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2 non-living long term kidney transplants
My first kidney tx was in 1978-2000 then 2nd kidney tx 2001 to present!
My first kidney tx was in 1978-2000 then 2nd kidney tx 2001 to present!
Kidneytx2
in
Kidney Transplant
5 years ago
Papworth Duck Pond
The old Papworth hospital was famous for its duck pond. It is rumoured that heart transplant patients were ready to go home when they could do a lap of the pond I have not seen the new Papworth and was wondering if the landscaping included a duck pond? 🦆
The old Papworth hospital was famous for its duck pond. It is rumoured that heart transplant patients were ready to go home when they could do a lap of the pond I have not seen the new Papworth and was wondering if the landscaping included a duck pond? 🦆
MichaelJH
Heart Star
in
British Heart Foundation
5 years ago
Post transplant tacrolimus doses
Just curious - husband had liver transplant 2014 and came home on 8mg which was reduced to 5mg and has since been taking the same amount of Advagraf - so 5 years later he is still on 5mg 🤔🤔🤔 his last bloods said it was below target range (4-10 I think) 🤷‍♀️ - has anyone else experienced this ????
Just curious - husband had liver transplant 2014 and came home on 8mg which was reduced to 5mg and has since been taking the same amount of Advagraf - so 5 years later he is still on 5mg 🤔🤔🤔 his last bloods said it was below target range (4-10 I think) 🤷‍♀️ - has anyone else experienced this ????
cherrygirl13
in
British Liver Trust
5 years ago
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Bone marrow transplant number 2
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
Seifert_09
in
AMN EASIER
5 years ago
PBC Name Change
Some are asking why we “no” longer use the name Primary Biliary Cirrhosis for PBC. As most of you know, the name Primary Biliary Cirrhosis (PBC) was very deceiving and carried a stigma with its diagnosis. For years PBC wasn't diagnosed until late disease stage and the patient had developed cirrhosis
Some are asking why we “no” longer use the name Primary Biliary Cirrhosis for PBC. As most of you know, the name Primary Biliary Cirrhosis (PBC) was very deceiving and carried a stigma with its diagnosis. For years PBC wasn't diagnosed until late disease stage and the patient had developed cirrhosis
PBCLinie
Administrator
in
PBCers Organization
5 years ago
A cautionary tale
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
Nitrobunny
in
PMRGCAuk
5 years ago
Worried about after kidney transplant.
Recently I have been informed that my gfr has fell to under 20 and I should be prepared to start looking for a donor. I don’t even know where to start. Hoping this forum will help me with some tips. Next I don’t even know how to live my life now do I continue as I am, or do I focus fully on finding
Recently I have been informed that my gfr has fell to under 20 and I should be prepared to start looking for a donor. I don’t even know where to start. Hoping this forum will help me with some tips. Next I don’t even know how to live my life now do I continue as I am, or do I focus fully on finding
Staygood
in
Kidney Transplant
5 years ago
Here's my 'Get Well Hug in a Mug Wish' to those of you who are not feeling so great today or have recently undergone a Liver Transplant!
Love and hugs to everyone of you! From your Shropshire Lass ❤
Love and hugs to everyone of you! From your Shropshire Lass ❤
Hidden
in
British Liver Trust
5 years ago
The Winter issue of Leukaemia Matters will soon be landing at your door or in your inbox!
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
HAIRBEAR_UK
in
Leukaemia Support
5 years ago
Bronchiectasis & pseudomonas treatment
My daughter was diagnosed with Bronchiectasis two years ago .We believe it was a case of bad management through not being given any antibiotics when she had a bad chest infection which ended up with hospitalisation with pneumonia.The complication was that as she had a kidney transplant 17 years ago
My daughter was diagnosed with Bronchiectasis two years ago .We believe it was a case of bad management through not being given any antibiotics when she had a bad chest infection which ended up with hospitalisation with pneumonia.The complication was that as she had a kidney transplant 17 years ago
rossiedavid
in
Lung Conditions Community Forum
5 years ago
Amyloidosis
I am new to this online community. I was diagnosed with APO-CII amyloidosis which has affected my kidneys by the Mayo Clinic in 2017. It is a very rare form of a very rare disease. I'm interested to know if anyone else in this online community also has this disease. At this point, I am close to Stage
I am new to this online community. I was diagnosed with APO-CII amyloidosis which has affected my kidneys by the Mayo Clinic in 2017. It is a very rare form of a very rare disease. I'm interested to know if anyone else in this online community also has this disease. At this point, I am close to Stage
Amyloid_Leslie
in
Kidney Disease
5 years ago
Patience to Reach the Finish Line
The process for evaluation for a kidney transplant is so long and having to wait for decision from the committee who meets every Thursday about potential kidney transplant patients is very hard. The one thing putting mine off is that they’re not sure to give me a transplant since my issues with my heart
The process for evaluation for a kidney transplant is so long and having to wait for decision from the committee who meets every Thursday about potential kidney transplant patients is very hard. The one thing putting mine off is that they’re not sure to give me a transplant since my issues with my heart
gilgar76
in
Kidney Transplant
5 years ago
Lung transplant Update
Hello All, After having a rocky time being removed from the list as transplant would be too risky to being placed back on the list for 8 weeks review to make a judge that the window has closed or not, my mother got a call 29th October at around 9.30pm that someone would be picking her up at 11.30pm for
Hello All, After having a rocky time being removed from the list as transplant would be too risky to being placed back on the list for 8 weeks review to make a judge that the window has closed or not, my mother got a call 29th October at around 9.30pm that someone would be picking her up at 11.30pm for
Queenbean
in
Lung Conditions Community Forum
5 years ago
ANY SUGGESTIONS FOR GETTING READY FOR IMPENDING TRANSPLANT
I believe I reported the other day that I have signed up for the hep C transplant study at my transplant hospital. I have been told by the study chief transplant physician that it could be three days or it could be 70 days before I am called for a transplant. I have not been as focused on learning more
I believe I reported the other day that I have signed up for the hep C transplant study at my transplant hospital. I have been told by the study chief transplant physician that it could be three days or it could be 70 days before I am called for a transplant. I have not been as focused on learning more
TaffyTwoshoes27
in
Kidney Dialysis
5 years ago
Scared
Hi, I am scheduled for my abulation Nov 4th. Not scared of the procedure but scared that I might not be here for them to do it. I have all the symptoms of 4th stage heart failure. Newest one is that I have no appetite. With the success rate I have been given I'm afraid. Just lost my sister due to waiting
Hi, I am scheduled for my abulation Nov 4th. Not scared of the procedure but scared that I might not be here for them to do it. I have all the symptoms of 4th stage heart failure. Newest one is that I have no appetite. With the success rate I have been given I'm afraid. Just lost my sister due to waiting
Myheart101
in
AF Association
5 years ago
Waiting times for liver transplant.
Hi there, my husband has been on the Liver transplant waiting list for 9 months with a ukeld score that is currently 50, how long has it been for others before they got the call? He is an o blood type, live donor only. Thanks Sophie
Hi there, my husband has been on the Liver transplant waiting list for 9 months with a ukeld score that is currently 50, how long has it been for others before they got the call? He is an o blood type, live donor only. Thanks Sophie
Sophieatkinson
in
British Liver Trust
5 years ago
Can I get a tatoo??
Hey. So its been 9 years now of my kidney transplant. I am 17 years old now. Is it okay to get a tatoo like it won't harm my kidney or anything right?
Hey. So its been 9 years now of my kidney transplant. I am 17 years old now. Is it okay to get a tatoo like it won't harm my kidney or anything right?
Nistha_
in
Kidney Disease
5 years ago
Water infection
Hi I'm suffering with water infections quite often I've got pbc but am post liver transplant any one else suffer since diagnosis
Hi I'm suffering with water infections quite often I've got pbc but am post liver transplant any one else suffer since diagnosis
Slm66
in
PBC Foundation
5 years ago
Biliary atresia- Emergency liver transplant in need
Emergency call: Anais Dissi is about 10 months, waiting for a liver transplant at the Kremlin-Bicètre hospital, Paris, she is in absolute emergency. She is actually in a pediatric resuscitation department, tel: 00 33 1 45 21 32 16. Her blood type is A+. The liver transplantation is her final option.
Emergency call: Anais Dissi is about 10 months, waiting for a liver transplant at the Kremlin-Bicètre hospital, Paris, she is in absolute emergency. She is actually in a pediatric resuscitation department, tel: 00 33 1 45 21 32 16. Her blood type is A+. The liver transplantation is her final option.
AnaisMyriam
in
LIVErNORTH
5 years ago
Biliary atresia- liver donor emergency
Emergency call: Anais Dissi is about 10 months, waiting for a liver transplant at the Kremlin-Bicètre hospital, Paris, she is in absolute emergency. She is actually in a pediatric resuscitation department, tel: 00 33 1 45 21 32 16. Her blood type is A+. The liver transplantation is her final option.
Emergency call: Anais Dissi is about 10 months, waiting for a liver transplant at the Kremlin-Bicètre hospital, Paris, she is in absolute emergency. She is actually in a pediatric resuscitation department, tel: 00 33 1 45 21 32 16. Her blood type is A+. The liver transplantation is her final option.
AnaisMyriam
in
British Liver Trust
5 years ago
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