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Dad with Stage 4 PCa - Need some words of wisdom...again please!
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
kikinini
in
Advanced Prostate Cancer
8 months ago
What to do next
As in my previous post, I took Gabapentin 5 nights and I feel shakey and my nerves raw. How can I get this crap out of my body faster? I tried an Epsom salts bath but doesn't feel much better if any. Also I am terrified in what to take for sleep and pain tonight. My doctor prescribed tramodol but it
As in my previous post, I took Gabapentin 5 nights and I feel shakey and my nerves raw. How can I get this crap out of my body faster? I tried an Epsom salts bath but doesn't feel much better if any. Also I am terrified in what to take for sleep and pain tonight. My doctor prescribed tramodol but it
Butterflygrandma
in
Cure Parkinson's
8 months ago
Results are in
Hi all, I got some private tests done (attached) and I have to say I’m surprised as they seem to point to me being hyperthyroid but have all the symptoms of hypo. Can someone explain to me please? Other tests done recently were: B12 - 240 - I have pernicious anaemia and am getting B12 injections off
Hi all, I got some private tests done (attached) and I have to say I’m surprised as they seem to point to me being hyperthyroid but have all the symptoms of hypo. Can someone explain to me please? Other tests done recently were: B12 - 240 - I have pernicious anaemia and am getting B12 injections off
Peril1504
in
Thyroid UK
8 months ago
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Ferrous Sulphate
Just wondering why the above is so much better than other iron forms for RLS? Thanks!
Just wondering why the above is so much better than other iron forms for RLS? Thanks!
Boldgirl45
in
Restless Legs Syndrome
8 months ago
Iron Level UP!
Earlier this year my Ferritin level reached nearly 200 and I began to sleep through the night. After a month the effect reduced and I wondered if this was due to using Gentle Iron so I changed back to 2 x 200mg Ferrous Sulphate tablets with Vitamin C every other night. More recently I have little RLS
Earlier this year my Ferritin level reached nearly 200 and I began to sleep through the night. After a month the effect reduced and I wondered if this was due to using Gentle Iron so I changed back to 2 x 200mg Ferrous Sulphate tablets with Vitamin C every other night. More recently I have little RLS
John_naylor
in
Restless Legs Syndrome
8 months ago
Treatment after Lu /Pluvicto?
It seems that there is paucity of data related to the effectiveness of treatments after Lu/Pluvicto. I'm beginning to suspect that pubished survival benefits for Radium 223/Pluvicto and chemotherapy cannot be assumed to be anticipated if the patient has had Pluvicto. My husband has completed 6 sessions
It seems that there is paucity of data related to the effectiveness of treatments after Lu/Pluvicto. I'm beginning to suspect that pubished survival benefits for Radium 223/Pluvicto and chemotherapy cannot be assumed to be anticipated if the patient has had Pluvicto. My husband has completed 6 sessions
cancervictim
in
Advanced Prostate Cancer
8 months ago
Feeling very unwell - do my blood results explain why? What to do next?
Hi Mid August My NDT was increased from 2.5 to 3 grains. By the last week in September I began to feel what I describe as a 'bit off' , these feelings come and go. My partner had covid , I tested negative a couple of times. I did have a bit of cough and sore throat but that lasted only a couple
Hi Mid August My NDT was increased from 2.5 to 3 grains. By the last week in September I began to feel what I describe as a 'bit off' , these feelings come and go. My partner had covid , I tested negative a couple of times. I did have a bit of cough and sore throat but that lasted only a couple
Divine1990
in
Thyroid UK
8 months ago
Iron Bisglycinate
I am in the US and looked at a number of 25 mg of iron bisglycinate products (gentle iron) on Amazon. All listed there percent of daily value (US) at 139%. Most did not list their elemental iron but two did and they listed it as 25 mg. So my apologies! My previous post which I deleted was wrong.
I am in the US and looked at a number of 25 mg of iron bisglycinate products (gentle iron) on Amazon. All listed there percent of daily value (US) at 139%. Most did not list their elemental iron but two did and they listed it as 25 mg. So my apologies! My previous post which I deleted was wrong.
SueJohnson
in
Restless Legs Syndrome
8 months ago
Simulation
I had my markers and spaceoar placed last week and have an appointment for my simulation tomorrow. The valium helped with my procedure last week-I wish I had taken some before the biopsy. Will I need to take something before the simulation, or is it pain free?
I had my markers and spaceoar placed last week and have an appointment for my simulation tomorrow. The valium helped with my procedure last week-I wish I had taken some before the biopsy. Will I need to take something before the simulation, or is it pain free?
NYCguy123
in
Prostate Cancer And Gay Men
11 months ago
Low iron levels with a heart condition
Pre heart condition (pre 2021) my iron levels had always been really good (around 140 ug/L) but since then they've dropped massively (currently 32 ug/L). To make matters worse, I unfortunately had a bowel bleed in February 2023 resulting in need a blood transfusion. I was put on ferrous sulphate for
Pre heart condition (pre 2021) my iron levels had always been really good (around 140 ug/L) but since then they've dropped massively (currently 32 ug/L). To make matters worse, I unfortunately had a bowel bleed in February 2023 resulting in need a blood transfusion. I was put on ferrous sulphate for
LucyBoo21
in
British Heart Foundation
9 months ago
SpaceOAR placement day after
For anyone considering SpaceOAR rectal spacer, here's my experience one day after the procedure. While I see some have had this done under anesthesia, I did not. It was not presented as an option for me, and after going through it, I don't know that it would be necessary unless you have a very low tolerance
For anyone considering SpaceOAR rectal spacer, here's my experience one day after the procedure. While I see some have had this done under anesthesia, I did not. It was not presented as an option for me, and after going through it, I don't know that it would be necessary unless you have a very low tolerance
LiveLongAndPropser
in
Prostate Cancer Under 60
11 months ago
Olaparib and Radium 223 synergy ?
I seem to recall seeing that there was a trial on seeing if there was synergy to taking Olaparib and Radium 223. But can not find it. Anyone have any knowledge of this? I'm BRCA2 mutated and currently taking Olaparib, and considering Radium 223. Thanks.
I seem to recall seeing that there was a trial on seeing if there was synergy to taking Olaparib and Radium 223. But can not find it. Anyone have any knowledge of this? I'm BRCA2 mutated and currently taking Olaparib, and considering Radium 223. Thanks.
davebliz
in
Advanced Prostate Cancer
9 months ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
How to escape Augmentation?
I only learnt about Health Unlocked and its efforts on RLS through RLS -UK and this is my first post. I have suffered from RLS for several years and various doctors have prescribed all the general medicines starting with antidepressants (amitriptyline, mirtazapine, imipramine, and citralopram), dopramine
I only learnt about Health Unlocked and its efforts on RLS through RLS -UK and this is my first post. I have suffered from RLS for several years and various doctors have prescribed all the general medicines starting with antidepressants (amitriptyline, mirtazapine, imipramine, and citralopram), dopramine
davchar23
in
Restless Legs Syndrome
9 months ago
vaginal estrogen and vag valium question
I was wondering if any of you lovely ladies are using both vaginal estrogen cream and vaginal valium suppositories. I'm supposed to insert a valium suppository every night (10mg) and I also insert 1 gram of estradiol cream three nights a week. I'm worried that the valium will keep the estrogen cream
I was wondering if any of you lovely ladies are using both vaginal estrogen cream and vaginal valium suppositories. I'm supposed to insert a valium suppository every night (10mg) and I also insert 1 gram of estradiol cream three nights a week. I'm worried that the valium will keep the estrogen cream
sungirl55
in
Pelvic Pain Support Network
11 months ago
Heavy legs and breathlessness
My legs feel heavy and stiffen up very quickly if I walk on any hard surface like pavements or even supermarket floors for more than a few minutes. It's particularly bad going up any incline, however slight. I literally feel as if I am having to drag my legs and the effort makes me really breathless.
My legs feel heavy and stiffen up very quickly if I walk on any hard surface like pavements or even supermarket floors for more than a few minutes. It's particularly bad going up any incline, however slight. I literally feel as if I am having to drag my legs and the effort makes me really breathless.
soreleg28
in
Fibromyalgia Action UK
9 months ago
Chemotherapy or Pluvicto
I just completed Radium 223 treatment. PSA has been doubling since I failed Zytiga. Last scans show progression. I am offered chemo or a trial with Pluvicto. The cancer is throughout my bones. What should I do. I have had chemo at the beginning of this journey and it worked then.
I just completed Radium 223 treatment. PSA has been doubling since I failed Zytiga. Last scans show progression. I am offered chemo or a trial with Pluvicto. The cancer is throughout my bones. What should I do. I have had chemo at the beginning of this journey and it worked then.
Islandboy2021
in
Advanced Prostate Cancer
9 months ago
Good news re. blood tests
Good evening , Well the good news is I have had blood test results today and there is improvement in the haemoglobin, now normal and normal white cell count also normal ! Several of the other results which were abnormal seem to have settled down. Red platelet count is still quite high 479 and
Good evening , Well the good news is I have had blood test results today and there is improvement in the haemoglobin, now normal and normal white cell count also normal ! Several of the other results which were abnormal seem to have settled down. Red platelet count is still quite high 479 and
gillsky8
in
PMRGCAuk
9 months ago
Magnesium
Hi just wondered if anyone has taken ferrous sulphate at the same time as magnesium? I was finding magnesium helped my migraines, but now the doctors put me on ferrous sulphate for anaemia and I've been told, you can't take both, as they stop each others affectiveness. I'm very worried, as my migraines
Hi just wondered if anyone has taken ferrous sulphate at the same time as magnesium? I was finding magnesium helped my migraines, but now the doctors put me on ferrous sulphate for anaemia and I've been told, you can't take both, as they stop each others affectiveness. I'm very worried, as my migraines
Mary1959
in
National Migraine Centre
9 months ago
Could I try BAT to restore sensitivity to previously used antiandrogen treatments.
I failed Abiraterone and SOC doesn't allow the switch to Enzalutamide. I was reading on the use of BAT to resensitize mCRPC. Would this be a therapy that could work or is it too late now that I have failed. I know its not SOC but I am running out of choices and looking for some clarity. Its basically
I failed Abiraterone and SOC doesn't allow the switch to Enzalutamide. I was reading on the use of BAT to resensitize mCRPC. Would this be a therapy that could work or is it too late now that I have failed. I know its not SOC but I am running out of choices and looking for some clarity. Its basically
Islandboy2021
in
Advanced Prostate Cancer
9 months ago
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