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Lung transplant
After 3 day lung transplant accesment
After 3 day lung transplant accesment
skylas
in
Lung Conditions Community Forum
5 years ago
Pulmonary arterial hypertension targeted for new treatment by Sheffield scientists.
Scientists at the University of Sheffield, working in collaboration with drug and vaccine developer Kymab Ltd, Cambridge, have identified a novel antibody that has the potential to become a new treatment for pulmonary arterial hypertension (PAH). Research published today in Nature Communications (Friday
Scientists at the University of Sheffield, working in collaboration with drug and vaccine developer Kymab Ltd, Cambridge, have identified a novel antibody that has the potential to become a new treatment for pulmonary arterial hypertension (PAH). Research published today in Nature Communications (Friday
2greys
in
Lung Conditions Community Forum
5 years ago
Has anyone been a live Liver Donor for their son or daughter with liver disease?
My son has PFIC Type 2 and we tried every type of medication available to him however none have been successful so on his 3rd birthday he has been put on the liver transplant waiting list and i am considering being assessed to be a donor for him. Any experience similar to this and comments would be greatly
My son has PFIC Type 2 and we tried every type of medication available to him however none have been successful so on his 3rd birthday he has been put on the liver transplant waiting list and i am considering being assessed to be a donor for him. Any experience similar to this and comments would be greatly
Jamiemack81
in
Children's Liver Disease Foundation
5 years ago
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A randomised single-centre trial of inhaled liposomal cyclosporine for bronchiolitis obliterans syndrome post-lung transplantation.
Outcomes after lung transplantation are poor due to bronchiolitis obliterans. Since bronchiolitis obliterans is not readily demonstrated by lung biopsies, the term bronchiolitis obliterans syndrome (BOS) is applied, defined as a sustained forced expiratory volume in 1 s (FEV1) decline. Treatments for
Outcomes after lung transplantation are poor due to bronchiolitis obliterans. Since bronchiolitis obliterans is not readily demonstrated by lung biopsies, the term bronchiolitis obliterans syndrome (BOS) is applied, defined as a sustained forced expiratory volume in 1 s (FEV1) decline. Treatments for
2greys
in
Lung Conditions Community Forum
5 years ago
Update and Best Wishes
Have just got out of hospital after three days of methylprednisolone infusions. The idea was to bring me into hospital and give me a boost so I could go on a holiday. Just as well I went in because it coincided with a fairly bad attack, so hopefully I’ll be OK now for a month or so. Mid February
Have just got out of hospital after three days of methylprednisolone infusions. The idea was to bring me into hospital and give me a boost so I could go on a holiday. Just as well I went in because it coincided with a fairly bad attack, so hopefully I’ll be OK now for a month or so. Mid February
lesleyg
in
Behçet's UK
5 years ago
Dietary Restrictions to Prolong the Life of a Kidney Transplant
It has been found that if patients substitute soya or some vegetable source for the animal proteins they normally eat and severely restrict the amount of salt they normally consume they can significantly slow the decline of renal transplants. From personal experience I can say that such a diet really
It has been found that if patients substitute soya or some vegetable source for the animal proteins they normally eat and severely restrict the amount of salt they normally consume they can significantly slow the decline of renal transplants. From personal experience I can say that such a diet really
Falkenhayn
in
Kidney Transplant Patient Support
5 years ago
Post Transplant Tips
Hello! I am excited to be here and learn from everyone. I just received a kidney transplant two weeks ago (Can't believe its already been two weeks!) and was wondering if anyone had any post transplant tips. Best, Ani
Hello! I am excited to be here and learn from everyone. I just received a kidney transplant two weeks ago (Can't believe its already been two weeks!) and was wondering if anyone had any post transplant tips. Best, Ani
anster147
in
Kidney Transplant
5 years ago
Plasmapheresis not helping
Hello all just following up on here as I'm in tears not only due this being the day my sister transitioned in 2104 just 3 months after my mommy but I'm miserable from this itching and I mean terrible itching especially at night my feet, legs, hands, eyes and even head! I can't believe that none if the
Hello all just following up on here as I'm in tears not only due this being the day my sister transitioned in 2104 just 3 months after my mommy but I'm miserable from this itching and I mean terrible itching especially at night my feet, legs, hands, eyes and even head! I can't believe that none if the
genj65
in
PBC Foundation
5 years ago
2 non-living long term kidney transplants
My first kidney tx was in 1978-2000 then 2nd kidney tx 2001 to present!
My first kidney tx was in 1978-2000 then 2nd kidney tx 2001 to present!
Kidneytx2
in
Kidney Transplant
5 years ago
Papworth Duck Pond
The old Papworth hospital was famous for its duck pond. It is rumoured that heart transplant patients were ready to go home when they could do a lap of the pond I have not seen the new Papworth and was wondering if the landscaping included a duck pond? 🦆
The old Papworth hospital was famous for its duck pond. It is rumoured that heart transplant patients were ready to go home when they could do a lap of the pond I have not seen the new Papworth and was wondering if the landscaping included a duck pond? 🦆
MichaelJH
Heart Star
in
British Heart Foundation
5 years ago
Post transplant tacrolimus doses
Just curious - husband had liver transplant 2014 and came home on 8mg which was reduced to 5mg and has since been taking the same amount of Advagraf - so 5 years later he is still on 5mg 🤔🤔🤔 his last bloods said it was below target range (4-10 I think) 🤷♀️ - has anyone else experienced this ????
Just curious - husband had liver transplant 2014 and came home on 8mg which was reduced to 5mg and has since been taking the same amount of Advagraf - so 5 years later he is still on 5mg 🤔🤔🤔 his last bloods said it was below target range (4-10 I think) 🤷♀️ - has anyone else experienced this ????
cherrygirl13
in
British Liver Trust
5 years ago
Bone marrow transplant number 2
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
Seifert_09
in
AMN EASIER
5 years ago
PBC Name Change
Some are asking why we “no” longer use the name Primary Biliary Cirrhosis for PBC. As most of you know, the name Primary Biliary Cirrhosis (PBC) was very deceiving and carried a stigma with its diagnosis. For years PBC wasn't diagnosed until late disease stage and the patient had developed cirrhosis
Some are asking why we “no” longer use the name Primary Biliary Cirrhosis for PBC. As most of you know, the name Primary Biliary Cirrhosis (PBC) was very deceiving and carried a stigma with its diagnosis. For years PBC wasn't diagnosed until late disease stage and the patient had developed cirrhosis
PBCLinie
Administrator
in
PBCers Organization
5 years ago
A cautionary tale
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
Nitrobunny
in
PMRGCAuk
5 years ago
Worried about after kidney transplant.
Recently I have been informed that my gfr has fell to under 20 and I should be prepared to start looking for a donor. I don’t even know where to start. Hoping this forum will help me with some tips. Next I don’t even know how to live my life now do I continue as I am, or do I focus fully on finding
Recently I have been informed that my gfr has fell to under 20 and I should be prepared to start looking for a donor. I don’t even know where to start. Hoping this forum will help me with some tips. Next I don’t even know how to live my life now do I continue as I am, or do I focus fully on finding
Staygood
in
Kidney Transplant
5 years ago
Here's my 'Get Well Hug in a Mug Wish' to those of you who are not feeling so great today or have recently undergone a Liver Transplant!
Love and hugs to everyone of you! From your Shropshire Lass ❤
Love and hugs to everyone of you! From your Shropshire Lass ❤
Hidden
in
British Liver Trust
5 years ago
The Winter issue of Leukaemia Matters will soon be landing at your door or in your inbox!
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
HAIRBEAR_UK
in
Leukaemia Support
5 years ago
Bronchiectasis & pseudomonas treatment
My daughter was diagnosed with Bronchiectasis two years ago .We believe it was a case of bad management through not being given any antibiotics when she had a bad chest infection which ended up with hospitalisation with pneumonia.The complication was that as she had a kidney transplant 17 years ago
My daughter was diagnosed with Bronchiectasis two years ago .We believe it was a case of bad management through not being given any antibiotics when she had a bad chest infection which ended up with hospitalisation with pneumonia.The complication was that as she had a kidney transplant 17 years ago
rossiedavid
in
Lung Conditions Community Forum
5 years ago
Amyloidosis
I am new to this online community. I was diagnosed with APO-CII amyloidosis which has affected my kidneys by the Mayo Clinic in 2017. It is a very rare form of a very rare disease. I'm interested to know if anyone else in this online community also has this disease. At this point, I am close to Stage
I am new to this online community. I was diagnosed with APO-CII amyloidosis which has affected my kidneys by the Mayo Clinic in 2017. It is a very rare form of a very rare disease. I'm interested to know if anyone else in this online community also has this disease. At this point, I am close to Stage
Amyloid_Leslie
in
Kidney Disease
5 years ago
Patience to Reach the Finish Line
The process for evaluation for a kidney transplant is so long and having to wait for decision from the committee who meets every Thursday about potential kidney transplant patients is very hard. The one thing putting mine off is that they’re not sure to give me a transplant since my issues with my heart
The process for evaluation for a kidney transplant is so long and having to wait for decision from the committee who meets every Thursday about potential kidney transplant patients is very hard. The one thing putting mine off is that they’re not sure to give me a transplant since my issues with my heart
gilgar76
in
Kidney Transplant
5 years ago
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