Search
Search
About
Log in
Join
Experiences with
Azelaic acid
Posts
Communities
4,137 public posts
Filter results
Loss of Bone density
I have just received a low bone density diagnosis due to the 8 months of prednisone, I suppose. I am devastated as I have followed all the recommendations for diet, pills, including alendronate, and do numerous weight bearing activities. Can bone density ever improve naturally? Or is this forever?
I have just received a low bone density diagnosis due to the 8 months of prednisone, I suppose. I am devastated as I have followed all the recommendations for diet, pills, including alendronate, and do numerous weight bearing activities. Can bone density ever improve naturally? Or is this forever?
Strelitzia
in
PMRGCAuk
2 years ago
What is my fracture risk?
I was diagnosed with osteoporosis last November and prescribed Alendronic Acid. I was slow to begin taking it, wanting to understand the risks and benefits etc. But I wasn't told what my risk of fracture is? The report I was sent shows T scores and Z scores but not the risk of fracture.Has anyone else
I was diagnosed with osteoporosis last November and prescribed Alendronic Acid. I was slow to begin taking it, wanting to understand the risks and benefits etc. But I wasn't told what my risk of fracture is? The report I was sent shows T scores and Z scores but not the risk of fracture.Has anyone else
Zadock
in
Bone Health and Osteoporosis UK
2 years ago
Alendronic Acid
I have reduced my Prednisolone to 3 ml a day, I was thinking of stopping my weekly intake of Alendronic acid, but I first of all contacted my GP. She has responded by saying that I should stay on it for five years. I have been on it for 15 months. What are your thoughts on stopping Alendronic Acid.
I have reduced my Prednisolone to 3 ml a day, I was thinking of stopping my weekly intake of Alendronic acid, but I first of all contacted my GP. She has responded by saying that I should stay on it for five years. I have been on it for 15 months. What are your thoughts on stopping Alendronic Acid.
Gardenbay
in
PMRGCAuk
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
A bit of cheer when we need it.
A bit off topic, but I'm so chuffed at having self published my third book! I'm not bothered about sales, just a few reviews and the sense of achievement through all my dark days of bad consultations, taper/flare yoyos, etc. Stuck at 10 mgs Pred currently and still resisting MTX & Zoledronic acid
A bit off topic, but I'm so chuffed at having self published my third book! I'm not bothered about sales, just a few reviews and the sense of achievement through all my dark days of bad consultations, taper/flare yoyos, etc. Stuck at 10 mgs Pred currently and still resisting MTX & Zoledronic acid
strawclutching
in
PMRGCAuk
2 years ago
Omega 3
Hi all, hope everyone is feeling well. My husband has CLL and has been taking Ibrutinib for 3-years. I just wondered if Omega 3 is something you can take with CLL or should it be avoided? I have read a lot about it’s benefits, but not sure if it’s suitable for people with CLL. Many thanks
Hi all, hope everyone is feeling well. My husband has CLL and has been taking Ibrutinib for 3-years. I just wondered if Omega 3 is something you can take with CLL or should it be avoided? I have read a lot about it’s benefits, but not sure if it’s suitable for people with CLL. Many thanks
shellsb
in
CLL Support
2 years ago
Possible Endometriosis?
Hi all, first post here. have been struggling with a lot of ongoing, chronic bowel, bladder and pelvic symptoms for many years, which have worsened recently after going through a particularly stressful time. My periods have usually been on the heavier side, but would always last around 7 - 8 days
Hi all, first post here. have been struggling with a lot of ongoing, chronic bowel, bladder and pelvic symptoms for many years, which have worsened recently after going through a particularly stressful time. My periods have usually been on the heavier side, but would always last around 7 - 8 days
ZM1980
in
Endometriosis UK
2 years ago
Increased aminoacids ... Could this be my gut issue
hi ive had amino acids profile tests done and there are increased levels of glycine;hydroproline; nithene; asparagine. Does anyone know what this means and could this be related to my gut pain? Thank you
hi ive had amino acids profile tests done and there are increased levels of glycine;hydroproline; nithene; asparagine. Does anyone know what this means and could this be related to my gut pain? Thank you
Waiting_for_godo
in
IBS Network
2 years ago
Interferon Alpha 2-a (PEG) vs 2-b,(Bes) exactly what's the diff?
I posted this image recently, but here it's in a new context. For those who are curious exactly how 2-a and 2-b IFNs differ (I posted inside another thread before but here's a new post on it): https://www.prospecbio.com/interferon-alpha-2a_human "The difference between IFNA2A and IFNA2B is in the
I posted this image recently, but here it's in a new context. For those who are curious exactly how 2-a and 2-b IFNs differ (I posted inside another thread before but here's a new post on it): https://www.prospecbio.com/interferon-alpha-2a_human "The difference between IFNA2A and IFNA2B is in the
EPguy
in
MPN Voice
2 years ago
Mixed feelings following first GP appointment since PMR diagnosis
Started on 20mg prednisolone mid June, four weeks later reduced to 17.5 mg for four weeks, no problems, reduced to 15mg last Friday. By Monday the pain was back and I was very breathless; when I saw GP face to face, two days ago I was told to go back to 17.5 for two weeks and then try again. I raised
Started on 20mg prednisolone mid June, four weeks later reduced to 17.5 mg for four weeks, no problems, reduced to 15mg last Friday. By Monday the pain was back and I was very breathless; when I saw GP face to face, two days ago I was told to go back to 17.5 for two weeks and then try again. I raised
sewinggranny
in
PMRGCAuk
2 years ago
Well I'll be damned!
Well, as a follow up to my post 3 weeks ago, I had my Rheumy appt. this morning. She spent ages with me. I told her all my woes, and she thoroughly examined me. I must've have yelped loudly about 20 times 😖 She went through all of my symptoms one by one and said she had come to the conclusion
Well, as a follow up to my post 3 weeks ago, I had my Rheumy appt. this morning. She spent ages with me. I told her all my woes, and she thoroughly examined me. I must've have yelped loudly about 20 times 😖 She went through all of my symptoms one by one and said she had come to the conclusion
Groovykindoflove1992
in
PMRGCAuk
2 years ago
Zolpidem users: a debilitating surprise awaits at 65
I took Zolpidem (a.k.a., Ambien) for 12 years. Last spring my doctor cut off my prescription without discussion. Around the same time my brother's doctor cut his prescription from 10mg to 5mg without discussion. At same time a fellow employee of my brother had her prescription cut off – without discussion
I took Zolpidem (a.k.a., Ambien) for 12 years. Last spring my doctor cut off my prescription without discussion. Around the same time my brother's doctor cut his prescription from 10mg to 5mg without discussion. At same time a fellow employee of my brother had her prescription cut off – without discussion
Patrickk
in
Sleep Matters
2 years ago
Omega 3 supplements- increased risk of cardiovascular disease?
I recently read on a Grassroots Health newsletter that recent research has shown that B vitamins don’t work well without omega 3. (I can’t be more specific than ‘don’t work well ‘and I’m not sure there was a reference - but I’ll find a screenshot. I take a B complex So I started supplementing with omega
I recently read on a Grassroots Health newsletter that recent research has shown that B vitamins don’t work well without omega 3. (I can’t be more specific than ‘don’t work well ‘and I’m not sure there was a reference - but I’ll find a screenshot. I take a B complex So I started supplementing with omega
Bearo
in
Thyroid UK
2 years ago
Painkillers for nerve pain / side effects
I am a 71 yo male with PAF / exercise induced AF, which doesn’t overly affect me too much. I am fairly active and a regular cyclist. Recently I have been suffering with a trapped > irritated Femoral Nerve in my Left leg. This is quite painful at times and keeps me awake at night. I have been attending
I am a 71 yo male with PAF / exercise induced AF, which doesn’t overly affect me too much. I am fairly active and a regular cyclist. Recently I have been suffering with a trapped > irritated Femoral Nerve in my Left leg. This is quite painful at times and keeps me awake at night. I have been attending
BuckleyBoy
in
AF Association
2 years ago
Egg collection results
Finally the wait is over. The dr called me to give me results for my EC. Out of 4 eggs 2 were matured and fertilised and 1 didn’t make it. I take comfort that I have 1 embryo that is now frozen. It is a 3BB @ day 6, he mentioned the best would have been 4AA just to give me an idea of where we are (this
Finally the wait is over. The dr called me to give me results for my EC. Out of 4 eggs 2 were matured and fertilised and 1 didn’t make it. I take comfort that I have 1 embryo that is now frozen. It is a 3BB @ day 6, he mentioned the best would have been 4AA just to give me an idea of where we are (this
KediT
in
Fertility Network UK
2 years ago
Omega 3
I've read that many fish oil supplements are rancid and low quality, but I've also read that the linseed i usually take doesn't have as much omega 3 as animal sourced options. What brands are recommended...
I've read that many fish oil supplements are rancid and low quality, but I've also read that the linseed i usually take doesn't have as much omega 3 as animal sourced options. What brands are recommended...
Kriticat
in
Thyroid UK
2 years ago
helvella - Vade Mecum for Thyroid
[i]
helvella - Vade Mecum for Thyroid
[/i] [i]The term vade mecum means:[/i] [i]1. A referential book such as a handbook or manual.[/i] [i]2. A useful object, constantly carried on one’s person.[/i] [i]Please don't get put off by the number of pages![/i] [i]Nor by the fact it is targeted at
[i]
helvella - Vade Mecum for Thyroid
[/i] [i]The term vade mecum means:[/i] [i]1. A referential book such as a handbook or manual.[/i] [i]2. A useful object, constantly carried on one’s person.[/i] [i]Please don't get put off by the number of pages![/i] [i]Nor by the fact it is targeted at
helvella
Thyroid UK
in
Thyroid UK
2 years ago
No Alendronic Acid!
So this month's prescription for Alendronic Acid hadn't been done very -unusual for our very efficient pharmacy. Pharmacist explained to me that there is a national shortage and there just isn't any to be had -he has emailed the surgery to request the alternative ibandronate, but they haven't got
So this month's prescription for Alendronic Acid hadn't been done very -unusual for our very efficient pharmacy. Pharmacist explained to me that there is a national shortage and there just isn't any to be had -he has emailed the surgery to request the alternative ibandronate, but they haven't got
artisam
in
PMRGCAuk
2 years ago
Arythmia
Some thoughts. I had pretty bad arythmia and ended up in ICU twice in 2021 for a total of 14 days. Now its totally under control and here is what I did: 1) Eat very well, reducing carbs, sugar and eliminate Caffeine 2) Reduce alcohol consumption to a minimum 3) Increase Omega 3 and fibre intake to
Some thoughts. I had pretty bad arythmia and ended up in ICU twice in 2021 for a total of 14 days. Now its totally under control and here is what I did: 1) Eat very well, reducing carbs, sugar and eliminate Caffeine 2) Reduce alcohol consumption to a minimum 3) Increase Omega 3 and fibre intake to
Seiznem
in
Arrhythmia Alliance
2 years ago
Happy weekend....What are two things you have gained from pandemic with MS or and other illnesses that may exist. making a list.TY!
I am thankful to you all..i look as i can to see how everyone is doing and honestly to hang on. i barely make it thru each day but ido and that is the point.I dont know if you all know how special you are?! I pray fall brings joy and holidays or stay vacation , or if a real vacation! It has been so
I am thankful to you all..i look as i can to see how everyone is doing and honestly to hang on. i barely make it thru each day but ido and that is the point.I dont know if you all know how special you are?! I pray fall brings joy and holidays or stay vacation , or if a real vacation! It has been so
jackiesj
in
My MSAA Community
2 years ago
List of blood panel Abbreviations.
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
EllaNore
in
Pernicious Anaemia Society
2 years ago
1
...
36
37
38
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
606 results
Endometriosis UK
502 results
Thyroid UK
400 results
View top 10 communities
Sort by
Most Relevant
Newest