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Mrs d
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
coronavirus19
in
PBC Foundation
4 months ago
What could cause such dramatic weight gain
I have currently been on .1 mg Synthroid and 5 mcg Cytomel for three months, and while the blue lips, freezing cold and fatigue are gone, my legs are super swollen and hard, my "weight" is up 20 pounds in two months (unexplained by diet / lifestyle). Nutrients of importance are almost optimal and still
I have currently been on .1 mg Synthroid and 5 mcg Cytomel for three months, and while the blue lips, freezing cold and fatigue are gone, my legs are super swollen and hard, my "weight" is up 20 pounds in two months (unexplained by diet / lifestyle). Nutrients of importance are almost optimal and still
Joyya
in
Thyroid UK
4 months ago
Blood in urine
I noticed urine colour changes 4 years ago ( Went dark orange if I did nt drink much water or alcohol ) if I drink say 5 pints of water or alcohol a day my urine is stew yellow to clear , as soon as I only drink about 2 pints a day it goes back to dark sort of orange , then 2 days ago after not drinking
I noticed urine colour changes 4 years ago ( Went dark orange if I did nt drink much water or alcohol ) if I drink say 5 pints of water or alcohol a day my urine is stew yellow to clear , as soon as I only drink about 2 pints a day it goes back to dark sort of orange , then 2 days ago after not drinking
Pulsar25
in
British Liver Trust
4 months ago
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Need help understanding Enzalutamide
I’m a wife of a PCa fella, 75 yrs old…married 53 yrs. I do all the research, then give info to him. He decides what he (we) will do with treatments. His history…diagnosed with biopsy in 2009…1 of 12 core samples with small amount of cancer. 3+3 with a PSA of 8. He decided to watch and wait. Reality
I’m a wife of a PCa fella, 75 yrs old…married 53 yrs. I do all the research, then give info to him. He decides what he (we) will do with treatments. His history…diagnosed with biopsy in 2009…1 of 12 core samples with small amount of cancer. 3+3 with a PSA of 8. He decided to watch and wait. Reality
Hidden
in
Advanced Prostate Cancer
10 months ago
Lanzoprazole and side effects
Hello, I am over 2 years past Ivor Lewis oesophagectomy and have been taking Lanzoprazole 15mg once a day, then Gavison at night. I’ve found that my folate and ferritin are low , probably caused by ppi use and wonder if anyone has managed to come off them. I know they have lots of potential bad effects
Hello, I am over 2 years past Ivor Lewis oesophagectomy and have been taking Lanzoprazole 15mg once a day, then Gavison at night. I’ve found that my folate and ferritin are low , probably caused by ppi use and wonder if anyone has managed to come off them. I know they have lots of potential bad effects
PopandMo
in
Oesophageal & Gastric Cancer
4 months ago
Help! Can't find a pharmacy that stocks Roma T3!
I've been ringing around pharmacies in Stoke-on-Trent and no one stocks Roma Pharmaceuticals T3, nor can they order it from their wholesalers!Are there any NHS online pharmacies that stock them? If there aren't any, I'm back to ordering Mexican Cynomel. Is there anyone that has recently ordered from
I've been ringing around pharmacies in Stoke-on-Trent and no one stocks Roma Pharmaceuticals T3, nor can they order it from their wholesalers!Are there any NHS online pharmacies that stock them? If there aren't any, I'm back to ordering Mexican Cynomel. Is there anyone that has recently ordered from
Lalacat
in
Thyroid UK
4 months ago
Thank you ( re iron and ferritin / plus Mercola )
Thanks to the community here for your e mails and genuine advice plus also the heads up re Mercola ! ( It is hard these days to know what is good or bad, truth or lies ! ). And Sue as ever you are very helpful in these matters - I will follow your guidance. Many thanks and I am glad to belong to
Thanks to the community here for your e mails and genuine advice plus also the heads up re Mercola ! ( It is hard these days to know what is good or bad, truth or lies ! ). And Sue as ever you are very helpful in these matters - I will follow your guidance. Many thanks and I am glad to belong to
Summer194
in
Restless Legs Syndrome
4 months ago
results
I was advised to ring if not heard about Allele burden results in 2 weeks. just had a call a week after test . Allele burden 5. Which is good… We discussed my concern. About elevated. LDH . Seems the my chart lay out causes alarm with lots of patients as it appears to be highest result (yellow
I was advised to ring if not heard about Allele burden results in 2 weeks. just had a call a week after test . Allele burden 5. Which is good… We discussed my concern. About elevated. LDH . Seems the my chart lay out causes alarm with lots of patients as it appears to be highest result (yellow
Mostew
in
MPN Voice
4 months ago
Not at the patients demand!
I have to share this anecdote. It makes me laugh, cry and despair in equal measure. After 8 crappy years with thyroid symptoms getting worse I put myself on T3 in November. On day 5 I woke up and said the words "I feel better" before my conscious had even engaged my brain. 4/5 months later I can sit
I have to share this anecdote. It makes me laugh, cry and despair in equal measure. After 8 crappy years with thyroid symptoms getting worse I put myself on T3 in November. On day 5 I woke up and said the words "I feel better" before my conscious had even engaged my brain. 4/5 months later I can sit
CapnM
in
Thyroid UK
4 months ago
Firmagon vs. Lupron
PSA undetectable, all scans negative. On Firmagon every 28 days. The last two shots I've had bad reactions. Chills and no sleep the day of the shot and flu like symptons for a week or so. My question is this: Would it be risky to switch to a six month Lupron shot instead of monthly Firmagon shots? The
PSA undetectable, all scans negative. On Firmagon every 28 days. The last two shots I've had bad reactions. Chills and no sleep the day of the shot and flu like symptons for a week or so. My question is this: Would it be risky to switch to a six month Lupron shot instead of monthly Firmagon shots? The
epfj3333
in
Prostate Cancer Network
10 months ago
How high must the PSA levels be before cancer can be seen in a CT scan?
Following the end of my treatment (radiation, lupron, Zytiga, prednisone) with curative intent back in May, my PSA has risen from undetectable to 0.09. As discussed on another thread this is not alarming at this stage since I still have a prostate as I never had surgery to remove it. However I am
Following the end of my treatment (radiation, lupron, Zytiga, prednisone) with curative intent back in May, my PSA has risen from undetectable to 0.09. As discussed on another thread this is not alarming at this stage since I still have a prostate as I never had surgery to remove it. However I am
Mascouche
in
Advanced Prostate Cancer
10 months ago
Daughter, still really not great and cannot get through to medics
Short one as , well, I am buggered. Brain not working , so here to pick brains. As per not really getting anywhere with Gp. They have sent me a form to arrange repeat bloods, usually children are booked into walk in centre next door fairly quickly , but booking myself that isn't an option. So they
Short one as , well, I am buggered. Brain not working , so here to pick brains. As per not really getting anywhere with Gp. They have sent me a form to arrange repeat bloods, usually children are booked into walk in centre next door fairly quickly , but booking myself that isn't an option. So they
Polo22
in
Pernicious Anaemia Society
4 months ago
Intermittent fasting affecting thyroid values
For the last few months (around 4), I’ve been doing intermittent fasting, because I’ve read about the benefits of taking a break from eating. I eat for about 8 hours and fast for around 16 hours. My latest thyroid test results have shown a slight decrease in both FT4 and FT3. I’ve read somewhere that
For the last few months (around 4), I’ve been doing intermittent fasting, because I’ve read about the benefits of taking a break from eating. I eat for about 8 hours and fast for around 16 hours. My latest thyroid test results have shown a slight decrease in both FT4 and FT3. I’ve read somewhere that
Alex_p
in
Thyroid UK
4 months ago
Hillcross thyroxine
I have a note on the chemists file not to dispense Teva thyroxine. I recently got a prescription filled and I have started feeling extremely unwell with headaches, stomach upsets and feeling lightheaded. The only difference has been this change, when I have checked the box the underside of the pill
I have a note on the chemists file not to dispense Teva thyroxine. I recently got a prescription filled and I have started feeling extremely unwell with headaches, stomach upsets and feeling lightheaded. The only difference has been this change, when I have checked the box the underside of the pill
TVOReason
in
Thyroid UK
4 months ago
thyroid glandulars
Does anyone use thyroid glandulars for optimal effects instead of levothyroxin and T3?
Does anyone use thyroid glandulars for optimal effects instead of levothyroxin and T3?
Miss81
in
Thyroid UK
4 months ago
PSA 4.5, 9% free PSA, 65 yo
65 yo, in good health, active. I've had BPH and mild cessation incontinence ~2yrs. Semiannual PSA tests have been 2.2-3.8, very weak upward trend. MRI last April was neg. Latest reading was 4.5 ng/ml, free PSA 9%. First time urologist has mentioned free PSA. He recommends another MRI in April '24. Consensus
65 yo, in good health, active. I've had BPH and mild cessation incontinence ~2yrs. Semiannual PSA tests have been 2.2-3.8, very weak upward trend. MRI last April was neg. Latest reading was 4.5 ng/ml, free PSA 9%. First time urologist has mentioned free PSA. He recommends another MRI in April '24. Consensus
ElLayhiker
in
Prostate Cancer Network
10 months ago
Limbo period after BCR post RP and SRT and prior to PSA enough for PSMA PET?
Quick background: RP 2/02, Meyers' PSA suppression until 2016 when PSA jumped from 17 to 28 in a month, 6 mos. adjuvant ADT3 before, during, after SRT, undetectable PSA until 5/30/23 at .1; .14 6/6; .12 7/11; .17 9/5. I have talked to a uro friend and seen my rad-onc and the plan seems to be to wait
Quick background: RP 2/02, Meyers' PSA suppression until 2016 when PSA jumped from 17 to 28 in a month, 6 mos. adjuvant ADT3 before, during, after SRT, undetectable PSA until 5/30/23 at .1; .14 6/6; .12 7/11; .17 9/5. I have talked to a uro friend and seen my rad-onc and the plan seems to be to wait
bldn10
in
Advanced Prostate Cancer
10 months ago
Rickyfish56 "Introduction"
Reviewed my "Bio" and it said I needed to "introduce" myself? Mostly just read postings and try to gather information. But, here is my " introduction", family history of Prostate cancer, Dad diagnosed at 59, removed prostate old fashion slice and dice, never regained any sexual function, but alive today
Reviewed my "Bio" and it said I needed to "introduce" myself? Mostly just read postings and try to gather information. But, here is my " introduction", family history of Prostate cancer, Dad diagnosed at 59, removed prostate old fashion slice and dice, never regained any sexual function, but alive today
rickyfish56
in
Advanced Prostate Cancer
7 months ago
New Rheumatology Referral - hope it comes through quickly!
Hello folks, I’ve had fairly mild Reynaud’s for a long time and have more recently been diagnosed with fibromyalgia due to ongoing raised glands, pain & fatigue without infection/ inflammation. This was after seeing a rheumatologist who did a thorough examination, in-depth interview and blood/urine tests
Hello folks, I’ve had fairly mild Reynaud’s for a long time and have more recently been diagnosed with fibromyalgia due to ongoing raised glands, pain & fatigue without infection/ inflammation. This was after seeing a rheumatologist who did a thorough examination, in-depth interview and blood/urine tests
Purple_Badgers
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
T3 medication lowering FT4 - causing worsening of symptoms
When taking T3 medication (plus T4) it drops your FT4. Has anyone found that this drop in FT4 made them feel worse ie feeling more depressed and fatigue/energy even worse (or have you read about this happening to anyone)? Did you have to increase your T4 medication to get your FT4 up higher in the
When taking T3 medication (plus T4) it drops your FT4. Has anyone found that this drop in FT4 made them feel worse ie feeling more depressed and fatigue/energy even worse (or have you read about this happening to anyone)? Did you have to increase your T4 medication to get your FT4 up higher in the
PinkSkittles
in
Thyroid UK
4 months ago
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