Search
Search
About
Log in
Join
Experiences with
Atrial myxoma
Posts
Communities
10,587 public posts
Filter results
Webinar:Do magnifying intraocular lenses work for people with macular disease?
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Carol_MacularSociety
Partner
in
Macular Society
4 months ago
Chemo or clinical trial?
Am scheduled for bone biopsy of met(s) from my hip tomorrow. Stopped Pluvicto after #3 due to rising PSA and progression. Hoping to get next gen. sequencing from biopsy sample and (maybe) functional testing. But, it's going to take some time to get results and I feel I can't wait. Pain has been getting
Am scheduled for bone biopsy of met(s) from my hip tomorrow. Stopped Pluvicto after #3 due to rising PSA and progression. Hoping to get next gen. sequencing from biopsy sample and (maybe) functional testing. But, it's going to take some time to get results and I feel I can't wait. Pain has been getting
rsgdmd
in
Advanced Prostate Cancer
4 months ago
Amiodarone
I had Cardioversion on 30th August. Heart went into sinus rhythm after third attempt but unfortunately slipped back into AF after just one day. I had a call from cardiac nurse this afternoon telling me the plan is to put me onto Amiodarone and then try another Cardioversion. I understand that the Amiodarone
I had Cardioversion on 30th August. Heart went into sinus rhythm after third attempt but unfortunately slipped back into AF after just one day. I had a call from cardiac nurse this afternoon telling me the plan is to put me onto Amiodarone and then try another Cardioversion. I understand that the Amiodarone
Sarn52
in
AF Association
10 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Alive, with thanks: update on nightmare
Thank you to everyone for replies. I'm still wading through them but trying to avoid spending time on the computer. I survived the weekend. Saturday night was so bad that the only thing that stopped me from ringing 999 overnight was the fear that I would be told there were no ambulances available. I
Thank you to everyone for replies. I'm still wading through them but trying to avoid spending time on the computer. I survived the weekend. Saturday night was so bad that the only thing that stopped me from ringing 999 overnight was the fear that I would be told there were no ambulances available. I
Redactrice
in
Atrial Fibrillation Support
10 months ago
Saxon clinical trial
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
58Willys
in
Advanced Prostate Cancer
4 months ago
The Importance of Peer-Review
Even renowned oncologists can fall in love with their data. It takes the impartial analysis of an outside expert to see the confirmation bias that may be blinding the lead investigator of a Phase 3 clinical trial. Although Phase 3 trials are Level 1 evidence, they still must be graded by outside experts
Even renowned oncologists can fall in love with their data. It takes the impartial analysis of an outside expert to see the confirmation bias that may be blinding the lead investigator of a Phase 3 clinical trial. Although Phase 3 trials are Level 1 evidence, they still must be graded by outside experts
Tall_Allen
in
Advanced Prostate Cancer
4 months ago
How long on Entresto
I would like to ask what’s the longest anyone on this post has been on Entresto. My cardiologist has patients who started on it back when the clinical trials began in 2015 and doing quite well.
I would like to ask what’s the longest anyone on this post has been on Entresto. My cardiologist has patients who started on it back when the clinical trials began in 2015 and doing quite well.
am1875
in
British Heart Foundation
4 months ago
Upcoming TTALC Workshop 3/23/24
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
4 months ago
Clinical Trial Starts Today
Morning folks, Sitting in clinic at Sarah Cannon Research Institute in Nashville getting my first dose of Phase 1 trial of a Xencor drug called XmAb808, which is an antibody that binds to tumor cells and immune cells called T cells. Baseline scans looked decent and all systems are go. Really blessed
Morning folks, Sitting in clinic at Sarah Cannon Research Institute in Nashville getting my first dose of Phase 1 trial of a Xencor drug called XmAb808, which is an antibody that binds to tumor cells and immune cells called T cells. Baseline scans looked decent and all systems are go. Really blessed
Pmann
in
Advanced Prostate Cancer
4 months ago
A different sort of vibrotactile device
Here is a picture of a different sort of vibrotactile device This one is intended for stroke victims. The article, https://www.medscape.com/viewarticle/promising-new-wearable-could-retrain-brain-after-stroke-2024a100044f?ecd=wnl_sci_tech_240306_MSCPEDIT_etid6355241&uac=415290AR&impID=6355241 says
Here is a picture of a different sort of vibrotactile device This one is intended for stroke victims. The article, https://www.medscape.com/viewarticle/promising-new-wearable-could-retrain-brain-after-stroke-2024a100044f?ecd=wnl_sci_tech_240306_MSCPEDIT_etid6355241&uac=415290AR&impID=6355241 says
Ctime
in
Cure Parkinson's
4 months ago
Longstanding Persistent AF
Hi All, I am new here, so bear with me!!...Diagnosed with AF 2 years ago ( HR 146, reduced to below 100 on treatment ) in A&E here in the UK. I was an active runner ( 5-10K races ) with a RHR of about 52. I am 68 , and I have hardly any symptoms. I had an ablation in the May ( this year ) which put
Hi All, I am new here, so bear with me!!...Diagnosed with AF 2 years ago ( HR 146, reduced to below 100 on treatment ) in A&E here in the UK. I was an active runner ( 5-10K races ) with a RHR of about 52. I am 68 , and I have hardly any symptoms. I had an ablation in the May ( this year ) which put
FSsimmer
in
AF Association
10 months ago
Way to slow /stop metastases
Dear Friends, This is hot of the press. One of the mechanism of metastatic spread is that tiny pieces of broken cancer cells circulate in blood ..they contain Cancer cell DNA and are called Chromatin pieces. These tiny pieces of chromatin enter into healthy cell and transform them into Cancer cells.
Dear Friends, This is hot of the press. One of the mechanism of metastatic spread is that tiny pieces of broken cancer cells circulate in blood ..they contain Cancer cell DNA and are called Chromatin pieces. These tiny pieces of chromatin enter into healthy cell and transform them into Cancer cells.
LearnAll
in
Advanced Prostate Cancer
4 months ago
rogue beats
I had a catheter ablation on Wednesday. Up till now, I was not really getting many problems with my heart, but since early this morning, I’ve had quite a lot of episodes of missing heartbeats, some go on longer than others and it feels like my heart is going to stop. The beat is not the same as the
I had a catheter ablation on Wednesday. Up till now, I was not really getting many problems with my heart, but since early this morning, I’ve had quite a lot of episodes of missing heartbeats, some go on longer than others and it feels like my heart is going to stop. The beat is not the same as the
Sixtychick
in
AF Association
10 months ago
KM819
Does anyone have any input on this clinical trial?
Does anyone have any input on this clinical trial?
staceysack
in
Cure Parkinson's
4 months ago
PSA REACHES 5,125 !!
Diagnosed seven years ago with metastatic prostate cancer (PSA 1,666). Got down to 0.9 with hormone (eligard) shots. PSA increased, even with eligard. Recently completed my fourth of five Pluvicto infusion treatments (last due in one week). Currently, my PSA is at 5,125. Looking for similar
Diagnosed seven years ago with metastatic prostate cancer (PSA 1,666). Got down to 0.9 with hormone (eligard) shots. PSA increased, even with eligard. Recently completed my fourth of five Pluvicto infusion treatments (last due in one week). Currently, my PSA is at 5,125. Looking for similar
fsiefert
in
Advanced Prostate Cancer
4 months ago
exciting clinical trial
My very long time (20 years!) MBC changed from E+ to triple negative a few months ago and yesterday I was looking on line for clinical trials for TNBC and found one that looks exciting to me, whether I qualify for it or not. It's sponsored by Lyell Immunopharma and targets CAR T cells. I have no idea
My very long time (20 years!) MBC changed from E+ to triple negative a few months ago and yesterday I was looking on line for clinical trials for TNBC and found one that looks exciting to me, whether I qualify for it or not. It's sponsored by Lyell Immunopharma and targets CAR T cells. I have no idea
PJBinMI
in
SHARE Metastatic Breast Cancer
4 months ago
3 Failed Ablations
Hi Everyone I was diagnosed with Paroxysmal Afib in September 2019, ( I wasn’t aware I had it as it the symptoms were vey mild) the Consultant recommended Bisoprolol but also put me on the waiting list for an Ablation, the Bisoprolol didn’t agree with me as I am a keen mountain biker and it was like
Hi Everyone I was diagnosed with Paroxysmal Afib in September 2019, ( I wasn’t aware I had it as it the symptoms were vey mild) the Consultant recommended Bisoprolol but also put me on the waiting list for an Ablation, the Bisoprolol didn’t agree with me as I am a keen mountain biker and it was like
Judepup
in
Atrial Fibrillation Support
10 months ago
Nightmare with(out) flecainide. Cannot get help from NHS.
This is a follow-up to a post I made earlier this week, trying to figure out whether to take a previously unused flecainide prescription as a PIP. I was diagnosed with lone paroxysmal AF 10+ years ago (I was not quite 50) but it has not been a regular problem -- I didn't need regular meds. Due to the
This is a follow-up to a post I made earlier this week, trying to figure out whether to take a previously unused flecainide prescription as a PIP. I was diagnosed with lone paroxysmal AF 10+ years ago (I was not quite 50) but it has not been a regular problem -- I didn't need regular meds. Due to the
Redactrice
in
Atrial Fibrillation Support
10 months ago
Nicotine Patch helps immensely.
For the last week, I’ve been wearing a 7mg nicotine patch with amazing results. Almost every night since I’ve slept through the night. My symptoms have improved, I have a much better sense of wellbeing. Nicotine has been known for years for its medicinal properties. Eggplant has the second most nicotine
For the last week, I’ve been wearing a 7mg nicotine patch with amazing results. Almost every night since I’ve slept through the night. My symptoms have improved, I have a much better sense of wellbeing. Nicotine has been known for years for its medicinal properties. Eggplant has the second most nicotine
38yroldmale
in
Cure Parkinson's
4 months ago
Going off Eliquis
I had persistent AFIB for many years until I had an ablation procedure in 2022. It was successful and I have not had an AFIB episode in over a year. I check my sinus rhythm every day with my Kardia Mobile device and I am on 100Mg Flecainide per day. I am a 72-year-old man and very physically fit. Because
I had persistent AFIB for many years until I had an ablation procedure in 2022. It was successful and I have not had an AFIB episode in over a year. I check my sinus rhythm every day with my Kardia Mobile device and I am on 100Mg Flecainide per day. I am a 72-year-old man and very physically fit. Because
kurtgv
in
AF Association
10 months ago
1
...
34
35
36
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Atrial Fibrillation Support
4167 results
Advanced Prostate Cancer
1388 results
CLL Support
679 results
View top 10 communities
Sort by
Most Relevant
Newest