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Lynparza - warning!
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
MyDad76
in
Advanced Prostate Cancer
3 months ago
PSMA PET scan
Hello everyone, pardon the simplicity of my question. Is PSMA the same as PET Scan? I ask this because I specifically asked my MO to have a PSMA pet scam but no where in the order or appointment a mention of PSMA pet scan it only says pet scan. I am concerned because MO doesn't seem to be very involved
Hello everyone, pardon the simplicity of my question. Is PSMA the same as PET Scan? I ask this because I specifically asked my MO to have a PSMA pet scam but no where in the order or appointment a mention of PSMA pet scan it only says pet scan. I am concerned because MO doesn't seem to be very involved
Blueribbon63
in
Advanced Prostate Cancer
8 months ago
liver Mets, Pluvicto failed
diagnosed 2021, spread to distant lymph nodes. Castrate resistant within 6 months. Had platinum based chemo. Stabilized for bit. 4 Pluvicto treatments. PSA went from 4 to 70. Latest scans show new mets to liver. Genetic testing shows ATM mutation. Where to go from here?
diagnosed 2021, spread to distant lymph nodes. Castrate resistant within 6 months. Had platinum based chemo. Stabilized for bit. 4 Pluvicto treatments. PSA went from 4 to 70. Latest scans show new mets to liver. Genetic testing shows ATM mutation. Where to go from here?
mysticmini
in
Advanced Prostate Cancer
5 months ago
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castration after 7 years of ADT
I have been on Zoladex for nearly 7 years and am fully over any regrets of Chemical castration. My psa is now slowly rising and ghastly taken 2 years from undetectable to 0.65. I am considering surgical castration now as it would mean no more 3 monthly Zoladex injections and a reduced chemical load on
I have been on Zoladex for nearly 7 years and am fully over any regrets of Chemical castration. My psa is now slowly rising and ghastly taken 2 years from undetectable to 0.65. I am considering surgical castration now as it would mean no more 3 monthly Zoladex injections and a reduced chemical load on
Roscoaus2000
in
Advanced Prostate Cancer
8 months ago
some not great news/ still a lot unknown
I’ve posted before about my first introductions to prostate cancer: primarily significantly increased PSA yr to yr (3 to 6+). Did the EXODX urine test and score came back 25.9 out of 100 (15.9 being the cut off to keep from proceeding with biopsy, so I figured I’d at least need to do that. ) Finally
I’ve posted before about my first introductions to prostate cancer: primarily significantly increased PSA yr to yr (3 to 6+). Did the EXODX urine test and score came back 25.9 out of 100 (15.9 being the cut off to keep from proceeding with biopsy, so I figured I’d at least need to do that. ) Finally
Willie51
in
Prostate Cancer And Gay Men
5 months ago
Is my cancer castrate resistant?
Since detection of abdominal and pelvic mesastasis by PSMA scan in October 2018, intermittant Lupron was very effective in keeping my cancer under control until July 2022. From July 2022 until now I have been on continuous Lupron because PSA refused to become undetectable. From July 2022 until August
Since detection of abdominal and pelvic mesastasis by PSMA scan in October 2018, intermittant Lupron was very effective in keeping my cancer under control until July 2022. From July 2022 until now I have been on continuous Lupron because PSA refused to become undetectable. From July 2022 until August
dac500
in
Advanced Prostate Cancer
8 months ago
Pluvicto Failed - Next step
Hello Warriors: Pluvicto has failed. I went through four sessions and had severe side effects of exhaustion and GI problems as well as it seemed to stimulate my foot neuropathy. My PSA went down during injection 2 and 3 but then came back up in 4. Disappointing... I just met my new MO at the Mayo
Hello Warriors: Pluvicto has failed. I went through four sessions and had severe side effects of exhaustion and GI problems as well as it seemed to stimulate my foot neuropathy. My PSA went down during injection 2 and 3 but then came back up in 4. Disappointing... I just met my new MO at the Mayo
Hidden
in
Advanced Prostate Cancer
8 months ago
Cavernous Tumor & Rising PSA
My husband had triple therapy with docetaxel (finished chemo in January), darolutimide, and Firmagon/Lupron. Recently he developed what seemed like a sinus infection but was really a tumor in his sinus cavity and behind his eye socket wrapped around his carotid arteries on the plate of his skull (
My husband had triple therapy with docetaxel (finished chemo in January), darolutimide, and Firmagon/Lupron. Recently he developed what seemed like a sinus infection but was really a tumor in his sinus cavity and behind his eye socket wrapped around his carotid arteries on the plate of his skull (
Izzygirl1
in
Advanced Prostate Cancer
8 months ago
Relugolix and Apalutamide
Any experience with elevated AST and ALT after being treated with Relugolix and Apalutamide? My AST and ALT were normal on Relugolix for 6 weeks.....added Apalutamide and after 4 weeks my AST and ALT are now 3X previous level. I feel fine. Oncologist is wanting to stop the one of the drugs.....I convinced
Any experience with elevated AST and ALT after being treated with Relugolix and Apalutamide? My AST and ALT were normal on Relugolix for 6 weeks.....added Apalutamide and after 4 weeks my AST and ALT are now 3X previous level. I feel fine. Oncologist is wanting to stop the one of the drugs.....I convinced
GoLowPSA
in
Advanced Prostate Cancer
8 months ago
What a long strange road it's been.
Nov 2007 I had DaVinci surgery Gleason 7. I got the surgeon's notes and he said margins were clear, took s bunch of lymph glands, all clear. Held my dick in his hand and said it would come back. It did, but never quite lost the "happy bladder" and I shot pee about 50% of the time. PSA never went
Nov 2007 I had DaVinci surgery Gleason 7. I got the surgeon's notes and he said margins were clear, took s bunch of lymph glands, all clear. Held my dick in his hand and said it would come back. It did, but never quite lost the "happy bladder" and I shot pee about 50% of the time. PSA never went
bcskibdy
in
Prostate Cancer And Gay Men
8 months ago
Side effects experienced once you add Zytiga to Orgovyx
My husband, age 73, is diagnosed with very high risk prostate cancer, Gleason 9, PSA 46.6 and being treated ay Mayo, Phoenix. He is almost done with 28 Proton Radiation treatments, was on Casodex a few weeks then started Orgovyx.( at least two years recommended) He is considering adding Zytiga. He
My husband, age 73, is diagnosed with very high risk prostate cancer, Gleason 9, PSA 46.6 and being treated ay Mayo, Phoenix. He is almost done with 28 Proton Radiation treatments, was on Casodex a few weeks then started Orgovyx.( at least two years recommended) He is considering adding Zytiga. He
CancerConcierge
in
Advanced Prostate Cancer
8 months ago
Update after 6 and a half years of treatment with triptolerin (Decapeptyl)
My dad has been on biannual Decapeptyl injections since october 2017, when he was diagnosed with metastatic prostate cancer. The PSA readings over the last 6 years have been the following: 0.21 (January 2018) 0.07 (May 2018) 0.05 (November 2018) 0.04 (May 2019) 0.03 (October 2019) 0.03 (May 2020
My dad has been on biannual Decapeptyl injections since october 2017, when he was diagnosed with metastatic prostate cancer. The PSA readings over the last 6 years have been the following: 0.21 (January 2018) 0.07 (May 2018) 0.05 (November 2018) 0.04 (May 2019) 0.03 (October 2019) 0.03 (May 2020
nereabg
in
Advanced Prostate Cancer
3 months ago
Update: PSA after IMRT
After my 40 treatments, I wanted to get off the bicalutamide I had been on for 2 months. My breasts had not only gotten enlarged but they had also become quite painful, and the Tamoxifen my RO had put me on did not help with this. He then ordered an early PSA test, and when it came back at just .12
After my 40 treatments, I wanted to get off the bicalutamide I had been on for 2 months. My breasts had not only gotten enlarged but they had also become quite painful, and the Tamoxifen my RO had put me on did not help with this. He then ordered an early PSA test, and when it came back at just .12
Smarks42
in
Prostate Cancer Network
8 months ago
Medical Oncologists recommendations at Mayo Phoenix
My husband is being treated for high risk prostate cancer at Mayo, Phoenix.. GL 9, PSA 46.6 ( almost finished with Proton radiation treatments, on Orgovyx and will be starting on Zytiga. He has had one consult with a Mayo MO , but it wasn’t a good fit. Would be grateful if anyone who was treated at
My husband is being treated for high risk prostate cancer at Mayo, Phoenix.. GL 9, PSA 46.6 ( almost finished with Proton radiation treatments, on Orgovyx and will be starting on Zytiga. He has had one consult with a Mayo MO , but it wasn’t a good fit. Would be grateful if anyone who was treated at
CancerConcierge
in
Advanced Prostate Cancer
8 months ago
Spot Radiation before Pluvicto?
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
spouse21
in
Advanced Prostate Cancer
3 months ago
PSA At Very Low Levels But Starting to Rise
My PSA started to rise from undetectable up to about .36 in July 2021 after 9 years of treatment. My MO reviewed a PSMA and decided to have my largest tumor radiated. My PSA went below .05 once again shortly thereafter. My most recent PSA labs were : .05, .06, .06, and .09 last week. I am conferring
My PSA started to rise from undetectable up to about .36 in July 2021 after 9 years of treatment. My MO reviewed a PSMA and decided to have my largest tumor radiated. My PSA went below .05 once again shortly thereafter. My most recent PSA labs were : .05, .06, .06, and .09 last week. I am conferring
jfoesq
in
Advanced Prostate Cancer
8 months ago
Updating my husband's journey, hoping it helps others - any words of encouragement are welcome, but please only positive comments
The first part is in my profile. It makes me feel vulnerable to share, but we have benefited enormously from reading others' stories, so I'm sharing. UPDATE: 8/18/21 PSA =0.45 9/6/21 last dose Orgovyx 9/7/21 First Eligard 3 month shot 9/17/21 PSA =0.78 10/18/21 PSA =1.28 Nov not tested 12
The first part is in my profile. It makes me feel vulnerable to share, but we have benefited enormously from reading others' stories, so I'm sharing. UPDATE: 8/18/21 PSA =0.45 9/6/21 last dose Orgovyx 9/7/21 First Eligard 3 month shot 9/17/21 PSA =0.78 10/18/21 PSA =1.28 Nov not tested 12
SuppWife
in
Advanced Prostate Cancer
4 months ago
Radiation Question
PSA test sent me into this journey about 8 mos ago, Gleason 6-7-8s, good PSMA PET/CT did not show uptake outside of the prostate, 6 mos now on Abiraterone and Zytiga brought PSA to .31, now suggesting radiation, went to see RO and they want to start right away, 8 weeks x-ray type to include abdomen in
PSA test sent me into this journey about 8 mos ago, Gleason 6-7-8s, good PSMA PET/CT did not show uptake outside of the prostate, 6 mos now on Abiraterone and Zytiga brought PSA to .31, now suggesting radiation, went to see RO and they want to start right away, 8 weeks x-ray type to include abdomen in
jgsdone
in
Advanced Prostate Cancer
8 months ago
Post RP/SRT Pelvic Mass?
RRP 2/02, SRT 7/16, BCR 9/23 Latest PSA .17 I recently retired and have been spending more time sitting on my ass in front of the computer [like right now] than I should. Over the last couple of months I have begun to feel/sense that I am sitting on something, very similar to what I felt pre-RP. At
RRP 2/02, SRT 7/16, BCR 9/23 Latest PSA .17 I recently retired and have been spending more time sitting on my ass in front of the computer [like right now] than I should. Over the last couple of months I have begun to feel/sense that I am sitting on something, very similar to what I felt pre-RP. At
bldn10
in
Advanced Prostate Cancer
8 months ago
Elevated D-Dimmer
Dear all, I would like to ask a question about elevated D-Dimmer. My father is waiting for the Cabazitaxel treatment. Due to some difficulties in getting the therapy he is with no therapy since April. His last round of Docetaxel ( 8 in total). However, his d-dimmer is started to get elevated. He has
Dear all, I would like to ask a question about elevated D-Dimmer. My father is waiting for the Cabazitaxel treatment. Due to some difficulties in getting the therapy he is with no therapy since April. His last round of Docetaxel ( 8 in total). However, his d-dimmer is started to get elevated. He has
pozitronij
in
Advanced Prostate Cancer
8 months ago
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