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CHAMP Trial/Small Cell Chemo Update
If you don’t feel like reading my bio, I’ll give a synopsis: My dad is only 53 with advanced metastatic PC that spread to his liver earlier this year. His PSA had been undetectable so it really threw us for a loop. My dad finished 6 sessions of carbo & etoposide chemo about 3 weeks ago. He is still randomly
If you don’t feel like reading my bio, I’ll give a synopsis: My dad is only 53 with advanced metastatic PC that spread to his liver earlier this year. His PSA had been undetectable so it really threw us for a loop. My dad finished 6 sessions of carbo & etoposide chemo about 3 weeks ago. He is still randomly
antisocialsocialwrkr
in
Advanced Prostate Cancer
8 months ago
Need Help with Next Gen ADT
I haven't updated my bio for awhile but I am still hormone sensitive MPCA. My PSA last month was undetectable. I had a bilateral orchiectomy in February but was also on Erleada which I stayed on until recently. So what's changed is that I also have Stage I Multiple Myeloma. Erleada and Xandti are
I haven't updated my bio for awhile but I am still hormone sensitive MPCA. My PSA last month was undetectable. I had a bilateral orchiectomy in February but was also on Erleada which I stayed on until recently. So what's changed is that I also have Stage I Multiple Myeloma. Erleada and Xandti are
swwags
in
Advanced Prostate Cancer
8 months ago
So unsure what to do...
Hello all. I am a 53 year old gay man and I have had raised PSA since 2020. My urologist performed a DRE and felt nothing and decided that we should watch the number and see what happens. 1 year later, the urologist decided to send me for an MRI and it showed no signs of cancer. Feeling relieved, I
Hello all. I am a 53 year old gay man and I have had raised PSA since 2020. My urologist performed a DRE and felt nothing and decided that we should watch the number and see what happens. 1 year later, the urologist decided to send me for an MRI and it showed no signs of cancer. Feeling relieved, I
SadandScared
in
Prostate Cancer And Gay Men
8 months ago
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Full circle with metastatic prostate cancer
I have gone full circle with my disease. Diagnosed at 52 in 2017 with PSA 100. 6 years later PSA is back to 100 with new spread of mets though out skeleton. I have done all the SOC treatments and changed diet. The cancer has found a way around it all. I have continued working through out but now I have
I have gone full circle with my disease. Diagnosed at 52 in 2017 with PSA 100. 6 years later PSA is back to 100 with new spread of mets though out skeleton. I have done all the SOC treatments and changed diet. The cancer has found a way around it all. I have continued working through out but now I have
Islandboy2021
in
Advanced Prostate Cancer
8 months ago
Should go into the OMAHA2a ODM-208 (MK-5684-004): phase 3 trial?
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
LakeT
in
Advanced Prostate Cancer
16 days ago
shoes
I have PsA with entithesis and get very painful feet. Are there any suggestions for comfy footwear as currently using running shoes and one single pair of boots. Can’t walk in anything else when I can walk that is. So any suggestions for comfortable gents shoes that are reasonably fashionable would
I have PsA with entithesis and get very painful feet. Are there any suggestions for comfy footwear as currently using running shoes and one single pair of boots. Can’t walk in anything else when I can walk that is. So any suggestions for comfortable gents shoes that are reasonably fashionable would
Greenmil3
in
Beyond Psoriasis
8 months ago
Perineum Irritation / Pain
I’m Stage 4A prostate cancer (spread outside prostate to lymph nodes only) in week 3 of treatment. I’m doing Lupron shots every 3months + Abiraterone with Prednisone daily, will start radiation in a couple weeks. I was tested on day 8 and my PSA had already fallen from 8.7 to 2.78. I had been feeling
I’m Stage 4A prostate cancer (spread outside prostate to lymph nodes only) in week 3 of treatment. I’m doing Lupron shots every 3months + Abiraterone with Prednisone daily, will start radiation in a couple weeks. I was tested on day 8 and my PSA had already fallen from 8.7 to 2.78. I had been feeling
Willie51
in
Prostate Cancer And Gay Men
18 days ago
At last I've come to a decision.
Hi all, Well after heaps of research and asking questions and discussing everything with my RO and Urologist about treatment for my 4+4 PSA 8 PCa, I have decided to go the path of EBRT and HT. Starts as soon as I get back from my trip to the USA in late November with the insertion of the barrier gel
Hi all, Well after heaps of research and asking questions and discussing everything with my RO and Urologist about treatment for my 4+4 PSA 8 PCa, I have decided to go the path of EBRT and HT. Starts as soon as I get back from my trip to the USA in late November with the insertion of the barrier gel
Mike58
in
Prostate Cancer Network
8 months ago
oncologist said I'm cured
had a meeting with oncologist who did my treatment 2014,finished treatment 2016,locally advanced prostate cancer t3b no mo, he said that I have not got p/c that shocked me,surely he is just going on that my psa is undetectable, so that means I have to stop the things I have been taking to help me with
had a meeting with oncologist who did my treatment 2014,finished treatment 2016,locally advanced prostate cancer t3b no mo, he said that I have not got p/c that shocked me,surely he is just going on that my psa is undetectable, so that means I have to stop the things I have been taking to help me with
Radars
in
Advanced Prostate Cancer
8 months ago
Waiting for Mr. T
I had an interesting development this week in my PCa journey. I went in for my quarterly hospital visit, which would normally include blood tests, meeting with my medical oncologist, and my last 3-month injection of Eligard. Blood tests were great, PSA and testosterone still undetectable. My MO decided
I had an interesting development this week in my PCa journey. I went in for my quarterly hospital visit, which would normally include blood tests, meeting with my medical oncologist, and my last 3-month injection of Eligard. Blood tests were great, PSA and testosterone still undetectable. My MO decided
Atdabeach
in
Advanced Prostate Cancer
20 days ago
First BAT cycle results: what next?
I started my first BAT cycle on 3-12-24, originally designed to last for 32 days.
PSA was 0.5
and I injected 50 mg eod of T propionate and .625 mg of letrozole every 3rd day to inhibit conversion of T to E2. Here are my blood test results during the cycle followed by a couple of questions:
I started my first BAT cycle on 3-12-24, originally designed to last for 32 days.
PSA was 0.5
and I injected 50 mg eod of T propionate and .625 mg of letrozole every 3rd day to inhibit conversion of T to E2. Here are my blood test results during the cycle followed by a couple of questions:
Ichthus316
in
Fight Prostate Cancer
21 days ago
Positive medical check update April 2024
Last days I’ve had couple of blood tests, ultra sound, annual PSMA Pet/CT and a meeting with my urologist. My last Lupron shot was Oct 2023. Blood values are all very ok, PSA undetectable, Testo less 0.1 ng/ML and PSMA Pet/CT and ultra sound clean, no recurrence, no metastases. I’m more than thankful
Last days I’ve had couple of blood tests, ultra sound, annual PSMA Pet/CT and a meeting with my urologist. My last Lupron shot was Oct 2023. Blood values are all very ok, PSA undetectable, Testo less 0.1 ng/ML and PSMA Pet/CT and ultra sound clean, no recurrence, no metastases. I’m more than thankful
Nusch
in
Advanced Prostate Cancer
21 days ago
Starting Third Month of Orgovyx--Update
Blood test after two months shows PSA of 1.45, down from 16.5--over a 90% drop. So, the medication is working as advertised. I believe their own stats indicate an approx. 98% drop in 90 days. This week's visit with my new MO nurse practitioner went well. She was very happy with the PSA results and
Blood test after two months shows PSA of 1.45, down from 16.5--over a 90% drop. So, the medication is working as advertised. I believe their own stats indicate an approx. 98% drop in 90 days. This week's visit with my new MO nurse practitioner went well. She was very happy with the PSA results and
mababa
in
Advanced Prostate Cancer
25 days ago
Mets to Bones and Lymph nodes
Hello all,My 50 year old father was recently dx. with prostate ca. PSMA done yesterday confirmed mets to multiple bones and lymph nodes in chest, abdomen, pelvis, and clavicle. Gleason 9. PSA 3.74. Doubled in since May. We meet with the oncologist next week. He is having trouble peeing and hip pain
Hello all,My 50 year old father was recently dx. with prostate ca. PSMA done yesterday confirmed mets to multiple bones and lymph nodes in chest, abdomen, pelvis, and clavicle. Gleason 9. PSA 3.74. Doubled in since May. We meet with the oncologist next week. He is having trouble peeing and hip pain
Scoobydoocrew
in
Advanced Prostate Cancer
8 months ago
How to find a MO Specializing in PCa
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
NJWarrior
in
Advanced Prostate Cancer
8 months ago
Appropriate Treatment
I was diagnosed with stage 4 prostate cancer PSA 29.1 which had metastatised to lymph nodes, ribs & spine after a few months on Abiraterone and Prednisone my PSA count dropped to 0.06 After 30 months my PSA started to rise at 10.2 my treatment was declared ineffective Lutetium 177 treatment was recommended
I was diagnosed with stage 4 prostate cancer PSA 29.1 which had metastatised to lymph nodes, ribs & spine after a few months on Abiraterone and Prednisone my PSA count dropped to 0.06 After 30 months my PSA started to rise at 10.2 my treatment was declared ineffective Lutetium 177 treatment was recommended
154Eleventh
in
Advanced Prostate Cancer
27 days ago
concurrent salvage ADT with IRMT
Hello, 1st time caller, History: RALP - 1/2020, Gleason 7 (4+3), pre treatment psa of 11, psa started climbing 5/2023 to 1.651, was at 2.5 prior to psma/pet/ct on 6/21/2023. Impression: Equivocal small faint focal uptake in prostatetectomy bed and non enlarged left external iliac nodes. Doc at AHN
Hello, 1st time caller, History: RALP - 1/2020, Gleason 7 (4+3), pre treatment psa of 11, psa started climbing 5/2023 to 1.651, was at 2.5 prior to psma/pet/ct on 6/21/2023. Impression: Equivocal small faint focal uptake in prostatetectomy bed and non enlarged left external iliac nodes. Doc at AHN
live2play
in
Advanced Prostate Cancer
8 months ago
PSMA PET Scan result - false positive bone lesion?
My fathers PSMA PET scan ( at 0,23 psa) came back! Its been 9 months after surgery and PSA is around 0,18-0,25 and fluctated down at times. Everything was clear but a suspected bone lesion at L3 was found. The dr seem to think its false positive and said its probably nothing. We should just monitore
My fathers PSMA PET scan ( at 0,23 psa) came back! Its been 9 months after surgery and PSA is around 0,18-0,25 and fluctated down at times. Everything was clear but a suspected bone lesion at L3 was found. The dr seem to think its false positive and said its probably nothing. We should just monitore
Daddysgirl83
in
Advanced Prostate Cancer
8 months ago
right knee replacement
It’s been a slow trip fighting arthritis on top of recurring PCA. Still on a Lupron vacation. Osteopenia cleared up after 21 months with only bicalutamide, T rose to 226, and PSA has stayed less than 0.1. I finally have a new knee! It‘s painful but every night is a bit better than the night before
It’s been a slow trip fighting arthritis on top of recurring PCA. Still on a Lupron vacation. Osteopenia cleared up after 21 months with only bicalutamide, T rose to 226, and PSA has stayed less than 0.1. I finally have a new knee! It‘s painful but every night is a bit better than the night before
kreg001
in
Advanced Prostate Cancer
8 months ago
Complementary Therapies - Your Experience?
My standard of care drugs are doing a great job of keeping my PSA down, but it would seem inconsiderate not to look into giving them a bit of help. I'm investigating these "adjunct" therapies with anecdotal or research evidence showing potential action against prostate cancer, and I'm just wondering
My standard of care drugs are doing a great job of keeping my PSA down, but it would seem inconsiderate not to look into giving them a bit of help. I'm investigating these "adjunct" therapies with anecdotal or research evidence showing potential action against prostate cancer, and I'm just wondering
32Percenter
in
Advanced Prostate Cancer
8 months ago
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