16 years later

[Katmal-UK]

On 11th October 2007 I was diagnosed 3b OC HGS BRAC2 and told by at least 3 ppl I had a ‘couple of years’. Obv still here, despite 2 recurrences, 3 clinical trials (still on the third) and currently 10 years 2 months NED. Never give up, don’t write yourself off when others do. Find a Consultant who will fight for you. Be your own advocate. Live life to the full! Love to all the ladies fighting xx Kathy xx

[PPSCENE]

love this post and positive posts !! Fab fab and fab! Stay this way always xxxxx

[Newbery3]

I ABSOLUTELY LOVE THIS POST❤️🩷🧡💛💚💙🩵💜 you're an inspiration to all on here and on Facebook lynpraza group 🥰 long may your journey continue xx

[Emsymits]

Oh it is SO good to hear you are still doing well. I often think of you and wonder how you are. Are you still on the Olaparib?

[Katmal-UK in reply to Emsymits]

Yes, still on Olaparib, nearly 10 years now. I’ve been asked if I want to stop but feel so good so would rather stay on it. I see you are going through a mastectomy, you are braver that I! I hope you are doing ok x

[Dubai18]

Hi Katmal, I'm so pleased for you. You are right, never right yourself off, and everyone is individual in their journey. May you continue in your good health for many more years. 🙏🏽 😊

[Katmal-UK in reply to Dubai18]

Than you, I wish you all the best x

[Frenchhouse3]

Hi Kathy,

Thank you for your wonderful, uplifting post!

I remember reading about your journey when I came to this site around four years ago and it gave me hope and inspiration! I’m now almost 4 years NED and I took Olaparib for two years. I do believe this drug made a huge difference.

Here’s to many more years and that all the ladies on here, wherever they are in their journeys to live lives as long and full as possible.

Best wishes

Denise xxxxx

[Katmal-UK in reply to Frenchhouse3]

So pleased to see you are doing well. I really do think Olaparib has made a huge difference, I’m still trialling it. I wish you all the best going forward x

[Doglover1410]

I love this….my un-met role model 💕 xx

[Lyndy]

Amazing as always Kathy ❤️

[JayGeeCee]

Fantastic news Kathy. So important to share the positive news.

Currently 5 years NED (stage 4b) and been discharged by oncologist.

Onwards and upwards 🥰

Joy

[Katmal-UK in reply to JayGeeCee]

So pleased to see you are doing so well, long may that continue xx

[March2017 in reply to JayGeeCee]

Amazing congratulations 👏

[Lymbrae]

You are truly an inspiration Kathy. I hold the record at my hospital for the longest time on Olaparib (3.5 years) but am not in your league! Your story and positivity keep me going.

[Katmal-UK in reply to Lymbrae]

I hope you are finding being on Olaparib easy to tolerate. Best wishes going forward xx

[0462County]

Brilliant news. You give me so much hope xx.

[Katmal-UK in reply to 0462County]

Thank you xx

[Beauxbelle]

I was so heartened to read your post - can only say, well done to you

[Katmal-UK in reply to Beauxbelle]

Thank you !

[Katmal-UK in reply to Beauxbelle]

Thank you !

[Rosiemd]

You are such an inspiration to us all Kathy. I was diagnosed in 2016 with OC stage 3b. I had a recurrence in 2019 and after more chemo started on olaparib early 2020. So far all good- no side effects and lead an active life. X

[Katmal-UK in reply to Rosiemd]

Good to hear ad long may that continue! X

[Halo2O14]

I love these posts because it gives us newbies hope. Thank you for your lovely update ❤️

[Katmal-UK]

Obv I was a newbie once and never thought I’d be where I am today. I think it’s important to show there is always hope xx

[Caleda4]

Well done Katmal,always great to read your positive posts.x

[Pixiepurple]

Hi Kathy, I so so love this post. Only diagnosed in June'23. This post has given me so much hope. You are an inspiration. THANK YOU 🥰🥰

[Katmal-UK in reply to Pixiepurple]

I recall those early weeks and months, I didn’t believeI would be here 16 years on but I think that’s cos we here those that sadly don’t make it but rarely those long term survivors as they are out there living life. That’s prob my biggest message, live life x Kathy x

[Pixiepurple in reply to Katmal-UK]

Thank you so much. At the moment things are still very scary, you have made my year xx

[Bettyxxx]

Hi Kathy

Fantastic news xx coming up to 10 years for me in Jan so a way to catch you up! Xxx

Congrats and long may it continue

Diane

Xx

[Katmal-UK in reply to Bettyxxx]

Oh wow 10 years is great! Let’s keep this going ! X

[Pixiepurple in reply to Katmal-UK]

This is just so amazing. Thank you

[Lind58]

love this ♥️♥️♥️

[LochLevenLass]

Fantastic news, Kathy!

Reading your posts was such a boost to me when I was newly diagnosed (& very scared) in 2019.

Have often wondered how you were doing & so glad to hear that you’re still doing so well. Long may it continue xx

[Lovetheoutdoors]

Hoping for everything good for you. People said negative things to me when I was diagnosed with breast cancer. I had a mastectomy and have been lop-sided since. No great deal for me. I'm still here and enjoying every day 35 years later. Take care. Love the ones you like and like the ones you love x

[Wirralian]

Such good news to hear this. I too am a 3b and just started Niroparib about 4 months ago when you read the stats and the research papers the odds don’t look good for us do they? So it is great to hear from those of us are bucking the trend. Long may it continue for you and all of us. Can I ask which health authority you’re in and do you have regular scans? All the very best to you and yours. ❤️

[Tealgirl7 in reply to Wirralian]

Just remember you can be the one. I was diagnosed stage 4 HGSC 17 years ago. I am now taking Zejula. I have been taking it for almost a year and a half. They have added Avastin to it. I have only had two treatments with that but my CA 125 has dropped. I will know better after my next treatment and a CT scan. Enjoy every day

[Goodgirl98]

hi Kathy, you had given me so much hope when I first joined the forum. Only 2 years into my journey but always wonderful to hear positive stories. I believe every little bit of positivity helps. You are truly an inspiration and so thankful for answering to so many of our posts. Your responses to my questions on side effects, olaparib (should I be military like in taking it at the right time), diet control (can I have some wine 😃) etc were so helpful. I just want you to know you are making a difference to our lives ❤️👍🏻🧿

[Towergirl]

brilliant news, 10 years NED gives us all hope. Good news is so welcome congrats and Thank you ❤️

[mrstadpole]

Amazinig results. You are a true inspiration to many. I am BRCA2 and have been on Olaparib 3 years. I hope I can follow XX

[bananayo]

Wow that’s amazing! So pleased ladies like you stay on this site to share your story, truly inspirational ❤️x

[SopSinger]

Congratulations! 17.5 years for me, stage Ic ovarian with a side of endometrial. NED ever since! Sending hugs!

[Norelo8]

Hi Kathy , it’s stories like yours which keep us going during our lowest moments .

Thank you so much for posting

Karen 😘

[Katmal-UK in reply to Norelo8]

I sometimes feel maybe those going thru tough times don’t want to read others doing well but then the other part of me wants to give hope to show what can be achieved and that there are ladies out there doing well. I hope you are doing ok xx

[Havidog]

You literally just made my day!! I was IIIB at diagnosis as well and just finished chemo for my first recurrence. Continued prayers for us all. Thank you for posting this!! ❤️❤️❤️

[Katmal-UK in reply to Havidog]

At the time I found my first recurrence really scary after being NED for 4.5 years but it goes to show what is possible with new treatments coming along all the time. I wish you well going forward xx

[Havidog in reply to Katmal-UK]

I was NED for about 2 1/2 years and was terrified to have it recur. My Dr is wonderfully honest and has already said it likes to recur twice but we'll keep working to get ahead of it. Have a blessed day

[Havidog in reply to Katmal-UK]

You too ❤️

[Saintgermain]

Your an inspiration to all of us we have to be our own advocate.

[camichdon]

God bless you Katmal! God is good! It's been 11 years for me!

[Katmal-UK in reply to camichdon]

Oh that’s brilliant, see there are ladies out there living their best lives even with such a diagnosis x I wish you well going forward xx

[Katmal-UK]

Yes, I fully understand those that have moved on and I may well have done if I wasn’t still in a clinical trial (my choice).

[Tulips66]

Hi Kathy, thank you for this positive & encouraging post. I am sure you are so grateful that you didn't listen to those people that said you hadn't long left & you have got to wake up to a bright new day ever since. I am sure alot of it is down to you, because from reading your posts since I joined in 2019, you always seem to look on the bright side & have been on here helping several other women who had lost all hope of getting through this difficult journey. You are an inspiration to me & I am thankful too that I am still here myself, nearly 5 yrs on & all is stable at the moment. I wish you many more years of great health X Mag

[Katmal-UK in reply to Tulips66]

Hi Mag, so lovely to see you are 5 years on and doing well, long may that continue! Xx

[Heart12345]

Wonderful post Kathy, very uplifting and inspiring thank you 🤗. Congratulations on your fighting mentality, love life and enjoy it and here’s to many more 🥰🎉

[Katmal-UK in reply to Heart12345]

Than k you xx

[Trickysite]

To all our WonderWomen Longterm Survivors, It is so important to keep on posting good news stories and I am so grateful to you for giving us hope. I am BRCA 2 and 2 years NED after 4b diagnosis and 2 years on Olaparib (post the big op and carbotaxol before that, of course). Not sure whether I will be allowed to continue Olaparib but good to hear doctor recently call Olaparib a "game changer" and say "you've got years to live". At 77, and having had breast cancer 20 years ago, all I can say is Thank God for the NHS.

[Katmal-UK in reply to Trickysite]

Olaparib is certainly a game changer and it’s so good to see you are doing so well! Xx

[Mariej2021]

Thank you so much for posting about your journey and being so helpful encouraging and inspirational to others xx

[Melody6]

Brilliant news, Kathy - really happy for you. May it long continue 🙏❤️. Mel

[Sherrym]

Thank u do much for that -u are fab! X

[Petrolhead]

Brilliant. Always love your posts. Staying on the forum and helping and inspiring others.

Fay

[MrsSkippy]

Delighted to read your news! This gives hope to everyone. Long may your good health continue.

[Uniquem]

I'm so happy for you, Kathy! And delighted to read your amazing story. Thank you so much for sharing that, it is so encouraging to read good news. I remember when my mother was diagnosed with 4A HGS in 2019, your posts gave my family so much hope. She's currently with stable disease, btw, and approaching her 3 years on Olaparib.

Here's to many more years! ❤️

Milena

[Katmal-UK]

Brilliant news on your mum, long may that continue!