Search
Search
About
Log in
Join
Experiences with
Autologous stem cell transplant
Posts
Communities
3,362 public posts
Filter results
help with drinking 2 to 3 litres of water a day.
post allogeneic stem cell transplant I have been told I need to drink at least 2litres of water a day. With the medication I'm on I cannot drink plain water and have to flavour it and have with plenty of ice. Butstill find it difficult. Any advice on managing to get my full amount of water would be
post allogeneic stem cell transplant I have been told I need to drink at least 2litres of water a day. With the medication I'm on I cannot drink plain water and have to flavour it and have with plenty of ice. Butstill find it difficult. Any advice on managing to get my full amount of water would be
Kraskie1915
in
CLL Support
2 years ago
Stopping Prednisone
I had my kidney transplant 2-1/2 years ago and my lab tests are consistently good. I'm taking everolimus, mycophenolic acid and prednisone. The prednisone is causing weight gain, diabetes and, possibly, hair loss. I tapered down to 5 mg of prednisone over two years ago. I'm now wondering whether I can
I had my kidney transplant 2-1/2 years ago and my lab tests are consistently good. I'm taking everolimus, mycophenolic acid and prednisone. The prednisone is causing weight gain, diabetes and, possibly, hair loss. I tapered down to 5 mg of prednisone over two years ago. I'm now wondering whether I can
peregrin
in
Kidney Transplant
2 years ago
ET progression to MF - anxiety issues
My ET is now progressing to Post ET Myelofibrisis. My hemo has recommended I start on Ruxolitinib & also to be considered for a stem cell transplant. I know some of you have been in the same situation. Am I correct in thinking MF is life limiting? Also how have any of you coped on Rux? I feel very
My ET is now progressing to Post ET Myelofibrisis. My hemo has recommended I start on Ruxolitinib & also to be considered for a stem cell transplant. I know some of you have been in the same situation. Am I correct in thinking MF is life limiting? Also how have any of you coped on Rux? I feel very
SRH55
in
MPN Voice
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Looking for other mommas!
My son received a kidney transplant in February. Since then he has had such terrible awful behavior, and I am more than burned out. Any other mommas out there with any experience/advice!?
My son received a kidney transplant in February. Since then he has had such terrible awful behavior, and I am more than burned out. Any other mommas out there with any experience/advice!?
Kdown212
in
Kidney Transplant
2 years ago
Prednisolone, can it be down to 3/4 of 5mg?
Hi! So I'm kidney transplant patient on my 11th year. I have some hormonal issues and my doctor said I should reduce my Prednisolone from 1 tab morning of 5mg to 3/4 of tab. I'm hesitating. What's your experience? (Normal scheme for me: 1 tab Prednisolone at morning, 1mg Prograf morning and evening,
Hi! So I'm kidney transplant patient on my 11th year. I have some hormonal issues and my doctor said I should reduce my Prednisolone from 1 tab morning of 5mg to 3/4 of tab. I'm hesitating. What's your experience? (Normal scheme for me: 1 tab Prednisolone at morning, 1mg Prograf morning and evening,
Lily2019
in
Kidney Transplant
2 years ago
problem
Hi I was wondering if anyone has had a liver transplant and have problems with there heart .
Hi I was wondering if anyone has had a liver transplant and have problems with there heart .
Petrina_gmfc
in
British Liver Trust
2 years ago
Update and meeting the team.
I’ve had lost of tests done over the past few months. I met up the the transplant team. I’m looking at 5-10 years for a bone marrow transplant, they said it could be earlier, as I’m still working and I’m well enough they don’t want to do it to early. I will need to take year off work, (when the time
I’ve had lost of tests done over the past few months. I met up the the transplant team. I’m looking at 5-10 years for a bone marrow transplant, they said it could be earlier, as I’m still working and I’m well enough they don’t want to do it to early. I will need to take year off work, (when the time
wendycu
in
MPN Voice
2 years ago
Transplant Waitlist Survey
If you have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information would affect potential recipients' decision to either accept
If you have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information would affect potential recipients' decision to either accept
KelliC_NKF
in
Kidney Transplant
2 years ago
Transplant Waitlist Survey
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
KelliC_NKF
in
Kidney Dialysis
2 years ago
Transplant Waitlist Survey
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what
KelliC_NKF
in
Kidney Disease
2 years ago
Feet pain post kidney transplant
I am 2 months post transplant and I’m feeling good. I love to cook so I had my donor over for lunch and I cooked a bunch of food for her. I was standing for a few hours. I had such bad feet pain that afternoon/evening. It felt like it was radiating into my toes. Has anyone ever experienced this?
I am 2 months post transplant and I’m feeling good. I love to cook so I had my donor over for lunch and I cooked a bunch of food for her. I was standing for a few hours. I had such bad feet pain that afternoon/evening. It felt like it was radiating into my toes. Has anyone ever experienced this?
Ski573
in
Kidney Transplant
2 years ago
Just when it's now safe to go out, a note of caution.
I first posted this up two years ago as a timely reminder. All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through
I first posted this up two years ago as a timely reminder. All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through
Richard-Allen
in
British Liver Trust
2 years ago
Liver transplant
will my partner be considered if is he is still drinking but cutting down and attending regular meetings to eventually get the detox in the community. His condition is worsening. He’s had several bouts of HE and can no longer work. Also does anyone else suffer with insomnia although his docs have give
will my partner be considered if is he is still drinking but cutting down and attending regular meetings to eventually get the detox in the community. His condition is worsening. He’s had several bouts of HE and can no longer work. Also does anyone else suffer with insomnia although his docs have give
Shell2202
in
British Liver Trust
2 years ago
Stem Cell Transplant-update
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
ConniesDad
in
MPN Voice
2 years ago
MF high risk Mutations
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
EPguy
in
MPN Voice
2 years ago
Microneedle skin treatment for kidney transplant patient
Hello... My Husband is kidney transplant patient for 2 years. He has some acnes (maybe it because of methyl) and leave scars on his face. I'm thinking to go to Dermatologist for Microneedle. Is anyone experience the same treatment?.
Hello... My Husband is kidney transplant patient for 2 years. He has some acnes (maybe it because of methyl) and leave scars on his face. I'm thinking to go to Dermatologist for Microneedle. Is anyone experience the same treatment?.
Dheadome
in
Kidney Transplant
2 years ago
Transplant Lethargy
Hi everyone! This is my first question and I'm so excited I found this forum of other kidney transplant recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy. Some days are good, some days are okay, and some other days like today, I am very
Hi everyone! This is my first question and I'm so excited I found this forum of other kidney transplant recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy. Some days are good, some days are okay, and some other days like today, I am very
ksoccer45
in
Kidney Disease
2 years ago
Lost a jewel from my Crown
Last night I got news that the kidney transplant center I was planning on using, if I was approved, has voluntarily put their program on hold pending a review of a couple of their cases by UNOS. I was shocked and it left me feeling a little unsettled. Questions like why are they being reviewed? When
Last night I got news that the kidney transplant center I was planning on using, if I was approved, has voluntarily put their program on hold pending a review of a couple of their cases by UNOS. I was shocked and it left me feeling a little unsettled. Questions like why are they being reviewed? When
HipHopQueen
in
Kidney Dialysis
2 years ago
Driving after transplant
Question for kidney transplant patients How long before you was able to drive again?
Question for kidney transplant patients How long before you was able to drive again?
transplantwarrier
in
Kidney Transplant
2 years ago
My father has Peripheral t cell lymphoma
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
NikhilSantosh
in
CLL Support
2 years ago
1
...
27
28
29
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
706 results
Lung Conditions Community Forum
458 results
Kidney Transplant
437 results
View top 10 communities
Sort by
Most Relevant
Newest