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Autologous stem cell transplant
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new onset neuropathy
hi Hi since a liver transplant 3.5 months ago I have been getting burning feet esp at night. It has gradually worsened and now I get it during the day with pain and swelling and my hands have kicked off now. It is so bad at times I just can’t walk with the discomfort and pain. I’ve heard it’s due
hi Hi since a liver transplant 3.5 months ago I have been getting burning feet esp at night. It has gradually worsened and now I get it during the day with pain and swelling and my hands have kicked off now. It is so bad at times I just can’t walk with the discomfort and pain. I’ve heard it’s due
Zechariah123
in
British Liver Trust
11 months ago
Second kidney transplant
Hi, My nephrologist is putting in the application for me to go back onto the transplant list. I am very lucky as I have had my first transplant for over 28 years. My GFR is running at 12. Something I wondered about is do they remove my previous transplant and put the new one in the same place? I
Hi, My nephrologist is putting in the application for me to go back onto the transplant list. I am very lucky as I have had my first transplant for over 28 years. My GFR is running at 12. Something I wondered about is do they remove my previous transplant and put the new one in the same place? I
DoylerOz
in
Kidney Transplant
11 months ago
Severn Bridge 10k - long post warning ⚠️
Everyone else has written brilliant posts on the Race Support Forum but here is version 4 and I’ve put it on the Bridge Forum to give those on the journey to 10k an inkling of the excitement of a 10k race! I have been wanting to do the Severn Bridge 10k for years, having read many race reports by
Everyone else has written brilliant posts on the Race Support Forum but here is version 4 and I’ve put it on the Bridge Forum to give those on the journey to 10k an inkling of the excitement of a 10k race! I have been wanting to do the Severn Bridge 10k for years, having read many race reports by
Dexy5
Graduate10
in
Bridge to 10K
11 months ago
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Stage 5 Chronic Kidney Disease (CKD)
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
JackieJ_NKF
Partner
in
Kidney Dialysis
11 months ago
Transplant.vs dialysis
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Jade1982
in
Kidney Transplant Patient Support
11 months ago
latest news on liver transplants fo4 young people
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
Harriet-sarah
in
British Liver Trust
11 months ago
CYSTOSCOPY NEGATIVE August 2023
Hey Ladies and Gents. The urologist/oncologist says we can stop the monthly chemo infusions since my urinary bladder looks free of any neoplasm. And next April (2024), if it holds, I’ll be cancer free for three years and can get back on the lung transplant list. “Let your last thinks all be thanks
Hey Ladies and Gents. The urologist/oncologist says we can stop the monthly chemo infusions since my urinary bladder looks free of any neoplasm. And next April (2024), if it holds, I’ll be cancer free for three years and can get back on the lung transplant list. “Let your last thinks all be thanks
Sharp5Flat13
in
Lung Conditions Community Forum
11 months ago
Kidney disease and inheritance.
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
nlee
in
Kidney Transplant
11 months ago
Kidney transplant and children
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
nlee
in
Kidney Transplant Patient Support
11 months ago
Lightheadedness and Knee heaviness/dull pain after kidney transplant
Hi everyone, My client developed lightheadedness after kidney transplant, he's 3 months post transplant now. Actually, he had dizziness and imbalance pre-transplant and it worsen after the transplant. Moreover, he complains of knee heaviness, sometimes with dull pain. His BP is quite stable, not taking
Hi everyone, My client developed lightheadedness after kidney transplant, he's 3 months post transplant now. Actually, he had dizziness and imbalance pre-transplant and it worsen after the transplant. Moreover, he complains of knee heaviness, sometimes with dull pain. His BP is quite stable, not taking
Jeeeemv
in
Kidney Transplant
11 months ago
3 months post kidney transplant question
My husband is 3 months post kidney transplant. He is experiencing severe gut issues. Can he take probiotics, Vitamins like fish oil, Turmeric and add more fiber into diet? Regular doctors are not offering ANY assistance. H. pylori and BK came back negative. He is nauseous, gassy and has lost over
My husband is 3 months post kidney transplant. He is experiencing severe gut issues. Can he take probiotics, Vitamins like fish oil, Turmeric and add more fiber into diet? Regular doctors are not offering ANY assistance. H. pylori and BK came back negative. He is nauseous, gassy and has lost over
Loveoflife
in
Kidney Transplant
11 months ago
Dating and kissing for young adults with kidney transplant
Please answer only if you have gone through the same situation. How do you do to avoid rejection when meeting a potential romantic partner? I wear a mask in closed public places. All women I met when they know that I have a kidney transplant start to keep distance and do not give me a chance to
Please answer only if you have gone through the same situation. How do you do to avoid rejection when meeting a potential romantic partner? I wear a mask in closed public places. All women I met when they know that I have a kidney transplant start to keep distance and do not give me a chance to
vision22
in
Kidney Transplant
11 months ago
Heart Transplant
Good morning all, just wanted to know if any has or known some who has had a heart transplant. I have had a serious heart condition for 50 years and became seriously I’ll last year. I am now on the waiting list for a transplant since Jan 23. I suppose the question I’m asking is what it was like ? as
Good morning all, just wanted to know if any has or known some who has had a heart transplant. I have had a serious heart condition for 50 years and became seriously I’ll last year. I am now on the waiting list for a transplant since Jan 23. I suppose the question I’m asking is what it was like ? as
DW4019
in
British Heart Foundation
11 months ago
Have kidney transplant and dr found a intraduct mass on my breast is really small but im so worried
I going through a difficult time here I have a kidney transplant for 22 years just when to get a ultrasound and they found an intraductal mass which is really mass . I did a biopsy and I'm terrified that it could be cancerous. I don't want to know waiting for results is torture for me. I read and did
I going through a difficult time here I have a kidney transplant for 22 years just when to get a ultrasound and they found an intraductal mass which is really mass . I did a biopsy and I'm terrified that it could be cancerous. I don't want to know waiting for results is torture for me. I read and did
jennifer24
in
Kidney Transplant
11 months ago
Bisoprolol problems
I'm sure I'm having real issues with Bisoprolol it doesn't control my af at all and causes my heart to go now go so low low I'm getting really worried it used to go down to 40bpm which was to low now it goes lower at times but now the lowest is 32bpm . I'm thinking of stopping it completely my gp
I'm sure I'm having real issues with Bisoprolol it doesn't control my af at all and causes my heart to go now go so low low I'm getting really worried it used to go down to 40bpm which was to low now it goes lower at times but now the lowest is 32bpm . I'm thinking of stopping it completely my gp
Corrie12
in
AF Association
1 year ago
Has anyone navigated Medicare while trying to get the TPIAT?
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Skye_MC
Administrator
in
Chronic Pancreatitis Support
10 months ago
SCT journey update No.4
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
LFCLove
in
MPN Voice
4 days ago
ASXL1 mutation 39% Worried about MF turning into leukemia
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
merlisa
in
Fight MPN
6 days ago
Continued Journey
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
FiArt12X
in
CLL Support
18 days ago
Continued Journey
Getting my forth chemo treatment today. This has been much easier than the O CHOP. It has been smooth sailing especially with the surgically implanted port.( I forgot to mention). I am starting to notice some fatigue and energy slow down which is quite natural. One more chemo treatment tomorrow then
Getting my forth chemo treatment today. This has been much easier than the O CHOP. It has been smooth sailing especially with the surgically implanted port.( I forgot to mention). I am starting to notice some fatigue and energy slow down which is quite natural. One more chemo treatment tomorrow then
FiArt12X
in
CLL Support
23 days ago
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