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Coming off Pred
Hi everyone. First post here but I’ve been following for some time. I was diagnosed with PMR in 2018 and started on 20mg of Pred. I’ve been reducing gradually like many over last three years. I was hoping to get off completely before now but several times when moving from 5 to 4 Found my hands stiffened
Hi everyone. First post here but I’ve been following for some time. I was diagnosed with PMR in 2018 and started on 20mg of Pred. I’ve been reducing gradually like many over last three years. I was hoping to get off completely before now but several times when moving from 5 to 4 Found my hands stiffened
Bobwif
in
PMRGCAuk
2 years ago
Dental problems & alendronic acid…anybody had ONJ (necrosis of jaw) please?
History: 4 tooth infections (same tooth) in 4 years. 5 courses of antibiotics. More toothache & swelling. Off to dentists (closed for 2 years due to Covid). X-Ray & exam…tooth needs to come out, & explains why root canal wouldn’t work. Good, yes please, I said. But due to fact I’m on low dose of pred
History: 4 tooth infections (same tooth) in 4 years. 5 courses of antibiotics. More toothache & swelling. Off to dentists (closed for 2 years due to Covid). X-Ray & exam…tooth needs to come out, & explains why root canal wouldn’t work. Good, yes please, I said. But due to fact I’m on low dose of pred
Pixix
in
PMRGCAuk
2 years ago
Alendronic acid
I have been taking alendronic acid for over 5 years. When I spoke with my doctor about having a break from it, he seemed to think I could go to 7 years. Is this correct?
I have been taking alendronic acid for over 5 years. When I spoke with my doctor about having a break from it, he seemed to think I could go to 7 years. Is this correct?
Delphy
in
Bone Health and Osteoporosis UK
2 years ago
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Alpha lipoic acid
Anyone tried alpha lipoic acid for peripheral neuropathy? If so did it help? Thanks
Anyone tried alpha lipoic acid for peripheral neuropathy? If so did it help? Thanks
foxglove
in
Action on Pain
2 years ago
New Mermber w MCL strating rescue treatment w Calquence
Hi, Im new here I have MCL, started my treatment w Benedustine + Rituximab for 6 Qts, then only Rituximab every two months for 24 months, ended on Feb 2021 w excellent results, then on Nov/Dec 2021. Symtoms reappearded on Nov/Dec 2021. On Jan 2022 started new treatment w Calquence, doing ok till now
Hi, Im new here I have MCL, started my treatment w Benedustine + Rituximab for 6 Qts, then only Rituximab every two months for 24 months, ended on Feb 2021 w excellent results, then on Nov/Dec 2021. Symtoms reappearded on Nov/Dec 2021. On Jan 2022 started new treatment w Calquence, doing ok till now
xxje
in
Non Hodgkin's Lymphoma Friends
2 years ago
Does anyone have experience of a BAE (bronchial artery embolization) procedure?
I have bronchiectasis and get regular episodes of hemopytsis that have worsened this year. I'm waiting to be called in for a BAE in the next few weeks. Tranexamic acid is making little if any difference. I'm also being treated for an aspergillus infection now, which isn't much fun Does anyone know
I have bronchiectasis and get regular episodes of hemopytsis that have worsened this year. I'm waiting to be called in for a BAE in the next few weeks. Tranexamic acid is making little if any difference. I'm also being treated for an aspergillus infection now, which isn't much fun Does anyone know
24cc
in
Lung Conditions Community Forum
2 years ago
Mefenamic acid
Hi Just wondering about others experience with mefenamic acid. Had an appointment with my consultant last week who prescribed but was quite clear it was only for two weeks. Currently waiting for another appointment with a specialist. But why is it only prescribed for two weeks? Can it be taken for longer
Hi Just wondering about others experience with mefenamic acid. Had an appointment with my consultant last week who prescribed but was quite clear it was only for two weeks. Currently waiting for another appointment with a specialist. But why is it only prescribed for two weeks? Can it be taken for longer
mrsswinnydm
in
Endometriosis UK
2 years ago
Pain Relief!?
Hi all, Been a long time since I've been on here! Diagnosed in 2018 and ongoing since. Significant scaring where they attempted to remove and pain is constant Anyone have any strong pain mediation suggestions? On mefanamic acid. Tried gabapentin and pre gabalin. Also allergic to codine. Praying
Hi all, Been a long time since I've been on here! Diagnosed in 2018 and ongoing since. Significant scaring where they attempted to remove and pain is constant Anyone have any strong pain mediation suggestions? On mefanamic acid. Tried gabapentin and pre gabalin. Also allergic to codine. Praying
Hollie2018
in
Endometriosis UK
2 years ago
Life
Hello all. Life when diagnosed with ataxia is the beginning of a new life that can make everything harder to do although, harder doesn’t mean it can’t be done it just makes it harder. It makes us find different ways of doing things. I think, (having done a first aid course ounce which was that long
Hello all. Life when diagnosed with ataxia is the beginning of a new life that can make everything harder to do although, harder doesn’t mean it can’t be done it just makes it harder. It makes us find different ways of doing things. I think, (having done a first aid course ounce which was that long
paul456
in
Ataxia UK
2 years ago
P
My HMO covers DXA bone density test at age 65, so I did the test and received unexpected results. Spine t score -2.9, z score -1.2. Left hip t score -1.2, z score 0. Left femoral neck t score -1.8 z score -0.3. I’ve always walked and did low impact exercises (last 6 years Pilates mat). Always taken
My HMO covers DXA bone density test at age 65, so I did the test and received unexpected results. Spine t score -2.9, z score -1.2. Left hip t score -1.2, z score 0. Left femoral neck t score -1.8 z score -0.3. I’ve always walked and did low impact exercises (last 6 years Pilates mat). Always taken
Readerforever
in
Osteoporosis Support
2 years ago
My top sleep aid right now
Just wanted to share about what helps me most at the moment. Sleep is so important for us. The website is www.nothingmuchhappens.com (I listen in the Audible app) and it's billed as 'bedtime stories for grownups'. In fact it is more than that - it's a kind of brain training. The stories are simple
Just wanted to share about what helps me most at the moment. Sleep is so important for us. The website is www.nothingmuchhappens.com (I listen in the Audible app) and it's billed as 'bedtime stories for grownups'. In fact it is more than that - it's a kind of brain training. The stories are simple
Smokeypurple
in
Cure Parkinson's
2 years ago
Vertebral fractures and starting zoledronic acid
I was diagnosed with 2 vertebral fractures (grade 2 superior endplate fracture) in Dec 2021 after osteoporosis showed up on my DEXA scan in 2020. I am scheduled to have the first of 3 annual zoledronic acid infusion in mid-Feb. I just wondered if anyone on here has had a similar experience? My back
I was diagnosed with 2 vertebral fractures (grade 2 superior endplate fracture) in Dec 2021 after osteoporosis showed up on my DEXA scan in 2020. I am scheduled to have the first of 3 annual zoledronic acid infusion in mid-Feb. I just wondered if anyone on here has had a similar experience? My back
LM100
in
Bone Health and Osteoporosis UK
2 years ago
Introducing myself as a new member
Hi, I'm new here, just diagnosed and am interested in controlling further bone loss with way of eating. I am about 90% vegan but would like to ramp up my food sources (e.g. green leafy veggies, etc.) and strength/weight training to help with this condition. I am 71 years old, not taking any medications
Hi, I'm new here, just diagnosed and am interested in controlling further bone loss with way of eating. I am about 90% vegan but would like to ramp up my food sources (e.g. green leafy veggies, etc.) and strength/weight training to help with this condition. I am 71 years old, not taking any medications
SwimLMich
in
Osteoporosis Support
2 years ago
Alpha Lipoic Acid
Hi I've been taking the above for a number of weeks as I'd read its good for neuropathy. I have fibro and one of my most persistent and annoying symptoms is pins and needles in my feet and hands. In recent months it had spread to my head and other areas and was driving me nuts. I have a suspicion it's
Hi I've been taking the above for a number of weeks as I'd read its good for neuropathy. I have fibro and one of my most persistent and annoying symptoms is pins and needles in my feet and hands. In recent months it had spread to my head and other areas and was driving me nuts. I have a suspicion it's
Sparklingsunshine
in
Thyroid UK
2 years ago
Tinnitus silver bullet
Dear All Is there any such thing as an effective non addictive sleep aid which can be taken on a regular basis and which doesn't increase tinnitus noise ?? or a sedating antidepressant to assist sleep which doesn't increase tinnitus noise ?? I am still searching ? I need either of the above
Dear All Is there any such thing as an effective non addictive sleep aid which can be taken on a regular basis and which doesn't increase tinnitus noise ?? or a sedating antidepressant to assist sleep which doesn't increase tinnitus noise ?? I am still searching ? I need either of the above
DR650SE
in
British Tinnitus Association
2 years ago
looking for pcos support! (new here)
Hey, everyone! I'm new here and I was advised to try and find folks with a similar experience to mine. I got diagnosed with PCOS after having exactly zero (0) periods until I was 21, and then only like... two after that? My GP highly recommended I seek treatment when I was 19 (which I delayed for several
Hey, everyone! I'm new here and I was advised to try and find folks with a similar experience to mine. I got diagnosed with PCOS after having exactly zero (0) periods until I was 21, and then only like... two after that? My GP highly recommended I seek treatment when I was 19 (which I delayed for several
sglodion-tatws
in
PCOS UK (Verity)
2 years ago
Alendronic Acid and Evacal D3
Hi is anyone on these two medications and getting Stomach aches/headaches and feeling nauseous? I have been placed on these 6 weeks ago and I'm not feeling great! Even thought at one stage that I had Covid symptoms. (Didn't/Don't as get tested daily for work!) Have got in touch with my Rheumy dept and
Hi is anyone on these two medications and getting Stomach aches/headaches and feeling nauseous? I have been placed on these 6 weeks ago and I'm not feeling great! Even thought at one stage that I had Covid symptoms. (Didn't/Don't as get tested daily for work!) Have got in touch with my Rheumy dept and
scorpiojack
in
NRAS
2 years ago
Living with PBC for 16 years.
Still going strong after 16 years. First abnormal blood test in Australia in 2006 although not diagnosed until I returned to the U.K. in 2010. I have been on Ursodeoxycholic Acid since then. I get tired but try to go to bed early and as now retired have the benefit of being able to get up when I like
Still going strong after 16 years. First abnormal blood test in Australia in 2006 although not diagnosed until I returned to the U.K. in 2010. I have been on Ursodeoxycholic Acid since then. I get tired but try to go to bed early and as now retired have the benefit of being able to get up when I like
Gioielli5
in
PBC Foundation
2 years ago
Bleeding
Have been bleeding for 2 weeks doctor gave me mefenamic acid but not working what can I do
Have been bleeding for 2 weeks doctor gave me mefenamic acid but not working what can I do
Shazzer70
in
BASHH
2 years ago
Ursodeoxycholic acid
Does anyone have experience of ursodeoxycholic acid for treating itchiness due to cirrhosis
Does anyone have experience of ursodeoxycholic acid for treating itchiness due to cirrhosis
wilmawemyss
in
British Liver Trust
2 years ago
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