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Treatment - radiation vs. surgery
Hello, I posted previously after I was first diagnosed and had some great feedback. I wanted to try once more after being able to spend the past couple of months researching and trying to make the best treatment decision moving forward. For anyone similarly affected, it might help to reflect on what
Hello, I posted previously after I was first diagnosed and had some great feedback. I wanted to try once more after being able to spend the past couple of months researching and trying to make the best treatment decision moving forward. For anyone similarly affected, it might help to reflect on what
TonyTx
in
Prostate Cancer Network
8 months ago
Orgovyx not working now..
Hi everyone - Looks like my Orgovyx is not keeping my PSA down. (disease details in bio) Any idea as to what to expect next?
Hi everyone - Looks like my Orgovyx is not keeping my PSA down. (disease details in bio) Any idea as to what to expect next?
tcp5071967
in
Advanced Prostate Cancer
8 months ago
Annual Scans
Hubby is having his annual scans today. Doc ordered CT and bone scan as in the past to compare "apples to apples".At what point should a pet scan be done? Which tracer? His PSA has been in the undetectable range and he is feeling fine besides the regular side effects to the meds.
Hubby is having his annual scans today. Doc ordered CT and bone scan as in the past to compare "apples to apples".At what point should a pet scan be done? Which tracer? His PSA has been in the undetectable range and he is feeling fine besides the regular side effects to the meds.
inthefight
in
Advanced Prostate Cancer
8 months ago
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Cognition Issues
My husband is going into year 7 with PC. He had prostate removed… at Mayo in 2017. All clear margins, contained etc. 6 months he had Biochemical Recurrence. Then radiation and cryptography on one node. Since then he has been intermittently on ADT until he because Castrate resistant about a year ago
My husband is going into year 7 with PC. He had prostate removed… at Mayo in 2017. All clear margins, contained etc. 6 months he had Biochemical Recurrence. Then radiation and cryptography on one node. Since then he has been intermittently on ADT until he because Castrate resistant about a year ago
JolleySprings
in
Advanced Prostate Cancer
8 months ago
First Post Biopsy Consult
I'm grateful to have found this network. I've spent many hours over reading your posts and replies, and learning from you all. Thank you. I'm 59 years old. Both my father and brother were diagnosed with PCa in their late 50s. I did a genome test for my family some years ago and learned I carry the
I'm grateful to have found this network. I've spent many hours over reading your posts and replies, and learning from you all. Thank you. I'm 59 years old. Both my father and brother were diagnosed with PCa in their late 50s. I did a genome test for my family some years ago and learned I carry the
Mpls
in
Prostate Cancer Network
8 months ago
ATM gene mutation
I just received results from genetic testing that I have a ATM gene mutation. I am currently not on any meds and my last PSMA pet scan was negation. I am scheduled for a follow up PSA test mid march based on rising PSA after 5 years undetectable. Based on the ATM finding will this change any future therapy
I just received results from genetic testing that I have a ATM gene mutation. I am currently not on any meds and my last PSMA pet scan was negation. I am scheduled for a follow up PSA test mid march based on rising PSA after 5 years undetectable. Based on the ATM finding will this change any future therapy
Rfs1975
in
Advanced Prostate Cancer
6 months ago
After some Advice
Hi all, I was hoping to get some advice. I have been on AS sonce December 2021 and am due for a PSA and MRI next month. Following this my urologist said that a follow up biopsy may be required. My Question should I also ask for a PMSA, I have read that this type of imagining picks up smaller lesions
Hi all, I was hoping to get some advice. I have been on AS sonce December 2021 and am due for a PSA and MRI next month. Following this my urologist said that a follow up biopsy may be required. My Question should I also ask for a PMSA, I have read that this type of imagining picks up smaller lesions
JVARA
in
Prostate Cancer Network
8 months ago
abiraterone first line use in high risk in U.K. debate after stampede research results
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
SimMartin
in
Advanced Prostate Cancer
8 months ago
Good News Update on my Joe
This Friday Joe will get his 4th dose of Pluvicto. His PSA dropped from 7.69 last month to 4.88 this month. He experiences fatigue, which is remedied by dexamethasone on the days he has something he wants to do. Otherwise, he sleeps. No other side effects worth mentioning at this time. I asked for
This Friday Joe will get his 4th dose of Pluvicto. His PSA dropped from 7.69 last month to 4.88 this month. He experiences fatigue, which is remedied by dexamethasone on the days he has something he wants to do. Otherwise, he sleeps. No other side effects worth mentioning at this time. I asked for
Cateydid
in
Advanced Prostate Cancer
8 months ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Undetectable!!
Well, that pesky lymph node is now no longer PSMA detectable. After 1 year of Lupron, and Zytiga. So, now Im looking at 2 more years of Lupron (FML), and 1 more year of Zytiga. MO and RO both said to follow STAMPEDE trial. I want to follow SSPORT trial!! Odd thing, my Testosterone yesterday was 4
Well, that pesky lymph node is now no longer PSMA detectable. After 1 year of Lupron, and Zytiga. So, now Im looking at 2 more years of Lupron (FML), and 1 more year of Zytiga. MO and RO both said to follow STAMPEDE trial. I want to follow SSPORT trial!! Odd thing, my Testosterone yesterday was 4
Hidden
in
Advanced Prostate Cancer
8 months ago
Need advice.
Need advice. I had prostectomy in February of 2020, then radiation therapy a year later as PSA rose. Now PSA is 1.23 and the oncologist now is recommending beginning Lupron injections. Would welcome any thoughts or suggestions. Thanks.
Need advice. I had prostectomy in February of 2020, then radiation therapy a year later as PSA rose. Now PSA is 1.23 and the oncologist now is recommending beginning Lupron injections. Would welcome any thoughts or suggestions. Thanks.
jdfamily
in
Prostate Cancer Network
8 months ago
How long to Castrate Resistance: ADT+/- ARSI
Further discussion on details of EMBARK study on another HU forum bears restating here (IMO). For high risk BCR (and beyond) ADT combined with ARSI (in this case enzalutamide) is clearly superior to either monotherapy. However, development of castrate resistance between ADT + Enza vs. Enz monotherapy
Further discussion on details of EMBARK study on another HU forum bears restating here (IMO). For high risk BCR (and beyond) ADT combined with ARSI (in this case enzalutamide) is clearly superior to either monotherapy. However, development of castrate resistance between ADT + Enza vs. Enz monotherapy
MateoBeach
in
Advanced Prostate Cancer
9 months ago
ADT Holiday Coming To An End
After nearly 2 years of undetectable while on ADT holiday my 10/2 PSA result was 0.1. Today, 10/23 my PSA was .19. Seems like a rapid doubling time. Sent result to my MO. Waiting for a response.
After nearly 2 years of undetectable while on ADT holiday my 10/2 PSA result was 0.1. Today, 10/23 my PSA was .19. Seems like a rapid doubling time. Sent result to my MO. Waiting for a response.
6357axbz
in
Advanced Prostate Cancer
9 months ago
Any difference between 6 month lupron or 6 month elegard injection?
Hi, I’m currently on 3 month lupron injection and doing well with PSA of >0.01 and asked my doctor if there is a 6 month injection. I’ve asked twice and twice he sent a prescription for Elegard instead of Lupron. Should I stay on Lupron? Is there any difference between the two?
Hi, I’m currently on 3 month lupron injection and doing well with PSA of >0.01 and asked my doctor if there is a 6 month injection. I’ve asked twice and twice he sent a prescription for Elegard instead of Lupron. Should I stay on Lupron? Is there any difference between the two?
Lslal
in
Advanced Prostate Cancer
9 months ago
4.7 PSA
Had my levels tested a year ago which was 3.2 and just last week they were tested again which shows 4.7. Considering my age my consultant thinks it's just inflammation but has ordered a MRI to have it checked. Is 4.7 any reason to be concerned?
Had my levels tested a year ago which was 3.2 and just last week they were tested again which shows 4.7. Considering my age my consultant thinks it's just inflammation but has ordered a MRI to have it checked. Is 4.7 any reason to be concerned?
Dan9267
in
Prostate Cancer Network
9 months ago
had 4 treatments of Pluvicto is not dropping PSA
My Husband has had 4 treatments of Pluvicto 6 weeks apart. The first treatment dropped my PSA by over 100 points; however, the 2nd, 3rd, and 4th PSA climbed rapidly. My question is, Should he continue the treatment if it is not working for him?? Thank you, Concerned wife.
My Husband has had 4 treatments of Pluvicto 6 weeks apart. The first treatment dropped my PSA by over 100 points; however, the 2nd, 3rd, and 4th PSA climbed rapidly. My question is, Should he continue the treatment if it is not working for him?? Thank you, Concerned wife.
Areyoukiddingme
in
Advanced Prostate Cancer
9 months ago
Long time reader / first time poster…
Hello all, Been on here for quite some time reading about other men’s stories but have yet to get in the trenches until now. Not sure why; maybe just reluctance to accept my situation, even though my “situation” has fully accepted me. It’s been a bumpy road. PSA 12.5 at diagnosis 11/2019. Been checking
Hello all, Been on here for quite some time reading about other men’s stories but have yet to get in the trenches until now. Not sure why; maybe just reluctance to accept my situation, even though my “situation” has fully accepted me. It’s been a bumpy road. PSA 12.5 at diagnosis 11/2019. Been checking
MrWonderful4U
in
Advanced Prostate Cancer
9 months ago
At what point for scan ?
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
positive-thinking
in
Advanced Prostate Cancer
4 months ago
Medicare Advantage vs. Medicare+Medicare Supplement
Greetings, A little background: I have had 2 insurance policies, Cigna through my employer and Medicare Advantage. I'm now unemployed so will not have Cigna. I'm considering changing my Medicare Advantage to Medicare (part A & B) plus a Medicare Supplement plan (through Cigna, Blue Cross, United,
Greetings, A little background: I have had 2 insurance policies, Cigna through my employer and Medicare Advantage. I'm now unemployed so will not have Cigna. I'm considering changing my Medicare Advantage to Medicare (part A & B) plus a Medicare Supplement plan (through Cigna, Blue Cross, United,
MechD
in
Advanced Prostate Cancer
9 months ago
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