Search
Search
About
Log in
Join
Experiences with
Arthropathy
Posts
Communities
74 public posts
Filter results
Hi there here comes that petition again for those in the UK
I have SLE lupus, (finally diagnosed at age 47), despite clinical symptoms since teenage years, I also have psoriatic
arthropathy
, sjogrens, hughes syndrome and also hypothyroidism, My children also have problems.
I have SLE lupus, (finally diagnosed at age 47), despite clinical symptoms since teenage years, I also have psoriatic
arthropathy
, sjogrens, hughes syndrome and also hypothyroidism, My children also have problems.
MaryF
in
The Australian Sjögren's Syndrome Association
12 years ago
Hughes Syndrome - Learning and support through information sharing
As a family, tinged with 'Hughes Syndrome' including my young children, and also with two other diseases - psoriatic
arthropathy
and sjogroens on board, to have another avenue of awareness/support etc will hopefully also bring about some very overdue modern change in the arena of patient/GP/consultant
As a family, tinged with 'Hughes Syndrome' including my young children, and also with two other diseases - psoriatic
arthropathy
and sjogroens on board, to have another avenue of awareness/support etc will hopefully also bring about some very overdue modern change in the arena of patient/GP/consultant
MaryF
Administrator
in
Hughes Syndrome APS Forum
13 years ago
Goodness me, I may have 'stage fright'
Fast foward again, with my lovely completed family, my health is poor, I have psoriatic
arthropathy
and sjgroens as well, I take my asprin daily, I do my physio and follow and uplifting life with a good sensible diet, however I have worsening migraines and brain fog and frequently get laid up.
Fast foward again, with my lovely completed family, my health is poor, I have psoriatic
arthropathy
and sjgroens as well, I take my asprin daily, I do my physio and follow and uplifting life with a good sensible diet, however I have worsening migraines and brain fog and frequently get laid up.
MaryF
Administrator
in
Hughes Syndrome APS Forum
13 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
How can you receive adequate care, if all avenues are blocked!?
Having moved out of London ten year's ago, two illnesses diagnosed, after the birth of my youngest child, (sjgroens and psoriatic
arthropathy
),however despite having had DVT's 22 year's ago, no diagnosis for Hughes, until recently, due to being 'seronegative'.
Having moved out of London ten year's ago, two illnesses diagnosed, after the birth of my youngest child, (sjgroens and psoriatic
arthropathy
),however despite having had DVT's 22 year's ago, no diagnosis for Hughes, until recently, due to being 'seronegative'.
MaryF
Administrator
in
Hughes Syndrome APS Forum
13 years ago
An updated version of 'my original story blog' - Goodness me I think I may have stage fright etc!
My daughter is beginning to pick up on plaquenil... her up to 12 funny turns a day now down to two or three plus a dampening down of other things.. a drug which is out of reach for me due to my psoriatic
arthropathy
. Here is to a bright spring. Mary F x
My daughter is beginning to pick up on plaquenil... her up to 12 funny turns a day now down to two or three plus a dampening down of other things.. a drug which is out of reach for me due to my psoriatic
arthropathy
. Here is to a bright spring. Mary F x
MaryF
Administrator
in
Hughes Syndrome APS Forum
12 years ago
Fatigue and overlapping conditions
My delights are Hughes, psoriatic
arthropathy
, sjgroens, hypothyroidism and adrenal fuss! I am currently working with a well known practitioner to sort this side of things out, (the hypothyroidism/adrenals) So far, some very practical help and some realistic progress.
My delights are Hughes, psoriatic
arthropathy
, sjgroens, hypothyroidism and adrenal fuss! I am currently working with a well known practitioner to sort this side of things out, (the hypothyroidism/adrenals) So far, some very practical help and some realistic progress.
MaryF
Administrator
in
Hughes Syndrome APS Forum
13 years ago
going to GP tomorrow - question about insomnia
My insomnia is off the scale for Lupus, psoriatic
arthropathy
, hughes syndrome, sjgroens and hypothyrodism. So.... have read that sometimes a muscle relaxant is prescribed for sleep. Any ideas, I do have the name of one...
My insomnia is off the scale for Lupus, psoriatic
arthropathy
, hughes syndrome, sjgroens and hypothyrodism. So.... have read that sometimes a muscle relaxant is prescribed for sleep. Any ideas, I do have the name of one...
MaryF
in
LUPUS UK
13 years ago
A very good news blog!
I have psoriatic
arthropathy
, psoriarsis and hughes and sjgroens. So things are gradually being repaired... stress and rubbish that our family should not have been exposed to... due to a neglectful attitude by the those earning huge non medical salaries.
I have psoriatic
arthropathy
, psoriarsis and hughes and sjgroens. So things are gradually being repaired... stress and rubbish that our family should not have been exposed to... due to a neglectful attitude by the those earning huge non medical salaries.
MaryF
Administrator
in
Hughes Syndrome APS Forum
13 years ago
Progress aided and abetted with acid humour
These two things new things - the hypothyroid/adrenal.. very long running as I had spectacular test results). which i have probably had for years, not picked up by anybody, (the story of my life), this included the sjgroens for years and the psoriatic
arthropathy
, have driven everything else mad and
These two things new things - the hypothyroid/adrenal.. very long running as I had spectacular test results). which i have probably had for years, not picked up by anybody, (the story of my life), this included the sjgroens for years and the psoriatic
arthropathy
, have driven everything else mad and
MaryF
Administrator
in
Hughes Syndrome APS Forum
13 years ago
Being given the run around with diagnosis and other gripes
St Thomas' told years back I have psoriatic
arthropathy
, St Thomas, told I have sjogroens, years back.... finally at London Bridge told I have Hughes. Hypothyrodism, diagnosed very accurately with detailed tests by Dr Barry Durrant Peatfield, at his clinic in Surrey.
St Thomas' told years back I have psoriatic
arthropathy
, St Thomas, told I have sjogroens, years back.... finally at London Bridge told I have Hughes. Hypothyrodism, diagnosed very accurately with detailed tests by Dr Barry Durrant Peatfield, at his clinic in Surrey.
MaryF
Administrator
in
Hughes Syndrome APS Forum
13 years ago
The difficulties for families with autoimmune profiles.
My own profile, Hughes Syndrome, Psoriatic
Arthropathy
, Sgrogrens, Lupus and Hypothyroidism. St Thomas' did a test for APS... however as right professor said, if I test negative and do despite my dangerous past clinical incidents... then my children probably will. Her test result showed nothing.
My own profile, Hughes Syndrome, Psoriatic
Arthropathy
, Sgrogrens, Lupus and Hypothyroidism. St Thomas' did a test for APS... however as right professor said, if I test negative and do despite my dangerous past clinical incidents... then my children probably will. Her test result showed nothing.
MaryF
Administrator
in
Hughes Syndrome APS Forum
13 years ago
puzzled by these pains
I have psoratic
arthropathy
, and also suffer with muscle spasms in the middle of my back. I'm on methotrexate and diclofenac as well as paracetamol and tramadol.
I have psoratic
arthropathy
, and also suffer with muscle spasms in the middle of my back. I'm on methotrexate and diclofenac as well as paracetamol and tramadol.
Christine67
in
NRAS
13 years ago
What does this mean ????
she said that i should have some more blood tests ,ive just looked at the sheet that i have to give the nurse at my docs , and it says clinical details, fibromyalgia, low grade inflammatory
arthropathy
anti ccp & rheum factor negative test items ; L ,UE,FBC,CRP,ESR, you lot
she said that i should have some more blood tests ,ive just looked at the sheet that i have to give the nurse at my docs , and it says clinical details, fibromyalgia, low grade inflammatory
arthropathy
anti ccp & rheum factor negative test items ; L ,UE,FBC,CRP,ESR, you lot
lynz
in
Fibromyalgia Action UK
13 years ago
Why does my Rheumy seem reluctant to diagonis RA
I have had X-Rays on my fingers & knees that shpw OA but Xrays Rhuemy did of both hands and feet which do not show any inflammatory
arthropathy
. So why am i in so much pain & diiscomfort?
I have had X-Rays on my fingers & knees that shpw OA but Xrays Rhuemy did of both hands and feet which do not show any inflammatory
arthropathy
. So why am i in so much pain & diiscomfort?
Jazz69
in
NRAS
12 years ago
1
...
3
4
Filter results
Clear filters
Posted in
All communities
NRAS
14 results
Hughes Syndrome APS Forum
11 results
LUPUS UK
8 results
View top 10 communities
Sort by
Most Relevant
Newest