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You are invited to participate in an online survey on behalf of the AF Association.
Your feedback will contribute in providing researchers working in this field to better understand the following: • How common is simultaneous screening of high blood pressure and Atrial Fibrillation (AF) amongst patients • The patient experience related to simultaneous screening of BP & AF Your participation
Your feedback will contribute in providing researchers working in this field to better understand the following: • How common is simultaneous screening of high blood pressure and Atrial Fibrillation (AF) amongst patients • The patient experience related to simultaneous screening of BP & AF Your participation
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Partner
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AF Association
1 year ago
Heart rate in afib and when to go to ER or A&E
Sitting down watching tv and I felt in my chest I was trying to go into afib, so I grabbed my trusty oximeter and put it on and watched HR go down from 80s to 70s to 60s to 50s to 40s to a reading of 37 HR. Freaked me out so I got another oximeter different manufacturer and put it on and it read 37.
Sitting down watching tv and I felt in my chest I was trying to go into afib, so I grabbed my trusty oximeter and put it on and watched HR go down from 80s to 70s to 60s to 50s to 40s to a reading of 37 HR. Freaked me out so I got another oximeter different manufacturer and put it on and it read 37.
kocoach
in
Atrial Fibrillation Support
1 year ago
Meridian Viewray is toast. Looking for alternative machines.
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. I was supposed to start a clinical trial Nov 1st, now cancelled. Looking
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. I was supposed to start a clinical trial Nov 1st, now cancelled. Looking
Cancer2x
in
Advanced Prostate Cancer
10 months ago
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Meridian Viewray is toast. Can Cyberkife machines use MRI the same way?
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. Looking for substitutes. Thinking that Cyberknife machines can also
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. Looking for substitutes. Thinking that Cyberknife machines can also
Cancer2x
in
Advanced Prostate Cancer
10 months ago
Greater use of Benlysta, Saphnelo seen in US, EU to treat lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
10 months ago
phase 2 study for mCRPC
https://www.uclahealth.org/clinical-trials/study-two-dose-levels-vobramitamab-duocarmazine-participants For people previously treated with apalutamide, darolutamide, enzalutamide, abiraterone It’s and ADC targeting B7-H3 checkpoint https://clinicaltrials.gov/study/NCT05032040 Targets PD1
https://www.uclahealth.org/clinical-trials/study-two-dose-levels-vobramitamab-duocarmazine-participants For people previously treated with apalutamide, darolutamide, enzalutamide, abiraterone It’s and ADC targeting B7-H3 checkpoint https://clinicaltrials.gov/study/NCT05032040 Targets PD1
Maxone73
in
Advanced Prostate Cancer
10 months ago
📢 Saturday October 14th Free Live HCC Workshop📢
Dive deep into critical healthcare topics with leading experts in the field! 🌟 Spotlight on Dr. Daneng Li: Spearheading the Liver Cancer Collaborative Program within the Department of Medical Oncology & Therapeutics Research at the City of Hope Comprehensive Cancer Center, Dr. Li's tireless efforts
Dive deep into critical healthcare topics with leading experts in the field! 🌟 Spotlight on Dr. Daneng Li: Spearheading the Liver Cancer Collaborative Program within the Department of Medical Oncology & Therapeutics Research at the City of Hope Comprehensive Cancer Center, Dr. Li's tireless efforts
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
10 months ago
The CLL Medicine Cabinet - Choosing the Right Treatment for You
The CLL Medicine Cabinet- Choosing the Right Treatment for You - https://cllsociety.org/cll-medicine-cabinet/ - There are several factors your healthcare provider will take into consideration when discussing what treatment options might be the best for you. These factors may include: Your
The CLL Medicine Cabinet- Choosing the Right Treatment for You - https://cllsociety.org/cll-medicine-cabinet/ - There are several factors your healthcare provider will take into consideration when discussing what treatment options might be the best for you. These factors may include: Your
lankisterguy
Volunteer
in
CLL Support
10 months ago
Ablate or not?
Hello, I was diagnosed with Afib January last year, I had weekly episodes 5-20 hours duration, I felt horrible while in Afib! (used flacenide to get back in rythm). Starting this year Afib duration went longer and in April flacenide stopped working and my Afib become permanent until today (tried two
Hello, I was diagnosed with Afib January last year, I had weekly episodes 5-20 hours duration, I felt horrible while in Afib! (used flacenide to get back in rythm). Starting this year Afib duration went longer and in April flacenide stopped working and my Afib become permanent until today (tried two
zxal0000
in
AF Association
1 year ago
What Helps You Stay Awake During Daytime
My husband has stage 4 CRPC and has a fib so he cannot drink caffeinated coffee so how does he stay awake during the day? This is especially embarrassing during church. Any suggestions that have worked for others are appreciated.
My husband has stage 4 CRPC and has a fib so he cannot drink caffeinated coffee so how does he stay awake during the day? This is especially embarrassing during church. Any suggestions that have worked for others are appreciated.
Corgi16
in
Advanced Prostate Cancer
1 year ago
Doc vs Parkinson's Instagram says trials are coming by December
Doc vs Parkinson's Instagram says trials are coming by December https://www.instagram.com/p/CyCiRjWM5Om/ "Finally. Clinical trials for #thenext10 will start immediately and Doc predicts dopaminergic cells will be inserted around Christmas and 6 months later we will hopefully see positive results. I
Doc vs Parkinson's Instagram says trials are coming by December https://www.instagram.com/p/CyCiRjWM5Om/ "Finally. Clinical trials for #thenext10 will start immediately and Doc predicts dopaminergic cells will be inserted around Christmas and 6 months later we will hopefully see positive results. I
Bolt_Upright
in
Cure Parkinson's
10 months ago
hu CAR-T 19 IL-18 TRIAL 14 DAY BMB REPORT AND DR. VISIT DAY 21
I knew it was coming, a going away gift for being such a great patient. A BMB is ordered at day 14 of this clinical trial, groggy from 1mg of atavan earlier that morning, I am not even going to make jokes about it. This is a necessary test to see what is going on with the infusion of my new armored piercing
I knew it was coming, a going away gift for being such a great patient. A BMB is ordered at day 14 of this clinical trial, groggy from 1mg of atavan earlier that morning, I am not even going to make jokes about it. This is a necessary test to see what is going on with the infusion of my new armored piercing
steve5441
in
CLL Support
10 months ago
Patent given for new approach to Parkinson’s stem cell therapy
“What distinguishes my research from others is that I have developed a method where I can [i]
manipulate stem cells with an extremely high degree of precision to develop into only one type of cell.
[/i] This results in an exceptional quality of the desired cell,” Denham said. “Until now, it has
“What distinguishes my research from others is that I have developed a method where I can [i]
manipulate stem cells with an extremely high degree of precision to develop into only one type of cell.
[/i] This results in an exceptional quality of the desired cell,” Denham said. “Until now, it has
PDWarrior1900
in
Cure Parkinson's
10 months ago
SBRT alternative
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
MauiJef
in
Prostate Cancer Network
10 months ago
BAT trial
With Xtandi failing and my metastasizes not PSMA avid enough for Lutetium my MO referred me to the Kinghorn Cancer Centre in Sydney to be assessed for a clinical trial involving BAT and Carboplatin (chemo). I am now in the trial and have had my first testosterone injections plus the carboplatin infusion
With Xtandi failing and my metastasizes not PSMA avid enough for Lutetium my MO referred me to the Kinghorn Cancer Centre in Sydney to be assessed for a clinical trial involving BAT and Carboplatin (chemo). I am now in the trial and have had my first testosterone injections plus the carboplatin infusion
Bjry
in
Advanced Prostate Cancer
10 months ago
Trial
Hi lovely ladies, I have been offered a clinical trial as I'm platinum resistant. Can I ask anybody who has done one the outcome and how you felt. Thanks in Advance X
Hi lovely ladies, I have been offered a clinical trial as I'm platinum resistant. Can I ask anybody who has done one the outcome and how you felt. Thanks in Advance X
Beoony
in
My Ovacome
10 months ago
A fight was lost today.
Hopingforthebest1, passed away, peacefully today. His wife was by his side and he succumbed to the cancer. I won’t go into details, but I can tell you what kind of person he was. My dear friend, fought gallantly. He tried so hard to beat this cancer. every test, procedure, clinical trial, etc, was
Hopingforthebest1, passed away, peacefully today. His wife was by his side and he succumbed to the cancer. I won’t go into details, but I can tell you what kind of person he was. My dear friend, fought gallantly. He tried so hard to beat this cancer. every test, procedure, clinical trial, etc, was
Trainer40
in
Advanced Prostate Cancer
10 months ago
WHEN YOUR CLINICAL TRIAL FAILS, WHAT DO YOU DO NEXT ?
Except for a monthly neulasta injection, my Nurex 2127 trial had been going pretty well. My blood counts were good, 13ish HGB 1,80 ALC 150 Plat ANC was always low. My Dr. thought it would be idea to do an 18 month " lets see where we are BMB", no problem. I hadn't had one in about 20 months
Except for a monthly neulasta injection, my Nurex 2127 trial had been going pretty well. My blood counts were good, 13ish HGB 1,80 ALC 150 Plat ANC was always low. My Dr. thought it would be idea to do an 18 month " lets see where we are BMB", no problem. I hadn't had one in about 20 months
steve5441
in
CLL Support
11 months ago
Anyone know any thing about clinical trial BMF-219 a covalent,mein inhibitor
I have been in Loxo clinical trial at MSK for 40 mo and have begun to slowly progress. I have been exploring options for next treatment plan.Have been seen at NIH and offered their clinical Nurix trial (degrader) . At vs with my local hematologist (Va Cancer Sp) she referred me to their research dept
I have been in Loxo clinical trial at MSK for 40 mo and have begun to slowly progress. I have been exploring options for next treatment plan.Have been seen at NIH and offered their clinical Nurix trial (degrader) . At vs with my local hematologist (Va Cancer Sp) she referred me to their research dept
Osprey69
in
CLL Support
11 months ago
Guilty or not ???
Today, after a few days of increasing pain in my neck, started on left side on Wednesday this morning also right side, I have taken extra 5mg Pred without consulting my GP who has previously indicated he was happy for me to manage my medication. For about 4 weeks now I have managed with 6mg Pred, so
Today, after a few days of increasing pain in my neck, started on left side on Wednesday this morning also right side, I have taken extra 5mg Pred without consulting my GP who has previously indicated he was happy for me to manage my medication. For about 4 weeks now I have managed with 6mg Pred, so
Golf-1
in
PMRGCAuk
1 year ago
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