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Azelaic acid
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PMR seems to have returned
Briefly, I had PMR from 2016 - 2019. It didn’t show up on blood test and I was started on 15mg of pred. Within 48 hours I was pain free and quickly reduced to 10mg then dead slow method. After having very painful shoulders and top of arms for the last 3 months (which did not respond to painkillers
Briefly, I had PMR from 2016 - 2019. It didn’t show up on blood test and I was started on 15mg of pred. Within 48 hours I was pain free and quickly reduced to 10mg then dead slow method. After having very painful shoulders and top of arms for the last 3 months (which did not respond to painkillers
Urtica
in
PMRGCAuk
1 year ago
Forsteo ending, Zoledronic acid is next.
Dear friends, Once again I’m going to ask some questions on behalf of my dear wife. If you can share your experiences or give advice, we would be most grateful. Our first question is, if you have completed a course of Teriparatide injections, how long did you wait before your next course of treatment
Dear friends, Once again I’m going to ask some questions on behalf of my dear wife. If you can share your experiences or give advice, we would be most grateful. Our first question is, if you have completed a course of Teriparatide injections, how long did you wait before your next course of treatment
Angelicspirit
in
Bone Health and Osteoporosis UK
1 year ago
urinary trac infection
Is there anyone else who got a uti after zoledronic acid infusion or similar.
Is there anyone else who got a uti after zoledronic acid infusion or similar.
Radars
in
Bone Health and Osteoporosis UK
1 year ago
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What should I be doing about tapering prednisolone?
Hello again, good people. I posted a few weeks ago when newly diagnosed and have learned a lot from your advice but I think I need a bit more. I said then my GP wanted me to begin a taper from 15mg prednisolone after a month to 10mg. At 4 weeks on pred (last Thursday) I had bloods taken - ESR 8, CRP
Hello again, good people. I posted a few weeks ago when newly diagnosed and have learned a lot from your advice but I think I need a bit more. I said then my GP wanted me to begin a taper from 15mg prednisolone after a month to 10mg. At 4 weeks on pred (last Thursday) I had bloods taken - ESR 8, CRP
MarionA
in
PMRGCAuk
1 year ago
Effects of Omega 3 (let me remind you that walnuts have more omega 3 than fish) on cancer. Still preclinical.
Effect of omega-3 fatty acid diet on prostate cancer progression and cholesterol efflux in tumor-associated macrophages—dependence on GPR120. Preclinical. https://www.nature.com/articles/s41391-023-00745-4
Effect of omega-3 fatty acid diet on prostate cancer progression and cholesterol efflux in tumor-associated macrophages—dependence on GPR120. Preclinical. https://www.nature.com/articles/s41391-023-00745-4
Maxone73
in
Advanced Prostate Cancer
8 months ago
One year on Alendronate Sodium
I was hoping to get off of this medication after 1 year. I didn’t start it until a year after my 2021 Dexa scan. 2121 spine -3.2 ,fem neck -3.0, total hip -2.2 2022 Started Alendronate sodium 70 mgs weekly 2023 spine -2.9, fem neck -3.1, total hip -2.4 I wasn’t expecting a drastic change, but
I was hoping to get off of this medication after 1 year. I didn’t start it until a year after my 2021 Dexa scan. 2121 spine -3.2 ,fem neck -3.0, total hip -2.2 2022 Started Alendronate sodium 70 mgs weekly 2023 spine -2.9, fem neck -3.1, total hip -2.4 I wasn’t expecting a drastic change, but
Alisa25
in
Osteoporosis Support
1 year ago
over 40 conception
I’m 41 going through my first cycle. I wanted to try and improve my chances of success due to my age. So have been taking coenzyme q10, regularly, as well as low dose melatonin, and omega 3 oils, folic acid and multivitamins. Also undergoing acupuncture and light therapy to improve egg quality. I’ve
I’m 41 going through my first cycle. I wanted to try and improve my chances of success due to my age. So have been taking coenzyme q10, regularly, as well as low dose melatonin, and omega 3 oils, folic acid and multivitamins. Also undergoing acupuncture and light therapy to improve egg quality. I’ve
Coffeeone
in
Fertility Network UK
8 months ago
Alendronic acid
Since my flair up I've now been on 15mg pred ( up from 7mg)for 3 weeks. Well, iv'e not felt this good in years. I can actually walk properly, walk with a stride and at a decent pace without feeling that my legs are bound by a resistance band. My energy levels are almost normal as some 4 years ago.
Since my flair up I've now been on 15mg pred ( up from 7mg)for 3 weeks. Well, iv'e not felt this good in years. I can actually walk properly, walk with a stride and at a decent pace without feeling that my legs are bound by a resistance band. My energy levels are almost normal as some 4 years ago.
Bobbury
in
PMRGCAuk
1 year ago
pain management tips for someone who can’t take anti inflammatory medication
hi I’m in need of some help and this is the only place I could think of I was diagnosed with Endometriosis a few years ago - after about 20 years of trying to get a doctor to listen to me. I was only listened to as I was getting pretty bad cramps in my bottom- I have a underlying condition where I
hi I’m in need of some help and this is the only place I could think of I was diagnosed with Endometriosis a few years ago - after about 20 years of trying to get a doctor to listen to me. I was only listened to as I was getting pretty bad cramps in my bottom- I have a underlying condition where I
RJane83
in
Endometriosis UK
1 year ago
weight loss and zoledronic acid
hi,I have been reading reports that zoledronic acid can cause weight loss, that's ok for people who want to lose weight, but not so good on us people who want to gain weight, I go for my infusion today.
hi,I have been reading reports that zoledronic acid can cause weight loss, that's ok for people who want to lose weight, but not so good on us people who want to gain weight, I go for my infusion today.
Radars
in
Bone Health and Osteoporosis UK
1 year ago
Discovery of a signaling feedback circuit that defines interferon responses in myeloproliferative neoplasms- Published: 01 April 2022
This gets a little deep, but nonetheless may explain some things:
Abstract
Interferons (IFNs) are key initiators and effectors of the immune response against malignant cells and also directly inhibit tumor growth. IFNα is highly effective in the treatment of myeloproliferative neoplasms (MPNs
This gets a little deep, but nonetheless may explain some things:
Abstract
Interferons (IFNs) are key initiators and effectors of the immune response against malignant cells and also directly inhibit tumor growth. IFNα is highly effective in the treatment of myeloproliferative neoplasms (MPNs
PhysAssist
in
MPN Voice
1 year ago
Retested: low D & B12, high ferritin
I have retested with medicheck because I'm in the queue to see a private endocrinologist about my symptoms. I was hoping that treating my vitamins and minerals may give a different thyroid hormone picture. Iron 239ug/L (range 30-150) I am under haematology, treated for iron deficiency anaemia. Tested
I have retested with medicheck because I'm in the queue to see a private endocrinologist about my symptoms. I was hoping that treating my vitamins and minerals may give a different thyroid hormone picture. Iron 239ug/L (range 30-150) I am under haematology, treated for iron deficiency anaemia. Tested
Insomania
in
Thyroid UK
1 year ago
PBC and another auto immune
My doctor gave me Ursodiol 500 mg and propranolol 10 mg. If I take 500 mg it will give me watery diarrhea. When I take 250 mg it is ok for several doses. It will get to the point of not feeling well, unablre to function very well and I get very mean which isn't my personally. So, I stop taking the
My doctor gave me Ursodiol 500 mg and propranolol 10 mg. If I take 500 mg it will give me watery diarrhea. When I take 250 mg it is ok for several doses. It will get to the point of not feeling well, unablre to function very well and I get very mean which isn't my personally. So, I stop taking the
Max1942mmm
in
PBCers Organization
1 year ago
✨supplements✨
what supplements does everyone take and what do they help you with? I currently take magnesium+calcium, omega 3 fish oil and evening primrose oil.
what supplements does everyone take and what do they help you with? I currently take magnesium+calcium, omega 3 fish oil and evening primrose oil.
RatArt
in
Fibromyalgia Action UK
8 months ago
Advice about plan of treatment
I am 67, was diagnosed with PMR 2 weeks ago after 4 weeks of symptoms (stiffness and pain in neck, arms, shoulders, couldn't raise arms above shoulders, immense tiredness etc). Initial GP contact was excellent - he identified the problem, blood tests same day, consult 2 days later to confirm diagnosis
I am 67, was diagnosed with PMR 2 weeks ago after 4 weeks of symptoms (stiffness and pain in neck, arms, shoulders, couldn't raise arms above shoulders, immense tiredness etc). Initial GP contact was excellent - he identified the problem, blood tests same day, consult 2 days later to confirm diagnosis
MarionA
in
PMRGCAuk
1 year ago
Random Heavy bleeding with severe pain
Hi I take Provera to manage my symptoms and things have been settled bleeding wise for a while now. this past weekend I got really heavy bleeding with pain which made me collapse and then the pain settled for a couple days and then again yesterday, I got really heavy bleeding again and such bad pain
Hi I take Provera to manage my symptoms and things have been settled bleeding wise for a while now. this past weekend I got really heavy bleeding with pain which made me collapse and then the pain settled for a couple days and then again yesterday, I got really heavy bleeding again and such bad pain
Endowarrior1807
in
Endometriosis UK
1 year ago
Barbara
I have osteoporosis and I took Fosamax for a while and then lost 6 teeth! I stopped taking it a while ago, but my back is giving me grief now. I am taking calcium and Vitamin D, but I need to find out whether there are any alternatives to alendronic acid.
I have osteoporosis and I took Fosamax for a while and then lost 6 teeth! I stopped taking it a while ago, but my back is giving me grief now. I am taking calcium and Vitamin D, but I need to find out whether there are any alternatives to alendronic acid.
babayaga
in
Bone Health and Osteoporosis UK
1 year ago
Pain Medication after Laparoscopy
Hi all, Can anyone offer advice on which medication they used after surgery for pain management? Due to my other medical issues I can’t take any NSIADS including: ibuprofen, naproxen, diclofenac, celecoxib, mefenamic acid, etoricoxib & indomethacin. I normally take just cocodamol and rest when
Hi all, Can anyone offer advice on which medication they used after surgery for pain management? Due to my other medical issues I can’t take any NSIADS including: ibuprofen, naproxen, diclofenac, celecoxib, mefenamic acid, etoricoxib & indomethacin. I normally take just cocodamol and rest when
Cats1311
in
Endometriosis UK
1 year ago
canceling zoledronic acid infusion because of ppi use.
hi,I think I will be canceling my zoledronic acid infusion because of increased fracture with my use of lansoprazole 30mgs and not absorbing calcium with ppi, has anyone safely had a infusion while taking ppis,
hi,I think I will be canceling my zoledronic acid infusion because of increased fracture with my use of lansoprazole 30mgs and not absorbing calcium with ppi, has anyone safely had a infusion while taking ppis,
Radars
in
Bone Health and Osteoporosis UK
1 year ago
GP has prescribed Alendronic Acid 70mg
Hi all My Dad’s GP has prescribed Alendronic Acid 70mg tablets without explaining why. My Dad is now on Adcal -D3 1x daily, 9mg Prednisolone daily and 1x weekly Alendronic Acid. Is it normal to be prescribed Alendronic Acid? Also, how far apart should this be taken from Pred? Thanks Lindsay
Hi all My Dad’s GP has prescribed Alendronic Acid 70mg tablets without explaining why. My Dad is now on Adcal -D3 1x daily, 9mg Prednisolone daily and 1x weekly Alendronic Acid. Is it normal to be prescribed Alendronic Acid? Also, how far apart should this be taken from Pred? Thanks Lindsay
Lindsayf
in
PMRGCAuk
1 year ago
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