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End of Resus Trial
Hi all, The 6mth Resus Trial I was on finished in November and I was awaiting my results.. Bit gutted really. . After having 2 biopsies and 2 MRI scans the results have stayed the same. NAFLD. Fibrosis stage 3/4 verging on Cirrhosis... The trial drugs I was on ( whether placebo or the actual drug) were
Hi all, The 6mth Resus Trial I was on finished in November and I was awaiting my results.. Bit gutted really. . After having 2 biopsies and 2 MRI scans the results have stayed the same. NAFLD. Fibrosis stage 3/4 verging on Cirrhosis... The trial drugs I was on ( whether placebo or the actual drug) were
LolaBow
in
British Liver Trust
6 months ago
`psa level
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
Brianne07
in
Advanced Prostate Cancer
6 months ago
for our 'newest' members....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
15 days ago
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Disability information
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
DonnaBoll
Administrator
in
PBC Foundation
16 days ago
Experience, thus far with Lupron and Abiraterone
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
Sanctus
in
Advanced Prostate Cancer
6 months ago
Testosterone increase after injection
I recently had my 6 month dose of Camcevi 42mg and my testosterone went from 7 t0 55 rights after the injection. My PSA remained the same at 0.1 . Is this normal for my testosterone to jump 48 points. Oncologist says he is more concerned with my PSA. Also the injection of the Camcevi was in my lower
I recently had my 6 month dose of Camcevi 42mg and my testosterone went from 7 t0 55 rights after the injection. My PSA remained the same at 0.1 . Is this normal for my testosterone to jump 48 points. Oncologist says he is more concerned with my PSA. Also the injection of the Camcevi was in my lower
Shadoz
in
Advanced Prostate Cancer
6 months ago
Almost there
Festive greetings to all and thank you for making time to reply. Bit of an early start this end, just back from dropping my daughter to the bakery!! Anyway, almost there with the final surge of activity trying to co-ordinate between the GP and Consultant. Just to share the correct information so that
Festive greetings to all and thank you for making time to reply. Bit of an early start this end, just back from dropping my daughter to the bakery!! Anyway, almost there with the final surge of activity trying to co-ordinate between the GP and Consultant. Just to share the correct information so that
Pumukkale
in
PMRGCAuk
6 months ago
PSA Roller Coaster ride!
Back a couple days ago, I posted a question about my PSA being undectable since July 2022. (<0.01) then this month is up to 2.22. I asked what is next etc. I had an appointment with my MO on 19 Dec 2023, they generally do lab work at the cancer center before they give me lupron. I ask them if
Back a couple days ago, I posted a question about my PSA being undectable since July 2022. (<0.01) then this month is up to 2.22. I asked what is next etc. I had an appointment with my MO on 19 Dec 2023, they generally do lab work at the cancer center before they give me lupron. I ask them if
JD-guy
in
Advanced Prostate Cancer
6 months ago
Lupus/Rheumatoid arthritis & subcutaneous nodules.
Hello. I hope you’re all doing well. 5 years ago, whilst living in the midlands, I was diagnosed with negative ana lupus and rheumatoid arthritis. I was looked after by a wonderful team and felt very grateful. Unfortunately, 3 years ago we had to relocate due to my partner’s career and the rheumatology
Hello. I hope you’re all doing well. 5 years ago, whilst living in the midlands, I was diagnosed with negative ana lupus and rheumatoid arthritis. I was looked after by a wonderful team and felt very grateful. Unfortunately, 3 years ago we had to relocate due to my partner’s career and the rheumatology
Jasmine22
in
LUPUS UK
1 year ago
The Strongest Neurotransmitter in the World is NOT Dopamine or Serotonin - Dr. Scott Sherr MD
This is very interesting. Explains interaction of glutamate, GABA, B6, magnesium anxiety, depression https://youtu.be/twNwe5WOOdI?si=dSIKRr3aPvgtuOyE
This is very interesting. Explains interaction of glutamate, GABA, B6, magnesium anxiety, depression https://youtu.be/twNwe5WOOdI?si=dSIKRr3aPvgtuOyE
LAJ12345
in
Cure Parkinson's
6 months ago
NAFLD 1 year on
What I am doing wrong. Diagnosed with NAFLD a year ago. Changed my diet, lost weight and eat healthier. Had scan last week and still have mild fatty liver. My doctor is of no help and support to me. I’m getting upset and anxious.
What I am doing wrong. Diagnosed with NAFLD a year ago. Changed my diet, lost weight and eat healthier. Had scan last week and still have mild fatty liver. My doctor is of no help and support to me. I’m getting upset and anxious.
PepsiDoodles
in
British Liver Trust
6 months ago
Change in PSA
My PSA has been <.064 for a couple years. This time it was <.05. The test is always done by the same lab. Does this mean anything?
My PSA has been <.064 for a couple years. This time it was <.05. The test is always done by the same lab. Does this mean anything?
epfj3333
in
Advanced Prostate Cancer
6 months ago
spinal haematoma
hi there lovely people , was just wondering has anyone had bleeding on the spinal cord ? I am paralysed at the moment as I had a sharp pain in my back & everything then went numb from my chest down . I am wondered if this is caused by the lupus . They are saying if the clot reduces then I may get some
hi there lovely people , was just wondering has anyone had bleeding on the spinal cord ? I am paralysed at the moment as I had a sharp pain in my back & everything then went numb from my chest down . I am wondered if this is caused by the lupus . They are saying if the clot reduces then I may get some
tremarel
in
LUPUS UK
6 months ago
Rickyfish56 "Introduction"
Reviewed my "Bio" and it said I needed to "introduce" myself? Mostly just read postings and try to gather information. But, here is my " introduction", family history of Prostate cancer, Dad diagnosed at 59, removed prostate old fashion slice and dice, never regained any sexual function, but alive today
Reviewed my "Bio" and it said I needed to "introduce" myself? Mostly just read postings and try to gather information. But, here is my " introduction", family history of Prostate cancer, Dad diagnosed at 59, removed prostate old fashion slice and dice, never regained any sexual function, but alive today
rickyfish56
in
Advanced Prostate Cancer
6 months ago
Beta blockers
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
Robert1220
in
British Liver Trust
1 month ago
Nubeqa Vs Abiraterone
Which is more effective my PSA rising after being placed on Nubeqa. Prostate cancer metastasized to the bone
Which is more effective my PSA rising after being placed on Nubeqa. Prostate cancer metastasized to the bone
willie334
in
Advanced Prostate Cancer
6 months ago
RA LAST STEP
Hello My name is Niyoz from Russia. I am writing this because a month ago my mother passed away due to the rheumatoid arthritis. Actually, she had ulcers in her mouth and stomach which caused by rheumatoid arthritis but whatever doctors did were useless. She suffered a lot and died because my mom’s
Hello My name is Niyoz from Russia. I am writing this because a month ago my mother passed away due to the rheumatoid arthritis. Actually, she had ulcers in her mouth and stomach which caused by rheumatoid arthritis but whatever doctors did were useless. She suffered a lot and died because my mom’s
niyoz
in
NRAS
1 year ago
Nailfold infection
I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this connected to my Systemic Sclerosis or just a coincident. Thanks for any thoughts on this.
I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this connected to my Systemic Sclerosis or just a coincident. Thanks for any thoughts on this.
janetfmauk
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
Brain lesion
anybody here who experienced brain lesions that might be from PCa? Current PSA is 0.025. It’s just confusing that after ADT works to remove all the symptoms including bone pain from bone mets, my dad was diagnosed with brain lesion after an MRI since he had mild stroke symptoms(slurred speech). Does
anybody here who experienced brain lesions that might be from PCa? Current PSA is 0.025. It’s just confusing that after ADT works to remove all the symptoms including bone pain from bone mets, my dad was diagnosed with brain lesion after an MRI since he had mild stroke symptoms(slurred speech). Does
dnmrk
in
Advanced Prostate Cancer
6 months ago
If I Didn't Have Faith and Family Like You!
Now, I just shared my story about my weekend in NY seeing Chris Botti; now I'm sitting in the Family Waiting Room of Jefferson Hospital for hubby to get out of surgery. He kept complaining of bad back and stomach pain. Well, large Kidney Stone causing a blockage! He needed a different procedure; not
Now, I just shared my story about my weekend in NY seeing Chris Botti; now I'm sitting in the Family Waiting Room of Jefferson Hospital for hubby to get out of surgery. He kept complaining of bad back and stomach pain. Well, large Kidney Stone causing a blockage! He needed a different procedure; not
GratefulNeeC
in
My MSAA Community
6 months ago
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