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Platinum resistant - paclitaxel planned
Hi everyone,I am on my 3rd recurrence since treatment started in 2021. I'm stage 4 and now platinum resistant. Dr is starting me o n Paclitaxel 1xweek for 3 weeks followed by one week break for 6 months. There is a new clinical trial starting in my health area which wil potentiallyl be available for
Hi everyone,I am on my 3rd recurrence since treatment started in 2021. I'm stage 4 and now platinum resistant. Dr is starting me o n Paclitaxel 1xweek for 3 weeks followed by one week break for 6 months. There is a new clinical trial starting in my health area which wil potentiallyl be available for
COHEN123
in
My Ovacome
8 months ago
I would love to see a Clinical Trial on TTFD
I gave up on TTFD (thiamine tetrahydrofurfuryl disulfide - a B1 derivative) because; I would settle in on a sweet-spot, within a few weeks I would overdose, I lowered my dose and repeated again & again. Thinking maybe that wouldn’t be a bad thing — could it be a cure and would I get down to just recommended
I gave up on TTFD (thiamine tetrahydrofurfuryl disulfide - a B1 derivative) because; I would settle in on a sweet-spot, within a few weeks I would overdose, I lowered my dose and repeated again & again. Thinking maybe that wouldn’t be a bad thing — could it be a cure and would I get down to just recommended
Gcf51
in
Cure Parkinson's
8 months ago
Alicia Morgans, MD, on PCa in Older Men – Determining frailty or fitness will help guide treatment decisions, MedPageToday, 11/27/2023
Those who dig deep into research methodologies know well the inherent biases that riddle much scientific and medical research. [i](See my postscript reference below) [/i]Clinical trials are not exceptions to these biases and, as drug companies look to produce the best outcomes for their clinical trials
Those who dig deep into research methodologies know well the inherent biases that riddle much scientific and medical research. [i](See my postscript reference below) [/i]Clinical trials are not exceptions to these biases and, as drug companies look to produce the best outcomes for their clinical trials
cujoe
in
Fight Prostate Cancer
9 months ago
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Can too many ablations cause “stiff heart”?
i’m at 69-year-old male that has had four oblations in the last eight years for a fib. I am now in a flutter persistent 100% of the time. I’m considering another ablation in November by one of the top doctors in the country. I Heard that sometimes too many oblations can cause a stiff heart which I am
i’m at 69-year-old male that has had four oblations in the last eight years for a fib. I am now in a flutter persistent 100% of the time. I’m considering another ablation in November by one of the top doctors in the country. I Heard that sometimes too many oblations can cause a stiff heart which I am
jsanta
in
AF Association
1 year ago
2 months post ablation and frequent extrasystoles.
So I'm 2 months from my 1st ablation and supposed to now stop taking Flecainide but I seem to be permanently having extrasystoles, having hardly had them at all previously. They are fairly asymptomatic with me only sometimes feeling palpitations. I've also had a couple of Afib episodes but it's the sudden
So I'm 2 months from my 1st ablation and supposed to now stop taking Flecainide but I seem to be permanently having extrasystoles, having hardly had them at all previously. They are fairly asymptomatic with me only sometimes feeling palpitations. I've also had a couple of Afib episodes but it's the sudden
MisterMagoo
in
AF Association
1 year ago
Embark Phase 3 clinical trial
Came across this today --- https://www.health.harvard.edu/blog/after-prostate-cancer-treatment-a-new-standard-of-care-for-rising-psa-202312203001
Came across this today --- https://www.health.harvard.edu/blog/after-prostate-cancer-treatment-a-new-standard-of-care-for-rising-psa-202312203001
chefjlu
in
Advanced Prostate Cancer
8 months ago
Amiodarone
Hi ive been diagnosed woth a.f for 5mths now and been put on bisoprolol small doses at 1st now on 7.5mg twice daily also amiodarone recently and this has now brought me out of a.f im wondering if anyone else is taking this drug and what side effects they have had as i have terrible headaches recently
Hi ive been diagnosed woth a.f for 5mths now and been put on bisoprolol small doses at 1st now on 7.5mg twice daily also amiodarone recently and this has now brought me out of a.f im wondering if anyone else is taking this drug and what side effects they have had as i have terrible headaches recently
Lambi
in
AF Association
1 year ago
Finally!
Back in July I had a response to a FOI, which I challenged. I sent out numerous emails to different NHS governing bodies. I met a brick wall. Today an email turned up out of the blue from my Health Board. It only took them five months. The complaint was that the blood testing for thyroid did not
Back in July I had a response to a FOI, which I challenged. I sent out numerous emails to different NHS governing bodies. I met a brick wall. Today an email turned up out of the blue from my Health Board. It only took them five months. The complaint was that the blood testing for thyroid did not
serenfach
in
Thyroid UK
8 months ago
Hormones and Aging: An Endocrine Society Scientific Statement" was presented at ENDO 2023
I haven't read it yet, but thought this looks interesting. A Medscape article titled 'A 'One-Stop Shop': New Guidance on Hormones and Aging' stated: 'A new statement from The Endocrine Society on hormones and aging highlights the differences between normal aging and disease, and when treatment is
I haven't read it yet, but thought this looks interesting. A Medscape article titled 'A 'One-Stop Shop': New Guidance on Hormones and Aging' stated: 'A new statement from The Endocrine Society on hormones and aging highlights the differences between normal aging and disease, and when treatment is
BB001
in
Thyroid UK
8 months ago
Drug fails in Phase II trial for treating Parkinson's Disease - Exenatide (Byetta, Bydureon)
Evidence suggest that microglia are relevant to Parkinson's disease pathogenesis, therefore the recent clinical trial warranted exploration of trying to attenuate pathogenic microglial function. They sought to test the safety and efficacy of NLY01—a brain penetrant, pegylated, longer-lasting version
Evidence suggest that microglia are relevant to Parkinson's disease pathogenesis, therefore the recent clinical trial warranted exploration of trying to attenuate pathogenic microglial function. They sought to test the safety and efficacy of NLY01—a brain penetrant, pegylated, longer-lasting version
Baron1
in
Cure Parkinson's
8 months ago
Start of SCT journey
Quick recap for those that haven't followed my previous posts. Diagnosed September 2022 with primary MF, no previous signs or symptoms before catching Covid in June 2022 and health deteriorating until GP visit at end of August 2022. After some RBC transfusions, blood tests and BMP I enrolled on FEDORA
Quick recap for those that haven't followed my previous posts. Diagnosed September 2022 with primary MF, no previous signs or symptoms before catching Covid in June 2022 and health deteriorating until GP visit at end of August 2022. After some RBC transfusions, blood tests and BMP I enrolled on FEDORA
Flyingsteamer
in
MPN Voice
8 months ago
Vitamin D: Secondary Analysis of the VITAL Randomized Clinical Trial (with a surprise!)
I don't know if this was previously posted (it's from 2020)...but it's fascinating. In their first analysis the researchers did not take into consideration...fat https://pubmed.ncbi.nlm.nih.gov/33206192/ Ah the secondary analysis was done by the same researchers from the original study!
I don't know if this was previously posted (it's from 2020)...but it's fascinating. In their first analysis the researchers did not take into consideration...fat https://pubmed.ncbi.nlm.nih.gov/33206192/ Ah the secondary analysis was done by the same researchers from the original study!
Maxone73
in
Advanced Prostate Cancer
8 months ago
Not about advanced PCa, but might be useful: curcumin and BPH
The nano-micellar curcumin improves International Prostate Symptoms Score (IPSS) in patients with benign prostatic hyperplasia: a randomized clinical trial https://pubmed.ncbi.nlm.nih.gov/37458774/
The nano-micellar curcumin improves International Prostate Symptoms Score (IPSS) in patients with benign prostatic hyperplasia: a randomized clinical trial https://pubmed.ncbi.nlm.nih.gov/37458774/
Maxone73
in
Advanced Prostate Cancer
8 months ago
hu CAR-T 19 IL-18 4th Generation Clinical Trial 90 Day Check-up With All of My Favorite Tests
It's been a long time since I have received a MRD negative diagnosis, 13 years to be exact, after my FCR treatment. All of the other treatments didn't require a BMB to confirm a negative reading, I had a few remissions, but they were just on paper. My blood counts were good, and I felt fine, but a relapse
It's been a long time since I have received a MRD negative diagnosis, 13 years to be exact, after my FCR treatment. All of the other treatments didn't require a BMB to confirm a negative reading, I had a few remissions, but they were just on paper. My blood counts were good, and I felt fine, but a relapse
steve5441
in
CLL Support
8 months ago
Sinus rhythm with supraventricular ectopy.
Last December my Kardia mobile saw AFIB when I was sitting on a plane coming back from Egypt. It is not the first time, in fact there have been dozens of times when I have seen it. I went to the GP and he sent the kardia output to the cardiologist. Several cardiologists disagreed about the kardia
Last December my Kardia mobile saw AFIB when I was sitting on a plane coming back from Egypt. It is not the first time, in fact there have been dozens of times when I have seen it. I went to the GP and he sent the kardia output to the cardiologist. Several cardiologists disagreed about the kardia
richard_jw
in
AF Association
1 year ago
Not about PCa, but worth checking...CRISPR in oncology phase 1-2
"A clinical trial to assess the safety and efficacy of genetically-engineered, neoantigen-specific Tumor Infiltrating Lymphocytes (TIL) in which the intracellular immune checkpoint CISH has been inhibited using CRISPR gene editing for the treatment of Gastro-Intestinal (GI) Cancer." https://www.clinicaltrials.gov
"A clinical trial to assess the safety and efficacy of genetically-engineered, neoantigen-specific Tumor Infiltrating Lymphocytes (TIL) in which the intracellular immune checkpoint CISH has been inhibited using CRISPR gene editing for the treatment of Gastro-Intestinal (GI) Cancer." https://www.clinicaltrials.gov
Maxone73
in
Advanced Prostate Cancer
8 months ago
Orchiectomy
Anyone in this foum had an actual Orchiectomy?I have been thinking about having this done. I'm 78 and I'm or hormone therapy which in chemical castration (Orchiectomy)so why not do the actual thing. I'm not going to have any more children at my age and I will probably be on hormone therapy for the next
Anyone in this foum had an actual Orchiectomy?I have been thinking about having this done. I'm 78 and I'm or hormone therapy which in chemical castration (Orchiectomy)so why not do the actual thing. I'm not going to have any more children at my age and I will probably be on hormone therapy for the next
woppaginny
in
Advanced Prostate Cancer
1 year ago
Cardiac Ablation Looks Successful!
I was diagnosed with Paroxysmal Afib in April of 2022. During my annual physical my PCP heard what he thought was a murmur, and called in a consult. After testing the afib was confirmed. I never noticed it, but started monitoring with a smartwatch and began to feel the episodes as they progressed. This
I was diagnosed with Paroxysmal Afib in April of 2022. During my annual physical my PCP heard what he thought was a murmur, and called in a consult. After testing the afib was confirmed. I never noticed it, but started monitoring with a smartwatch and began to feel the episodes as they progressed. This
Row2k
in
AF Association
1 year ago
Lightheaded after AF episode
I was diagnosed with Atrial Fibrillation in October 2021 and prescribed Edoxaban. Fortunately I have only been experiencing AF edisodes about once a month but when I do I find it very frightening. It’s probably the effect of passing so much urine but I find after the episode my blood pressure drops very
I was diagnosed with Atrial Fibrillation in October 2021 and prescribed Edoxaban. Fortunately I have only been experiencing AF edisodes about once a month but when I do I find it very frightening. It’s probably the effect of passing so much urine but I find after the episode my blood pressure drops very
Jomaur
in
Atrial Fibrillation Support
1 year ago
Wait or start docetaxel?
Currently taking Nubeqa and Orgovyx but PSA doubling time is only 7 weeks and PSMA scan shows activity in abdominal lymph nodes, 2 vertebrae and 2 ribs. MO suggested DORA Clinical trial (everyone gets docetaxel, half get radium) but the head of a trial I was previously in at NIH feels that unless a CT
Currently taking Nubeqa and Orgovyx but PSA doubling time is only 7 weeks and PSMA scan shows activity in abdominal lymph nodes, 2 vertebrae and 2 ribs. MO suggested DORA Clinical trial (everyone gets docetaxel, half get radium) but the head of a trial I was previously in at NIH feels that unless a CT
AllenMarco
in
Advanced Prostate Cancer
8 months ago
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