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Experiences with
Atrial flutter
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Confused (like a lot of us!)
After an Afib episode when I ended up calling an ambulance, the cardio put me on Flecainide 2x50mg daily, without actually seeing me. It has worked (touch wood) and I no longer have Afib episodes. A friend who also discovered he had Afib was immediately sent for an ablation. My question is what makes
After an Afib episode when I ended up calling an ambulance, the cardio put me on Flecainide 2x50mg daily, without actually seeing me. It has worked (touch wood) and I no longer have Afib episodes. A friend who also discovered he had Afib was immediately sent for an ablation. My question is what makes
Montsauton
in
AF Association
2 years ago
Some HOPE for faster drug treatment approvals with "AI" (artificial intelligence)
"Developing life-saving medicine takes a lot of time, money and testing. But one company's artificial intelligence-driven technology provides a way to slash all three while saving the lives of more humans and animals." "VeriSIM Life has developed[i]
"digital twins" of various human body types
"Developing life-saving medicine takes a lot of time, money and testing. But one company's artificial intelligence-driven technology provides a way to slash all three while saving the lives of more humans and animals." "VeriSIM Life has developed[i]
"digital twins" of various human body types
PDWarrior1900
in
Cure Parkinson's
1 year ago
artistry 7 clinical trial
I will begin the artistry 7 trial in the next few weeks. Standard chemo has stopped working after. 4 reoccurrences , 7 different chemo/combos . Last Scan still showed progression but as low volume of disease. I only qualify for this one trial . Has anyone been on it and had success or what to expect
I will begin the artistry 7 trial in the next few weeks. Standard chemo has stopped working after. 4 reoccurrences , 7 different chemo/combos . Last Scan still showed progression but as low volume of disease. I only qualify for this one trial . Has anyone been on it and had success or what to expect
Lovetodiscodance57
in
My Ovacome
1 year ago
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clinical trial recommendations please
Good morning lovely ladies, I have just become platinum resistant and am meeting my onc later this morning to discuss scan results and possibly look at clinical trials. Does anyone know of a current trial for high grade serous plat. resistant? I have looked on line but it would be good to hear from
Good morning lovely ladies, I have just become platinum resistant and am meeting my onc later this morning to discuss scan results and possibly look at clinical trials. Does anyone know of a current trial for high grade serous plat. resistant? I have looked on line but it would be good to hear from
Riverflo
in
My Ovacome
1 year ago
PBCer with sudden Fatigue/Exhaustion
I am a 59 yo female in the US, stage 1-2 PBC. I was diagnosed in 2006 after invests. Into my horrible bout of heartburn. I’m in pretty good health and taking Urso. I’ve done clinical trials and tried additional meds thru the years as well, in doing so I was found to have Gilbert’s? syndrome where
I am a 59 yo female in the US, stage 1-2 PBC. I was diagnosed in 2006 after invests. Into my horrible bout of heartburn. I’m in pretty good health and taking Urso. I’ve done clinical trials and tried additional meds thru the years as well, in doing so I was found to have Gilbert’s? syndrome where
Joycie193
in
PBC Foundation
1 year ago
Phase 1 trial testing CAR T-cell therapy GC012F in SLE
Gracell Biotechnologies announced the launch of a Phase 1 clinical trial in China testing GC012F, its experimental dual FastCAR T-cell therapy, for hard-to-treat systemic lupus erythematosus (SLE). The investigator-initiated trial (NCT05846347), underway at The First Affiliated Hospital of the Zhejiang
Gracell Biotechnologies announced the launch of a Phase 1 clinical trial in China testing GC012F, its experimental dual FastCAR T-cell therapy, for hard-to-treat systemic lupus erythematosus (SLE). The investigator-initiated trial (NCT05846347), underway at The First Affiliated Hospital of the Zhejiang
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Dr. John Seymour on IgHV Mutational Status
IgHV is one of the biomarkers used to predict prognosis and how an individual with CLL/SLL will respond to different treatment options. Watch our interview with Dr. John Seymour to learn more about how recent clinical trials have changed our understanding of IgHV. https://youtu.be/354hNsHsSlc
IgHV is one of the biomarkers used to predict prognosis and how an individual with CLL/SLL will respond to different treatment options. Watch our interview with Dr. John Seymour to learn more about how recent clinical trials have changed our understanding of IgHV. https://youtu.be/354hNsHsSlc
Edalv
in
CLL Support
1 year ago
where I’m at and what docs suggest
hello all I have occasional episodes of AFib up to 5 days a couple of times a year but have been having more shorter episodes for a few seconds or minutes at times, very occasionally at night when sleeping on my stomach. So a change. I take apixaban. My life is normal other than tiredness probably
hello all I have occasional episodes of AFib up to 5 days a couple of times a year but have been having more shorter episodes for a few seconds or minutes at times, very occasionally at night when sleeping on my stomach. So a change. I take apixaban. My life is normal other than tiredness probably
FiveMilesSouth
in
Atrial Fibrillation Support
2 years ago
WHOOPS
I just spoke with my doctors nurse and it shows you can always learn new things and you can also mess things up. Lol. I hadn’t mentioned much about being a little bit nervous regarding my new pacemaker. The past two days my heart rate has been up. I am set for 80. I have noticed, and I know that my
I just spoke with my doctors nurse and it shows you can always learn new things and you can also mess things up. Lol. I hadn’t mentioned much about being a little bit nervous regarding my new pacemaker. The past two days my heart rate has been up. I am set for 80. I have noticed, and I know that my
DawnTX
in
Atrial Fibrillation Support
2 years ago
Please share your experiences with Provenge. What’s it like getting the injections and what are your results?
I’m stage four on Orgovyx and recently went castrate resistant with three small bone mets on my upper spine so we added Zytiga. I started the Eclipse clinical trial three weeks ago with PSA of 3.3 and am authorized for up to four treatments. My plan is to start Provenge after the trial is over. What
I’m stage four on Orgovyx and recently went castrate resistant with three small bone mets on my upper spine so we added Zytiga. I started the Eclipse clinical trial three weeks ago with PSA of 3.3 and am authorized for up to four treatments. My plan is to start Provenge after the trial is over. What
SViking
in
Advanced Prostate Cancer
1 year ago
Tanta Anna Updatw
I’m hoping you remember my past posts I’ve been on a series of meditation trials - is what I’ll call them After my four ablations last one from the highly recognized Dr Natalie., I’m having thus strange spikes from being in NSR and HR in the 70’s. to 120 and back continuing on and with the
I’m hoping you remember my past posts I’ve been on a series of meditation trials - is what I’ll call them After my four ablations last one from the highly recognized Dr Natalie., I’m having thus strange spikes from being in NSR and HR in the 70’s. to 120 and back continuing on and with the
Tantaanna
in
AF Association
2 years ago
edoxaban and hip replacement.
GP has arranged an echo (fine apparently) and a 24 hour monitor (NSR throughout) 24 hour BP (fine on the low side but I’d expect/hope for that on Bisoprolol) and I’ve also had a few 12 lead ECGs at the GP - one apparently showed asymptomatic
atrial
flutter
which I was told ‘was nothing’ , the rest were
GP has arranged an echo (fine apparently) and a 24 hour monitor (NSR throughout) 24 hour BP (fine on the low side but I’d expect/hope for that on Bisoprolol) and I’ve also had a few 12 lead ECGs at the GP - one apparently showed asymptomatic
atrial
flutter
which I was told ‘was nothing’ , the rest were
TickityBoo
in
AF Association
2 years ago
Atrial Tachycardia ablation coming up
I’m going in once again for another ablation. The 3rd one finally finished off the afib. But they couldn’t trigger the atrial tachycardia. Since it’s become even more frequent since the last ablation, I decided to give it another go. Dreading it even more than normal since our local hospital has stopped
I’m going in once again for another ablation. The 3rd one finally finished off the afib. But they couldn’t trigger the atrial tachycardia. Since it’s become even more frequent since the last ablation, I decided to give it another go. Dreading it even more than normal since our local hospital has stopped
lovetogarden
in
Atrial Fibrillation Support
2 years ago
Rusfertide...
I haven't come across any dialog about this drug on this website. It popped up on my many searches for additional info about treatment for Polycythemia Vera. It is currently in phase 2 of a clinical trial at Stanford University and so far, results with patients have been good. It sounds like
I haven't come across any dialog about this drug on this website. It popped up on my many searches for additional info about treatment for Polycythemia Vera. It is currently in phase 2 of a clinical trial at Stanford University and so far, results with patients have been good. It sounds like
K-itty
in
MPN Voice
1 year ago
Celebrating International Clinical Trials Day.
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
Richard-Allen
in
British Liver Trust
1 year ago
Prophylactics
Hi I have been on Acalabrutinib for two weeks now along with prophylactics, one being Co trimoxazole , which I seemed to react to. I have now been offered Pentamidine, which I have read up on and don’t like the sound of plus it does not sound as if it protects as well. Is anyone else on these drugs
Hi I have been on Acalabrutinib for two weeks now along with prophylactics, one being Co trimoxazole , which I seemed to react to. I have now been offered Pentamidine, which I have read up on and don’t like the sound of plus it does not sound as if it protects as well. Is anyone else on these drugs
Sunshine2422
in
CLL Support
2 years ago
Digoxin vs Pace & Ablate?
As some already know I’ve had a hard recovery since ablation on 23/11/22. HR was on the rise again slowly from then and the severe respiratory episode went on & on. Just coming to the end of what I think is maybe the 5th antibiotic course! I’ve now been on digoxin 125mcg since 28/2/22 and following
As some already know I’ve had a hard recovery since ablation on 23/11/22. HR was on the rise again slowly from then and the severe respiratory episode went on & on. Just coming to the end of what I think is maybe the 5th antibiotic course! I’ve now been on digoxin 125mcg since 28/2/22 and following
Afibflipper
in
AF Association
2 years ago
Estetrol for bone density? What estrogen test so I need, anything specific?
Found this interesting article on estetrol and wondering if anyone out there has taken this form of estrogen? I see a lot of posts relating to estradiol patches but the E4 estrogen form appears to be much better at least on first look. The clinical trials were done in the Netherlands so it may be something
Found this interesting article on estetrol and wondering if anyone out there has taken this form of estrogen? I see a lot of posts relating to estradiol patches but the E4 estrogen form appears to be much better at least on first look. The clinical trials were done in the Netherlands so it may be something
watertender
in
Advanced Prostate Cancer
1 year ago
Post cardioversion monitoring
Had cardioversion for
atrial
flutter
yesterday. Looks like it worked. Was easy. I just have an arm bp monitor at home, other than checking my heartbeat rate how can I know if the cardioversion is holding other than symptoms which are not so obvious for me unless I exercise.
Had cardioversion for
atrial
flutter
yesterday. Looks like it worked. Was easy. I just have an arm bp monitor at home, other than checking my heartbeat rate how can I know if the cardioversion is holding other than symptoms which are not so obvious for me unless I exercise.
Hydroplane
in
AF Association
2 years ago
Lung Cancer Research
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
YourHealthCompanion
in
The Roy Castle Lung Cancer Foundation
1 year ago
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