wiedemann Syndrome
Posts
Communities
3,352 public posts
Filter results
Cyst Aspiration - has anyone had?
I’ve 12 days into down regulation, I had my baseline yesterday and I have a large cyst on my left ovary :( - I was so ready to start stims yesterday but it is what it is and I want the best outcome this cycle as it’s my 3rd! I have another scan on Monday and I am praying it has gone itself but if it
I’ve 12 days into down regulation, I had my baseline yesterday and I have a large cyst on my left ovary :( - I was so ready to start stims yesterday but it is what it is and I want the best outcome this cycle as it’s my 3rd! I have another scan on Monday and I am praying it has gone itself but if it
Amy1122
in
Fertility Network UK
4 years ago
Apnea due to opioid use?
I read that one of the causes of central sleep apnea is opioid use. That puts the person at risk for stroke or heart issues. There apparently is no treatment for refractory RLS that doesn't have serious side effects. My question is this: Has anyone with RLS developed apnea as a probable result of opioids
I read that one of the causes of central sleep apnea is opioid use. That puts the person at risk for stroke or heart issues. There apparently is no treatment for refractory RLS that doesn't have serious side effects. My question is this: Has anyone with RLS developed apnea as a probable result of opioids
grandpianoman
in
Restless Legs Syndrome
3 years ago
Next steps after Clomid?
I wanted to see if anyone had advice / been through a similar treatment pathway. Background: 32 y/o and been trying for two years (on pill / implant before then). No luck after one year so went through standard GP testing as my cycles had been long and irregular after the implant, but tests / scans
I wanted to see if anyone had advice / been through a similar treatment pathway. Background: 32 y/o and been trying for two years (on pill / implant before then). No luck after one year so went through standard GP testing as my cycles had been long and irregular after the implant, but tests / scans
Daisy_Blue
in
Fertility Network UK
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
What's your experience with gabapentin side effects going away?
I have read that gabapentin side effects can go away after one or two weeks. I was taking 600 mg of gabapentin while coming off ropinirole which I am now off of. It helped me sleep at night but did not stop my restless legs, nor the pain I had in my legs during the day. So experimenting, I tried 900
I have read that gabapentin side effects can go away after one or two weeks. I was taking 600 mg of gabapentin while coming off ropinirole which I am now off of. It helped me sleep at night but did not stop my restless legs, nor the pain I had in my legs during the day. So experimenting, I tried 900
SueJohnson
in
Restless Legs Syndrome
3 years ago
Magnesium stearate
Is it best to avoid magnesium stearate if you have Hashimotos? I need to buy more vitamins once my blood test comes back and will avoid MS if necessary. I do however have plenty of vitamins in my cabinet that contain it and I’m tempted to take them.
Is it best to avoid magnesium stearate if you have Hashimotos? I need to buy more vitamins once my blood test comes back and will avoid MS if necessary. I do however have plenty of vitamins in my cabinet that contain it and I’m tempted to take them.
Hidden
in
Thyroid UK
4 years ago
Poor sleep hygiene
Before the age of 20 when I started making sense of RLS I think I learned to violate every rule or guideline they suggest for a good nights sleep. I was too young and clueless to know these bad habits and coping mechanisms would become hard wired and difficult to overcome. I remember trying to be distracted
Before the age of 20 when I started making sense of RLS I think I learned to violate every rule or guideline they suggest for a good nights sleep. I was too young and clueless to know these bad habits and coping mechanisms would become hard wired and difficult to overcome. I remember trying to be distracted
ziggypiggy
in
Restless Legs Syndrome
3 years ago
Started on depixol 40mg depot inj fortnightly and now have severe RLS
Hi everyone I'm new here, hope everyone is doing OK. I have just been started on Depixol depot inj 40mg fortnightly. Previously I was on clopixol and previous to that was on depixol bylut don't remember the dose. While I was on clopixol I didn't have and RLS symptoms but the first time and now again
Hi everyone I'm new here, hope everyone is doing OK. I have just been started on Depixol depot inj 40mg fortnightly. Previously I was on clopixol and previous to that was on depixol bylut don't remember the dose. While I was on clopixol I didn't have and RLS symptoms but the first time and now again
Magpie2016
in
Restless Legs Syndrome
3 years ago
Lyrica restart?
Lyrica worked fabulously for my PLMD even at 50mg. Unfortunately I increased the dose to 300mg. over time to deal with insomnia, which caused daytime sedation and depression. I am now slowly reducing the Lyrica, hoping maybe the lower dose will work for my PLMD and not cause those side effects. As
Lyrica worked fabulously for my PLMD even at 50mg. Unfortunately I increased the dose to 300mg. over time to deal with insomnia, which caused daytime sedation and depression. I am now slowly reducing the Lyrica, hoping maybe the lower dose will work for my PLMD and not cause those side effects. As
wantokporo
in
Restless Legs Syndrome
3 years ago
Dopamine agonists and their aftermath - A Survey
Hello All I have been off dopamine agonists for more than two years now, thanks to methadone and buprenorphine. Both were - and are - a blessing (insofar as any drugs could be called such), as many of you will know. But I would like to know how many of us feel, even long after quitting dopamine agonists
Hello All I have been off dopamine agonists for more than two years now, thanks to methadone and buprenorphine. Both were - and are - a blessing (insofar as any drugs could be called such), as many of you will know. But I would like to know how many of us feel, even long after quitting dopamine agonists
Parminter
in
Restless Legs Syndrome
3 years ago
Neurologist
I had been to the hospital to a neurologist. I was given ropinirole after gabapentin stopped working for me. I read that rls is caused by lack of dopamine in the brain.
I had been to the hospital to a neurologist. I was given ropinirole after gabapentin stopped working for me. I read that rls is caused by lack of dopamine in the brain.
Rosemarydoherty
in
Restless Legs Syndrome
3 years ago
Anaesthetics and Pred
Consultant was unable to complete a hysteroscopy this morning as he and I agreed it was causing too much pain. I'm now to have it done under general anaesthetic and wonder about taking pred. on that day. I've read back over some posts but am not clear whether one takes one's own medication into hospital
Consultant was unable to complete a hysteroscopy this morning as he and I agreed it was causing too much pain. I'm now to have it done under general anaesthetic and wonder about taking pred. on that day. I've read back over some posts but am not clear whether one takes one's own medication into hospital
maria40
in
PMRGCAuk
3 years ago
Plan B...donor eggs 😢
So it looks like Donor Eggs are our only option. Our 4th cycle went so well initially (16 eggs, 13 mature and 9 embryos) and we were so hopeful. IVF is so cruel. All but 4 embryos stopped growing by day 5. But we still had hope! Then 3 of our blastocysts stopped growing at day 6 before they reached
So it looks like Donor Eggs are our only option. Our 4th cycle went so well initially (16 eggs, 13 mature and 9 embryos) and we were so hopeful. IVF is so cruel. All but 4 embryos stopped growing by day 5. But we still had hope! Then 3 of our blastocysts stopped growing at day 6 before they reached
JenRoy
in
Fertility Network UK
4 years ago
RLS and Azelastine HCL nose spray
Suddenly I started getting RLS, even on low dose Methadone. I am thinking it is the Azelastine as it is an antihistamine, but I cannot find any literature on it. The only other thing that changed was a slight reduction in Lithium. I don't have any discontinuation symptoms, so I don't think it is that
Suddenly I started getting RLS, even on low dose Methadone. I am thinking it is the Azelastine as it is an antihistamine, but I cannot find any literature on it. The only other thing that changed was a slight reduction in Lithium. I don't have any discontinuation symptoms, so I don't think it is that
tinabuglaw
in
Restless Legs Syndrome
4 years ago
1:10 chance of Downs Syndrome
Edit: I just wanted to update with my nipt results, they have come back as low risk for Downs Syndrome. It's such a relief to finally have the results as the waiting was very stressful! Thank you to everyone who took the time to respond, reassure me and share experiences, I really appreciate it! Hi,
Edit: I just wanted to update with my nipt results, they have come back as low risk for Downs Syndrome. It's such a relief to finally have the results as the waiting was very stressful! Thank you to everyone who took the time to respond, reassure me and share experiences, I really appreciate it! Hi,
almostfamous
in
Pregnancy and Parenting Support
4 years ago
When does the worry end?!
Edit: Hi all, I've had my results from the nipt test and they came back as low risk for Downs Syndrome. The waiting for the results was the worst part! Still feeling a little nervous for my 20 week scan but hopefully I can get back to enjoying my pregnancy now. Thank you so much to everyone who responded
Edit: Hi all, I've had my results from the nipt test and they came back as low risk for Downs Syndrome. The waiting for the results was the worst part! Still feeling a little nervous for my 20 week scan but hopefully I can get back to enjoying my pregnancy now. Thank you so much to everyone who responded
almostfamous
in
Fertility Network UK
4 years ago
Does anyone take Celebrex ?
Hi Everyone , Does anybody else take Celebrex? I am on hydroxychloroquine Azathiropine, to mention just a few for the Lupus and Sjogren's. I now have Osteoarthritis in most joints and my consultant has prescribed CELEBREX. I am wary of taking more meds but I am really struggling with my joints stiffness
Hi Everyone , Does anybody else take Celebrex? I am on hydroxychloroquine Azathiropine, to mention just a few for the Lupus and Sjogren's. I now have Osteoarthritis in most joints and my consultant has prescribed CELEBREX. I am wary of taking more meds but I am really struggling with my joints stiffness
Mrsdoozer
in
LUPUS UK
4 years ago
Husband giving up!!
Hi all, my husband is on week 8 of ventilator,3 of which are on trachy. Ventilation.He has a lot of muscle wastage and can barely move atm.He is fully off sedation and was doing well but has now started refusing physio and even the doctor wanting to examine him!! He mouthed to me the other day that
Hi all, my husband is on week 8 of ventilator,3 of which are on trachy. Ventilation.He has a lot of muscle wastage and can barely move atm.He is fully off sedation and was doing well but has now started refusing physio and even the doctor wanting to examine him!! He mouthed to me the other day that
Popsicle1
in
ICUsteps
4 years ago
Lupus and episcleritis or scleritis?
Hi everyone I hope you are ok. Please can I check has anyone with severe lupus on immunosuppressants and prednisolone already had episcleritis or scleritis which is inflammation of eye? If so did they resolve ok? What treatments did you get in addition to what you have already? Many thanks
Hi everyone I hope you are ok. Please can I check has anyone with severe lupus on immunosuppressants and prednisolone already had episcleritis or scleritis which is inflammation of eye? If so did they resolve ok? What treatments did you get in addition to what you have already? Many thanks
Andfiona
in
LUPUS UK
4 years ago
more about sleep
I am also taking ginger root and ginkgo bilboa (these for tinnitus) so maybe that has helped along with the gaba. Anyway the restless legs is about gone after years so I will keep on taking those 3 things!
I am also taking ginger root and ginkgo bilboa (these for tinnitus) so maybe that has helped along with the gaba. Anyway the restless legs is about gone after years so I will keep on taking those 3 things!
dlr222
in
Restless Legs Syndrome
4 years ago
RLS Hot Feet / Cramps
Morning iv just joined this group I have server RLS am on Ropinirole 21mg I take through the day yes they a lot some people say I'm on a to higher but it works for me untill I try to go to sleep I have Insomnia so never sleep ( my feet are so hot all the time does anyone else have this ) I have a fan
Morning iv just joined this group I have server RLS am on Ropinirole 21mg I take through the day yes they a lot some people say I'm on a to higher but it works for me untill I try to go to sleep I have Insomnia so never sleep ( my feet are so hot all the time does anyone else have this ) I have a fan
Xhanthos
in
Restless Legs Syndrome
4 years ago
1
...
52
53
54
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1497 results
Fertility Network UK
360 results
PMRGCAuk
137 results
View top 10 communities
Sort by
Most Relevant
Newest