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Others don’t understand
I know we’re all usually talking about our meds, but I’m wondering how everybody is faring when trying to explain to others what we go through. I’ve had my adult children question why I take oxycodone. Some seem to understand, some are very judgmental. RLS can start at 10:30 am, and is why I’m spreading
I know we’re all usually talking about our meds, but I’m wondering how everybody is faring when trying to explain to others what we go through. I’ve had my adult children question why I take oxycodone. Some seem to understand, some are very judgmental. RLS can start at 10:30 am, and is why I’m spreading
Marlayna
in
Restless Legs Syndrome
1 year ago
Radium 223
I am interested in anyone's experience with radium-223. Thanks, EdinBaltimore
I am interested in anyone's experience with radium-223. Thanks, EdinBaltimore
EdinBmore
in
Advanced Prostate Cancer
11 months ago
iron lab results 10 weeks post iron infusion
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
SleeplessinNC
in
Restless Legs Syndrome
5 months ago
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Radium223 has not been a success, is Enzalutamide a good next option?
Stage 4 PCA for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months (PSA dropped to 0.2 then more recently rose to 58 in June '23 ). Abiraterone eventually stopped working and I was able to join Radium 223 trial. Completed 5 of 6 cycles of Radium 223, then elected to stop since
Stage 4 PCA for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months (PSA dropped to 0.2 then more recently rose to 58 in June '23 ). Abiraterone eventually stopped working and I was able to join Radium 223 trial. Completed 5 of 6 cycles of Radium 223, then elected to stop since
Ronnie7C
in
Advanced Prostate Cancer
11 months ago
17 Jun 2023 Make your MRI experience good
G'day RRms (Relapsing-Remitting ms) sisters and brothers. Are you having MRI (Magnetic Resonance Image)? A visit to the tube? Lucky YOU, good fun I know. Here are a few helpful hints. 1. TAKE valium 5 milligrams should be enough 2. KEEP a record of the report and the film. YOU may not
G'day RRms (Relapsing-Remitting ms) sisters and brothers. Are you having MRI (Magnetic Resonance Image)? A visit to the tube? Lucky YOU, good fun I know. Here are a few helpful hints. 1. TAKE valium 5 milligrams should be enough 2. KEEP a record of the report and the film. YOU may not
RoyceNewton
in
My MSAA Community
1 year ago
Radium-223 + Xtandi?
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
MechD
in
Advanced Prostate Cancer
11 months ago
ARRRGH !
Hi all, I live in Tasmania, Australia and do not have private health cover. I am 60 years old and have had rls since I was 21, that I know of. I have also been on antidepressants since 1980... I realky believe that they have caused the rls as no one in my family had it. Anyway, it became absolutely
Hi all, I live in Tasmania, Australia and do not have private health cover. I am 60 years old and have had rls since I was 21, that I know of. I have also been on antidepressants since 1980... I realky believe that they have caused the rls as no one in my family had it. Anyway, it became absolutely
Oscarcat63
in
Restless Legs Syndrome
1 year ago
Upper airway obstruction on spirometry?
So I have had a history of rhinitis/polyps for the past 14 years, it is treated with daily nasal steroids/(drops if bad) and an antihistamine- though all allergy tests have been negative. About 2 months ago (after a period of anxiety it so happens) I had been using the steroid drops and started to
So I have had a history of rhinitis/polyps for the past 14 years, it is treated with daily nasal steroids/(drops if bad) and an antihistamine- though all allergy tests have been negative. About 2 months ago (after a period of anxiety it so happens) I had been using the steroid drops and started to
Blueforest23
in
Asthma Community Forum
1 year ago
Trying to stay positive when I dont "get" it
This pelvic floor tightness came out of nowhere several weeks ago. I never ever knew this existed. Now Im in on baclofen/valium suppositories, HRT therapy 3x a week. I go for hrs where I have no pain and then the spasms and throbbing begins. Is there anyone else going thru a similar situation? Im scared
This pelvic floor tightness came out of nowhere several weeks ago. I never ever knew this existed. Now Im in on baclofen/valium suppositories, HRT therapy 3x a week. I go for hrs where I have no pain and then the spasms and throbbing begins. Is there anyone else going thru a similar situation? Im scared
QueenVic1952
in
Pelvic Pain Support Network
1 year ago
RA pain & inflammation causing terrible anxiety: pacing, insomnia
Experiencing terrible anxiety & insomnia when RA pain flares up- but gp & rheum won’t give sedatives. They act like I’m an addict; so I take a few glasses of wine & I don’t even like liquor. Am in the USA. These drs have no problem giving expensive, “big gun” RA meds & high dose prednisone - but
Experiencing terrible anxiety & insomnia when RA pain flares up- but gp & rheum won’t give sedatives. They act like I’m an addict; so I take a few glasses of wine & I don’t even like liquor. Am in the USA. These drs have no problem giving expensive, “big gun” RA meds & high dose prednisone - but
Hisue
in
NRAS
1 year ago
02 June 2023 For the newbies
G'day ms friends and family (YOU). With your permission, I will talk again today to the newly diagnosed (Dx'd), (Newbies) First off DO NOT BE SCARED. It is okay, YOU are okay. To cry, it is okay. To wonder about your future, that is okay. Most things are okay. Hurting yourself or ignoring
G'day ms friends and family (YOU). With your permission, I will talk again today to the newly diagnosed (Dx'd), (Newbies) First off DO NOT BE SCARED. It is okay, YOU are okay. To cry, it is okay. To wonder about your future, that is okay. Most things are okay. Hurting yourself or ignoring
RoyceNewton
in
My MSAA Community
1 year ago
Severe RLS Where do I go now?
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
e365
in
Restless Legs Syndrome
8 months ago
Can Radium 223 kill PCa in the prostate and can Docetaxel kill bone Mets?
Radiation is what l plan to do in the coming week. I would appreciate if you could tell me whether Radium 223 can kill PCa in the prostate and whether Docetaxel can kill bone Mets? Thanks.
Radiation is what l plan to do in the coming week. I would appreciate if you could tell me whether Radium 223 can kill PCa in the prostate and whether Docetaxel can kill bone Mets? Thanks.
tarzantass
in
Advanced Prostate Cancer
1 year ago
Diagnosis- ish
Hi everyone, Hope you are well. I have seen a gastroenterologist for issues with swallowing. He has diagnosed the following: intermittent dysphagia. Slight incordination of motility via barium swallow. I also had a high resolution manometry. They said reassuring noromotensive lower oesopageal sphincter
Hi everyone, Hope you are well. I have seen a gastroenterologist for issues with swallowing. He has diagnosed the following: intermittent dysphagia. Slight incordination of motility via barium swallow. I also had a high resolution manometry. They said reassuring noromotensive lower oesopageal sphincter
Awwy
in
Acid Reflux Support
1 year ago
after radium 223
hi, husband diagnosed 2017, lots of different treatments, none lasted very long. Including 2 different chemos, xtandi, casodex, etc radium 223 last year. We are in the UK, have now been told we have exhausted treatments under NICE guidelines and he’ll be offered pain relief under palliative care. He
hi, husband diagnosed 2017, lots of different treatments, none lasted very long. Including 2 different chemos, xtandi, casodex, etc radium 223 last year. We are in the UK, have now been told we have exhausted treatments under NICE guidelines and he’ll be offered pain relief under palliative care. He
Jojoberries
in
Advanced Prostate Cancer
1 year ago
10 May 2023 MRI yesterday
G'day beloved ms family. I survived the Magnetic Resonance Image (MRI) session yesterday. Took several hours and my Valium relaxed me but did not pet knonk me out. Learned a few new things yesterday. Who would have thought that after 20+ years ab old dog can learn new tricks. 1. YOU can
G'day beloved ms family. I survived the Magnetic Resonance Image (MRI) session yesterday. Took several hours and my Valium relaxed me but did not pet knonk me out. Learned a few new things yesterday. Who would have thought that after 20+ years ab old dog can learn new tricks. 1. YOU can
RoyceNewton
in
My MSAA Community
1 year ago
Good day to YOU ms person
G'day to YOU. So far my day is good and I most certainly hope yours is as well. Only a few days left until my next Magnetic resonance image (MRI), I am betting it says I have ms. It has said that for the last 20 or so years so I m expecting nothing else. I have my two Valium tablets ready to
G'day to YOU. So far my day is good and I most certainly hope yours is as well. Only a few days left until my next Magnetic resonance image (MRI), I am betting it says I have ms. It has said that for the last 20 or so years so I m expecting nothing else. I have my two Valium tablets ready to
RoyceNewton
in
My MSAA Community
1 year ago
Zometa with or without Radium 223?
Hi I have done 1 year with Zometa alongside Docetaxel and more recently Radium 223. I'm halfway through the Radium 223 course but have been advised that after a year, Zometa has reached maximum effectiveness and should be stopped. After a rocky start I'm feeling much better and much less frail.
Hi I have done 1 year with Zometa alongside Docetaxel and more recently Radium 223. I'm halfway through the Radium 223 course but have been advised that after a year, Zometa has reached maximum effectiveness and should be stopped. After a rocky start I'm feeling much better and much less frail.
Finlay66
in
Advanced Prostate Cancer
1 year ago
Coming off Naproxen safely?
Hi After 3 doses of Radium 223, my pain and general core strength seems to be improving after a rocky start. I'm also taking low dose Dexamethasone. I'd like to come off Naproxen gently and just take Paracetamol. I'm taking 2 x500 mg a day after meals. I'd be grateful for any experience or advice
Hi After 3 doses of Radium 223, my pain and general core strength seems to be improving after a rocky start. I'm also taking low dose Dexamethasone. I'd like to come off Naproxen gently and just take Paracetamol. I'm taking 2 x500 mg a day after meals. I'd be grateful for any experience or advice
Finlay66
in
Advanced Prostate Cancer
1 year ago
Broken shattered femur
My husband's femur broke and shattered on Friday afternoon. Rushed to hospital only to be told no surgeon available. They called 5 other hospitals and all declined his admittance due to lack of rooms or no surgeon available. Finally last evening he was transferred to Markham Stouffville Hospital at
My husband's femur broke and shattered on Friday afternoon. Rushed to hospital only to be told no surgeon available. They called 5 other hospitals and all declined his admittance due to lack of rooms or no surgeon available. Finally last evening he was transferred to Markham Stouffville Hospital at
Docker53
in
Advanced Prostate Cancer
1 year ago
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