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Weighing the pros and possible risks of treatment holiday.
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
Decktime
in
Advanced Prostate Cancer
3 months ago
Heart Ablation vs Just Continuing Medications
Hi! I am struggling with making a decision to follow thru with my scheduled Heart Ablation procedure, or just continue my current medications that I have been on for almost 3 years. I am currently taking Diltiazem, Eliquis, and Flecainide, and have not had an espisode since I started the Flecainide
Hi! I am struggling with making a decision to follow thru with my scheduled Heart Ablation procedure, or just continue my current medications that I have been on for almost 3 years. I am currently taking Diltiazem, Eliquis, and Flecainide, and have not had an espisode since I started the Flecainide
Vinoandpasta
in
AF Association
10 months ago
Webinar:Do magnifying intraocular lenses work for people with macular disease?
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Carol_MacularSociety
Partner
in
Macular Society
3 months ago
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Chemo or clinical trial?
Am scheduled for bone biopsy of met(s) from my hip tomorrow. Stopped Pluvicto after #3 due to rising PSA and progression. Hoping to get next gen. sequencing from biopsy sample and (maybe) functional testing. But, it's going to take some time to get results and I feel I can't wait. Pain has been getting
Am scheduled for bone biopsy of met(s) from my hip tomorrow. Stopped Pluvicto after #3 due to rising PSA and progression. Hoping to get next gen. sequencing from biopsy sample and (maybe) functional testing. But, it's going to take some time to get results and I feel I can't wait. Pain has been getting
rsgdmd
in
Advanced Prostate Cancer
3 months ago
Is it the Medication or am I Losing it?
Do you do daft things? This morning I picked up my toothbrush and instead of putting toothpaste on it picked up a tube of face wash cream and spread that on my toothbrush, as soon as the brush went in my mouth I knew what I'd done. Last week I took a carton of orange juice out of the fridge and poured
Do you do daft things? This morning I picked up my toothbrush and instead of putting toothpaste on it picked up a tube of face wash cream and spread that on my toothbrush, as soon as the brush went in my mouth I knew what I'd done. Last week I took a carton of orange juice out of the fridge and poured
jeanjeannie50
in
Atrial Fibrillation Support
10 months ago
Saxon clinical trial
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
58Willys
in
Advanced Prostate Cancer
4 months ago
The Importance of Peer-Review
Even renowned oncologists can fall in love with their data. It takes the impartial analysis of an outside expert to see the confirmation bias that may be blinding the lead investigator of a Phase 3 clinical trial. Although Phase 3 trials are Level 1 evidence, they still must be graded by outside experts
Even renowned oncologists can fall in love with their data. It takes the impartial analysis of an outside expert to see the confirmation bias that may be blinding the lead investigator of a Phase 3 clinical trial. Although Phase 3 trials are Level 1 evidence, they still must be graded by outside experts
Tall_Allen
in
Advanced Prostate Cancer
4 months ago
How long on Entresto
I would like to ask what’s the longest anyone on this post has been on Entresto. My cardiologist has patients who started on it back when the clinical trials began in 2015 and doing quite well.
I would like to ask what’s the longest anyone on this post has been on Entresto. My cardiologist has patients who started on it back when the clinical trials began in 2015 and doing quite well.
am1875
in
British Heart Foundation
4 months ago
Upcoming TTALC Workshop 3/23/24
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
4 months ago
Clinical Trial Starts Today
Morning folks, Sitting in clinic at Sarah Cannon Research Institute in Nashville getting my first dose of Phase 1 trial of a Xencor drug called XmAb808, which is an antibody that binds to tumor cells and immune cells called T cells. Baseline scans looked decent and all systems are go. Really blessed
Morning folks, Sitting in clinic at Sarah Cannon Research Institute in Nashville getting my first dose of Phase 1 trial of a Xencor drug called XmAb808, which is an antibody that binds to tumor cells and immune cells called T cells. Baseline scans looked decent and all systems are go. Really blessed
Pmann
in
Advanced Prostate Cancer
4 months ago
Digoxin, upset stomach
My husband has been on digoxin for three weeks and has had to come off them for 7 days to see if that’s what has been causing lots of unwanted trips to the toilet for last two weeks . They have upped his bisoprolol from 7.25 to 10mg a day to see if they can eliminate the cause for 7days . I’m worried
My husband has been on digoxin for three weeks and has had to come off them for 7 days to see if that’s what has been causing lots of unwanted trips to the toilet for last two weeks . They have upped his bisoprolol from 7.25 to 10mg a day to see if they can eliminate the cause for 7days . I’m worried
Jackiesmith7777
in
AF Association
10 months ago
A different sort of vibrotactile device
Here is a picture of a different sort of vibrotactile device This one is intended for stroke victims. The article, https://www.medscape.com/viewarticle/promising-new-wearable-could-retrain-brain-after-stroke-2024a100044f?ecd=wnl_sci_tech_240306_MSCPEDIT_etid6355241&uac=415290AR&impID=6355241 says
Here is a picture of a different sort of vibrotactile device This one is intended for stroke victims. The article, https://www.medscape.com/viewarticle/promising-new-wearable-could-retrain-brain-after-stroke-2024a100044f?ecd=wnl_sci_tech_240306_MSCPEDIT_etid6355241&uac=415290AR&impID=6355241 says
Ctime
in
Cure Parkinson's
4 months ago
Holiday,abroad one month after AF ablation.
My partner who has PAF,is having an ablation four weeks before we go on holiday to Egypt . This will be a relaxing holiday.We have taken out the required travel insurance and Linda will be taking it easy after the ablation . The trip is only for a week,we will make sure we take all medications with
My partner who has PAF,is having an ablation four weeks before we go on holiday to Egypt . This will be a relaxing holiday.We have taken out the required travel insurance and Linda will be taking it easy after the ablation . The trip is only for a week,we will make sure we take all medications with
Elephantlydia
in
AF Association
10 months ago
Way to slow /stop metastases
Dear Friends, This is hot of the press. One of the mechanism of metastatic spread is that tiny pieces of broken cancer cells circulate in blood ..they contain Cancer cell DNA and are called Chromatin pieces. These tiny pieces of chromatin enter into healthy cell and transform them into Cancer cells.
Dear Friends, This is hot of the press. One of the mechanism of metastatic spread is that tiny pieces of broken cancer cells circulate in blood ..they contain Cancer cell DNA and are called Chromatin pieces. These tiny pieces of chromatin enter into healthy cell and transform them into Cancer cells.
LearnAll
in
Advanced Prostate Cancer
4 months ago
KM819
Does anyone have any input on this clinical trial?
Does anyone have any input on this clinical trial?
staceysack
in
Cure Parkinson's
4 months ago
PSA REACHES 5,125 !!
Diagnosed seven years ago with metastatic prostate cancer (PSA 1,666). Got down to 0.9 with hormone (eligard) shots. PSA increased, even with eligard. Recently completed my fourth of five Pluvicto infusion treatments (last due in one week). Currently, my PSA is at 5,125. Looking for similar
Diagnosed seven years ago with metastatic prostate cancer (PSA 1,666). Got down to 0.9 with hormone (eligard) shots. PSA increased, even with eligard. Recently completed my fourth of five Pluvicto infusion treatments (last due in one week). Currently, my PSA is at 5,125. Looking for similar
fsiefert
in
Advanced Prostate Cancer
4 months ago
Vivid dreams and disturbed sleep
I dread going to bed! I used to be such a good sleeper but since taking Sotalol I have suffered.Does anyone in this group who take Sotalol get the same problems? Often the dreams are so vivid and weird they wake me with my heart pounding and then I have to decide if it's triggered my afib. I must say
I dread going to bed! I used to be such a good sleeper but since taking Sotalol I have suffered.Does anyone in this group who take Sotalol get the same problems? Often the dreams are so vivid and weird they wake me with my heart pounding and then I have to decide if it's triggered my afib. I must say
Karendeena
in
AF Association
10 months ago
Visual disturbances after ablation
1 week post op and everyday I have had vision issues... blurriness, auras, tunnel vision. It happened while I was in the hospital still and they ruled out stroke, but the issue has persisted. Wondering if anyone else has experienced vision issues after an ablation and can provide some insight Thanks!
1 week post op and everyday I have had vision issues... blurriness, auras, tunnel vision. It happened while I was in the hospital still and they ruled out stroke, but the issue has persisted. Wondering if anyone else has experienced vision issues after an ablation and can provide some insight Thanks!
CanadianAfiber
in
AF Association
10 months ago
exciting clinical trial
My very long time (20 years!) MBC changed from E+ to triple negative a few months ago and yesterday I was looking on line for clinical trials for TNBC and found one that looks exciting to me, whether I qualify for it or not. It's sponsored by Lyell Immunopharma and targets CAR T cells. I have no idea
My very long time (20 years!) MBC changed from E+ to triple negative a few months ago and yesterday I was looking on line for clinical trials for TNBC and found one that looks exciting to me, whether I qualify for it or not. It's sponsored by Lyell Immunopharma and targets CAR T cells. I have no idea
PJBinMI
in
SHARE Metastatic Breast Cancer
4 months ago
Pacemaker
Good morning so for months I have had feelings of fainting and hardly left my home. Anyway I finally had ecg echocardigram and R test. Saw my cardiologist yesterday and he said that I am now bracycardic as well as having Af so will need a pace maker. Bit of a shock. Also to immediately cut my propanalol
Good morning so for months I have had feelings of fainting and hardly left my home. Anyway I finally had ecg echocardigram and R test. Saw my cardiologist yesterday and he said that I am now bracycardic as well as having Af so will need a pace maker. Bit of a shock. Also to immediately cut my propanalol
CHRISAF18
in
AF Association
10 months ago
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