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Generic TCZ---is it available in the UK?
My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when I thought I was sinking. It has always made me sad that TCZ is only available to GCA patients for one year, subject to review for an additional
My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when I thought I was sinking. It has always made me sad that TCZ is only available to GCA patients for one year, subject to review for an additional
Grammy80
in
PMRGCAuk
7 days ago
? Psoriasis on face
I have Psoaratic Arthritis and have been battling dry red scaly patches on my face. On google it does look like Psoriasis.Anyone else have this problem, and what are they using? My pharmacist has advised Epaderm which is working I think.
I have Psoaratic Arthritis and have been battling dry red scaly patches on my face. On google it does look like Psoriasis.Anyone else have this problem, and what are they using? My pharmacist has advised Epaderm which is working I think.
vonniesims
in
NRAS
8 days ago
Osteoarthritis in knee
Hello I am new on this site and would like to thank admin for letting me on here. Going back about January 2024 time my left knee started to feel a little odd at the back (ham) think this is what it's name is, anyhow about 6/8 weeks ago plucked up enough courage to see a G.P at my local doctors, a
Hello I am new on this site and would like to thank admin for letting me on here. Going back about January 2024 time my left knee started to feel a little odd at the back (ham) think this is what it's name is, anyhow about 6/8 weeks ago plucked up enough courage to see a G.P at my local doctors, a
completely-zero654
in
Couch to 5K
9 days ago
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Are you a parent with Inflammatory Arthritis?
Having inflammatory arthritis can be hard, add to this the ‘joys’ of raising children and the challenges can begin to pile up. As a parent with IA, it can get frustrating, and you aren’t alone if you feel this way. We’d love to have you join our Parenting with IA meeting, a safe space for you to laugh
Having inflammatory arthritis can be hard, add to this the ‘joys’ of raising children and the challenges can begin to pile up. As a parent with IA, it can get frustrating, and you aren’t alone if you feel this way. We’d love to have you join our Parenting with IA meeting, a safe space for you to laugh
karenf-NRAS
Administrator
in
NRAS
11 days ago
Webinar - Navigating Arthritis: The Young Adult Perspective
Please join our next webinar Navigating Arthritis: The Young Adult Perspective, where we will discuss what it’s like to live with arthritis at a younger age. From navigating symptoms, looking after physical and emotional health, socialising and managing relationships, to taking control of medical appointments
Please join our next webinar Navigating Arthritis: The Young Adult Perspective, where we will discuss what it’s like to live with arthritis at a younger age. From navigating symptoms, looking after physical and emotional health, socialising and managing relationships, to taking control of medical appointments
arthritis_action
Partner
in
Arthritis Action
11 days ago
Steroid reduction
Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood test last week and was told normal . Don't know what normal is as the past few days had pain in shoulders hips and lower back. I also have osteoarthritis in most joints so wondering if it's that that is causing all the pain
Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood test last week and was told normal . Don't know what normal is as the past few days had pain in shoulders hips and lower back. I also have osteoarthritis in most joints so wondering if it's that that is causing all the pain
kathyrob
in
PMRGCAuk
12 days ago
Lady Julia
Hi there I was diagnosed with osteoarthritis and fibromyalgia 7years ago. I live alone with no support. Am finding it hard to cope at the moment with the relentless pain and ability to move around. Have tried everything.nothing has worked. It's only my cats that keep me going I just can't bear to let
Hi there I was diagnosed with osteoarthritis and fibromyalgia 7years ago. I live alone with no support. Am finding it hard to cope at the moment with the relentless pain and ability to move around. Have tried everything.nothing has worked. It's only my cats that keep me going I just can't bear to let
ladyjulia
in
Fibromyalgia Action UK
16 days ago
ACID REFLUX-ARTHRITIS
I rarely get time to read or comment on posts here ...but this morning I have and have been struck by the number of us who suffer from Acid Reflux ... Is this a chicken/egg situation ? do we get acid reflux as another sideline to Arthritis or is it caused by medication ? those of us with reflux issues
I rarely get time to read or comment on posts here ...but this morning I have and have been struck by the number of us who suffer from Acid Reflux ... Is this a chicken/egg situation ? do we get acid reflux as another sideline to Arthritis or is it caused by medication ? those of us with reflux issues
RUSTY750
in
NRAS
22 days ago
I would like information on Leflunomide 10mg daily the side effects etc as my consultant has recommended this medication
I have recently been diagnosed with G.C.A / Polymyalgia / Pulmonary Embolism/ Osteoarthritis Basically I would like more information on what is considered a relapse when trying to reduce prednisolone Also is anyone taking Leflunomide 10mgs daily and have you had any side effects
I have recently been diagnosed with G.C.A / Polymyalgia / Pulmonary Embolism/ Osteoarthritis Basically I would like more information on what is considered a relapse when trying to reduce prednisolone Also is anyone taking Leflunomide 10mgs daily and have you had any side effects
135Barney7
in
PMRGCAuk
25 days ago
night cramps
Hi everyone, I’m new on this forum. I was diagnosed with Rheumatoid Arthritis 3 years ago, in the family genes!, I’m currently on Methotrexate (25mg). Seem to be ok until about 2 weeks ago when I started to experience severe night cramps in my legs and feet. My consultant tells me it wasn’t a symptom
Hi everyone, I’m new on this forum. I was diagnosed with Rheumatoid Arthritis 3 years ago, in the family genes!, I’m currently on Methotrexate (25mg). Seem to be ok until about 2 weeks ago when I started to experience severe night cramps in my legs and feet. My consultant tells me it wasn’t a symptom
sussiewong22
in
NRAS
26 days ago
What is an Osteoarthritis flare?
I have been suffering from a painful knee/leg for a few days, bad enough to make me hobble and far more painful after sitting for a few hours. It gradually got worse over 3 days then yesterday, while walking in my house, something seemed to give and it was agony to walk - I could not put any weight on
I have been suffering from a painful knee/leg for a few days, bad enough to make me hobble and far more painful after sitting for a few hours. It gradually got worse over 3 days then yesterday, while walking in my house, something seemed to give and it was agony to walk - I could not put any weight on
Loobs39
in
Arthritis Action
27 days ago
PMR or arthritis?
I was diagnosed with PMR a few years ago and have gone through the process of taking 15mg prednisolone and then reducing- now stuck at 6mg and have tried a few times to drop a bit without success. About three or four months ago I began to have a very tight lower back and this became sciatic pain for
I was diagnosed with PMR a few years ago and have gone through the process of taking 15mg prednisolone and then reducing- now stuck at 6mg and have tried a few times to drop a bit without success. About three or four months ago I began to have a very tight lower back and this became sciatic pain for
Jackie_boy
in
PMRGCAuk
29 days ago
smith-antibody
I suffer with fibromyalgia osteoarthritis and now im now positive to SMITH-ANTIBODY. Anybody know what is ?
I suffer with fibromyalgia osteoarthritis and now im now positive to SMITH-ANTIBODY. Anybody know what is ?
Phgc
in
Fibromyalgia Action UK
1 month ago
Rheumy Nurse?
I am puzzled. This site has many references to apparent support teams. I am delighted if that is general. For myself the only contact with the NHS I have is my GP. It is alleged that there is a very overdue appointment with a consultant. Maybe I shall be able to elicit information about some kind
I am puzzled. This site has many references to apparent support teams. I am delighted if that is general. For myself the only contact with the NHS I have is my GP. It is alleged that there is a very overdue appointment with a consultant. Maybe I shall be able to elicit information about some kind
Colaba
in
NRAS
1 month ago
Breathing issues
Good afternoon, I wonder if any of you have experienced this? Approximately year ago I started having breathing problems, only when walking and within a few minutes of sitting down, I was OK again. I eventually i saw my gp, had an ecg, then heart scan etc and was told I had arterial fibulation. Been
Good afternoon, I wonder if any of you have experienced this? Approximately year ago I started having breathing problems, only when walking and within a few minutes of sitting down, I was OK again. I eventually i saw my gp, had an ecg, then heart scan etc and was told I had arterial fibulation. Been
Strider68
in
PMRGCAuk
1 month ago
Hello
I have been reading posts on here for quite a while now. I had Polymyalgia for about 11 years until PET scan showed no inflammation. It was then decided with all the pain and fatigue that I have…. Fibromyalgia. I cannot tolerate meds have tried the usual ones, I am still on 5 mg steroid, frightened to
I have been reading posts on here for quite a while now. I had Polymyalgia for about 11 years until PET scan showed no inflammation. It was then decided with all the pain and fatigue that I have…. Fibromyalgia. I cannot tolerate meds have tried the usual ones, I am still on 5 mg steroid, frightened to
Longtimer
in
Fibromyalgia Action UK
1 month ago
PMR or Arthritis
Have posted few times before started PMR journey Oct 2016, now tapering to 4 mgs pred, I am now 76 yrs old, have had a lot of traumas through last few years bit my question is, many people talk about painful parts of body, wrists, neck, back , hips etc , through years in many cases, but can all these
Have posted few times before started PMR journey Oct 2016, now tapering to 4 mgs pred, I am now 76 yrs old, have had a lot of traumas through last few years bit my question is, many people talk about painful parts of body, wrists, neck, back , hips etc , through years in many cases, but can all these
arvine
in
PMRGCAuk
1 month ago
Recently diagnosed fibromyalgia
Hi all, after 6 years of test after test I'm newly diagnosed the fibromyalgia, which given the amount of pain and fact I can't walk more than a few paces without pain and developing a limp, I'm finding hard to accept. I do have osteoarthritis but my consultant said the level of pain I'm experiencing
Hi all, after 6 years of test after test I'm newly diagnosed the fibromyalgia, which given the amount of pain and fact I can't walk more than a few paces without pain and developing a limp, I'm finding hard to accept. I do have osteoarthritis but my consultant said the level of pain I'm experiencing
Feelinruff
in
Fibromyalgia Action UK
1 month ago
Mrs Judy Jowers
Our daughter has had RA for many years and I have always said I wish it were me rather than her with the condition. Now I have joined her in being diagnosed with inflammatory arthritis and am just beginning to appreciate the impact it has on life! I have been fortunate in being quickly assessed and
Our daughter has had RA for many years and I have always said I wish it were me rather than her with the condition. Now I have joined her in being diagnosed with inflammatory arthritis and am just beginning to appreciate the impact it has on life! I have been fortunate in being quickly assessed and
Tiapurple
in
NRAS
1 month ago
Methotrexate and antibiotics
For anyone on methotrexate (presently or in the past), if you've had infections what antibiotics have you been prescribed? My sister has a UTI (symptoms only started today) but she took her methotrexate last night (she has rheumatoid arthritis so will also post on that site), and she's been prescribed
For anyone on methotrexate (presently or in the past), if you've had infections what antibiotics have you been prescribed? My sister has a UTI (symptoms only started today) but she took her methotrexate last night (she has rheumatoid arthritis so will also post on that site), and she's been prescribed
Grizzly-bear
in
Vasculitis UK
2 months ago
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